PIP Parents information Portal - Operating as PIP-UK Poland Syndrome Support and Network
Trustee's Report - General Information
Registered Charity Number: 1188941
Flat 3, School Court, Meyer Street, Stockport, SK3 8JE
Our Trustees:
Paul Preston (Chair Appointed 2 October 2023) Dr Peter Bannister (Trustee Appointed 13 February 2022, resigned August 2025) Julie Erasmus (Secretary Appointed 03 October 2022, resigned August 2025) Josh Spiegel (Trustee Appointed 30 July 2023) Matthew Walton (Treasurer Appointed 24 January 2024) Rachel Goddard (Trustee Appointed July 2025) Guy Dolman (Trustee Appointed October 2025)
Our purpose
To support those affected by Poland Syndrome but not exclusively by:
-
Promoting improvements in care for people who are affected by Poland syndrome.
-
Undertaking research into effects of Poland Syndrome and disseminating the useful results thereof.
-
Increasing awareness of Poland Syndrome amongst health professionals and the public.
-
To provide free advice and assistance to persons affected by Poland Syndrome and their families.
Structure, Governance and Management
PIP-UK is a registered charity, number 1188941, governed by the Charities Act 2006. The charity is a Charitable Incorporated Organization registered on 7 April 2020 under the CIO Governing Document. New trustees are appointed by the serving trustees, after considering the skills required by the board.
Activities
PIP-UK provides:
-
One to one advice and support for families affected by Poland Syndrome.
-
Advocacy services with health care professionals.
-
Wellbeing services and family support services.
-
Hosting events that bring the community together.
Public Benefit
The Trustees have confirmed that they referred to the Charity Commission's general guidance on public benefit when reviewing the Charity's aims and objectives for the year. The public benefit has been achieved as per the activities outlined in the 'Our Achievements' section of this report.
Financial Review
We have sufficient funds to support the planned projects and running costs and we will be working on diversifying our fundraising to support our growth and vision for the Poland Syndrome Community by increasing the community fundraising and reaching out to other grant providers.
Reserves Policy
The policy is designed to set out the process of determining the appropriate level of reserves that PIPUK is required to hold to meet its requirements; while ensuring we are meeting the needs of our service users as best as possible.
This means ensuring we can meet our basic running costs, periods of funding and other uncertainty, while ensuring money is available to allow us to meet our charitable aims.
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Charity No. 1188941
Trustees' Report and Unaudited Accounts
31 March 2025
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal Contents
| Pages | |
|---|---|
| Trustees' Annual Report | 2 to 3 |
| Independent Examiner's Report | 4 |
| Statement of Financial Activities | 5 |
| Balance Sheet | 6 |
| Notes to the Accounts | 7 to 13 |
| Detailed Statement of Financial Activities | 14 to 15 |
Page 1
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Trustees Annual Report
The trustees present their report with the unaudited financial statements of the charity for the year ended 31 March 2025.
REFERENCE AND ADMINISTRATIVE DETAILS
Charity No. 1188941
Trustees
The following trustees served during the year:
P. Bannister
J. Erasmus
P. Preston
J. Spiegel M. Walton R. Woods (Resigned 30 January 2025)
Accountants
Solutions Accountancy & Bookkeeping Ltd
1 The Mews
Little Brunswick Street Huddersfield HD1 5JL
OBJECTIVES AND ACTIVITIES
Our purpose
To support those affected by Poland Syndrome but not exclusively by:
*Promoting improvements in care for people who are affected by Poland syndrome.
-
*Undertaking research into effects of Poland Syndrome and disseminating the useful results thereof.
-
*Increasing awareness of Poland Syndrome amongst health professionals and the public.
*To provide free advice and assistance to persons affected by Poland Syndrome and their families.
Activities
PIP-UK provides:
*One to one advice and support for families affected by Poland Syndrome.
*Advocacy services with health care professionals.
*Wellbeing services and family support services.
*Hosting events that bring the community together.
Public Benefit
The Trustees have confirmed that they referred to the Charity Commission's general guidance on public benefit when reviewing the Charity's aims and objectives for the year. The public benefit has been achieved as per the activities outlined in the 'Our Achievements' section of this report.
Page 2
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Trustees Annual Report
FINANCIAL REVIEW
We have sufficient funds to support the planned projects and running costs and we will be working on diversifying our fundraising to support our growth and vision for the Poland Syndrome Community by increasing the community fundraising and reaching out to other grant providers.
Reserves Policy
The policy is designed to set out the process of determining the appropriate level of reserves that PIP-UK is required to hold to meet its requirements; while ensuring we are meeting the needs of our service users as best as possible.
This means ensuring we can meet our basic running costs, periods of funding and other uncertainty, while ensuring money is available to allow us to meet our charitable aims.
STRUCTURE, GOVERNANCE AND MANAGEMENT
PIP-UK is a registered charity, number 1188941, governed by the Charities Act 2006. The charity is a Charitable Incorporated Organization registered on 7 April 2020 under the CIO Governing Document. New trustees are appointed by the serving trustees, after considering the skills required by the board
Statement of trustees' responsibilities in relation to the financial statements
The charity trustees are responsible for preparing a trustees' annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the applicable Charities (Accounts and Reports) Regulations, and the provisions of the Trust deed. The Trustees are also responsible for safeguarding the assets of the charity and hence taking reasonable steps for the prevention and detection of fraud and other irregularities.
Signed on behalf of the charity's trustees
M. Walton Trustee 28 January 2026
Page 3
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal Independent Examiners Report
Independent Examiner's Report to the trustees of PIP Parents Information Portal
I report to the trustees on my examination of the financial statements of PIP Parents Information Portal for the year ended 31 March 2025.
Responsibilities and basis of report
As the charity's trustees you are responsible for the preparation of the financial statements in accordance with the requirements of the Charities Act 2011 ('the Act').
I report in respect of my examination of the charity's financial statements carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I can confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
-
the accounting records were not kept in respect of the charity as required by section 130 of the Act; or
-
the financial statements do not accord with those records; or
-
the financial statements do not comply with the applicable requirements concerning the form and content of financial statements set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the financial statements give a 'true and fair' view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.
Vicky Newham CPAA Solutions Accountancy & Bookkeeping Ltd 1 The Mews
Little Brunswick Street Huddersfield
HD1 5JL 28 January 2026
Page 4
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal
Statement of Financial Activities
for the year ended 31 March 2025
| Notes Income and endowments from: Donations and legacies 3 Other trading activities 4 Investments 5 Total Expenditure on: Raising funds 6 Charitable activities 7 Other 8 Total Net gains on investments Net (expenditure)/income 9 Transfers between funds Net (expenditure)/income before other gains/(losses) Other gains and losses Net movement in funds Reconciliation of funds: Total funds brought forward Total funds carried forward |
Unrestricted funds |
Restricted funds |
Total funds | Total funds | |
|---|---|---|---|---|---|
| 2025 | 2025 | 2025 | 2024 | ||
| £ | £ | £ | £ | ||
| 31,150 | 4,100 | 35,250 | 58,255 | ||
| 2,166 | - | 2,166 | 2,319 | ||
| 109 | - | 109 | 41 | ||
| 33,425 | 4,100 | 37,525 | 60,615 | ||
| 1,233 | - | 1,233 | 4,268 | ||
| 7,401 | - | 7,401 | 3,676 | ||
| 20,980 | 11,100 | 32,080 | 43,271 | ||
| 29,614 | 11,100 | 40,714 | 51,215 | ||
| - | - | - | - | ||
| 3,811 | (7,000) | (3,189) | 9,400 | ||
| - | - | - | - | ||
| 3,811 | (7,000) | (3,189) | 9,400 | ||
| 3,811 | (7,000) | (3,189) | 9,400 | ||
| 10,825 | 8,000 | 18,825 | 9,425 | ||
| 14,636 | 1,000 | 15,636 | 18,825 | ||
Page 5
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Balance Sheet
at 31 March 2025
| Charity No. 1188941 Fixed assets Tangible assets 11 Current assets Debtors 12 Cash at bank and in hand Creditors:Amount falling due within one year 13 Net current assets Total assets less current liabilities Net assets excluding pension asset or liability Total net assets The funds of the charity Restricted funds 14 Restricted income funds Unrestricted funds 14 General funds Reserves 14 Total funds |
2025 £ 95 95 65 16,256 16,321 (780) 15,541 15,636 15,636 15,636 1,000 1,000 14,636 14,636 15,636 |
2024 £ 191 |
|---|---|---|
| 191 50 19,363 |
||
| 19,413 (779) |
||
| 18,634 18,825 |
||
| 18,825 | ||
| 18,825 | ||
| 8,000 | ||
| 8,000 10,825 |
||
| 10,825 | ||
| 18,825 |
Approved by the trustees on 28 January 2026
And signed on their behalf by:
M. Walton Trustee 28 January 2026
Page 6
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Notes to the Accounts
for the year ended 31 March 2025
- 1 Accounting policies
Basis of preparation
The financial statements have been prepared in accordance with Statement of Recommended Practice: Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic if Ireland (FRS 102) issued on 16 July 2014 and the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102) and the Charities Act 2011.
Change in basis of accounting or to previous accounts
There has been no change to the accounting policies (valuation rules and method of accounting) since last year and no changes have been made to accounts for previous years.
Fund accounting
- Unrestricted funds These are available for use at the discretion of the trustees in furtherance of the general objects of the charity.
Designated funds These are unrestricted funds earmarked by the trustees for particular purposes. Restricted funds These are available for use subject to restrictions imposed by the donor or through terms of an appeal.
Income
Recognition of Income is included in the Statement of Financial Activities (SoFA) when the charity income becomes entitled to, and virtually certain to receive, the income and the amount of the income can be measured with sufficient reliability.
Income with related Where income has related expenditure the income and related expenditure is expenditure reported gross in the SoFA.
Donations and Voluntary income received by way of grants, donations and gifts is included in the legacies the SoFA when receivable and only when the Charity has unconditional entitlement to the income. Donated services These are only included in income (with an equivalent amount in expenditure) and facilities where the benefit to the Charity is reasonably quantifiable, measurable and material.
Volunteer help The value of any volunteer help received is not included in the accounts. Investment income This is included in the accounts when receivable.
Page 7
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal
Notes to the Accounts
Expenditure
Recognition of Expenditure is recognised on an accruals basis. Expenditure includes any VAT which expenditure cannot be fully recovered, and is reported as part of the expenditure to which it relates. Expenditure on These comprise the costs associated with attracting voluntary income, fundraising raising funds trading costs and investment management costs. Expenditure on These comprise the costs incurred by the Charity in the delivery of its activities and charitable activities services in the furtherance of its objects, including the making of grants and governance costs.
Governance costs These include those costs associated with meeting the constitutional and statutory requirements of the Charity, including any audit/independent examination fees, costs linked to the strategic management of the Charity, together with a share of other administration costs.
Other expenditure These are support costs not allocated to a particular activity.
Taxation
The charity is exempt from tax on its charitable activities.
Tangible fixed assets and depreciation
Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life:
Fixtures, Fittings and 25% Straight Line Equipment
Trade and other debtors
Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.
Cash and cash equivalents
Cash and cash equivalents comprise cash at bank and on hand, demand deposits with banks and other short-term highly liquid investments with original maturities of three months or less and bank overdrafts.
Trade and other creditors
Short term creditors are measured at the transaction price. Other creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.
Pension costs
The charity operates a defined contribution plan for its employees. A defined contribution plan is a pension plan under which the charity pays fixed contributions into a separate entity. Once the contributions have been paid the charity has no further payments obligations. The contributions are recognised as expenses when they fall due. Amounts not paid are shown in accruals in the balance sheet. The assets of the plan are held separately from the charity in independently administered funds.
Page 8
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal
Notes to the Accounts
- 2 Statement of Financial Activities - prior year
| 2 Statement of Financial Activities - prior year |
||||
|---|---|---|---|---|
| Income and endowments from: Donations and legacies Other trading activities Investments Total Expenditure on: Raising funds Charitable activities Other Total Net income Net income before other gains/(losses) Other gains and losses: Net movement in funds Reconciliation of funds: Total funds brought forward Total funds carried forward 3 Income from donations and legacies Donations Received Grants Received 4 Income from other trading activities Fund Raising Income |
Unrestricted £ 21,890 9,260 31,150 |
Unrestricted funds 2024 £ 29,934 2,319 41 32,294 4,268 3,676 19,251 27,195 5,099 5,099 5,099 5,725 10,824 Restricted £ - 4,100 4,100 Unrestricted £ 2,166 2,166 |
Restricted funds 2024 £ 28,320 - - 28,320 - - 24,020 24,020 4,300 4,300 4,300 3,700 8,000 Total 2025 £ 21,890 13,360 35,250 Total 2025 £ 2,166 2,166 |
Total funds 2024 £ 58,254 2,319 41 |
| 60,614 4,268 3,676 43,271 |
||||
| 51,215 | ||||
| 9,399 | ||||
| 9,399 | ||||
| 9,399 9,425 |
||||
| 18,824 | ||||
| Total 2024 £ 23,007 35,248 |
||||
| 58,255 | ||||
| Total 2024 £ 2,319 |
||||
| 2,319 |
Page 9
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Notes to the Accounts
5 Income from investments
| Interest Income 6 Expenditure on raising funds Costs of generating voluntary income Donations Fundraising trading costs Fund Raising Expenses 7 Expenditure on charitable activities Expenditure on charitable activities Register Software Governance costs Independent Examination fees 8 Other expenditure Employee costs Motor and travel costs Amortisation, depreciation, impairment, profit/loss on disposal of fixed assets General administrative costs Legal and professional costs |
Unrestricted £ 6,368 2,105 96 2,554 9,857 20,980 |
Unrestricted £ 109 109 Unrestricted £ - 1,233 1,233 Unrestricted £ 6,000 1,401 7,401 Restricted £ 11,100 - - - - 11,100 |
Total 2025 £ 109 109 Total 2025 £ - 1,233 1,233 Total 2025 £ 6,000 1,401 7,401 Total 2025 £ 17,468 2,105 96 2,554 9,857 32,080 |
Total 2024 £ 41 |
|---|---|---|---|---|
| 41 | ||||
| Total 2024 £ 90 4,178 |
||||
| 4,268 | ||||
| Total 2024 £ 2,000 1,676 |
||||
| 3,676 | ||||
| Total 2024 £ 36,370 2,649 96 3,124 1,032 |
||||
| 43,271 |
Page 10
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal Notes to the Accounts
| 9 Net (expenditure)/income before transfers This is stated after charging: Depreciation of owned fixed assets Independent Examiner's fee 10 Staff costs Salaries and wages Pension costs No employee received emoluments in excess of £60,000. 11 Tangible fixed assets Cost or revaluation At 1 April 2024 At 31 March 2025 Depreciation and impairment At 1 April 2024 Depreciation charge for the year At 31 March 2025 Net book values At 31 March 2025 At 31 March 2024 12 Debtors Other debtors 13 Creditors: amounts falling due within one year Accruals |
2025 £ 96 780 2025 17,050 418 17,468 2025 £ 65 65 2025 £ |
Fixtures, Fittings and Equipment £ 383 383 192 96 288 95 191 |
2024 £ 96 780 2024 33,965 795 |
|---|---|---|---|
| 34,760 | |||
| Total £ 383 |
|||
| 383 | |||
| 192 96 |
|||
| 288 | |||
| 95 | |||
| 191 | |||
| 2024 £ 50 |
|||
| 50 | |||
| 2024 £ |
|||
| 780 | 779 | ||
| 780 | 779 |
Page 11
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Notes to the Accounts
14 Movement in funds
| At 1 April 2024 Restricted funds: Restricted income funds: Main Grants - National Lottery 8,000 Total 8,000 Unrestricted funds: General funds 10,825 Designated funds: Maryland Trust - Total - Total funds 18,825 Purposes and restrictions in relation to the funds: Restricted funds: Main Grants - National Lottery Living Well with PS Designated funds: Maryland Trust Core Costs 15 Analysis of net assets between funds Fixed assets Net current assets 16 Reconciliation of net debt Cash and cash equivalents Net debt |
Incoming resources (including other gains/losses ) £ 4,100 4,100 28,425 5,000 5,000 37,525 |
Resources expended £ (11,100) (11,100) (24,614) (5,000) (5,000) (40,714) |
At 31 March 2025 £ 1,000 |
|---|---|---|---|
| 1,000 | |||
| 14,636 - |
|||
| - | |||
| 15,636 | |||
| At 1 April 2024 £ |
Unrestricted funds £ 95 15,541 15,636 Cash flows £ |
Total £ 95 15,541 |
|
| 15,636 | |||
| At 31 March 2025 £ |
|||
| 19,363 | (3,107) | 16,256 | |
| 19,363 19,363 |
(3,107) (3,107) |
16,256 | |
| 16,256 | |||
Page 12
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Notes to the Accounts
17 Commitments
Operating lease commitments
Annual commitments under non-cancellable operating leases are as follows:
| 2025 | 2025 | 2024 | 2024 | |
|---|---|---|---|---|
| Land and buildings |
Other | Land and buildings |
Other | |
| £ | £ | £ | £ | |
| Operating leases with expiry date: | ||||
| Pension commitments | ||||
| 2025 | 2024 | |||
| £ | £ | |||
| The pension cost charge to the charity | ||||
| amounted to: | 418 | 795 |
Page 13
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal
Detailed Statement of Financial Activities
for the year ended 31 March 2025
| Income and endowments from: Donations and legacies Donations Received Grants Received Other trading activities Fund Raising Income Investments Interest Income Total income and endowments Expenditure on: Costs of generating donations and legacies Donations Costs of other trading activities Fund Raising Expenses Total of expenditure on raising funds Charitable activities Register Software Governance costs Independent Examination fees Total of expenditure on charitable activities Employee costs Salaries/wages Pension costs Staff training Motor and travel costs Travel and subsistence |
Unrestricted funds 2025 £ 21,890 9,260 31,150 2,166 2,166 109 109 33,425 - - 1,233 1,233 1,233 6,000 6,000 1,401 1,401 7,401 5,950 418 - 6,368 2,105 2,105 |
Restricted funds 2025 £ - 4,100 4,100 - - - - 4,100 - - - - - - - - - - 11,100 - - 11,100 - - |
Total funds 2025 £ 21,890 13,360 35,250 2,166 2,166 109 109 37,525 - - 1,233 1,233 1,233 6,000 6,000 1,401 1,401 7,401 17,050 418 - 17,468 2,105 2,105 |
Total funds 2024 £ 23,007 35,248 |
|---|---|---|---|---|
| 58,255 | ||||
| 2,319 | ||||
| 2,319 | ||||
| 41 | ||||
| 41 | ||||
| 60,615 90 |
||||
| 90 | ||||
| 4,178 | ||||
| 4,178 | ||||
| 4,268 2,000 |
||||
| 2,000 | ||||
| 1,676 | ||||
| 1,676 | ||||
| 3,676 33,965 795 1,610 |
||||
| 36,370 | ||||
| 2,649 | ||||
| 2,649 |
Page 14
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Detailed Statement of Financial Activities
| General administrative costs, including depreciation and amortisation Depreciation of Fixtures, Fittings and Equipment Bank charges Equipment repairs and maintenance General insurances Postage and couriers Software, IT support and related costs Stationery and printing Subscriptions Sundry expenses Telephone, fax and broadband Legal and professional costs Consultancy fees Other legal and professional costs Total of expenditure of other costs Total expenditure Net gains on investments Net (expenditure)/income Net (expenditure)/income before other gains/(losses) Other Gains Net movement in funds Reconciliation of funds: Total funds brought forward Total funds carried forward |
96 5 - 252 67 1,134 847 177 - 72 2,650 9,857 - 9,857 20,980 29,614 - 3,811 3,811 - 3,811 10,825 14,636 |
- - - - - - - - - - - - - - 11,100 11,100 - (7,000) (7,000) - (7,000) 8,000 1,000 |
96 5 - 252 67 1,134 847 177 - 72 2,650 9,857 - 9,857 32,080 40,714 - (3,189) (3,189) - (3,189) 18,825 15,636 |
96 181 75 227 468 623 1,023 152 110 265 |
|---|---|---|---|---|
| 3,220 | ||||
| 1,000 32 |
||||
| 1,032 | ||||
| 43,271 | ||||
| 51,215 - |
||||
| 9,400 | ||||
| 9,400 - |
||||
| 9,400 | ||||
| 9,425 | ||||
| 18,825 |
Page 15
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Charity No. 1188941
Trustees' Report and Unaudited Accounts
31 March 2025
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal Contents
| Pages | |
|---|---|
| Trustees' Annual Report | 2 to 3 |
| Independent Examiner's Report | 4 |
| Statement of Financial Activities | 5 |
| Balance Sheet | 6 |
| Notes to the Accounts | 7 to 13 |
| Detailed Statement of Financial Activities | 14 to 15 |
Page 1
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Trustees Annual Report
The trustees present their report with the unaudited financial statements of the charity for the year ended 31 March 2025.
REFERENCE AND ADMINISTRATIVE DETAILS
Charity No. 1188941
Trustees
The following trustees served during the year:
P. Bannister
J. Erasmus
P. Preston
J. Spiegel M. Walton R. Woods (Resigned 30 January 2025)
Accountants
Solutions Accountancy & Bookkeeping Ltd
1 The Mews
Little Brunswick Street Huddersfield HD1 5JL
OBJECTIVES AND ACTIVITIES
Our purpose
To support those affected by Poland Syndrome but not exclusively by:
*Promoting improvements in care for people who are affected by Poland syndrome.
-
*Undertaking research into effects of Poland Syndrome and disseminating the useful results thereof.
-
*Increasing awareness of Poland Syndrome amongst health professionals and the public.
*To provide free advice and assistance to persons affected by Poland Syndrome and their families.
Activities
PIP-UK provides:
*One to one advice and support for families affected by Poland Syndrome.
*Advocacy services with health care professionals.
*Wellbeing services and family support services.
*Hosting events that bring the community together.
Public Benefit
The Trustees have confirmed that they referred to the Charity Commission's general guidance on public benefit when reviewing the Charity's aims and objectives for the year. The public benefit has been achieved as per the activities outlined in the 'Our Achievements' section of this report.
Page 2
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Trustees Annual Report
FINANCIAL REVIEW
We have sufficient funds to support the planned projects and running costs and we will be working on diversifying our fundraising to support our growth and vision for the Poland Syndrome Community by increasing the community fundraising and reaching out to other grant providers.
Reserves Policy
The policy is designed to set out the process of determining the appropriate level of reserves that PIP-UK is required to hold to meet its requirements; while ensuring we are meeting the needs of our service users as best as possible.
This means ensuring we can meet our basic running costs, periods of funding and other uncertainty, while ensuring money is available to allow us to meet our charitable aims.
STRUCTURE, GOVERNANCE AND MANAGEMENT
PIP-UK is a registered charity, number 1188941, governed by the Charities Act 2006. The charity is a Charitable Incorporated Organization registered on 7 April 2020 under the CIO Governing Document. New trustees are appointed by the serving trustees, after considering the skills required by the board
Statement of trustees' responsibilities in relation to the financial statements
The charity trustees are responsible for preparing a trustees' annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the applicable Charities (Accounts and Reports) Regulations, and the provisions of the Trust deed. The Trustees are also responsible for safeguarding the assets of the charity and hence taking reasonable steps for the prevention and detection of fraud and other irregularities.
Signed on behalf of the charity's trustees
M. Walton Trustee 28 January 2026
Page 3
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal Independent Examiners Report
Independent Examiner's Report to the trustees of PIP Parents Information Portal
I report to the trustees on my examination of the financial statements of PIP Parents Information Portal for the year ended 31 March 2025.
Responsibilities and basis of report
As the charity's trustees you are responsible for the preparation of the financial statements in accordance with the requirements of the Charities Act 2011 ('the Act').
I report in respect of my examination of the charity's financial statements carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I can confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
-
the accounting records were not kept in respect of the charity as required by section 130 of the Act; or
-
the financial statements do not accord with those records; or
-
the financial statements do not comply with the applicable requirements concerning the form and content of financial statements set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the financial statements give a 'true and fair' view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.
Vicky Newham CPAA Solutions Accountancy & Bookkeeping Ltd 1 The Mews
Little Brunswick Street Huddersfield
HD1 5JL 28 January 2026
Page 4
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal
Statement of Financial Activities
for the year ended 31 March 2025
| Notes Income and endowments from: Donations and legacies 3 Other trading activities 4 Investments 5 Total Expenditure on: Raising funds 6 Charitable activities 7 Other 8 Total Net gains on investments Net (expenditure)/income 9 Transfers between funds Net (expenditure)/income before other gains/(losses) Other gains and losses Net movement in funds Reconciliation of funds: Total funds brought forward Total funds carried forward |
Unrestricted funds |
Restricted funds |
Total funds | Total funds | |
|---|---|---|---|---|---|
| 2025 | 2025 | 2025 | 2024 | ||
| £ | £ | £ | £ | ||
| 31,150 | 4,100 | 35,250 | 58,255 | ||
| 2,166 | - | 2,166 | 2,319 | ||
| 109 | - | 109 | 41 | ||
| 33,425 | 4,100 | 37,525 | 60,615 | ||
| 1,233 | - | 1,233 | 4,268 | ||
| 7,401 | - | 7,401 | 3,676 | ||
| 20,980 | 11,100 | 32,080 | 43,271 | ||
| 29,614 | 11,100 | 40,714 | 51,215 | ||
| - | - | - | - | ||
| 3,811 | (7,000) | (3,189) | 9,400 | ||
| - | - | - | - | ||
| 3,811 | (7,000) | (3,189) | 9,400 | ||
| 3,811 | (7,000) | (3,189) | 9,400 | ||
| 10,825 | 8,000 | 18,825 | 9,425 | ||
| 14,636 | 1,000 | 15,636 | 18,825 | ||
Page 5
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Balance Sheet
at 31 March 2025
| Charity No. 1188941 Fixed assets Tangible assets 11 Current assets Debtors 12 Cash at bank and in hand Creditors:Amount falling due within one year 13 Net current assets Total assets less current liabilities Net assets excluding pension asset or liability Total net assets The funds of the charity Restricted funds 14 Restricted income funds Unrestricted funds 14 General funds Reserves 14 Total funds |
2025 £ 95 95 65 16,256 16,321 (780) 15,541 15,636 15,636 15,636 1,000 1,000 14,636 14,636 15,636 |
2024 £ 191 |
|---|---|---|
| 191 50 19,363 |
||
| 19,413 (779) |
||
| 18,634 18,825 |
||
| 18,825 | ||
| 18,825 | ||
| 8,000 | ||
| 8,000 10,825 |
||
| 10,825 | ||
| 18,825 |
Approved by the trustees on 28 January 2026
And signed on their behalf by:
M. Walton Trustee 28 January 2026
Page 6
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Notes to the Accounts
for the year ended 31 March 2025
- 1 Accounting policies
Basis of preparation
The financial statements have been prepared in accordance with Statement of Recommended Practice: Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic if Ireland (FRS 102) issued on 16 July 2014 and the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102) and the Charities Act 2011.
Change in basis of accounting or to previous accounts
There has been no change to the accounting policies (valuation rules and method of accounting) since last year and no changes have been made to accounts for previous years.
Fund accounting
- Unrestricted funds These are available for use at the discretion of the trustees in furtherance of the general objects of the charity.
Designated funds These are unrestricted funds earmarked by the trustees for particular purposes. Restricted funds These are available for use subject to restrictions imposed by the donor or through terms of an appeal.
Income
Recognition of Income is included in the Statement of Financial Activities (SoFA) when the charity income becomes entitled to, and virtually certain to receive, the income and the amount of the income can be measured with sufficient reliability.
Income with related Where income has related expenditure the income and related expenditure is expenditure reported gross in the SoFA.
Donations and Voluntary income received by way of grants, donations and gifts is included in the legacies the SoFA when receivable and only when the Charity has unconditional entitlement to the income. Donated services These are only included in income (with an equivalent amount in expenditure) and facilities where the benefit to the Charity is reasonably quantifiable, measurable and material.
Volunteer help The value of any volunteer help received is not included in the accounts. Investment income This is included in the accounts when receivable.
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Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal
Notes to the Accounts
Expenditure
Recognition of Expenditure is recognised on an accruals basis. Expenditure includes any VAT which expenditure cannot be fully recovered, and is reported as part of the expenditure to which it relates. Expenditure on These comprise the costs associated with attracting voluntary income, fundraising raising funds trading costs and investment management costs. Expenditure on These comprise the costs incurred by the Charity in the delivery of its activities and charitable activities services in the furtherance of its objects, including the making of grants and governance costs.
Governance costs These include those costs associated with meeting the constitutional and statutory requirements of the Charity, including any audit/independent examination fees, costs linked to the strategic management of the Charity, together with a share of other administration costs.
Other expenditure These are support costs not allocated to a particular activity.
Taxation
The charity is exempt from tax on its charitable activities.
Tangible fixed assets and depreciation
Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life:
Fixtures, Fittings and 25% Straight Line Equipment
Trade and other debtors
Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.
Cash and cash equivalents
Cash and cash equivalents comprise cash at bank and on hand, demand deposits with banks and other short-term highly liquid investments with original maturities of three months or less and bank overdrafts.
Trade and other creditors
Short term creditors are measured at the transaction price. Other creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.
Pension costs
The charity operates a defined contribution plan for its employees. A defined contribution plan is a pension plan under which the charity pays fixed contributions into a separate entity. Once the contributions have been paid the charity has no further payments obligations. The contributions are recognised as expenses when they fall due. Amounts not paid are shown in accruals in the balance sheet. The assets of the plan are held separately from the charity in independently administered funds.
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Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal
Notes to the Accounts
- 2 Statement of Financial Activities - prior year
| 2 Statement of Financial Activities - prior year |
||||
|---|---|---|---|---|
| Income and endowments from: Donations and legacies Other trading activities Investments Total Expenditure on: Raising funds Charitable activities Other Total Net income Net income before other gains/(losses) Other gains and losses: Net movement in funds Reconciliation of funds: Total funds brought forward Total funds carried forward 3 Income from donations and legacies Donations Received Grants Received 4 Income from other trading activities Fund Raising Income |
Unrestricted £ 21,890 9,260 31,150 |
Unrestricted funds 2024 £ 29,934 2,319 41 32,294 4,268 3,676 19,251 27,195 5,099 5,099 5,099 5,725 10,824 Restricted £ - 4,100 4,100 Unrestricted £ 2,166 2,166 |
Restricted funds 2024 £ 28,320 - - 28,320 - - 24,020 24,020 4,300 4,300 4,300 3,700 8,000 Total 2025 £ 21,890 13,360 35,250 Total 2025 £ 2,166 2,166 |
Total funds 2024 £ 58,254 2,319 41 |
| 60,614 4,268 3,676 43,271 |
||||
| 51,215 | ||||
| 9,399 | ||||
| 9,399 | ||||
| 9,399 9,425 |
||||
| 18,824 | ||||
| Total 2024 £ 23,007 35,248 |
||||
| 58,255 | ||||
| Total 2024 £ 2,319 |
||||
| 2,319 |
Page 9
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Notes to the Accounts
5 Income from investments
| Interest Income 6 Expenditure on raising funds Costs of generating voluntary income Donations Fundraising trading costs Fund Raising Expenses 7 Expenditure on charitable activities Expenditure on charitable activities Register Software Governance costs Independent Examination fees 8 Other expenditure Employee costs Motor and travel costs Amortisation, depreciation, impairment, profit/loss on disposal of fixed assets General administrative costs Legal and professional costs |
Unrestricted £ 6,368 2,105 96 2,554 9,857 20,980 |
Unrestricted £ 109 109 Unrestricted £ - 1,233 1,233 Unrestricted £ 6,000 1,401 7,401 Restricted £ 11,100 - - - - 11,100 |
Total 2025 £ 109 109 Total 2025 £ - 1,233 1,233 Total 2025 £ 6,000 1,401 7,401 Total 2025 £ 17,468 2,105 96 2,554 9,857 32,080 |
Total 2024 £ 41 |
|---|---|---|---|---|
| 41 | ||||
| Total 2024 £ 90 4,178 |
||||
| 4,268 | ||||
| Total 2024 £ 2,000 1,676 |
||||
| 3,676 | ||||
| Total 2024 £ 36,370 2,649 96 3,124 1,032 |
||||
| 43,271 |
Page 10
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal Notes to the Accounts
| 9 Net (expenditure)/income before transfers This is stated after charging: Depreciation of owned fixed assets Independent Examiner's fee 10 Staff costs Salaries and wages Pension costs No employee received emoluments in excess of £60,000. 11 Tangible fixed assets Cost or revaluation At 1 April 2024 At 31 March 2025 Depreciation and impairment At 1 April 2024 Depreciation charge for the year At 31 March 2025 Net book values At 31 March 2025 At 31 March 2024 12 Debtors Other debtors 13 Creditors: amounts falling due within one year Accruals |
2025 £ 96 780 2025 17,050 418 17,468 2025 £ 65 65 2025 £ |
Fixtures, Fittings and Equipment £ 383 383 192 96 288 95 191 |
2024 £ 96 780 2024 33,965 795 |
|---|---|---|---|
| 34,760 | |||
| Total £ 383 |
|||
| 383 | |||
| 192 96 |
|||
| 288 | |||
| 95 | |||
| 191 | |||
| 2024 £ 50 |
|||
| 50 | |||
| 2024 £ |
|||
| 780 | 779 | ||
| 780 | 779 |
Page 11
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Notes to the Accounts
14 Movement in funds
| At 1 April 2024 Restricted funds: Restricted income funds: Main Grants - National Lottery 8,000 Total 8,000 Unrestricted funds: General funds 10,825 Designated funds: Maryland Trust - Total - Total funds 18,825 Purposes and restrictions in relation to the funds: Restricted funds: Main Grants - National Lottery Living Well with PS Designated funds: Maryland Trust Core Costs 15 Analysis of net assets between funds Fixed assets Net current assets 16 Reconciliation of net debt Cash and cash equivalents Net debt |
Incoming resources (including other gains/losses ) £ 4,100 4,100 28,425 5,000 5,000 37,525 |
Resources expended £ (11,100) (11,100) (24,614) (5,000) (5,000) (40,714) |
At 31 March 2025 £ 1,000 |
|---|---|---|---|
| 1,000 | |||
| 14,636 - |
|||
| - | |||
| 15,636 | |||
| At 1 April 2024 £ |
Unrestricted funds £ 95 15,541 15,636 Cash flows £ |
Total £ 95 15,541 |
|
| 15,636 | |||
| At 31 March 2025 £ |
|||
| 19,363 | (3,107) | 16,256 | |
| 19,363 19,363 |
(3,107) (3,107) |
16,256 | |
| 16,256 | |||
Page 12
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Notes to the Accounts
17 Commitments
Operating lease commitments
Annual commitments under non-cancellable operating leases are as follows:
| 2025 | 2025 | 2024 | 2024 | |
|---|---|---|---|---|
| Land and buildings |
Other | Land and buildings |
Other | |
| £ | £ | £ | £ | |
| Operating leases with expiry date: | ||||
| Pension commitments | ||||
| 2025 | 2024 | |||
| £ | £ | |||
| The pension cost charge to the charity | ||||
| amounted to: | 418 | 795 |
Page 13
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27 PIP Parents Information Portal
Detailed Statement of Financial Activities
for the year ended 31 March 2025
| Income and endowments from: Donations and legacies Donations Received Grants Received Other trading activities Fund Raising Income Investments Interest Income Total income and endowments Expenditure on: Costs of generating donations and legacies Donations Costs of other trading activities Fund Raising Expenses Total of expenditure on raising funds Charitable activities Register Software Governance costs Independent Examination fees Total of expenditure on charitable activities Employee costs Salaries/wages Pension costs Staff training Motor and travel costs Travel and subsistence |
Unrestricted funds 2025 £ 21,890 9,260 31,150 2,166 2,166 109 109 33,425 - - 1,233 1,233 1,233 6,000 6,000 1,401 1,401 7,401 5,950 418 - 6,368 2,105 2,105 |
Restricted funds 2025 £ - 4,100 4,100 - - - - 4,100 - - - - - - - - - - 11,100 - - 11,100 - - |
Total funds 2025 £ 21,890 13,360 35,250 2,166 2,166 109 109 37,525 - - 1,233 1,233 1,233 6,000 6,000 1,401 1,401 7,401 17,050 418 - 17,468 2,105 2,105 |
Total funds 2024 £ 23,007 35,248 |
|---|---|---|---|---|
| 58,255 | ||||
| 2,319 | ||||
| 2,319 | ||||
| 41 | ||||
| 41 | ||||
| 60,615 90 |
||||
| 90 | ||||
| 4,178 | ||||
| 4,178 | ||||
| 4,268 2,000 |
||||
| 2,000 | ||||
| 1,676 | ||||
| 1,676 | ||||
| 3,676 33,965 795 1,610 |
||||
| 36,370 | ||||
| 2,649 | ||||
| 2,649 |
Page 14
Docusign Envelope ID: 2E99151E-6CB7-4D22-BE37-5E8B1956AC27
PIP Parents Information Portal
Detailed Statement of Financial Activities
| General administrative costs, including depreciation and amortisation Depreciation of Fixtures, Fittings and Equipment Bank charges Equipment repairs and maintenance General insurances Postage and couriers Software, IT support and related costs Stationery and printing Subscriptions Sundry expenses Telephone, fax and broadband Legal and professional costs Consultancy fees Other legal and professional costs Total of expenditure of other costs Total expenditure Net gains on investments Net (expenditure)/income Net (expenditure)/income before other gains/(losses) Other Gains Net movement in funds Reconciliation of funds: Total funds brought forward Total funds carried forward |
96 5 - 252 67 1,134 847 177 - 72 2,650 9,857 - 9,857 20,980 29,614 - 3,811 3,811 - 3,811 10,825 14,636 |
- - - - - - - - - - - - - - 11,100 11,100 - (7,000) (7,000) - (7,000) 8,000 1,000 |
96 5 - 252 67 1,134 847 177 - 72 2,650 9,857 - 9,857 32,080 40,714 - (3,189) (3,189) - (3,189) 18,825 15,636 |
96 181 75 227 468 623 1,023 152 110 265 |
|---|---|---|---|---|
| 3,220 | ||||
| 1,000 32 |
||||
| 1,032 | ||||
| 43,271 | ||||
| 51,215 - |
||||
| 9,400 | ||||
| 9,400 - |
||||
| 9,400 | ||||
| 9,425 | ||||
| 18,825 |
Page 15