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Unaudited Financial Statements
Isla Rose Foundation
Forthe yearended 31 January 2026
Prepared by Klrkwood Wis¢)nLimit•d

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Contents
TnJstee5 Report
Trtsstets
In&pendent Examlnerts Repwt
IrKome&ExpendfjlufeAccount
BalarKe Sheet
Pa¢e2019

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Trustees Report
Isla Rose Foundation
For the yearended 31 January 2026
l¢l• AwFoUr￿•t11fi- Y•*tyUpdat•12O261
Maklnga Dlffer•nceToge
We'feproud to sha￿t￿¢ lsia Rose Foundatlon's cofttlnued pmgrns •ndachleveI￿tsi)veIthepastyt9r. Wlththèongoin£
generosity and$upportfrom ouicommunity, we ￿ve been ableto makea meaningful dIfferen￿t0 chlldren and larnllles
ff•cted byNoTrKet0tlc trtypergly(InemS•ltrlKHI.
Fundlng Rese•r¢h-Thtsyear, we ¢lon•ted£l,l)OOdir¢¢ttyto NKH research at Unrversity College London, supportlng
onEoin£ workalmed •t dpNd)p*ngluturet￿¥tmertts and impro¥in8 undtrstanding olthe condiiion.
suppo1￿MsFam[llQS- ITh •ddifionioshadngpre¥louslyfvThlrals¢d equlpmentwlth famllles need tt most, wewere
aLso •ble tolur*d three retl lightlnfvared therapyunrts forthreeNKH f•m11￿5, helpingthern acce5SSUPPOrti¥etheraples
from home to help Improve quaiityof Ilfe.
GrowingAwaren¢ss-Ourstory has coniinued tor•ath mor• peoplethrou8h social medlaand coMmu￿ty suppori
h•lplngr•ls• •w•¥•n•ssof NKH both in th• UK •nd Int•ma￿ort￿ty.
FyDdr•lslnz Sy¢¢•
Desplte contlnued Ilnanclal pres5ure5forrnanyfamlllos. theSupportwel￿ recefved th15yeaT has beentrulyencourag+Trg. From
charlty pots In local bu5ine55esto physlcal challen8es suth asstydives. mountain clirnbs. L2 hour cyclechallenges. Pllatès &
yoga day, cornmuThlty raffles. annual ChrbstmaswrnppinKevent, t4rthdaylundraisers.abseilinKi 8ioThKyde online hJndraI￿ng
campal8ns,ourcommunityh35 helped usra15evltal lundsforfesearch and famlly5UPPOrt.
Social rnediè has alaln an 1rnp￿t role. èllowln8USto£onne£twith thtyjsantsolptop￿ bround the wortd, share Isla's
journey, and ralge aWarV￿$s abwt N￿￿.
Thlsyearalso COn￿nUed to hi&hll8ht1sia'sStrengih and deternlThatknn. She1sthri￿n￿ 50 It hdpsouronllne presence her
Incrediblesuccesseswhich helps draw attent*)n to NKH andtheworkourcharityisdolnlto supportfamibt5.
pp•rtlngTh•r•pk¥h*MKM F*mlU
Onè areawé havè been partkuiarfyproudto 5UPPOrtthbsyÈarls•tte55to redllthtlnfrared therapydevktsforfamllle*
Red Ilght iherapy laisokn(wn asphot¥blomodtslatwl isb¢￿￿ txploféd forso4eral potenifjal beThefi￿ Inchjdln
• supportin8ceiluiareneryyprodurtion by irnpro¥inKrnrtOth￿r1al fvnrtion
• Hdplng reduce Inflammatlon In Ilssues
. Potentiallysupportingneurolo8Kalfvnction•nd r•cov•ry
• Promotingdrculation and Dssue repalr
. Offeringagentie. noTrinv•sibtth2tapythatfamiliescan useal home
Vthile researth i$stlll ongdng in many neyrolo8Kaiconditlons tsmlbeshove reported en¢ouragingexperien(es ￿￿n&th¢Se
therapiesaspartolav4id*rc•r•approxh.

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Wehaveatso betndonat1ng¢￿ but Iwedibtyc051tyequipmentof lslastoothÈrfamll￿thatWe l￿fvndrntsed forlnthe pa51
personallyftsrlsla.
Weonly donated lsla'soid specialised adaptNe ÈikebvhKh CO￿ £27C¥) toa larnity in L¢ndonand ¥ariousAFO shoeswhKhare
over £lTrJ and boty supportsthat help wilh postureand ￿l￿￿mentthalf0stE￿.
R•￿4￿h Prner¢•*' N•p•ThrOu8hG•n•TI￿py
En£ouraglng progress continuesto be madein genethryyresearch forNKH. Studfjesus4ngmtyJsemodeL% arÈshowing
prorntsingdtvelopmtnts, includln8.'
* RestorlngEnzyYneAcW- Intrt4lUc5ng￿OIthYgefiesI0 Co￿￿ttthe melabolk f¥ultln NKH.
• RedudngGtyclne Levels- Improvemrtln ma￿0￿&thetoXkgty￿￿bUl1d￿th)t(a￿Se$$¢¥èTeSyrnPt0M*
. Improved N•uroloO¢4l Outcomes- eaty Inthmntion, i￿ludIn1 poten￿•1 tn4Jtffo tr*atment in the futu￿. m•y help we¥ent
serir¥us neurologlcal complkatio
Althwgh $tlll ITh prtrclinlcal thlsworfÉ repr*sents real hO￿l¢r1￿mIlIesJfft¢ted NKH.
Lwklnipthmd: Our&YMr
The Isla Rose Found•tion mm•ins t<>mmltted t
. Flndln8a CurÈ- ContlnulnBlo fundand support NKH reseorch. Inciudln¥ongolngw¢tk4t UCL and otherres¢•rth Inrtlitlve
• Empowering F•mIl￿s- Providln8 yantsforttr*rapy. equlpmen¢and ¥pp)n not•lw•ys av•1Liblet￿U6hth¢ MHS.
• Buildlng Sustslnable Fundlne- Wloring nv*lundralsingopp)rtuniii•55uth •5 ¢ommunKylnlUaUvts.partnersNps,and
expandln&ouroniine r￿Ch.
OurV•lu
Collaboration. compassloD,andcommltmÈnt remaln atthe htartofeffjthlngwedo.we are prtyjdto opernte as a nO￿profit
organisation wlth no expenses charged, gjpported by a dedicated mum.a small ¥olunteer¢eorn, ènd o 5tron8comrnunity
determlned to maxOmls••v•rydtsnatlon'slmpa(L
Fln•ndal$t•wxtsh
Ouraccounts continueto be irbdependently Managed byvolunteeracr¢Juntsntsto ensuretransparency and resp)nsibie
Ilnancial mana8ernenL Tfvstees meet rtgulariyto rwlewprogressond zuldethe charfty's fvture diiectior
Thankyou
Every achievernentth15yearhasonty been P0￿ble becauseofoursupporter& ￿ndraWs,3nd wSdercommunlty. To8ether.
are ralslngawarèftess.5UPPOrtingtsmikne4and rrK7vin8closerto b•tt•rtreatrrTrents-andoneday. acur￿f￿r NKH.
The151a RoseFoundation
Pay4of9

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Forbla. For Famllles. Fora Curt.
￿na￿lIte1 ￿nancIal51{*￿Trents RoSeF￿r￿
Pays419

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Trustees
Isla Rose Foundation
Forthe yearended 31 January 2026
Trurt•
The trnstee5are responsible lorthe mana8emerrtdtr*riskslaced bythechffj.
S.J. Steel- Chalr
SJ, Camey. Tnst
b•Thk•
Natwest Bank PLC
130 Lord Stree¢ Southport
PR90AE
Ind•pMtht Exlml
KIr￿￿00dvIIisofft Llmited
Unit4 Swordfisth Bu&r*ss Pa￿, Bur¢ou8h
L40 8JW
Authorlsed a
proved on bthaWolth¢ Tru51ee*
Si8ned...
Date........
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Independent Examiner's Report
Isla Rose Foundation
Forthe year ended 31 January 2026
￿d•￿Ad¢￿t Ex•ThkneVsReportt•thelvvrt•es•tthèld•R•# F•¥nd•ti
We report on the a¢tountsofih¢Charftyfortheyearended 31 January2026.vthkh ar¢set0￿0￿ pJ¥e$7 arKI &
R•sp•¢tSver*4>onilbilit6•1 of tnM¢••s*Trd•x*min•r
The chartystrustees a￿reSpOn￿bIefo￿thÈ preparation olthèatcwnts. Th¢charitystrusteesc¢widerthatan audltis not
required forthisye•r undersection J44121 ofthe Charitie5Act 1011 Ithe2011 W and that aTh Independentexarnlnatlon Is
needed.
It lsour ￿ponSibIl￿t￿.
examlnèthe xcountsunder5e(tlon 14S ofth¢2011 Acty.
i tofollowthe p￿￿edures101d do￿ Inthe8enernl Dlrectkn5 tyen tytheCharftyC¢ynml$4on ￿r￿er$*￿00n 14515llblofthe
2011 Act: and
•tO state whether partlcularmattw5 havecometo ourattenllon.
Buli•llnd•poTrd•rt•Umlno￿XY•POrt
Ourexarninatlon was caw11edo￿ In accordèrbceth th¢gen¢r•l Dlredlw glven tytr*ChJrftycommlMlon.An examinatlon
includes a rewewolthe accountin8 records kept bylherh•ntyJnda comparfson oftheaccountspresénted wbth those record
It also Includes con51deration olany unusual items or dlsclosures in the accounts. •nd S•eklngtyp￿rtè￿ortsIr0m you 4$ irust••$
toncerning5uch matterk The procedures undertoken do not P￿￿￿@41[ thetMdertceth•tV40uid bt requlred an •udlt ènd
consequentty no opinionls Jsto*th¢therthexcountsWtK •'tyue•yl tsirvltw, •Thd1￿ r*ptyt is limrted tothosèmatt•rs
setout In the 5tsttmentbelow.
Ind•p•nd•nt•xamln•fist*i•m•nt
In connection with tyjrexaminition, no rnotterha5 cometoourattent*)n:
L whlch Ivesus reasonablé causéto ￿l1￿*that1rt atymatèrbal the requlroffentsto keep •ccounOng records In
cordanctwiih section 130ofthe2011 Art.. and to prepare èctountswith th¢ •ccwntkn8recordsand comFly￿th the
Iccountingrequirementsolthe 2011 Art have not been me(or
I to whlch, In ouroplnlon.attèniion should bo drdwft In ordértoénabl•a propef underslandlAgof th• accounts to be r*¥ched.
lTrd•p•nd•nt EM•mln•Y
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KirkwoodVKiison Limited Uniith Swordifish kniness Lant•thir•,L40&JW

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Income & Expenditure Account
Isla Rose FoundatSon
Forthe yearended 31 January 2026
2026
Income and
endI￿reA(cOUnt
DonationsRecefv¢d
iO,LS8
117,6141
Therapy&Equlpment EhperAes
Pay8of9