## **Trustees’ Annual Report for the period**
**From March 2023 start date To Dec. 2023, Period end date**
## **Charity registration number: 1190022**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|The relief of poverty for the public benefit in
any part of the world through the provision of
advice, support, grant, equipment, treatment,
and care to those that suffers from
osteogenesis Imperfecta.|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or services
identified in the accounts.|Para 1.17 and
1.19|Educating the public, medical professionals
on the conditions through seminars,
conferences and raise awareness on brittle
bone condition.|
|Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|Yes, the trustees confirm this.|
## **Additional information (optional)**
You may choose to include further statements where relevant about:
SORP reference Policy on grant making Para 1.38 Policy on social investment Para 1.38 including program related investment Contribution made by Para 1.38 volunteers Other
## **Achievements and Performance**
SORP reference
|Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|Our event Balancing Life with OI
focuses on "Surgery & Treatment"
Celebrating Wishbone Day. 2023.
The event aimed at calling all African
OI organizations together with the
purpose of support, collaboration,
and networking within African and
Western OI groups/organizations for a
reasonable cause of life and
treatment action in Africa and across
the globe for Oiers.
Our main speaker Dr. Adolfredo
Santana a Pediatric Orthopedic
Surgeon, Doctor in Medicine (M.D.) J.
M Vargas School of Medicine. The
Central University of Venezuela.
Caracas, Venezuela.
We were also honoured to have the
President of the Osteogenesis
Imperfecta Federation Europe, Ingunn
Westerheim who was also a speaker
at the event, and Dagma Mekking,
Director, Care4brittlebone,
Netherlands.
The event was very focused on oi
corrective surgery, it was very
informative and engaging as Dr
Adolfredo Santana took us on a ride in
a transformational world of wonder in
an oi surgical theatre.
We also carried fundraising event
both physically event, webinars and
on social media as we fundraised to
support Oi Nigerian children the
required corrective surgery.
We also raised awareness
programmes on several occasions
both on social media etc of which we
were contacted byfewpeople who|
|---|---|---|
had oi and we were able to channel them the right direction for help. Over 200 women from the UK and different African countries benefited from our women’s programme this year as we held women only meeting, talking about “self-care, “My Me Time” taking care of your mental health as it relates to carers. women and female carers and many oi children benefited for treatment of bisphosphonate outside the UK, including training a few African doctors on Oi and treatment across Africa. African OI organizations came together to celebrate the international Wishbone Day, this has brought Oi people closer, relating together. It has also fostered good relationship among oi’ers across the globe which has also impacted positively to their mental health. We have also held programmes on mental health, support oiers and non oiers with information and directing them to the right root for further help and support. We support OI organisation in Nigeria to organise and planed Oi corrective surgery, professional training and oi international conference in Nigeria. Two persons with oi had their corrective surgery and 12 others where clinically assessed and supported with bisphosphonate medication. 8 different medical professionals where also trained during the surgery.
We are supported 5 mothers with oi children to start some clothing business which were all donated by different individuals here in the UK.
## **Additional information (optional)**
|**Additional information (optional)**|**Additional information (optional)**||
|---|---|---|
|You may choose to include further statements||where relevant about:|
|Achievements against
objectives set|Para 1.41|**Our goal met**|
|Performance of fundraising
activities against objectives
set|Para 1.41|**Goals and target met**|
|Investment performance
against objectives|Para 1.41||
|Other|||
## **Financial Review**
|**Financial Review**|||
|---|---|---|
|Review of the charity’s
financial position at the end
of the period|Para 1.21|We have received funds from the public and
at this moment time we have in our account
£360.36|
|Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|The policy is to hold 3 months’ worth of
expenditure as reserves|
|Amount of reserves held|Para 1.22|£**360.36**|
|Reasons for holding zero
reserves|Para 1.22||
|Details of fund materially in
deficit|Para 1.24|N/A|
|Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|Post Covid pandemic|
|**Additional information (optional)**
You may choose to include further statements|**Additional information (optional)**
You may choose to include further statements|where relevant about:|
|---|---|---|
|The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|Personal and individual donation|
|Investment policy and
objectives including any
social investment policy
adopted|Para 1.46||
|A description of the principal
risks facing the charity|Para 1.46||
|Other|||
## **Structure, Governance and Management**
|Description of charity’s
trusts:|||
|---|---|---|
|Type of governing document
(trust deed, royal charter)|Para 1.25|Constitution|
|How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|CIO|
|Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Appointed by trustees|
|**Additional information (optional)**
You may choose to include further statements||where relevant about:|
|Policies and procedures
adopted for the induction and
training of trustees||**Safeguarding,**
**First aid**|
|The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51||
|Relationship with any related
parties|Para 1.51||
|Other|||
## **Reference and Administrative details**
|Charity name|Osteogenesis Imperfecta Foundation Network|
|---|---|
|Other name the charity uses|OIFN|
|Registered charity number|1190022|
|Charity’s principal address|74, Ladies Grove, St Albans, Herts, AL3 5TW|
|||
## **Names of the charity trustees who manage the charity**
|1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Name of person (or body) entitled**
**to appoint trustee (if any)**|
|---|---|---|---|---|
||Louise Adeleke|Chair|For the wholeyear||
||Mabel Okafor|Treasurer|For the wholeyear||
||Caroline Harrigan|Sec|For the wholeyear||
||Maureen
Whitehead|Trustee|For the whole year||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
– Corporate trustees names of the directors at the date the report was approved
**Director name**
Name of trustees holding title to property belonging to the charity
|**Trustee name**|**Dates acted if not for whole year **||
|---|---|---|
|**N/A**|||
||||
||||
||||
||||
||||
## **Funds held as custodian trustees on behalf of others**
Description of the assets N/A held in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets
## **Additional information (optional)**
## **Names and addresses of advisers (Optional information)**
**Type of Name Address adviser**
## **Name of chief executive or names of senior staff members (Optional information)**
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
**N/A**
## **Other optional information**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s)** Tarela Aghanti **Full name(s)** Tarela Aghanti **Position (eg Secretary,** Chair **Chair, etc) Date** 19/04/2022
||**OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK.**
**STATEMENT OF INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR-END**
**DECEMBER. 2023**|**OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK.**
**STATEMENT OF INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR-END**
**DECEMBER. 2023**|**OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK.**
**STATEMENT OF INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR-END**
**DECEMBER. 2023**|**OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK.**
**STATEMENT OF INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR-END**
**DECEMBER. 2023**|**OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK.**
**STATEMENT OF INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR-END**
**DECEMBER. 2023**|
|---|---|---|---|---|---|
|**DATE**|**ACTIVITY**|**INCOME**|**EXPENDITURE**|**NET INCOME**|**CUMULATIVE**
**BALANCE**|
|**01-**
**Mar-23**||**£**|**£**|**£**|**£**|
|02-
Mar-23|**B/F**||||**360.36**|
|03-
Mar-23|ST ALBANS|271.5||271.5|631.86|
|06-
Mar-23|STEPHEN
GRIFFITHS|50||50|681.86|
|20-
Mar-23|PAYPAL|507.49||507.49|1,189.35|
|23-
Mar-23|MABEL IRORO
OKAFOR||260|-260|929.35|
|27-
Mar-23|PAYPAL|96.8||96.8|1,026.15|
|27-
Mar-23|MARVEL||600|-600|426.15|
|29-
Mar-23|GEORGE ST
LUTOON|118.48||118.48|544.63|
|29-
Mar-23|JULIET
MAKHAPLIA||150|-150|394.63|
|29-
Mar-23|MAB OKAFOR||100|-100|294.63|
|05-Apr-
23|ST ALBANS SSTN||32.04|-32.04|262.59|
|10-
May-23|LNK METRO||250|-250|12.59|
|15-
May-23|ZOOM US||15.59|-15.59|-3.00|
|12-Jun-
23|TARELA DORAH|20||20|17.00|
|20-Jun-
23|ZOOM US||15.59|-15.59|1.41|
|29-Jun-
23|CHEQUE
DEPOSIT LOYD|19.42||19.42|20.83|
|---|---|---|---|---|---|
|10-Jul-
23|CHEQUE
DEPOSIT LOYD|75.5||75.5|96.33|
|17-Jul-
23|ZOOM US||15.59|-15.59|80.74|
|21-Jul-
23|ST ALBANS
CONNE||25.14|-25.14|55.60|
|24-Jul-
23|BGC MAIN
GRANTS|9,991.00||9,991.00|10,046.60|
|31-Jul-
23|TSGN||15.8|-15.8|10,030.80|
|31-Jul-
23|SAINSBUURY'S
MKT||145|-145|9,885.80|
|02-
Aug-23|MR RIZWAN
ASHRAF||550|-550|9,335.80|
|03-
Aug-23|MABG
MANAGEMENT||500|-500|8,835.80|
|04-
Aug-23|AMZNMKT
PLACE||100.98|-100.98|8,734.82|
|04-
Aug-23|CHEQUE
DEPOSIT LOYD|91.4||91.4|8,826.22|
|10-
Aug-23|AMZNMKT
PLACE||559|-559|8,267.22|
|14-
Aug-23|ZOOM US||15.59|-15.59|8,251.63|
|14-
Aug-23|INNOVATE I PAY
LTD||55.07|-55.07|8,196.56|
|14-
Aug-23|NON-GBP TRANS
FEE||1.51|-1.51|8,195.05|
|14-
Aug-23|INNOVATE I PAY
LTD||126.31|-126.31|8,068.74|
|14-
Aug-23|NON-GBP TRANS
FEE||3.47|-3.47|8,065.27|
|14-
Aug-23|AMZNMKTPLACE||31.59|-31.59|8,033.68|
|16-
Aug-23|AMZNMKTPLACE||99.95|-99.95|7,933.73|
|---|---|---|---|---|---|
|16-
Aug-23|PAYPAL
PAYMENT||200|-200|7,733.73|
|16-
Aug-23|FGN-
IMMIGRATION-
NE||126.84|-126.84|7,606.89|
|16-
Aug-23|NON-GBP TRANS
FEE||3.48|-3.48|7,603.41|
|16-
Aug-23|FGN-
IMMIGRATION-
NE||126.84|-126.84|7,476.57|
|18-
Aug-23|NON-GBP TRANS
FEE||3.48|-3.48|7,473.09|
|18-
Aug-23|EMMANUEL
OLUFEMI||576.00|-576|6,897.09|
|18-
Aug-23|GTR RAIL TICKET||36.50|-36.5|6,860.59|
|18-
Aug-23|WAGAMAMA
OLD STR||57.20|-57.2|6,803.39|
|23-
Aug-23|MULTI STAND||85.00|-85|6,718.39|
|24-
Aug-23|BGC PAYPAL
TRANSFER|200||200|6,918.39|
|25-
Aug-23|COLLINS TJ &
ANGELA
COLLINS|10||10|6,928.39|
|29-
Aug-23|AMZNMKTPLACE||39.98|-39.98|6,888.41|
|29-
Aug-23|LOYD LOYD 60
GEORG||100|-100|6,788.41|
|29-
Aug-23|TESCO-STORES-
5749||10|-10|6,778.41|
|30-
Aug-23|C POOLE POOLE|150||150|6,928.41|
|05-
Sep-23|LNK METRO
BANK||150|-150|6,778.41|
|08-
Sep-23|AMZNMKTPLACE||249.9|-249.9|6,528.51|
|11-
Sep-23|SAINSBURY
SUPERMA||20.14|-20.14|6,508.37|
|---|---|---|---|---|---|
|15-
Sep-23|ZOOM US||15.59|-15.59|6,492.78|
|18-
Sep-23|TSGN||22|-22|6,470.78|
|18-
Sep-23|EMMANUEL
OLUFEMI||288|-288|6,182.78|
|18-
Sep-23|MARGRET
ALALADE||1970|-1970|4,212.78|
|18-
Sep-23|AMZNMKTPLACE||43.98|-43.98|4,168.80|
|18-
Sep-23|AMZNMKT
PLACE||65.97|-65.97|4,102.83|
|19-
Sep-23|AMZNMKT
PLACE||21.98|-21.98|4,080.85|
|28-
Sep-23|AMZNMKT
PLACE||39.99|-39.99|4,040.86|
|02-Oct-
23|ST ALBANS SF
CONNE||20.26|-20.26|4,020.60|
|03-Oct-
23|REDBOURN
VILLAGE H||445.00|-445|3,575.60|
|05-Oct-
23|EMMANUEL
OLUFEMI||1,000.00|-
1,000.00|2,575.60|
|06-Oct-
23|INNOVATE I PAY
LTD|41.05||41.05|2,616.65|
|06-Oct-
23|NAME-
CHEAP.COM*JD||24.85|-24.85|2,591.80|
|06-Oct-
23|NON-GBP TRANS
FEE||0.68|-0.68|2,591.12|
|06-Oct-
23|NAME-
CHEAP.COM*QQ||80.36|-80.36|2,510.76|
|09-Oct-
23|NON-GBP TRANS
FEE||2.2|-2.2|2,508.56|
|09-Oct-
23|NAME-
CHEAP.COM*LY||12.52|-12.52|2,496.04|
|10-Oct-
23|NON-GBP TRANS
FEE||0.34|-0.34|2,495.70|
|---|---|---|---|---|---|
|23-Oct-
23|ZOOM US||15.59|-15.59|2,480.11|
|23-Oct-
23|MABG
MANAGEMENT
SE||1000|-1000|1,480.11|
|23-Oct-
23|ST ALBANS SSTN||25.36|-25.36|1,454.75|
|10-
Nov-23|MISS F EWENLA||545.51|-545.51|909.24|
|16-
Nov-23|ZOOM US 888-
799-96||15.59|-15.59|893.65|
|27-
Nov-23|ST ALBANS SF
CONNE||23.28|-23.28|870.37|
|27-
Nov-23|AMZNMKTPLACE||20.79|-20.79|849.58|
|27-
Nov-23|TESCO PFS 2631||21.05|-21.05|828.53|
|28-
Nov-23|AMZNMKTPLACE||31.98|-31.98|796.55|
|05-
Dec-23|SAINSBURY
S/MKTS||2.00|-2|794.55|
|11-
Dec-23|ST ALBANS SSTN||20.04|-20.04|774.51|
|13-
Dec-23|ZOOM US||15.59|-15.59|758.92|
|14-
Dec-23|CHEQUE
DEPOSIT LOYD|12.5||12.5|771.42|
|15-
Dec-23|INNOVATE I PAY
LTD|114.73||114.73|886.15|
|21-
Dec-23|ST ALBANS SSTN||21.97|-21.97|864.18|
||AMAZON
PRIME*F924M||8.99|-8.99|**855.19**|
||**TOTAL**|**11,769.87**|**11,275.04**|**494.83**||
|||||||