Annual Report For financial period 1st April 2021 to 31 March 2022 **PIP-UK Poland Syndrome Support & Network www.pip-uk.org   Charity Registration Number :1188941** 






## Mission 

## Vision 

We will be the centre of Advocate for earlier, expertise for Poland consistent diagnosis Syndrome Research, and treatment paths Wellbeing & Support for the Poland Services and Connection. Syndrome community.  Building awareness for Poland Syndrome and providing support to the community. 

## Goals 

Our main goals are centred around generating scientific activity, supporting the wellbeing of & connecting people across the Poland Syndrome Community. 



Poland S ndrome
About Poland Syndrome
Babies
are
born
with
underdeveloped chest muscle
on one side.
T¥pical symmetryseen Sn
p•rtor•lis m•ior muxh%
Asymmeiry seen due io
•bsent pectoi•l muscle
Poland Syndrome is a rare birth
difference named after Dr Alfred
Poland credited with its discovery
80-99/. OF PEOPLE WITH
POLANO SYNDROME HAVE:
ABSENT OR
UNDERDEVELOPED:
CHEST MUSCLE
8REAST
NIPPLE
01
5-29% of people with
Poland Syndrome
have:
AplasialHypoplasia of
the sternum
02
66
Hand Differences VISUALLY SMALLER OR FUSED FINGERS,
ABSENT OR SHORTENED
POLAND SYNDROME CAN AFFECT ONE
HAND ON THE SAME SIDE OF THE BODY.
5-29/0 of people
have Finger
syndactyly
30-79/0 of people
have Finger
symphalangism
or Fused Finger
bones
01
02


## About PIP-UK 

We set up PIP-UK in 2011, initially as a community group, to raise awareness of Poland Syndrome (PS) and to improve the lives of people living with PS. First we created a website to raise awareness, set up a phone line, then a Facebook page for sharing experiences, and connecting with others. Like us, some of the families we connected with were struggling to get the right diagnosis for their children. We soon realised that many people had lived much of their lives without a proper diagnosis of PS, even connecting to people in their 80's without a diagnosis.  This left many people with not just the physical difference to contend with but mental health issues from a life lived without a diagnosis, thinking they are the only person in the world that was born like them.Agenda 



PIP-UK has created a community group, peer support events, wellbeing sessions, family fun days, children’s clinics and a global Poland Syndrome register to better understand the condition and how it manifests in those with it. All activities are free to access to the community and it is for all ages. 

## Our year in numbers: 

30 people were supported with one-to-one support and helped with direct appeals to the NHS for treatment; 

160 - that's the number our membership grew to this year; 

200 plus phone calls and emails answered for one-to-one support; 616 Instagram followers; 




## Our year in numbers 

Our year in numbers: 

30 people were supported with one-to-one advocacy and helped with direct appeals to the NHS for treatment; 

160 - that's the number our membership grew to this year; 

200 plus phone calls and emails answered for one-to-one support; 

616 Instagram followers; 1096 Facebook likes; Agenda 1181 Facebook followers; 

2000 plus hours spent directly helping and supporting our community; 

20 000 pounds in grant money received; 

59,000 people saw our Facebook post that was the reach. 





## Our Major Achievements 

We have had a tremendous year of growth and support and our small charity and community has grown by leaps and bounds. 

First Family Weekend at Mount Cook Adventure Centre to bring families together for peer support, outdoor activities and more. 

Agenda Launch of first Living well with Poland Syndrome course with Lewis Hatchett. 

First Poland Syndrome MDT clinic at Birmingham Children's Hospital with more planned. 

Launched the Poland Syndrome Community Register (PSCR) - 100 people signed up in the first month 





## Living Well Sessions Report and Impact 

PIP UK teamed up with one of its Ambassadors, Lewis Hatchett, to create ‘Living Well with Poland Syndrome,’ a free 6-week programme that focuses on the use of expressive writing and group work to promote the mental health of young people with Poland Syndrome aged 16 to 25. 

_Lewis Hatchett_ , a 32-year-old former cricket player with Poland Syndrome, which manifests as a missing right pectoral muscle and two ribs, led the programme.  Lewis now hopes to show youth with Poland Syndrome that they, too, are capable of Agenda extraordinary feats, hoping to “reframe negative experiences”, and come to realise that the story these young people with Poland Syndrome have been telling themselves is coming from a negative inner voice by sharing their story in the MindStrong journal (PIP-UK Charity, 2021). Lewis hopes that by doing so, the positive inner voice would be able to emerge and shine through. 

The programme includes a variety of interesting exercises such as prompt and response sections, vision boards, and spider diagrams, all of which encourage meaningful expression. 

The first week focused on building confidence and community, the second week on understanding and building on your strengths, the third week on developing techniques to cope with mental health struggles, the fourth week on training techniques with Poland Syndrome, the fifth week on grounding techniques, and the sixth week on reinforcing all of the techniques learned throughout the programme. 




## Living Well Sessions Report and Impact 

Overall, the goal of this programme was to provide these young people with Poland Syndrome with a toolkit of strategies and abilities to assist them learn to ‘live well’ with Poland Syndrome by following the structure provided. Journaling was used as an effective tool throughout this programme, as it provides a safe and private outlet for expressing these thoughts and feelings- and has been found in studies to help reduce symptoms linked with traumatic, emotional, or stressful experiences. 

Those who participated in the programme took both an opening and closing survey which allowed improvements to be tracked over theAgenda course of the six weeks, with participants reporting an average 13 percent improvement in life satisfaction, 6 percent rise in happiness, 17 percent decrease in anxiety, and an astounding 24 percent increase in a sense of ‘worthwhile-ness’ for their day-to-day activities by the end of the programme. These findings clearly demonstrate that PIP UK’s MindStrong collaboration can dramatically improve the mental health of young participants—and the programme also had a major impact on youth self-esteem too! 

The young participants reported a 17 percent decrease in their desire to have greater self-respect, indicating that their self-respect had improved since they began the programme! 

Furthermore, participants’ inclination to have a positive attitude toward themselves increased by 23 percent, and their satisfaction with themselves increased by 9 percent. These findings demonstrate the powerful influence that journaling programmes can have on teenagers and young adults with rare diseases such as Poland Syndrome. 




## Living Well Sessions Report and Impact 

Polina reported on her experience with the Living Well with Poland Syndrome programme within her blog, saying that “during this course I heard useful things, I even felt that my ideas were being heard,” and that she now doesn’t wear her prosthesis, feeling “better than ever before” (mhamer, 2022). 

Overall, it appears that the Living Well with Poland Syndrome programme helped younger people with Poland syndrome change their perspectives on life and themselves. PIP UK would like to continue working in the future to promote the mental health of persons born Agenda with Poland Syndrome, based on the success of this programme. 

We are planning annual sessions for 2022 and 2023 for all ages. 





## Living Well Sessions Impact 




## **IMPROVEMENT IN LIFE SATISFACTION** 

## **RISE IN HAPPINESS** 



## **DECREASE IN ANXIETY** 

## **INCREASE IN A SENSE OF WORTH** 





## Poland Syndrome community register 2022 

Real-world data from registries and other real-world evidence sources remain a fertile ground of opportunity for advocacy groups and biopharma companies to accelerate rare disease research and better characterize and manage these diseases, their progression and treatment. 

## OBJECTIVES 

To answer this challenge, PIP-UK was focused on ensuring that the data were collected in a standardized way, met regulatory requirements and aligned with their vision to build global collaboration, with the technology as a nucleus for patients to convene and share their experiences. Agenda 

## METHODS 

PIP-UK started working with Pulse Infoframe in 2021 to launch the Poland Syndrome Community Register. Utilising the Pulse Platform, PIP-UK were able to deploy the registry within 4 months with a recruitment target of 100 participants in the first 3 months. Common data elements to form the central hub for data to be characterized and curated were created. PIP-UK and Pulse addressed the regulatory requirements that would be needed for drug development by ensuring that the data are collected in a platform that adheres to FDA and EMA data standards and further provides confidence to participants that their data are stored safely due to compliance with HIPAA and GDPR. 

## RESULTS 

The registry currently has 147 active participants enrolled into the platform where 48% of them are under the age of 10. The oldest participants are over the age of 80 years old. Over 40% of participants are received a diagnosis of Poland Syndrome from their surgeon, while only 13% received their diagnosis from a GP. 



Poland Syndrome community register 2022 



**----- Start of picture text -----**<br>
Agenda<br>**----- End of picture text -----**<br>


## CONCLUSIONS 

With advocacy’s commitment and leadership PIPUK has illustrated how a rare disease community can come together from all around the world and collaborate with other stakeholders so that research into their condition can be advanced in using scientific methodology. 




## Poland Syndrome Clinic 

We were delighted to announce the first ever Poland Syndrome Clinic in the UK in December 2021. Sam, our CEO has been working with Andrea Jester (Clinical Lead at Birmingham Women's and Children’s Hospital) to create a multi-disciplinary clinic specifically to help those living with Poland Syndrome. 

At the moment this is a pilot programme and not funded by the NHS.  We are delighted that the 3 surgeons also Agenda involved agreed there is a need for this multi-disciplinary approach and have agreed to give their time. Our hope is to do 4 a year and open up to people across the UK. 





## Our Impact 

## **1ST POLAND SYNDROME CLINIC IN THE UK** 


## **25+ FAMILIES VISITED THE CLINIC SINCE OPENING** 




## Our Impact 

**1ST FAMILY WEEKEND FOR OUR COMMUNITY** 


Agenda 

**27 FAMILIES ATTENDED OUR FAMILY WEEKEND** 


**8 EVENTS BRINGING OUR COMMUNITY TOGETHER** 




## PIP Parents information Portal - Operating as PIP-UK Poland Syndrome Support and Network 

## Trustee's Report - General Information 

Registered Charity Number: 1188941 Flat 3, School Court, Meyer Street, Stockport, SK3 8JE 

## Trustees: 

Angel Scott-Bottoms (Chair)                 Liz Mckenna (Secretary) Victoria Bedwell (Treasurer from 10 May 21) Shirley Proctor (Trustee)                        Robbie Woods (Trustee 20) Sue King (Resigned 10th March 2022 - Trustee) 

Our purpose 

To relieve those effected by Poland Syndrome in particular but not exclusively by: 

   - Promoting improvements in care for people who are affected by Poland syndrome. Undertaking research into effects of Poland Syndrome and disseminating the useful results thereof 

- Increasing awareness of Poland Syndrome amongst health professionals and the general public The provision of free advice and assistance to persons effected by Poland 

- Agenda Syndrome and their families 

## Structure, Governance and Management 

PIP-UK is a registered charity number 1188941, governed by the Charities Act 2006. The charity is a Charitable Incorporated Organisation registered on 7 April 2020 under the CIO Governing Document. New trustees are appointed by the serving trustees, considering the skills required by the board. 

## Activities 

121 advice and support for families affected by Poland Syndrome. Advocacy services with health care professionals. Wellbeing services and family support services. Hosting events that bring the community together. 

## Public Benefit 

The Trustees confirm that they referred to the Charity Commission's general guidance on public benefit when reviewing the Charity's aims and objectives for the year. Public benefit has been achieved as per the activities outlined in the 'Our Achievements' section of this report. 

## Financial Review 

We have sufficient funds to support the planned projects and running costs and we will be working on diversifying our fundraising to support our growth and vision for the Poland Syndrome Community by increasing the community fundraising and reaching out to other grant providers. 




## PIP Parents information Portal - Operating as PIP-UK Poland Syndrome Support and Network 

## Trustee's Report - General Information 

Registered Charity Number: 1188941 Flat 3, School Court, Meyer Street, Stockport, SK3 8JE 

Reserves Policy 

This policy is designed to set out the process of determining the appropriate level of reserves that PIP-UK is required to hold in order to meet its requirements, while ensuring we are meeting the needs of our service users as best as possible. This means ensuring we can meet our basic running costs, periods of funding and other uncertainty, while ensuring money is available to allow us to meet our charitable aims. 

Using guidance from the Charity Commission, we have identified that our reserves policy is split between the below items, to ensure confidence in our going concern. 

## Running Costs Agenda 

Taking into account our number of paid staff, and notice periods (where applicable), our reserves should cover at a minimum the notice period of these paid staff members, including salary, pensions, and associated tax. 

Where other running costs become applicable (for example, rent), this will be considered. 

Variances in Funding Streams and Restricted Funds 

PIP-UK has high reliance on individual fundraisers and donations, which by nature is a variable funding source. While PIP-UK does gain support via grants from individual organisations of generally between 0 and 10,000 pounds, these are not repeating grants. 

In general, the expectation would be for a peak in funding streams around ‘PS Awareness Day’, and potentially events such as Christmas, with troughs in funding streams around these dates. 

To ensure going concern, PIP-UK will consider the variability of the funding streams in place, and identify and acknowledge any income that should be placed to a Restricted Fund. There is therefore an expectation in our Reserves Policy that PIP-UK will hold higher reserves than our identified range for part of the year, which will be retained to ‘flatten’ the expected trough in funding at other parts of the year. 

Based on the variability of funding streams, and on the basis that PIP-UK is a relatively new charity, we have also identified mitigating processes in the event our expected reserves level cannot be maintained. On discussion with our key third party supplier of the Registry, we have identified alternative payment processes in an emergency event; we have also identified minimum contractual hours that would be possible to maintain the charity’s existence in such an event. 




## PIP Parents information Portal - Operating as PIP-UK Poland Syndrome Support and Network 

Trustee's Report - General Information 

Registered Charity Number: 1188941 Flat 3, School Court, Meyer Street, Stockport, SK3 8JE 

## Reserves Policy 

We are also working towards diversifying our income streams as part of the awareness programme, with the aim to bolster basic levels of funding throughout the year. 

## Lower and Upper Range of Reserves 

Based on the above, we will have a lower and upper range of reserves that will be reviewed on an at least annual basis to ensure this remains appropriate to our running costs and charitable aims. 

This policy has been reviewed in July 2022, at which point the expected level of reserves held is agreed as: 

4,000 - 5,000 GBP. This is based on one paid employee with one month notice period. Agenda 

## Amount of reserves held 

Expected level of reserves are approximately 2 months of required spend = 4,000 to 5,000 GBP. 



## **PIP Parents Information Portal** 

## **Charity No. 1188941** 

**Trustees' Report and Unaudited Accounts** 

**31 March 2022** 



**PIP Parents Information Portal Contents** 

||Pages|
|---|---|
|Trustees' Annual Report|2|
|Independent Examiner's Report|3|
|Statement of Financial Activities|4|
|Balance Sheet|5|
|Notes to the Accounts|6 to 26|
|Detailed Statement of Financial Activities|27 to 28|



Page 1 



**PIP Parents Information Portal** 

**Trustees Annual Report** 

The trustees present their report with the unaudited financial statements of the charity for the year ended 31 March 2022. 

## **REFERENCE AND ADMINISTRATIVE DETAILS** 

## **Charity No. 1188941** 

## **Trustees** 

The following trustees served during the year: 

V. Bedwell 

E. McKenna 

S.B. Proctor 

- A. Scott-Bottoms 

R. Woods 


## **Accountants** 

Solutions Accountancy & Bookkeeping Ltd 

1 The Mews 

Little Brunswick Street 

Huddersfield 

HD1 5JL 

## **OBJECTIVES AND ACTIVITIES, ACHIEVEMENTS AND PERFORMANCE & PLANS FOR FUTURE PERIODS.** 

Refer to Trustee Annual Report. 

## **Statement of trustees' responsibilities in relation to the financial statements** 

The charity trustees are responsible for preparing a trustees' annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). 

The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the applicable Charities (Accounts and Reports) Regulations, and the provisions of the Trust deed. The Trustees are also responsible for safeguarding the assets of the charity and hence taking reasonable steps for the prevention and detection of fraud and other irregularities. 

Signed on behalf of the charity's trustees 

A. Scott-Bottoms Chair 

09 February 2023 

Page 2 



**PIP Parents Information Portal Independent Examiners Report** 

## **Independent Examiner's Report to the trustees of PIP Parents Information Portal** 

I report to the trustees on my examination of the financial statements of PIP Parents Information Portal for the year ended 31 March 2022 which comprise the Statement of Financial Activities, the Balance Sheet and the related notes. 

## **Responsibilities and basis of report** 

As the charity's trustees you are responsible for the preparation of the financial statements in accordance with the requirements of the Charities Act 2011('the Act'). The trustees consider that an audit is not required for this year under the Charities Act 2011, s.144(2) (the 2011 Act) and that an independent examination is needed. 

I report in respect of my examination of the charity's financial statements carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. 

## **Independent examiner's statement** 

I have completed my examination. I can confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in, any material respect: 

- the accounting records were not kept in respect of the charity as required by section 130 of the Act; or the financial statements do not accord with those records; or 

- the financial statements do not comply with the applicable requirements concerning the form and content of the financial statements set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the financial statements give a 'true and fair' view which is not a matter considered as part of an independent examination. 

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached. 

Victoria Newham CPAA 

Solutions Accountancy & Bookkeeping Ltd 1 The Mews Little Brunswick Street Huddersfield 

HD1 5JL 09 February 2023 

Page 3 



**PIP Parents Information Portal Statement of Financial Activities** 

## **for the year ended 31 March 2022** 

|**Notes**<br>**Income and endowments**<br>**from:**<br>Donations and legacies<br>3<br>Other trading activities<br>4<br>Investments<br>5<br>Other<br>6<br>**Total**<br>**Expenditure on:**<br>Raising funds<br>7<br>Charitable activities<br>8<br>Other<br>9<br>**Total**<br>Net gains on investments<br>**Net (expenditure)/income**<br>10<br>Transfers between funds<br>**Net (expenditure)/income**<br>**before other gains/(losses)**<br>**Other gains and losses**<br>**Net movement in funds**<br>**Reconciliation of funds:**<br>Total funds brought forward<br>**Total funds carried forward**|||||
|---|---|---|---|---|
||**Unrestricted**<br>**funds**|**Restricted**<br>**funds**|**Total funds**|**Total funds**|
||**2022**|**2022**|**2022**|**2021**|
||||||
||||||
||11,210|16,315|27,525|22,744|
||3,184|-|3,184|977|
||6|-|6|11|
||552|-|552|-|
||14,952|16,315|31,267|23,732|
||||||
||6,426|-|6,426|1,901|
||745|-|745|2,946|
||12,955|16,315|29,270|351|
||20,126|16,315|36,441|5,198|
||-|-|-|-|
||(5,174)|-|(5,174)|18,534|
||-|-|-|-|
||(5,174)|-|(5,174)|18,534|
||||||
||(5,174)|-|(5,174)|18,534|
||||||
||18,534|-|18,534|-|
||13,360|-|13,360|18,534|
||||||
||||||
||||||



Page 4 



**PIP Parents Information Portal Balance Sheet at 31 March 2022** 

|**Charity No. 1188941**<br>**Current assets**<br>Debtors<br>12<br>Cash at bank and in hand<br>**Creditors:**Amount falling due within one year<br>13<br>**Net current assets**<br>**Total assets less current liabilities**<br>**Net assets excluding pension asset or liability**<br>**Total net assets**<br>**The funds of the charity**<br>**Restricted funds**<br>14<br>**Unrestricted funds**<br>14<br>General funds<br>Designated funds<br>**Reserves**<br>14<br>**Total funds**<br>Approved by the trustees on 09 February 2023<br>And signed on their behalf by:|**2022**<br>4,644<br>9,496<br>14,140<br>(780)<br>13,360<br>13,360<br>13,360<br>13,360<br>3,360<br>10,000<br>13,360<br>13,360|**2021**<br>-<br>21,343|
|---|---|---|
|||21,343<br>(2,809)|
|||18,534<br>18,534|
|||18,534|
|||18,534|
|||18,534<br>-|
|||18,534|
|||18,534|
||||



A. Scott-Bottoms Chair 09 February 2023 

Page 5 



**PIP Parents Information Portal Notes to the Accounts** 

## **for the year ended 31 March 2022** 

- 1 **Accounting policies** 

## **Basis of preparation** 

The financial statements have been prepared in accordance with Statement of Recommended Practice: Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic if Ireland (FRS 102) issued on 16 July 2014 and the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102) and the Charities Act 2011. 

## **Change in basis of accounting or to previous accounts** 

There has been no change to the accounting policies (valuation rules and method of accounting) since last year and no changes have been made to accounts for previous years. 

## **Income** 

Recognition of Income is included in the Statement of Financial Activities (SoFA) when the charity income becomes entitled to, and virtually certain to receive, the income and the amount of the income can be measured with sufficient reliability. Income with related Where income has related expenditure the income and related expenditure is expenditure reported gross in the SoFA. Donations and Voluntary income received by way of grants, donations and gifts is included in the legacies the SoFA when receivable and only when the Charity has unconditional entitlement to the income. Tax reclaims on Income from tax reclaims is included in the SoFA at the same time as the donations and gifts gift/donation to which it relates. Donated services These are only included in income (with an equivalent amount in expenditure) and facilities where the benefit to the Charity is reasonably quantifiable, measurable and material. Volunteer help The value of any volunteer help received is not included in the accounts. Investment income This is included in the accounts when receivable. Gains/(losses) on This includes any gain or loss resulting from revaluing investments to market value revaluation of fixed at the end of the year. assets Gains/(losses) on This includes any gain or loss on the sale of investments. investment assets 

Page 6 



**PIP Parents Information Portal Notes to the Accounts** 

## **Expenditure** 

Recognition of Expenditure is recognised on an accruals basis. Expenditure includes any VAT which expenditure cannot be fully recovered, and is reported as part of the expenditure to which it relates. 

Expenditure on These comprise the costs associated with attracting voluntary income, fundraising raising funds trading costs and investment management costs. Expenditure on These comprise the costs incurred by the Charity in the delivery of its activities and charitable activities services in the furtherance of its objects, including the making of grants and governance costs. 

- Grants payable All grant expenditure is accounted for on an actual paid basis plus an accrual for grants that have been approved by the trustees at the end of the year but not yet paid. 

- Governance costs These include those costs associated with meeting the constitutional and statutory requirements of the Charity, including any audit/independent examination fees, costs linked to the strategic management of the Charity, together with a share of other administration costs. 

- Other expenditure These are support costs not allocated to a particular activity. 

## **Taxation** 

The charity is exempt from tax on its charitable activities. 

## **Trade and other debtors** 

Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due. 

## **Cash and cash equivalents** 

Cash and cash equivalents comprise cash at bank and on hand, demand deposits with banks and other short-term highly liquid investments with original maturities of three months or less and bank overdrafts. In the statement of financial position, bank overdrafts are shown within borrowings or current liabilities. In the Statement of Cash Flows, cash and cash equivalents are shown net of bank overdrafts that are repayable on demand and form an integral part of the company's cash management. 

## **Trade and other creditors** 

Short term creditors are measured at the transaction price. Other creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due. 

## **Receipt of donated goods, facilities and services** 

All donated goods, facilities and services received are recognised within incoming resources and expenditure at an estimate of the value to the charity. 

Page 7 



**PIP Parents Information Portal Notes to the Accounts** 

## 2 **Statement of Financial Activities - prior year** 

|2<br>**Statement of Financial Activities - prior year**||||
|---|---|---|---|
|**Income and endowments from:**<br>Donations and legacies<br>Other trading activities<br>Investments<br>**Total**<br>**Expenditure on:**<br>Raising funds<br>Charitable activities<br>Other<br>**Total**<br>**Net income**<br>**Net income before other**<br>**gains/(losses)**<br>**Other gains and losses:**<br>**Net movement in funds**<br>**Reconciliation of funds:**<br>**Total funds carried forward**<br>3<br>**Income from donations and legacies**<br>Donations<br>Grants receivable<br>4<br>**Income from other trading activities**<br>Fund raising events|**Unrestricted**<br>1,210<br>10,000<br>11,210|**Restricted**<br>-<br>16,315<br>16,315<br>**Unrestricted**<br>3,184<br>3,184|**Unrestricted**<br>**funds**<br>**2021**<br>22,744<br>977<br>11|
||||23,732<br>1,901<br>2,946<br>351|
||||5,198|
||||18,534|
||||18,534|
||||18,534|
||||18,534|
||||**Total**<br>**2022**<br>1,210<br>26,315|
||||27,525|
||||**Total**<br>**2022**<br>3,184|
||||3,184|



Page 8 



**PIP Parents Information Portal Notes to the Accounts** 


**----- Start of picture text -----**<br>
5 Income from investments<br>Unrestricted Total<br>2022<br>Bank interest receivable 6 6<br>6 6<br>6 Other income<br>Unrestricted Total<br>2022<br>Other unrestricted income 552 552<br>552 552<br>7 Expenditure on raising funds<br>Unrestricted Total<br>2022<br>Costs of generating voluntary<br>income<br>Donations 625 625<br>Advertising & marketing 1,620 1,620<br>Fundraising trading costs<br>4,181 4,181<br>Investment management<br>costs<br>Management - -<br>6,426 6,426<br>8 Expenditure on charitable activities<br>Unrestricted Total<br>2022<br>Governance costs<br>Governance costs 745 745<br>745 745<br>**----- End of picture text -----**<br>


Page 9 



**PIP Parents Information Portal Notes to the Accounts** 

## 9 **Other expenditure** 

|Employee costs<br>Motor and travel costs<br>General administrative costs<br>10 **Net (expenditure)/income before transfers**<br>This is stated after charging:<br>Independent Examiner's fee<br>11 **Staff costs**<br>Salaries and wages<br>Pension costs<br>No employee received emoluments in excess<br>12 **Debtors**<br>Trade debtors<br>Other debtors<br>13 **Creditors:**<br>amounts falling due within one year<br>Other creditors<br>Accruals|**Unrestricted**<br>11,814<br>185<br>956<br>12,955<br>of|**Restricted**<br>16,315<br>-<br>-<br>16,315<br>**2022**<br>780<br>**2022**<br>27,221<br>623<br>27,844<br>**2022**<br>3,350<br>1,294<br>4,644<br>**2022**<br>-|**Total**<br>**2022**<br>28,129<br>185<br>956<br>29,270|
|---|---|---|---|
|||780||
|||780||



Page 10 



**PIP Parents Information Portal Notes to the Accounts** 

14 **Movement in funds** 

|**Restricted funds:**<br>**Restricted income funds:**<br>The National Lottery<br>Community Fund<br>Alpkit - AK Foundation<br>St James Place Local Office<br>Fund<br>Lowestoft Council<br>Mazars Trust<br>_Total_<br>**Unrestricted funds:**<br>**General funds**<br>**Designated funds:**<br>Maryland Trust<br>_Total_<br>**Total funds**|**At 1 April**<br>**2021**<br>-<br>-<br>-<br>-<br>-<br>-<br>18,534<br>-<br>-<br>18,534|**Incoming**<br>**resources**<br>**(including**<br>**other**<br>**gains/losses**<br>**)**<br>9,985<br>480<br>2,500<br>2,000<br>1,350<br>16,315<br>4,952<br>10,000<br>10,000<br>31,267|**Resources**<br>**expended**<br>(9,985)<br>(480)<br>(2,500)<br>(2,000)<br>(1,350)<br>(16,315)<br>(20,126)<br>-<br>-<br>(36,441)|
|---|---|---|---|



Purposes and restrictions in relation to the funds: 

|Restricted funds:||
|---|---|
|The National Lottery|Living Well with PS|
|Community Fund||
|Alpkit - AK Foundation|Outdoor activities for family weekend|
|St James Place Local Office|Launchpad for PS|
|Fund||
|Lowestoft Council|Launchpad for PS|
|Mazars Trust|Living Well with PS|
|Designated funds:||
|Maryland Trust|PSCR Pilot|



## 15 **Analysis of net assets between funds** 

|Net current assets|**Unrestricted**<br>**funds**<br>10,010<br>10,010|**Restricted**<br>**funds**<br>3,350|
|---|---|---|
|||3,350|



Page 11 



**PIP Parents Information Portal Notes to the Accounts** 

## 16 **Reconciliation of net debt** 

|Cash and cash equivalents<br>Net debt|**At 1 April**<br>**2021**|**Cash flows**|
|---|---|---|
||21,343|(11,847)|
||21,343<br>21,343|(11,847)<br>(11,847)|
||||



## 17 **Commitments** 

## _**Operating lease commitments**_ 

Annual commitments under non-cancellable operating leases are as follows: 

||**2022**|**2022**|**2021**|
|---|---|---|---|
||**Land and**||**Land and**|
|||**Other**||
|Operating leases with expiry date:|**buildings**||**buildings**|
|**_Pension commitments_**||||
|The pension cost charge to the charity||**2022**||
|amounted to:||623||



Page 12 



**PIP Parents Information Portal Notes to the Accounts** 

Page 13 



**PIP Parents Information Portal Notes to the Accounts** 

## **Expenditure** 

Recognition of Expenditure is recognised on an accruals basis. Expenditure includes any VAT which expenditure cannot be fully recovered, and is reported as part of the expenditure to which it relates. 

Expenditure on These comprise the costs associated with attracting voluntary income, fundraising raising funds trading costs and investment management costs. Expenditure on These comprise the costs incurred by the Charity in the delivery of its activities and charitable activities services in the furtherance of its objects, including the making of grants and governance costs. 

- Grants payable All grant expenditure is accounted for on an actual paid basis plus an accrual for grants that have been approved by the trustees at the end of the year but not yet paid. 

- Governance costs These include those costs associated with meeting the constitutional and statutory requirements of the Charity, including any audit/independent examination fees, costs linked to the strategic management of the Charity, together with a share of other administration costs. 

- Other expenditure These are support costs not allocated to a particular activity. 

## **Taxation** 

The charity is exempt from tax on its charitable activities. 

## **Trade and other debtors** 

Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due. 

## **Cash and cash equivalents** 

Cash and cash equivalents comprise cash at bank and on hand, demand deposits with banks and other short-term highly liquid investments with original maturities of three months or less and bank overdrafts. In the statement of financial position, bank overdrafts are shown within borrowings or current liabilities. In the Statement of Cash Flows, cash and cash equivalents are shown net of bank overdrafts that are repayable on demand and form an integral part of the company's cash management. 

## **Trade and other creditors** 

Short term creditors are measured at the transaction price. Other creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due. 

## **Receipt of donated goods, facilities and services** 

All donated goods, facilities and services received are recognised within incoming resources and expenditure at an estimate of the value to the charity. 

Page 14 



**PIP Parents Information Portal Notes to the Accounts** 

## 2 **Statement of Financial Activities - prior year** 

|2<br>**Statement of Financial Activities - prior year**||||
|---|---|---|---|
|**Income and endowments from:**<br>Donations and legacies<br>Other trading activities<br>Investments<br>**Total**<br>**Expenditure on:**<br>Raising funds<br>Charitable activities<br>Other<br>**Total**<br>**Net income**<br>**Net income before other**<br>**gains/(losses)**<br>**Other gains and losses:**<br>**Net movement in funds**<br>**Reconciliation of funds:**<br>**Total funds carried forward**<br>3<br>**Income from donations and legacies**<br>Donations<br>Grants receivable<br>4<br>**Income from other trading activities**<br>Fund raising events|**Unrestricted**<br>1,210<br>10,000<br>11,210|**Restricted**<br>-<br>16,315<br>16,315<br>**Unrestricted**<br>3,184<br>3,184|**Unrestricted**<br>**funds**<br>**2021**<br>22,744<br>977<br>11|
||||23,732<br>1,901<br>2,946<br>351|
||||5,198|
||||18,534|
||||18,534|
||||18,534|
||||18,534|
||||**Total**<br>**2022**<br>1,210<br>26,315|
||||27,525|
||||**Total**<br>**2022**<br>3,184|
||||3,184|



Page 15 



**PIP Parents Information Portal Notes to the Accounts** 


**----- Start of picture text -----**<br>
5 Income from investments<br>Unrestricted Total<br>2022<br>Bank interest receivable 6 6<br>6 6<br>6 Other income<br>Unrestricted Total<br>2022<br>Other unrestricted income 552 552<br>552 552<br>7 Expenditure on raising funds<br>Unrestricted Total<br>2022<br>Costs of generating voluntary<br>income<br>Donations 625 625<br>Advertising & marketing 1,620 1,620<br>Fundraising trading costs<br>4,181 4,181<br>Investment management<br>costs<br>Management - -<br>6,426 6,426<br>8 Expenditure on charitable activities<br>Unrestricted Total<br>2022<br>Governance costs<br>Governance costs 745 745<br>745 745<br>**----- End of picture text -----**<br>


Page 16 



**PIP Parents Information Portal Notes to the Accounts** 

## 9 **Other expenditure** 

|Employee costs<br>Motor and travel costs<br>General administrative costs<br>10 **Net (expenditure)/income before transfers**<br>This is stated after charging:<br>Independent Examiner's fee<br>11 **Staff costs**<br>Salaries and wages<br>Pension costs<br>No employee received emoluments in excess<br>12 **Debtors**<br>Trade debtors<br>Other debtors<br>13 **Creditors:**<br>amounts falling due within one year<br>Other creditors<br>Accruals|**Unrestricted**<br>11,814<br>185<br>956<br>12,955<br>of|**Restricted**<br>16,315<br>-<br>-<br>16,315<br>**2022**<br>780<br>**2022**<br>27,221<br>623<br>27,844<br>**2022**<br>3,350<br>1,294<br>4,644<br>**2022**<br>-|**Total**<br>**2022**<br>28,129<br>185<br>956<br>29,270|
|---|---|---|---|
|||780||
|||780||



Page 17 



**PIP Parents Information Portal Notes to the Accounts** 

14 **Movement in funds** 

|**Restricted funds:**<br>**Restricted income funds:**<br>The National Lottery<br>Community Fund<br>Alpkit - AK Foundation<br>St James Place Local Office<br>Fund<br>Lowestoft Council<br>Mazars Trust<br>_Total_<br>**Unrestricted funds:**<br>**General funds**<br>**Designated funds:**<br>Maryland Trust<br>_Total_<br>**Total funds**|**At 1 April**<br>**2021**<br>-<br>-<br>-<br>-<br>-<br>-<br>18,534<br>-<br>-<br>18,534|**Incoming**<br>**resources**<br>**(including**<br>**other**<br>**gains/losses**<br>**)**<br>9,985<br>480<br>2,500<br>2,000<br>1,350<br>16,315<br>4,952<br>10,000<br>10,000<br>31,267|**Resources**<br>**expended**<br>(9,985)<br>(480)<br>(2,500)<br>(2,000)<br>(1,350)<br>(16,315)<br>(20,126)<br>-<br>-<br>(36,441)|
|---|---|---|---|



Purposes and restrictions in relation to the funds: 

|Restricted funds:||
|---|---|
|The National Lottery|Living Well with PS|
|Community Fund||
|Alpkit - AK Foundation|Outdoor activities for family weekend|
|St James Place Local Office|Launchpad for PS|
|Fund||
|Lowestoft Council|Launchpad for PS|
|Mazars Trust|Living Well with PS|
|Designated funds:||
|Maryland Trust|PSCR Pilot|



## 15 **Analysis of net assets between funds** 

|Net current assets|**Unrestricted**<br>**funds**<br>10,010<br>10,010|**Restricted**<br>**funds**<br>3,350|
|---|---|---|
|||3,350|



Page 18 



**PIP Parents Information Portal Notes to the Accounts** 

## 16 **Reconciliation of net debt** 

|Cash and cash equivalents<br>Net debt|**At 1 April**<br>**2021**|**Cash flows**|
|---|---|---|
||21,343|(11,847)|
||21,343<br>21,343|(11,847)<br>(11,847)|
||||



## 17 **Commitments** 

## _**Operating lease commitments**_ 

Annual commitments under non-cancellable operating leases are as follows: 

||**2022**|**2022**|**2021**|
|---|---|---|---|
||**Land and**||**Land and**|
|||**Other**||
|Operating leases with expiry date:|**buildings**||**buildings**|
|**_Pension commitments_**||||
|The pension cost charge to the charity||**2022**||
|amounted to:||623||



Page 19 



**PIP Parents Information Portal Notes to the Accounts** 

Page 20 



**PIP Parents Information Portal Notes to the Accounts** 

## **Expenditure** 

Recognition of Expenditure is recognised on an accruals basis. Expenditure includes any VAT which expenditure cannot be fully recovered, and is reported as part of the expenditure to which it relates. 

Expenditure on These comprise the costs associated with attracting voluntary income, fundraising raising funds trading costs and investment management costs. Expenditure on These comprise the costs incurred by the Charity in the delivery of its activities and charitable activities services in the furtherance of its objects, including the making of grants and governance costs. 

- Grants payable All grant expenditure is accounted for on an actual paid basis plus an accrual for grants that have been approved by the trustees at the end of the year but not yet paid. 

- Governance costs These include those costs associated with meeting the constitutional and statutory requirements of the Charity, including any audit/independent examination fees, costs linked to the strategic management of the Charity, together with a share of other administration costs. 

- Other expenditure These are support costs not allocated to a particular activity. 

## **Taxation** 

The charity is exempt from tax on its charitable activities. 

## **Trade and other debtors** 

Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due. 

## **Cash and cash equivalents** 

Cash and cash equivalents comprise cash at bank and on hand, demand deposits with banks and other short-term highly liquid investments with original maturities of three months or less and bank overdrafts. In the statement of financial position, bank overdrafts are shown within borrowings or current liabilities. In the Statement of Cash Flows, cash and cash equivalents are shown net of bank overdrafts that are repayable on demand and form an integral part of the company's cash management. 

## **Trade and other creditors** 

Short term creditors are measured at the transaction price. Other creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due. 

## **Receipt of donated goods, facilities and services** 

All donated goods, facilities and services received are recognised within incoming resources and expenditure at an estimate of the value to the charity. 

Page 21 



**PIP Parents Information Portal Notes to the Accounts** 

## 2 **Statement of Financial Activities - prior year** 

|2<br>**Statement of Financial Activities - prior year**||||
|---|---|---|---|
|**Income and endowments from:**<br>Donations and legacies<br>Other trading activities<br>Investments<br>**Total**<br>**Expenditure on:**<br>Raising funds<br>Charitable activities<br>Other<br>**Total**<br>**Net income**<br>**Net income before other**<br>**gains/(losses)**<br>**Other gains and losses:**<br>**Net movement in funds**<br>**Reconciliation of funds:**<br>**Total funds carried forward**<br>3<br>**Income from donations and legacies**<br>Donations<br>Grants receivable<br>4<br>**Income from other trading activities**<br>Fund raising events|**Unrestricted**<br>1,210<br>10,000<br>11,210|**Restricted**<br>-<br>16,315<br>16,315<br>**Unrestricted**<br>3,184<br>3,184|**Unrestricted**<br>**funds**<br>**2021**<br>22,744<br>977<br>11|
||||23,732<br>1,901<br>2,946<br>351|
||||5,198|
||||18,534|
||||18,534|
||||18,534|
||||18,534|
||||**Total**<br>**2022**<br>1,210<br>26,315|
||||27,525|
||||**Total**<br>**2022**<br>3,184|
||||3,184|



Page 22 



**PIP Parents Information Portal Notes to the Accounts** 


**----- Start of picture text -----**<br>
5 Income from investments<br>Unrestricted Total<br>2022<br>Bank interest receivable 6 6<br>6 6<br>6 Other income<br>Unrestricted Total<br>2022<br>Other unrestricted income 552 552<br>552 552<br>7 Expenditure on raising funds<br>Unrestricted Total<br>2022<br>Costs of generating voluntary<br>income<br>Donations 625 625<br>Advertising & marketing 1,620 1,620<br>Fundraising trading costs<br>4,181 4,181<br>Investment management<br>costs<br>Management - -<br>6,426 6,426<br>8 Expenditure on charitable activities<br>Unrestricted Total<br>2022<br>Governance costs<br>Governance costs 745 745<br>745 745<br>**----- End of picture text -----**<br>


Page 23 



**PIP Parents Information Portal Notes to the Accounts** 

## 9 **Other expenditure** 

|Employee costs<br>Motor and travel costs<br>General administrative costs<br>10 **Net (expenditure)/income before transfers**<br>This is stated after charging:<br>Independent Examiner's fee<br>11 **Staff costs**<br>Salaries and wages<br>Pension costs<br>No employee received emoluments in excess<br>12 **Debtors**<br>Trade debtors<br>Other debtors<br>13 **Creditors:**<br>amounts falling due within one year<br>Other creditors<br>Accruals|**Unrestricted**<br>11,814<br>185<br>956<br>12,955<br>of|**Restricted**<br>16,315<br>-<br>-<br>16,315<br>**2022**<br>780<br>**2022**<br>27,221<br>623<br>27,844<br>**2022**<br>3,350<br>1,294<br>4,644<br>**2022**<br>-|**Total**<br>**2022**<br>28,129<br>185<br>956<br>29,270|
|---|---|---|---|
|||780||
|||780||



Page 24 



**PIP Parents Information Portal Notes to the Accounts** 

14 **Movement in funds** 

|**Restricted funds:**<br>**Restricted income funds:**<br>The National Lottery<br>Community Fund<br>Alpkit - AK Foundation<br>St James Place Local Office<br>Fund<br>Lowestoft Council<br>Mazars Trust<br>_Total_<br>**Unrestricted funds:**<br>**General funds**<br>**Designated funds:**<br>Maryland Trust<br>_Total_<br>**Total funds**|**At 1 April**<br>**2021**<br>-<br>-<br>-<br>-<br>-<br>-<br>18,534<br>-<br>-<br>18,534|**Incoming**<br>**resources**<br>**(including**<br>**other**<br>**gains/losses**<br>**)**<br>9,985<br>480<br>2,500<br>2,000<br>1,350<br>16,315<br>4,952<br>10,000<br>10,000<br>31,267|**Resources**<br>**expended**<br>(9,985)<br>(480)<br>(2,500)<br>(2,000)<br>(1,350)<br>(16,315)<br>(20,126)<br>-<br>-<br>(36,441)|
|---|---|---|---|



Purposes and restrictions in relation to the funds: 

|Restricted funds:||
|---|---|
|The National Lottery|Living Well with PS|
|Community Fund||
|Alpkit - AK Foundation|Outdoor activities for family weekend|
|St James Place Local Office|Launchpad for PS|
|Fund||
|Lowestoft Council|Launchpad for PS|
|Mazars Trust|Living Well with PS|
|Designated funds:||
|Maryland Trust|PSCR Pilot|



## 15 **Analysis of net assets between funds** 

|Net current assets|**Unrestricted**<br>**funds**<br>10,010<br>10,010|**Restricted**<br>**funds**<br>3,350|
|---|---|---|
|||3,350|



Page 25 



**PIP Parents Information Portal Notes to the Accounts** 

## 16 **Reconciliation of net debt** 

|Cash and cash equivalents<br>Net debt|**At 1 April**<br>**2021**|**Cash flows**|
|---|---|---|
||21,343|(11,847)|
||21,343<br>21,343|(11,847)<br>(11,847)|
||||



## 17 **Commitments** 

## _**Operating lease commitments**_ 

Annual commitments under non-cancellable operating leases are as follows: 

||**2022**|**2022**|**2021**|
|---|---|---|---|
||**Land and**||**Land and**|
|||**Other**||
|Operating leases with expiry date:|**buildings**||**buildings**|
|**_Pension commitments_**||||
|The pension cost charge to the charity||**2022**||
|amounted to:||623||



Page 26 



**PIP Parents Information Portal Detailed Statement of Financial Activities** 

## **for the year ended 31 March 2022** 

|**Income and endowments from:**<br>Donations and legacies<br>Donations<br>Grants receivable<br>Other trading activities<br>Fund raising events<br>Investments<br>Bank interest receivable<br>Other<br>Other unrestricted income<br>**Total income and endowments**<br>**Expenditure on:**<br>Costs of generating donations and<br>legacies<br>Donations<br>Advertising & marketing<br>Costs of other trading activities<br>Investment management costs<br>Management<br>**Total of expenditure on raising**<br>**funds**<br>Governance costs<br>Governance costs<br>**Total of expenditure on charitable**<br>**activities**<br>Employee costs<br>Salaries/wages<br>Pension costs<br>Staff training|**Unrestricted**<br>**funds**<br>**2022**<br>1,210<br>10,000|**Restricted**<br>**funds**<br>**2022**<br>-<br>16,315<br>16,315<br>-<br>-<br>-<br>-<br>-<br>-<br>16,315<br>-<br>-<br>-<br>-<br>-<br>-<br>-<br>-<br>-<br>-<br>-<br>16,315<br>-<br>-|**Total funds**<br>**2022**<br>1,210<br>26,315|**Total funds**<br>**2021**<br>2,744<br>20,000|
|---|---|---|---|---|
||11,210||27,525|22,744|
||3,184||3,184|977|
||3,184||3,184|977|
||6||6|11|
||6||6|11|
||552||552|-|
||552||552|-|
||14,952<br>625<br>1,620||31,267<br>625<br>1,620|23,732<br>510<br>-|
||2,245||2,245|510|
||4,181||4,181|1,390|
||4,181||4,181|1,390|
||-||-|1|
||-||-|1|
||6,426<br>745||6,426<br>745|1,901<br>2,946|
||745||745|2,946|
||745<br>10,906<br>623<br>285||745<br>27,221<br>623<br>285|2,946<br>-<br>-<br>-|



Page 27 



## **PIP Parents Information Portal Detailed Statement of Financial Activities** 

|Motor and travel costs<br>Travel and subsistence<br>General administrative costs,<br>including depreciation and<br>amortisation<br>General insurances<br>Software, IT support and related<br>costs<br>Stationery and printing<br>Sundry expenses<br>**Total of expenditure of other costs**<br>**Total expenditure**<br>Net gains on investments<br>**Net (expenditure)/income**<br>**Net (expenditure)/income before**<br>**other gains/(losses)**<br>Other Gains<br>**Net movement in funds**<br>**Reconciliation of funds:**<br>Total funds brought forward<br>**Total funds carried forward**|11,814|16,315<br>-<br>-<br>-<br>-<br>-<br>-<br>-<br>16,315<br>16,315<br>-<br>-<br>-|28,129|-|
|---|---|---|---|---|
||185||185|-|
||185||185|-|
||227<br>227<br>176<br>326||227<br>227<br>176<br>326|-<br>351<br>-<br>-|
||956||956|351|
||12,955||29,270|351|
||20,126<br>-||36,441<br>-|5,198<br>-|
||(5,174)||(5,174)|18,534|
||(5,174)<br>-||(5,174)<br>-|18,534<br>-|
|||-|||
||(5,174)|-|(5,174)|18,534|
||||18,534|-|
||18,534|-|||
||13,360|-|13,360|18,534|



Page 28