# H-ABC FOUNDATION UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1190390
- **Status:** Registered
- **Legal form:** Other
- **Registered:** July 13, 2020
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1190390


## Contact

- **Address:** 15 Belle Vue Road, WARE, Hertfordshire
- **Postcode:** SG12 7BD
- **Phone:** 07961 179548
- **Email:** amy@habcfoundationuk.co.uk
- **Website:** www.habcfoundationuk.co.uk



## Activities

**Objects:** 1.TO RELIEVE THE NEEDS OF HYPOMYELINATION WITH ATROPHY OF BASAL GANGLIA AND CEREBELLUM (H-ABC)SUFFERERS AND THEIR FAMILIES IN PARTICULAR, BUT NOT EXCLUSIVELY,BY: - A)PROVIDING HELP, SUPPORT AND ADVICE TO FAMILIES FROM OUR OWN EXPERIENCE.B)PROMOTING AWARENESS AND UNDERSTANDING OF HYPOMYELINATION WITH ATROPHY OF BASAL GANGLIA AND CEREBELLUM (H-ABC)C)SUPPORTING RESEARCH THAT IS DEDICATED TO HYPOMYELINATION WITH ATROPHY OF BASAL GANGLIA AND CEREBELLUM (H-ABC), THE USEFUL RESULTS OF WHICH SHALL BE PUBLISHED

**Activities:** H-abc Foundation UK aims to raise awareness of the rare disease H-abc, fund research into a cure and treatment and support families that have received a diagnosis.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Geography

- United States
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Alan Yuk Lun Tang** | Chair | Oct. 2, 2019 |
| Alison Esme Candy-Waters |  | June 1, 2021 |
| Amy Sheridan-Hill |  | Oct. 2, 2019 |
| Dr Michelle Teng |  | Oct. 2, 2019 |
| Gregory Hill |  | Oct. 2, 2019 |




