Peaches Womb Cancer Trust Annual Report and Accounts 2020-2021
Registered Charity Number: 1190440
Table of Contents
Trustees’ Report ............................................................................................. 3 Achievements ....................................................................................................... 3 Structure, Governance and Management ........................................................ 5 Charitable Objects ................................................................................................. 5 Management Structure ........................................................................................... 6 Financial Statement ........................................................................................ 9 Independent Examiner's Report ………………………………………………………………….13 Financial Review ........................................................................................... 14 Risk Management ......................................................................................... 14 Plans for 2021-2022 ...................................................................................... 15 Patient Support ..................................................................................................................... 15 Raising Awareness ................................................................................................................ 15 Advocacy ............................................................................................................................... 15 Promoting Research .............................................................................................................. 15 Organisation ......................................................................................................................... 16 Reference and Administrative Details: Acknowledgements ........................... 17
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Trustees’ Report 2020-2021
In early 2020, a group of doctors from Saint Mary’s Hospital in Manchester, all with a special interest in womb cancer and research realised that there was no charity dedicated to womb cancer or its research and that there was a great unmet need. Womb cancer is the fourth most common cancer in women, affecting nearly 10,000 women every year in the UK and the numbers are rising. And yet, very few women have heard of womb cancer or know what it is. Additionally, research into womb cancer has long been under-funded compared to other gynaecological cancers such as ovarian and cervical and yet it is more common than them.
In September 2020, Peaches Womb Cancer Trust was established by Professor Emma Crosbie, Dr Eleanor Jones, Dr Chloe Barr, Dr Helen Clarke, Dr Helena O’Flynn and Mrs Rosemary Pike, with the aim of improving the lives of those affected by womb cancer by raising awareness, supporting patients and promoting and funding research. The name comes from the peach-coloured ribbon that represents womb cancer and was inspired by the fact that a group of survivors refer to themselves as “Peach Sisters”.
This is our first annual report, and what an extraordinary first year Peaches Womb Cancer Trust has had. Starting up a charity during a world-wide pandemic has thrown up challenges no one could anticipate, however, this has led us to be innovative, creative and flexible in order to raise our profile, our funds and how we fulfil our charitable aims to help those with womb cancer. Virtual meetings and events and remote fundraising have become the new normal, and this year has shown us that we can successfully adapt.
Achievements in our first year
Patient Support and Raising Awareness
Our website, launched in September 2020, contains reliable, up-to-date information for patients. We have a presence across all major social media channels to update our supporters on events that we are hosting and aim to spread the message about womb cancer and its symptoms.
Our first event was held in September 2020 when we hosted a live Q&A on Instagram with Professor of Gynae-oncology and Trustee of Peaches Womb Cancer Trust, Professor Emma Crosbie, focusing on the symptoms and diagnosis of womb cancer. Following this, in May 2021 we held our first virtual awareness event: “Peaches Womb Cancer Trust: My Womb Cancer Story”. During this event, one of our supporters, Sally Spencer, shared her womb cancer journey which allowed us to include educational slides around treatment and have a Q&A session. This has inspired “Peaches Patient Stories”, where others have shared their own womb cancer journey in the hope that it might be of some comfort and support to readers, as well as increasing awareness. A huge thank you to those women who have shared their experiences, your unique stories and poems will help others feel less alone.
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Promoting research
We are proud to have supported two early career researchers to present their work at scientific conferences. Dr Mark Brincat was awarded the Peaches Womb Cancer Trust Blair Bell Bursary 2021 and Olivia Jones, a third-year medical student, presented her work at the International Gynaecologic Cancer Society Global Meeting in August 2021.
Advocating for womb cancer
We were invited to review and provide opinion on the National Institute of Health and Care Excellence (NICE) Consultation: “Dostarlimab for previously treated advanced or recurrent endometrial cancer with high microsatellite instability or mismatch repair deficiency [ID3802]”. We hope that this medication will be approved by NICE in the coming year to give more treatment options to those with advanced or recurrent endometrial cancer.
Earlier in the year, the UK Government made a call for public views to help inform and develop their Women’s Health Strategy with the aim to identify the health care needs of women to improve women’s health care throughout their lives. We supported and circulated this on social media to give our followers a chance to have their voices heard – thank you to all who took part.
A huge thank you
We could not undertake any of our work without the generous donations and hard work of our supporters. Our fundraisers were creative during the pandemic and raised a huge amount of money. We would like to say a massive thank you to all who have held fundraising events and activities.
A special thank you must go to Womb Cancer Awareness and Womb Cancer Support UK. Womb Cancer Awareness have worked tirelessly to raise awareness of womb cancer and an astounding amount of money has been raised in aid of Peaches Womb Cancer Trust. We are very grateful for Sally and Sarah’s hard work and support. Kaz Molloy from Womb Cancer Support UK has done an amazing job of supporting patients over many years, which she continues to do, whilst also championing us at Peaches. Womb Cancer Support UK also donated an amazing sum of money that they had raised to us, which has made a massive difference.
Thank you to all the Trustees who have worked hard over the last year to build the charity, to the volunteers who have helped us enormously to make our first year a success, and to our supporters who continue to donate, fundraise and attend our events.
We are delighted by the success that Peaches has had in its first year and are looking forward to a very bright future for the charity and all of those affected by womb cancer.
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Structure, Governance and Management
Peaches Womb Cancer Trust is registered with the Charity Commission no: 1190440. It was established on 16[th] July 2020 and officially launched on 1[st] September 2020. This is the first set of accounts the charity has prepared and this set of accounts covers the period from 16[th] July 2020 to 1[st] September 2021.
Charitable Objects
The objectives, as set out in the governing document are:
“To relieve sickness and to preserve the health and improve the experience of women with or at risk of womb cancer and their families in the United Kingdom, in particular but not exclusively by; carrying out research, raising awareness and the provision of patient education and support services.”
From 1[st] April 2018, the Charities Act requires that all charities ensure they meet their charitable objectives and that these are for the public benefit. The Charity Commission in its “Charities and Public Benefit” Guidance states that there are two key principles that must be met:
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There must be an identifiable benefit
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The benefit must be for the public or a section of the public.
The Trustees have paid due regard to guidance issued by the Charity Commission in deciding what activities the charity should undertake. The Trustees are satisfied that the aims and objectives of the charity and the activities reported on in this Annual Report meet these principles.
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Management Structure
The Charity is run by a Board of six Trustees, who together founded Peaches Womb Cancer Trust. They are:
Professor Emma Crosbie, Chair of Trustees
Professor Crosbie is Professor of Gynaecological Oncology at the University of Manchester and consultant gynaecological surgeon at St Mary’s Hospital. Her clinical practice focuses on the fertility-sparing management of endometrial cancer and its precursor lesion, atypical hyperplasia. Her research into the prevention and early detection of womb cancer was recognised through a prestigious National Institute for Health Research (NIHR) Clinician Scientist Fellowship award in 2013 and the Royal College of Obstetricians and Gynaecologists William Blair Bell Memorial Lectureship in 2017. She led the James Lind Womb Cancer Alliance Priority Setting Partnership that identified the top ten most important unanswered research questions in womb cancer, according to patients, carers and healthcare professionals. She is Chair of the Endometrial Subgroup of the National Cancer Research Institute (NCRI) Gynaecology Group, a member of the NCRI Screening, Prevention and Early Diagnosis (SPED) committee, and Early Detection Lead for the Manchester NIHR Biomedical Research Centre. Her research team ‘Team Womb’, won the NCRI Cancer Research Excellence in Surgical Trials (CREST) award in 2019 for outstanding recruitment to surgical trials.
Professor Crosbie is a busy mum of three who leads a diverse team of enthusiastic scientists and doctors who strive to carry out high quality research that improves the care of women affected by womb cancer. #wombwarriors.
Dr Chloe Barr
Dr Barr is a Specialist Registrar in Obstetrics and Gynaecology currently undertaking a PhD at the University of Manchester investigating novel diagnostic and prognostic biomarkers for gynaecological malignancy. In 2010, she graduated from the University of Liverpool with MBChB honours and commenced the Obstetrics and Gynaecology specialist training programme in 2013. In 2018, she joined the clinical research team at St. Mary’s Hospital Manchester, where, in addition to her research, she works clinically looking after and treating women with gynaecological cancers.
She works for Professor Crosbie treating and monitoring women with womb cancer who are unable to undergo surgical treatment, either due to fertility reasons or other medical issues. Her experience as a clinician and researcher has made her passionate about improving services for women with womb cancer, including early detection, prevention and personalised treatment. This inspired her to be a part of the founding team of Peaches Womb Cancer Trust, a charity dedicated to raising awareness about womb cancer and funding ground breaking womb cancer research.
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Dr Eleanor Jones
Dr Jones is a Specialist Registrar in Obstetrics and Gynaecology, currently working as a Clinical Research Fellow in Gynaecological Oncology, in the final year of a PhD at the University investigating the early diagnosis of endometrial cancer and how it can be improved. She undertook her medical training at the University of St Andrews (BSc) and then the University of Manchester (MBChB), graduating in 2013. She started specialist training in Obstetrics and Gynaecology in 2015 and came out of her training programme in 2018 to join Professor Crosbie’s research team. Eleanor’s long-term aim is to have a career as a Gynaecological Oncologist.
Dr Helen Clarke
Dr Clarke studied medicine at Keele University following completion of an undergraduate BSc in Biomedical Science at De Montfort University, Leicester in 2007. She commenced her specialist training in Obstetrics and Gynaecology in 2014 within the Mersey region. In 2016 she was awarded an £18,000 entry level research scholarship from the Wellbeing of Women for research based at University of Liverpool. In 2019 she became a Cancer Research UK Clinical Research Fellow and commenced her PhD at the University of Manchester with Professor Crosbie and Dr Sacha Howell (Christie Hospital, Manchester) developing a clinical trial for cancer risk reduction in both endometrial and breast cancer, using dietary interventions.
Dr Helena O’Flynn
Dr O’Flynn is a General Practitioner working in Manchester following the completion of an Academic Clinical Fellowship training programme and a Masters in Public Health. She has an interest in the early detection of gynaecological cancers in Primary Care and women’s health. She graduated from medical school at the University of Manchester and was subsequently awarded an NIHR Doctoral Research Fellowship in 2018 and is undertaking a PhD at the University of Manchester investigating methods of early detection of endometrial cancer as well as awareness of symptoms of endometrial cancer.
Mrs Rosemary Pike
Rosemary is a trustee of Peaches Womb Cancer Trust and is a non-medical member of the team. She is a retired solicitor and was a magistrate for 18 years. Over the years she has been involved in a number of charities, with one of her longstanding roles as a trustee of a large North West children’s charity.
Employees
The Charity has had no employees this year.
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Volunteers
Mrs Anne Lowry
Anne is a Macmillan Gynaecology Clinical Nurse Specialist at St Mary’s Hospital in Manchester. Anne qualified as a nurse and graduated from the University of Northumbria with BSc (Hons) in Nursing Studies in 1997. She has worked within the speciality of gynaecology for most of her career in a variety of roles before becoming a nurse specialist in 2007. This nurse specialist role allows Anne to support women and their families who are affected by gynaecological cancers.
Anne has always had an interest in womb cancer. She completed her MSc in Nursing Studies in 2019 with distinction and focused the modules of this degree towards learning more about the experiences of women with womb cancer and how best to support them. She has also been involved in health promotion events to raise the profile of womb cancer and is very aware through this work that a national charity like Peaches Womb Cancer Trust has a big part to play in improving the outcomes for women with this disease.
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Financial Statement
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EXAMINED AND FOUND CORRECT, SIGNED ON BEHALF OF THE BOARD OF TRUSTEES:
CHLOE BARR, Hon Examiner
22[nd] June 2022
ELEANOR JONES, Hon Treasurer
22[nd] June 2022
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Independent Examiner's Report PEAaiES WOMB CANCER TRusr INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF PEACHES WOMB CANCER TRusr 1021, • sEt aut 9 ID 11 OD apply. It b nry rwrWiy to: 1w Sed 14y5Hb) d the awts 14 2011 {•) P•ui ACA a*rk• N6th1kn LLP aark• Ni(klin •IDUS• t)knJ." 21° ju 2022 13
Financial Review
The accounts have been prepared in accordance with the accounting policies set out in note 1 to the accounts and comply with the charity's governing document, the Charities Act 2011 and the Statement of Recommended Practice, "Accounting and Reporting by Charities", issued in March 2005.
As shown in the Statement of Accounts, Peaches Womb Cancer Trust’s income for this first year has been entirely from donations through different streams. All of this is unrestricted. Funds have been spent on the set-up costs of the charity and procuring merchandise to support fundraising efforts.
In order for Peaches Womb Cancer Trust to grow and to further its aims and objectives, more manpower in the form of both volunteers and employees is needed. Our primary focus for the coming financial year is obtain sufficient resources to fund our first employee. Therefore, the bulk of the income we have received has not yet been spent as it is being saved for this purpose. Our secondary financial focus is to fund both an awareness campaign and significant research projects, both of which are extremely costly. Therefore, once an employee is in post, we will use future surplus as dedicated reserves to be saved for these purposes.
Risk Management
The trustees have assessed the major risks to which the charity is exposed, and are satisfied that systems are in place to mitigate exposure to the major risks.
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Plans for 2021-2022
Patient Support
We will continue to update our website and social media channels with high-quality, accurate and relevant information for patients.
We will host patient information events, beginning with our “Living Well with Womb Cancer” event in September 2021 to mark Womb Cancer Awareness Month. This will feature talks from experts in nutrition, psychology, pelvic physiotherapy and sexual function and the personal journey of one of our supporters. We hope that this event will give those who have had or are currently receiving treatment up-to-date and expert advice on recovery and wellness that will help them in their journey.
We also plan to start hosting virtual “Coffee Morning” support sessions to connect patients to others who are going through similar experiences for mutual support.
Raising Awareness
We plan to work with large companies to offer employee educational talks on womb cancer to raise awareness of the risk factors, early symptoms and diagnosis. We have been invited to speak to the UK employees of GlaxoSmithKline (GSK) in September 2021 and Addleshaw Goddard LLP in December 2021.
Advocacy
We will continue to advocate for womb cancer patients and their loved ones on a national level to #GiveWombCancerAVoice.
Promoting Research
In Autumn 2021 we plan to launch Peaches Patient Voices, a group of people with lived experience of womb cancer who are keen to be involved in research. We will connect the group to researchers looking for patient and public involvement in their work. We hope that doing this will promote the womb cancer research that is going on and ensure that research it is focused on the needs of patients.
We will continue to offer research bursaries to early career researchers presenting their work into womb cancer at conferences to support the future of womb cancer research. Our long-term goal is to fund significant research projects with tangible outcomes, however these are very costly. We will start a fund that will grow over the coming years to allow us to do this in the future.
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Organisation
Volunteers
We look forward to welcoming three new volunteers to the Peaches Team:
Mrs Helen White, a patient volunteer, has kindly offered to help us to establish the Peaches Patient Voices group. We know that the personal experience she will bring to Peaches will be a huge asset and will ensure that we remain focused on what is most important to patients.
Miss Lilly Pinggera has offered to run our social media channels and to help us with the production of promotional materials. This will allow us to post more regular content, to increase our engagement and to ensure consistency with our styling.
We are delighted that Mrs Harriet Hirst has offered to help us as our website developer. This will ensure that our website is kept up-to-date and will mean that our precious resources can be spent on what matters most to our supporters.
We are very grateful to all of our new volunteers for their assistance and we look forward to working with them in the coming year.
Trustees
We will look to diversify our Board over the next year in order to bring in a wider skillset and different experiences.
Employees
Peaches Womb Cancer Trust is currently run entirely by volunteers who all work full time, so Peaches work is being done in our spare time. In order to grow Peaches and to fulfil its aims, we need paid employees whose time can be dedicated to this. Our aim in the coming year is to generate sufficient funds that we can recruit our first Peaches employee. We hope to have an employee in post by the Autumn of 2022.
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Reference and Administrative Details: Acknowledgements
Peaches Womb Cancer Trust is an independent charitable Trust.
Registered Charity (England and Wales) no. 1190440.
Our registered address is: Peaches Womb Cancer Trust, Clarke Nicklin House, 4 Brooks Drive, Cheadle Royal Business Park, Cheadle, Cheshire, SK8 3TD
Governing Document
Accountants: Clarke Nicklin Clarke Nicklin House 4 Brooks Drive Cheadle Royal Business Park Cheadle Cheshire SK8 3TD
Solicitors:
Addleshaw Goddard LLP Milton Gate 60 Chiswell Street London EC1Y 4AG
Bankers:
CAF Bank 25 Kings Hill Avenue Kings Hill West Malling Kent ME19 4JQ
www.peachestrust.org Email: admin@peachestrust.org
Instagram: @peaches_trust Facebook: Peaches Womb Cancer Trust. Twitter: @peachestrust
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