## **DANIELLA LOGUN FOUNDATION STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 MARCH 2021**
|**STATEMENT OF FINANCIAL**
**ACTIVITIES**
**Notes**
**Income and endowments from:**
Donations
Investments
Other income
**Total income**
**Expenditure on:**
Raising funds
Charitable activities
**Total expenditure**
**Net income before**
**gains/(losses) on investments**
Net gains/(losses) on investments
**Net movement in funds**
**Fund balances carried forward**
**at 31st March 2021**
**Fund balances brought forward at 31**
**March 2020**|**Total**
**_Total_**
**Unrestricted**
**Restricted**
**funds**
**_funds_**
**funds**
**funds**
**2021**
**_2020_**
**£**
**£**
**£**
**_£_**
**1,494**
**0**
**1,494**
0
**0**
**0**
**0**
0
**0**
**0**
**0**
0
**1,494**
**0**
**1,494**
_0_
**1,182**
**0**
**0**
_0_
**0**
**0**
**0**
_0_
**1,182**
**0**
**0**
_0_
**0**
**0**
**0**
_0_
**312**
**0**
_0_|**Total**
**_Total_**
**Unrestricted**
**Restricted**
**funds**
**_funds_**
**funds**
**funds**
**2021**
**_2020_**
**£**
**£**
**£**
**_£_**
**1,494**
**0**
**1,494**
0
**0**
**0**
**0**
0
**0**
**0**
**0**
0
**1,494**
**0**
**1,494**
_0_
**1,182**
**0**
**0**
_0_
**0**
**0**
**0**
_0_
**1,182**
**0**
**0**
_0_
**0**
**0**
**0**
_0_
**312**
**0**
_0_|**Total**
**_Total_**
**Unrestricted**
**Restricted**
**funds**
**_funds_**
**funds**
**funds**
**2021**
**_2020_**
**£**
**£**
**£**
**_£_**
**1,494**
**0**
**1,494**
0
**0**
**0**
**0**
0
**0**
**0**
**0**
0
**1,494**
**0**
**1,494**
_0_
**1,182**
**0**
**0**
_0_
**0**
**0**
**0**
_0_
**1,182**
**0**
**0**
_0_
**0**
**0**
**0**
_0_
**312**
**0**
_0_|
|---|---|---|---|
|||||
|||||
|||||
|||||
|||||
|||||
|||||
||||**312**
**0**
**1,494**
_0_|
||||**312**
**0**
**1,494**
_0_
**0**
**0**
**0**
_0_|
|||**2021**||_2020_||
|---|---|---|---|---|---|
||**Notes**|**£**||_£_||
|**FIXED ASSETS**||||||
|Property and equipment|||**0**||_0_|
|Investments|||**0**||_0_|
||||**0**||_0_|
|**CURRENT ASSETS**||||||
|Debtors|||**0**||_0_|
|Cash at bank and in hand|||**312**||_0_|
||||**312**||_0_|
|**CREDITORS:**Amounts due within one
year|||**0**||_0_|
|**NET CURRENT ASSETS**|||**312**||_0_|
|**NET ASSETS**|||**312**||_0_|
|**FUNDS OF THE CHARITY**||||||
|**RESTRICTED**|||**0**||_0_|
|**UNRESTRICTED**||||||
|- Grants|||**0**||_0_|
|- Property|||**0**||_0_|
|- Support and working capital|||**0**||_0_|
|General funds|||**312**||_0_|
|**TOTAL FUNDS**|||**312**||_0_|
|||||||
**5 Support costs are allocated on the basis of staff time and comprising the following:**
|**_2021_**
**£**
Digital image library
**120**
Digital PDF Document solution
**78**
Canva Online - Team Pro
**66**
Mobile phone Service & SIM only
**60**
Business Broadband service upgrade
**270**
Landline Number & Line Rental
**120**
Online Video conferencing
**90**
Printer Ink
**18**
Office 360
**48**
DLF My Website Essential Contract
**50**
DLF Website Builder plus-contract
**36**
DLF Pro Contract (Domani Name & Hosting)
**71**
Fuel & Mileage
**90**
DLF QR Code
**65**
**-**
**-**
**-**
**Total**
**1,182**|2020
**£**
-
-
-
-
-
-
-
-
-
-
-
-
-
-|
|---|---|
||-|
## DLF trustees report
We are the Daniella Logun Foundation (DLF)
**2. National location of principal office**
Our principal office is in England.
## **3. Objects**
The objects of our CIO are:
_**Purpose: The relief of those in need, by reason of ill-health, of children and young people with brain tumours and their families through emotional support, talking therapies and peer support for families caring for or recently bereaved through childhood brain tumours.**_
- 1). Angela Logun [for x2 consecutive 2-year terms]
- 2). Terry Logun [for x2 consecutive 2-year terms]
- 3). Cllr Heena Makwana [for x2 consecutive 2-year terms] - TERM COMPLETED & STEPPED DOWN 29 JANUARY 2022 4). Louise Young [for x2 consecutive 2-year terms]
- 5) Richa Ajitsaria__ [for x2 consecutive 2-year terms](4) First charity trustees
Addtitional Trustees –
- 6). Kelly Mgbor [for x2 consecutive 2-year terms]
7). Neel Ladwa [for x2 consecutive 2-year terms]- TERM COMPLETED & HAS STEPPED DOWN 29 JANUARY 2022 8). Adeboye Ifederu [for x2 consecutive 2-year terms] **We the trustees of the Daniella Logun Foundation (DLF) have carried out our purpose for the public benefit. Both the Co-Founders and Trustees have had due regard to the charities commission’s public benefit guidance when exercising any powers or duties to which the guidance is relevant.**
**The DLF’s mission** is to provide a holistic support service to families with CBT, to ensure their wellbeing needs are addressed from diagnosis and beyond.
We will work to seek out and support the development of a robust, collaborative, multi-faceted, problem-solving network that can address the unique challenges our service users will face whilst on their brain tumour journeys. This is to encourage the adoption of this system not only as industry ‘best practice’ but as ‘next practice’ in the future of children’s palliative care in the United Kingdom. The organisation identifies three **overarching objectives** :
I. **Research Model:** to support the NHS, its partners and other 3rd sector organisations in children’s palliative care sector at local, regional & national level II. **Social Model:** to provide early access to emotional and spiritual wellbeing support to CYP diagnosed with a brain tumour and their families from diagnosis and beyond to enable them to survive their brain tumour journey III. **Future New Build Project:** to work towards building of a specialist End of Life facility – The Daniella Logun Hospice. A specialist Palliative Care & End-Of-Life Care facility exclusive for CYP with brain tumours & their families serving Hillingdon and its surrounding North West London areas
## **Our beneficiaries are:**
- 1) Children and young people between 0 and 16 diagnosed with brain tumours
- 2) The parents, carers, legal guardians and close family members involved in the care of these children and young people diagnosed with brain tumours
- 3) The GPs, healthcare providers and NHS professionals involved in the care of the people identified in groups 1 and 2
- 4) The social groups connected to the people identified in groups 1 and 2
- 5) All religious and community groups connected to the people identified in groups 1 and 2
- 6) The academic institutions connected to the people identified in groups 1 and 2
- 7) The employers and professional institutions connected to the people identified in groups 1 and 2
- 8) Social & Community services connected to and supporting the people identified in groups 1 and 2
- 9) The employers and professional organisations involved in the lives of these people identified in groups 1 and 2
**Service Area:** within Hillingdon and the surrounding areas within North West London. **1) Our Community Development Effort – Awareness & Training** Aim: To raise awareness of the signs and symptoms and wellbeing challenges of children with brain tumours & their families. Local education to increase awareness, close knowledge gaps, reduce prejudice, feelings of isolation by families learning to cope with a new diagnosis in the community. Supported by The Brain Tumour Charity & HeadSmart.
- a) Primary School Childhood Brain Tumour Awareness Sessions
- 1) Bishop Winnington Ingram CoE Primary School (BWI) – Date Mon 24.02.20
## **b) Community Childhood Brain Tumour Awareness Sessions**
- 1) Launch Event – St Matthew’s Church Hall, Yiewsley. UB7 7QH. Date Sat, 29.02.20
- Format: Face to Face
- Target Group: Members of the community (x12people)
## **c) Colleges & High School Childhood Brain Tumour Awareness Sessions**
- 1) Bishop Ramsey CoE School (BRS) – CONNECTED1) Bishop Ramsey CoE School (BRS) – CONNECTED
## **c) Colleges & High School Childhood Brain Tumour Awareness Sessions**
- 2) St Bernard's Catholic Grammar School – CONNECTED
## **Our Community Alliances**
- **a) Local Churches**
- 1) St Matthew’s Church, Yiewsley. UB7 7QH – SECURED
## **b) Local Hospitals**
North West London Hospitals. Status: connected. Contact Name: Dr Richa Ajitsaria – Lead Paediatric Consultant & DLF Trustee Date: 2020
1. Children’s Oncology Ward: The Hillingdon Hospitals Foundation Trust (THHFT) Dr Richa Ajitsaria – Lead Paediatric Consultant & DLF Trustee
- **c) Local GP Surgeries** – PLANNED, DELAYED DUE TO COVID-19 PANDEMIC RESTRICTIONS
- **d) Local Nurseries** – PLANNED, DELAYED DUE TO COVID-19 PANDEMIC RESTRICTIONS
**Local Nurseries IN PROGRESS, DELAYS DUE TO COVID-19 PANDEMIC RETRICTIONS**
Little People Day Care (LPDC)
Status: SECURED. Contact: Lana Basterfield. Date: December 2019 and 2020
## **e) Local Primary Schools**
Bishop Winnington Ingram CoE Primary School (BWI). Status: SECURED. Contact: Mrs Gill Westbrook. Date: December 2019
## **f) Local Colleges – PLANNED, DELAYS DUE TO COVID-19 PANDEMIC RESTRICTIONS**
- 1 Bishop Ramsey CoE School (BRS). Status: CONNECTED. Contact: Mrs Nina Adamson Date: February 2019 **f) Local Colleges – IN RPROGRESS, DELAYS DUE TO COVID-19 PANDEMIC RESTRICTIONS**
1 St Bernard's Catholic Grammar School. Status: CONNECTED. Contact: Mr Kassapian Date: Janaury 2022
**g) Local Services – IN PROGRESS (DELAYED DUE TO COVID-19 PANDEMIC RESTRICTIONS)**
1 **Hillingdon Carers*** Status: CONNECTED. Contact: Sally Chandlers (CEO) Date: February 2020
2 **Hillingdon Young Carers Network** Status: CONNECTED Contact: Jo Burns Date: February 2020
3 **Hillingdon 4 ALL (H4ALL)** Status: CONNECTED Status: Clare Leahy (Development Manager). Date: February 2020
4 **Headway Hillingdon** Status: CONNECTED
- 5 **Home-Start** Status: CONNECTED Contact: Sue Matthews (Operations Manager)
6 **Hillingdon Brain Tumour & Injury Group (HBTIG)** Status: CONNECTED
7 **Halo Children's Bereavement Service** Status: CONNECTED
- 8 **LBH Social Services** Status: – PLANNED, DELAYED DUE TO COVID-19 PANDEMIC RESTRICTIONS
- 9 **Hillingdon CCG** – PLANNED, DELAYED DUE TO COVID-19 PANDEMIC RESTRICTIONS
10 **LBH Child Services** – PLANNED, DELAYED DUE TO COVID-19 PANDEMIC RESTRICTIONS
11 **LBH Council** – PLANNED, DELAYED DUE TO COVID-19 PANDEMIC RESTRICTIONS
- March 2020: DLF invited to apply for the role of Carers Representative – Hillingdon Strategy Group
## **3) Our Research Involvement**
Aim: providing Public Patient Insights to regional and national research Paediatric End of Life projects across the UK.
## **a) Institute Of Nursing & Health Research (Ulster University NewtownAbbey)**
- Started: MARCH 2020. - ONGOING
• Contact: Karen Carr PhD Researcher
• Purpose: Research Paper
- Format: Online
**b) Intensive Care Society – transition of children with life limiting conditions and their families from PICU to adult IC** U
- Started: February 2020 – ONGOING
- Contact: Asha Abdillahi – Standards & Accreditation Manager ICS
- Purpose: Developing National Guidelines for PICU Transition to AICU
- Format: Face to Face Stakeholder Meeting
• Location: London
- Image 1: DLF with the senior consultant intensivists from the Intensive Care Society, NHS England and other regional NHs partners.
**c) Quality Improvement Clinic – London School Of Paediatrics**
- Date: Spring 2020 – Completed. **The DLF represented the Quality Improvement Clinic & presented a paper at the International Forum on Quality & Safety in Healthcare Copenhagen Europe** • Contact: Nicola Davey & Dr Richa Ajitsaria
- Purpose: Qualified as a Paediatric Health Systems Quaity Improvement Change Champion
- Format: Online • Location: London **d) Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation** • Date: Spring 2020 – • Contact: Lucy Coombes & Prof Richard Harding • Project: Developing A Tool Measuring Symptoms and Concerns In Children with Life-Limiting and Life-Threatening Conditions • Format: Online • Location: Kings College London
**To Explore** e) The Kings Fund and Guys & St Thomas’ Charities – TBC • Research development of patient partnerships and collaborative initiatives – PLANNED, DELAYED DUE TO COVID-19 RESTRICTIONS
**4) Some of Our Regional & National Charity Alliances**
**a) Alexander Devine Foundation & Children’s Hospice**
• January 2019: connected DLF with co-founder Fiona Devine **b) Together For Short Lives** • Membership – since 2019 • Member of Parent Expert Panel • 22 October 2019: Attended Westminster reception & introduced DLF to Caroline Dineage (former Minster for Care) • Registered for TGFSL Conference 2020: The Future Of Children’s Palliative Care – March 2020 – postponed due to Covid-19 • March 2020: Involved in National Voices for Improvement co-design project – Parent input for Mother’s & Father’s Day Event
- March 2020: DLF to feature in Together For Short Lives next Monthly Newsletter **c) Hospice UK** • 2019: Won a the full bid for sponsorship to attend the 3-day Dying For Change Annual UK Conference as a ‘Patient Representative • Hosted by Hospice UK in Liverpool
## **d) The Brain Tumour Charity & HeadSmart**
• Membership – since 2020 **5) Our Online & Social Media Strategy** To use social media and online social spaces to raise awareness of the work of the Daniella Logun Foundation, promote our cause, showcase the wellbeing and clinical impact of a childhood brain tumour/cancer diagnosis to the online community. Existing platforms:
**a) DLF Twitter** – @DaniellaLogun – active since 06 November 2019
**b) DLF Instagram** – daniellalogun – active since 06 November 2019
**c) DLF Facebook** – TheDaniellaLogunFoundationDLF – active since December 2019
**d) DLF WhatsApp** – +44 (0) 7760 411 888 – pending activation **e) DLF Website** – www.thedaniellalogunfoundation.org
The year 2021 was our 2nd calendar year since our launch in 2020 (The Year of The Covid) and we have worked very hard to keep this organsiation afloat. It has been a team effort and we are priviledged to have many friends and supporters both locally and nationally who have offered various resources and facilitation to help our foundation grow. Thank you to everyone who has influenced the growth of the Daniella Logun Foundation till date.
Amidst the challenges of the past 1yr, we successfully launched our **September Childhood Cancer Awareness Campaign last September in Hillingdon** . Despite the COVID-19 anxieties, it was awe-inspiring to draw together some of our client families, friends, supporters, various local health and wellbeing businesses and **over 200 members of our community** including children and families. Our food hub and children's face painting stalls were the biggest attractions, thanks to our amazing team! Altogether we raised just over £1000 with the help of many of our volunteers and friends. Our sincere gratitude goes out to all of our #teamDLF family, who were able to share the day with us, volunteer or bring their families and friends. It was a fantastic event and great to know you were there with us!
Our **Christmas 2021 Toy Drive** was a brilliant success and with the support of our newly acquired volunteer driver, **we successfully delivered brand new toys and gifts to 60 of our children including siblings** ! Always a rewarding treat to put a smile on those precious faces at such an important time in the year. We are truly grateful to all who contributed towards this to make it a success - thank you.
Many of the challenges faced last year indescriminately impacted the local and national Charity sector, particular;y the small and upcoming charities like the DLF. Although, we successfully secured a **£10k grant from the National Lottery BIg Award,** towards our **Project 360 Wellbeing** , our fundraising effort was hampered by the constraints of the Covid-19 rules. We were unable to gain targeted fundraising engagement or sustained support from regular volunteers to help us carry out our work more frequently. This meant that we couldn't do more - regularly, access funding to support the day-to-day running costs of a small charity or get more help to reach more people. As a small and growing charity, we are prioritising sustainable income generation to meet our day-to-day running costs, enable us plan more efficiently, pace our work and avoid the strain that comes from a working below our financial thresholds.
This 2022 - a New Year, a New Me we are hitting the grouond running with this theme for Q1 and Q2. We will focus on **how we can become more sustainable in our income, growth and service development** . We will think about how to continue to make the right impact, reach the right children & their families, volunteers and friends to achieve the right level of engagement and help us to connect with the potential champions, sponsors, patrons or influencers that can help us reach our 3 main goals - research, client support & end of life wellbeing support. All these factors are important to our operational efficiency and future sustainability.