Charity registration number 1188298 (England and Wales)
Company registration number 11785842
SUCCESS LIFE AFTER CURE LIMITED
ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2024
SUCCESS LIFE AFTER CURE LIMITED
LEGAL AND ADMINISTRATIVE INFORMATION
| Trustees | Philip Austin | |
|---|---|---|
| Jane Hobson | ||
| Hugh Stewart | ||
| Jennifer Limond | ||
| Marco Previero | ||
| Dr Helen Spoudeas | ||
| Dr Jane Williams | ||
| Richard Crowther | (Retired by rotation, | |
| 9thFebruary 2024) | ||
| Charity number (England and Wales) | 1188298 | |
| Company number | 11785842 | |
| Registered office | 280 Bishopsgate | |
| London | ||
| EC2M 4RB | ||
| Independent examiner | Tom Wilcox | |
| Counterculture Partnership LLP | ||
| Bank Chambers | ||
| Main Street | ||
| Hawes | ||
| North Yorkshire | ||
| DL8 3QL |
SUCCESS LIFE AFTER CURE LIMITED
CONTENTS
| Page | |
|---|---|
| Chair's Report | 1 - 3 |
| Trustees' report | 4 - 16 |
| Independent examiner's report | 18 |
| Statement of financial activities | 19 |
| Balance sheet | 20 |
| Notes to the financial statements | 21 - 29 |
SUCCESS LIFE AFTER CURE LIMITED
CHAIR'S REPORT
FOR THE YEAR ENDED 31 DECEMBER 2024
FOUNDER / CEO's REPORT
The Directors have pleasure in presenting their report and the financial statements for the charitable company for the year ended 31 December 2024. The Directors have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS 102) (effective 1 January 2019).
Cure Alone Is Not Enough
At SUCCESS, we remain steadfast in our belief that curing childhood brain tumours, without also curing the underlying brain injury, is not enough. Survival must come with a future - one that restores health, cognitive potential, independence, and partnership and employment opportunities; the key ingredients to a quality life and one worth living. With 80% of children now looking forward to a near normal life-span, and the rest still subjected to intense experimental therapies, we can no longer ignore their moral right to comprehensive complex needs assessments and neurorehabilitation as part and parcel of their cancer treatment; from the very beginning and throughout the life span.
We now have evidence from the North Thames Cancer Network that less than 50% of patients and their neurooncology professionals recognise a child's need for neurorehabilitation or specific educational support and only 6% received streamlined neurorehabilitation post-operatively. We know it is especially important to keep up with complex needs assessments throughout the four key maturational stages of the growing body and brain, [infancy, childhood, adolescence and young adulthood], and to provide tailored neurorehabilitation, alongside timely growth and other hormone replacement, whilst it has the greatest impact - before maturation is complete at 25 years of age. These services are not comprehensively provided in the cancer / late effects pathway and young adult survivors tell us they struggle to access co-ordinated holistic recovery care lifelong. We estimate 40,000 all-age survivors now exist across the UK, accruing by 1,000 every year, and need our advocacy and support.
Cure alone is not enough when:
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Survivors face lifelong invisible visual, hearing, language, learning, seizure and movement disorders
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Young children, with years of brain development ahead, miss out on crucial early interventions.
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Young adults struggle with peer acceptance, fatigue, education, employment, and mental health
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Rehabilitation, essential from diagnosis, and across the life-span, remains out of reach for many.
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Parents struggle to access targeted educational, neurodevelopmental and psychological support.
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Life-threatening secondary conditions, like hormone deficiencies, could be limited by specialist care from the beginning and across the life span.
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Survival statistics focus on five-year outcomes, ignoring long-term quality of life.
Delivering on Our Vision
While advances in cancer research have improved survival, the cost of treatment to a developing child is often overlooked. SUCCESS remains committed to ensuring that every child's recovery is as complete as their cure, from diagnosis onwards.
To achieve this, we continue to push for a SUCCESS National Recovery Pathway, integrated within the NHS. This parallel system would provide tumour-specific rehabilitation from diagnosis through to adulthood, ensuring survivors thrive - not just survive. SUCCESS also recognises and champions a bespoke pathway for the few {<30 p.a.] very rare tumours of the vital deep midbrain [in the hypothalamus and pituitary] . Such endocrine tumours of the primitive master gland controlling life itself, though often low grade, are particularly problematic to children's development and sensitive to surgery; they require dedicated and experienced pituitary teams [often operating through the nose] for the best chance of a 'harmless' first time cure. This year SUCCESS stepped up its Parliamentary campaign to NHS England for equitable, bespoke pituitary care for those under 16 years, to be concentrated to a few national centres, as already exist for adults.
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SUCCESS LIFE AFTER CURE LIMITED
CHAIR'S REPORT (CONTINUED)
FOR THE YEAR ENDED 31 DECEMBER 2024
Our vision and objectives
Streamlining existing NHS services to achieve cost-efficient, evidence-based reform requires navigating speciality and geographical complexity, engaging diverse professionals and commissioners beyond oncology, and making the most of limited resources. SUCCESS is committed to transforming healthcare delivery to improve secondary health outcomes by integrating brain injury evaluation and recovery from the start of the brain tumour journey.
To help us we are proud to have engaged a number of high profile NHS Clinicians and Parliamentarians to our Clinical and Parliamentary Advisory Groups. Key amongst them have been Professors David Walker and Darren Hargrave, together with Lord Sandhurst and Sir Bruce Keogh, alongside our patron Dominic Grieve KC. It is their wise counsel, actions and advocacy on our behalf at our conferences, in Parliament and from the House of Lords, that have gained us credence and an audience at NHSE in 2025.
This is an ambitious vision, and we have limited funds. In order to progress our agenda, we continue to breakdown our projects and initiatives across three key objectives which underpin our long term strategy - the next 5 years are pivotal as we set out our key goals across three strategic pillars:
1. Amplifying the Survivor Voice - Educational Networking & Research Participation
Over the next five years, SUCCESS aims to establish itself as the beacon gold standard in survivor-led advocacy, family education and empowerment, peer support, professional learning in survivorship and health evaluation research engagement. We will expand our biannual conferences, now attracting 100 -150 to close to 200 attendees in both London and at a northern regional centre, to include a CPD-accredited educational component for selffunded professionals a prize for the best research presentation, and a post-conference on-line highlights publication and virtual meeting. A pre-conference satellite meeting of a new national 'SUCCESSCONNECT' advocate group made up of parents / survivors, therapists, nurses and allied community professionals will also be established to promote and endorse the parallel nature of recovery and the recovery pathway.
These events will focus on health-related quality of life (HR-QoL) outcomes for brain tumour survivors, with travel grants and research awards to promote high-quality health evaluation studies. Additionally, SUCCESS will enhance its early role in Patient and Public Involvement (PPI) by actively trying to shape HR-QoL research in academic centres, neuro-oncology clinics, and as partners with major funding bodies like NIHR and brain tumour charities. Through our own BraveHearts Magazine publication, website blogs, and collaborative studies, we will amplify survivor perspectives and drive meaningful research impact in this neglected area.
2. Alleviating Suffering & Isolation - BraveHearts Programme
Building strong peer support networks amongst survivors, siblings and families, but also amongst professionals trying to support survivors beyond the cure itself, remains central to SUCCESS's vision. We will expand our BraveHearts Programme, the voice of SUCCESS, ensuring survivors and families have access to peer-to-peer support groups, interactive webinars, WhatsApp communities, and in-person events across the UK. A Survivor Manual, written by our 'BraveHearts', and further family publications will provide essential guidance, while dedicated summer camps for 15-25-year-olds will promote wellbeing, friendships, independence and vocational support, including the birth of a SUCCESS 'Etsy' shop to showcase their talents. Recognizing the critical gap in mental health services, we will develop an advisory service for education advice, psychology and neuropsychiatry, alongside a professional helpline. Additionally, we will strengthen survivor and parent councils, with lead trustees from each represented on the board, always ensuring dialogue between our beneficiaries and diverse medical experts on hand to provide advice, and fostering a supportive, informed community.
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SUCCESS LIFE AFTER CURE LIMITED
CHAIR'S REPORT (CONTINUED)
FOR THE YEAR ENDED 31 DECEMBER 2024
3. Accelerating & Advocating NHS Service Reform - SUCCESS Recovery Pathway
SUCCESS is committed to transforming survivorship care by driving policy change and service innovation within the NHS. We will innovate with our Digital Therapy Programme with ReAbility UK, provide evidence of need by building on our North Thames Gap Analysis Study and continue to build a head of steam with our lobbying efforts towards endorsing and implementing the SUCCESS Recovery Pathway, integrating parallel complex needs neurorehabilitation and neuroendocrine [pituitary] services into survivorship care. Key milestones include securing commissioned implementation of our world-first national guidelines for centralized paediatric pituitary tumour services, commissioning targeted grant-funded studies into education, career opportunities, neurorehabilitation, and mental health outcomes, and achieving formal service specifications for brain tumour survivorship care. Over the next five years, the Digital Therapy programme will aim to evaluate goal-based and wellbeing outcomes in 300 children under 19 years, the first community programme of its kind to this cohort, providing a baseline report on this new technology against which to benchmark future development and delivery of such innovative platforms to make rehabilitation accessible throughout the life span and hence improve survivorship outcomes. Additionally, we will seek to establish the SUCCESS Keyworker Advocate role, to lead the SUCESSCONNECT national 'think tank' group with dedicated funding for an inaugural coordinator/trainer and the first cohort of trained advocates, positioning SUCCESS as a leader in survivorship advocacy and professional collaboration .
Thank you
We've made incredible strides this year, yet there is still much to be done ahead - 2024 has built on the success of 2023 and sharpened our focus on turning our vision into reality.
Despite doubling our conference and support offering in the last two years to include a northern cohort and some 1000 beneficiaries, within the same income generation of some £100,000 over the last 5 years, this has been achieved with much voluntary support and expertise from supporters and trustees for which I am exceptionally grateful. Our funds remain limited and there is now an urgency to regroup to generate the income needed to deliver and expand across the UK, the projects we have developed and begun. We are restructuring the board and the executive to prioritise fund raising against the urgency to progress across all fronts - doubling our beneficiary base, enhancing diagnostic complex needs assessments, establishing specialised paediatric pituitary tumour services, improving access to all forms of rehabilitative support, and creating a mandated, fully integrated and commissioned recovery pathway from the moment of diagnosis. After years of being overlooked, it is clear that through SUCCESS, this cause has not only found its voice but is finally being heard. Help us in achieving our vision for enabling a brighter, better future for every childhood brain tumour survivor.
I am so grateful to all our many parent, lay and professional volunteers, our donors, big and small, our board of trustees and patron, and to all the different medical professionals and Parliamentarians, who have contributed the much needed encouragement and valued support, formal and informal advice over the last year. We acknowledge and thank you all.
And last but never least, as always, I extend a heartfelt debt of thanks to our amazing BraveHearts, the cohort of courageous survivors and their families from whom we learn so much every day, whose voices we are proud to represent and for whom we exist to inspire others.
Dr Helen Spoudeas
Chairman
Date: 4 April 2025
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT)
FOR THE YEAR ENDED 31 DECEMBER 2024
The trustees present their annual report and financial statements for the year ended 31 December 2024.
The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the charity's governing document, the Companies Act 2006, FRS 102 "The Financial Reporting Standard applicable in the UK and Republic of Ireland" and the Charities SORP "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)".
Objectives and activities
Objectives and aims
Success Charity - Life After Cure exists to enable brighter futures for childhood brain tumour survivors.
To promote and protect the physical and mental health, and relieve the needs of childhood brain tumour survivors ("survivors") treated in the United Kingdom by providing equipment, facilities and services not normally provided by the statutory authorities and in particular:
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i. providing information, resources, advocacy support and education support to the survivors, their families and their education professionals;
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ii. providing multi-disciplinary clinician led rehabilitation treatment ancillary to that provided by the statutory authorities;
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iii. undertaking research into the treatment and outcomes of survivors to identify rehabilitation needs and challenges and publishing the useful results;
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iv. providing mentoring and network groups for survivors and their families; and
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v. providing grants to survivors to access medical support.
The Charity aims to achieve these objectives through a number of activities associated with its three driving ambitions of:
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Amplifying the voice of survivors and their families
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Alleviating social isolation for survivors and their families
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Accelerating rehabilitative services
The Trustees have considered the Charity Commission's guidance on public benefit, including the guidance "public benefit: running a charity (PB2)" and are satisfied that the aims of the Charity are carried out wholly in pursuit of its charitable aims for the public benefit.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
Activities
Achievement and performance
Significant activities
Assessing Access to, and Knowledge of, Rehabilitation
North Thames Cancer Network Gap Analysis Study
SUCCESS has worked extensively to assess rehabilitation needs in 2024. Between October 2023 and August 2024, we commissioned a 9-month gap-analysis study with Great Ormond Street Hospital (GOSH) to capture in two timeperiods, the knowledge of, availability for, and quality of neurorehabilitative care evaluated against specified best practice NICE guidance since 2005, in a cross-sectional sample population of suvivors, parents and clinicians circumscribed to the North Thames Cancer Region.
This record review and questionnaire study showed significant lack of awareness amongst oncology professionals and families in how to refer or access educational and rehabilitative services in some 50%, with little difference between time cohorts, and only 6% receiving streamlined services in line with an acquired brain injury. This study's launch, with generous funding from The Gerald and Gail Ronson Family Foundation, was announced at our March 2024 London conference, initial findings being presented at our October Manchester Roadshow, with more detailed analysis, publication and dissemination to be pursued in 2025.
The Big Survivorship Survey
In Spring 2024 we also launched a national on-line survey through our website, with a BBC local radio-campaign to connect with all survivors of a brain tumour diagnosed before their 25th birthday, and ask them to provide their experiences on aftercure rehabilitation / recovery care in order to inform our NHS England campaign. This is an ongoing survey and to date of 50 responses, only 2 were aware that NICE had recommended rehabilitation to children with brain tumours back in 2005 .
Annual conference programmes - London & Manchester
Our Annual London Spring conference during brain tumour awareness month in March remains our flagship national event. We were thrilled to welcome 140 delegates to 1 Wimpole St, the home of The Royal Society of Medicine on March 2nd 2024, as well as Derek Thomas MP, chair of the All Party Parliamentary Group [APPG] on Brain Tumours, to take part in the final panel debate with Lord Sandhurst chaired by our patron Dominic Grieve KC. Our goal was to SHINE-Share, Innovate, Network, and Empower-and achieve 'Success-ful Destinations' across to advance Brighter Futures for Childhood Brain Tumour Survivors. For the first time, we also offered CPD training to new hospital and community professionals supporting recovery beyond cure. SUCCESS will continue to invest in its conference programme and plans are already underway to deliver on our 8th Annual Conference on 15th March 2025.
At the same time we launched our 2nd regional roadshow in Manchester on 19th October 2024, greeting some 70 delegates new to SUCCESS and bringing together 5 northern paediatric neuroncology centres, their professionals and their families [Manchester, Leeds, Liverpool, Nottingham, Sheffield], for the first time. We were delighted to have Professor Simon Kenney, NHSE s national clinical director for children, as our key guest speaker and to create new professional and patient connections suppoprtive of our work. We also engaged with the national group of paediatric neuro-oncology nurses at their annual meeting at the Christie hospital and introduced the idea of creating the SUCCESSCONNECT advocate group we are developing in 2025. We have scheduled our 3rd northern roadshow for 11th October 2025
Lobbying NHS England
This programme is critical to our desire to expand engagement across major paediatric neuro-oncology centres and engage decision-makers in NHSE and government to define a cost-efficient, safe and effective, integrated rehabilitation pathway, setting measurable goals for national implementation. To this end, we have had initial positive response from both NHS England and the Department of Health indicating their willingness to work with us to assess key gaps in service for this vulnerable population. This is indicative of the increasingly successful way in which we are lobbying for change through Parliament and NHSE with vital leadership from Lord Sandhurst and the support of our patron.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
Building a sense of community
The cornerstone of our existence is building our community of survivors, their parents and families across the UK. We strive to support some 1000 current beneficiaries at face to face events such as our conferences, summer picnic and FUN-draising events and our much loved Christmas Carol Concert. We are expanding our Peer mentoring programmes to include parents and siblings whilst bringing training in-house, and enlarging our mediated online offering of weekly friendship and monthly themed Q/A groups, parent and survivor whatsapp support groups, an international health unlocked forum and increasing presence on social media, as well as our survivors' quarterly Braveheart magazine. We are also building a network of professionals and professional advisors making up our clinical advisory group, refreshing our website to make it user- and disabled- friendly, and with dedicated survivor and professional information sections. Our website is currently the main way in which our income is received.
More effective fundraising
This year, our second year in community fundraising, we doubled our community goals and achieved £28,000 and £33,000 with our Summer of FUN-draising and the Carol Concert respectively, whilst at the same time generating positive goodwill amongst our supporters, our beneficiaries and our major donor and corporate base. We also benefitted from £15,000 restricted grants (this is included in deferred income) from the William Rudd Trust to encourage beneficiary attendance at our conferences and £25,000 from a major donor to launch the Digital Therapy programme opening in 2025 after a 4-year delay to raise funds and insurance costs.
Achievements against objectives
Reducing Social Isolation for Survivors and their Families.
SUCCESS continues to develop peer networks that recognize cultural and social differences, helping survivors build relationships, improve mental health, and enhance education and employment outcomes.
Conference Programme
Annual London Conference
The 2024 SUCCESS Annual Conference, held at 1 Wimpole Street, London, on March 2nd, focused on "Successful Destinations" and brought together 140 participants at the Royal Society of Medicine. The event remains a powerful platform for survivors, families, professionals, and policymakers from which to raise awareness, foster positive interdisciplinary relationships, bridge gaps in care and forge change. The conference empowers survivors and professionals in both oncology and non-oncology disciplines, through sharing experiences and knowledge, highlighting service gaps, and advocating for a National SUCCESS Recovery Pathway determined by tumour location. Survivor- and professionally-led workshops, expert debate panels with patient representation, and expert networking sessions continue to provide invaluable support and education to families whilst also bringing together a diverse group of professionals striving to support many, as yet. under-recognised secondary health care needs.
We were delighted to welcome old and new faces from London and the South East, survivors from as young as 8 years and their families but also professionals including Mr Simon Cudlip, pituitary surgeon and Prof Marta Korbonits, pituitary tumour specialist, who explained the importance of new world-first guidelines for children and ensuring specialist care to outcomes. We are grateful to Drs Hoong We Gan, Manuela Cerbone, Charlotte Malcolm, Mr Kristian Aquilina, Profs Naomi Dale and Darren Hargrave, for their insight and understanding of how deep midbrain injury to the vital primitive hypothalamus affects all aspects of physiological and emotional well being and how effects might be minimised if rehabilitated in the right way. We also had a parallel symposium on specialist health and education services ably chaired by our new trustee Dr Jane Williams, a neurorehabilitation specialist, with her collleagues Drs Bishoti and Denise Crozier and a neuropsychiatrist Dr Ashley Liew, and a workshop led by the young people themselves with employment lawyers, educationalists and occupational therapist on overcoming barriers to education and employment. These conferences are unique in the way they bring together patients and diverse professionals, but also for having the attendance and support of eloquent Parliamentarians who are prepared to debate and help us shape our parliamentary and NHSE lobby towards implementation of both our new pituitary tumour management guidance and the tumour-site-specific parallel SUCCESS recovery pathway (Lord Sandhurst our lead, Derek Thomas MP and chair of the brain tumour APPG ), and Dominic Grieve KC, our supportive and thoughtful patron.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
Our post-conference survey confirmed that over 90% of participants valued the conference as worthwhile and felt it addressed key objectives, namely: providing clarity on the importance of a parallel recovery pathway; improving understanding of the Charity's mission and aims; feeling more inclined to support us and to support survivors.
What participants liked most about the conference was gaining a better understanding of key challenges and finding support for them (54%) and feeling inspired and more hopeful about the future (31%). Overwhelmingly 85% of participants agreed the charity should continue to advocate for a parallel recovery pathway, from diagnosis and alongside oncology treatment.
Autumn Roadshow
Success Charity's 2nd Autumn Roadshow took place in Manchester on Saturday 19th October 2024, an ongoing educational initiative reaching all UK paediatric neuroncology centres was supported by satellite events on the 18th of October 2024. The primary goal of this event in line with the grant objectives, was to introduce SUCCESS to northern audience; educate, support and connect survivors of childhood brain tumours and their families with diverse oncology and rehabilitation healthcare professionals; raise awareness of gaps in neurological and endocrine recovery; highlight areas of good practice and connect with NHSE commissioners.
SUCCESS campaigns to raise awareness of the individual brain injury underlying each brain tumour, and the need for a parallel recovery pathway alongside cure, to improve long term health outcomes for the 80% that now survive and live long lives across the UK. This conference brought together a patient and professional audience from 5 northern paediatric neuro-oncology hospitals for the first time. In total 72 people attended this Roadshow, the majority of whom were beneficiaries of, and professionals linked to, the Charity.
Key activities included:
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an Educational Programme, as a CPD-approved event, featuring survivors and family talks, medical expert sessions on pituitary tumours, neurorehabilitation of acquired brain injury, and survivorship, plus interactive parental psychology and children's art therapy workshops; a community poet 'transcribed' conversations into poems later read out by survivors at our Christmas Carol Concert.
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workshops where holistic rehabilitation was emphasized through therapy sessions, providing survivors and families with understanding emotional support and opportunities to connect;
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professional engagement, by fostering collaboration among neuro-oncology, nursing, endocrinology, psychology, and physiotherapy professionals, promoting best practices for survivorship care, especially for early neurorehabilitation, hormone assessment and replacement and for very rare pituitary tumours;
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advocacy and peer support, enabling survivors and professionals to share personal experiences, highligh gaps in rehabilitative and pituitary care, and in health-related quality-of-life outcomes beyond survival alone, to Prof Simon Kenney, who oversees Children's NHS Commissioning .
After the event, 89% of those surveyed told us they felt equally "inspired" and that "cure alone was not enough", whilst all felt a recovery pathway was indeed needed over and above what the NHS currently offered. Only 10% felt they had been supported through their recovery journey.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
Voices of SUCCESS- The BraveHeart Programme
SUCCESS continues to amplify survivor stories and experiences through various initiatives:
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BraveHearts Magazine: A quarterly survivor-led on-line publication, with a growing reach, in print for key fundraising events such as the carol concert.
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Online Support: The weekly friendship group and monthly BraveHearts Live focus groups (7-10 survivors) as well a mediated 50+ member WhatsApp 16+ community provide a safe space for sharing experiences, artistic and fundraising inspiration, ideas for projects and practical support.
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Public Engagement: Survivors are centre-stage at our annual Christmas Carol Concert led by a SUCCESS parent and choirmaster, speaking publicly about their experiences to 230 attendees, and at the annual conference and roadshow where their brave voices are always a programme highlight.
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Peer-to-Peer Programme: Peer support remains central to SUCCESS, is requested by survivors and is well regarded as a programme by professionals who support our initiative. A training session for new mentors (16+) and interviews for new mentees (13+) was held this year but more funding is required to bring the training inhouse, make it SUCCESS-specific and to support more mentors to undertake mentee support subsequent to being trained and receiving certification. Fundraising efforts in 2025 will prioritize relaunching this initiative as a core charity program and making mentee-ship mandatory to certification.
Being a Catalyst for Innovation and Rehabilitative Services for Survivors
SUCCESS aims to facilitate and develop better access to, and increasing investment in, holistic (neuroendocrine) rehabilitation and health research interventions targeted at improving existing services, identifying new ones and facilitating better community health and educational access. This year, it has progressed this area through two major projects.
Survivorship Services Gap-Analysis Study in partnership with GOSH
SUCCESS commissioned a study evaluating access to rehabilitation services for childhood brain tumour survivors at the North Thames Paediatric Cancer Network (ODN), developed with Professor Darren Hargrave and therapists at GOSH with restricted funds from The Ronson Foundation and a smaller grant from our founder. A SUCCESSGOSH working group formed in 2022 led to the idea of the SUCCESS Recovery Pathway. The study, defined in July 2023 with Professor Hargrave and Dr Michalski, GOSH professionals and SUCCESS Trustees began in October 2023 with a part-time, neurophysiotherapist project lead.
The project aimed to survey recovery services against NICE recommendation standards (2005) and conduct a retrospective service review at 1-2 and 5-6 years post-diagnosis. Led by a Specialist Physiotherapist in Paediatric Neuro-Oncology at GOSH, Daniel Bell, it ran from November 2023 to August 2024, with main preliminary findings presented to trustees in September and in Manchester at the Autumn 2024 roadshow.
Amongst several interesting conclusions, the results of this retrospective gap-analysis reported that less than half (49) of 100 survivors surveyed, had received any rehabilitative or educational support and just 6% had received planned integrated support, even in the most recent cohort. None were aware of any educational tools to support cognitive weaknesses whilst under 50% knew how to access educational health care plan funding, and this figure was similar amongst oncology professionals.
With SUCCESS professionals and beneficiaries involved in designing the gap-analysis study and questionnaires, these findings support the proposed SUCCESS Survivorship Standards (SSS) for potential national endorsement in Phase 2, to be defined in 2025 and beyond, including our support of a collaborative PPI in the context of the Brain Tumour Charity and NIHR Quality of Life research. In this context we have also provided £5,505 to fund the PPI element of an NIHR grant awarded to Dr Charlotte Malcolm at GOSH to develop educational tools for strengthening cognitive weaknesses which SUCCESS will have access to once developed.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
Digital Therapy Bursary Programme with our Partner ReAbility UK
SUCCESS has partnered with ReAbility Online UK to introduce a cutting-edge, games-based neurotherapy platform for children with brain tumours. Developed at the Gertner Institute, Israel, and widely used in Austria, this platform is unavailable in the UK, making SUCCESS the gateway for national implementation and evaluation.
Following a successful pilot study in 2020, presented at the British Paediatric Neurology Association, SUCCESS committed to fundraising, patient recruitment, and long-term programme evaluation. However, COVID insurance and funding challenges in 2021 delayed progress. In 2023, the project was revived, with a restructured protocol and renewed partnership, aiming to evaluate benefits in a total of 300 patients - recruited in tranches of 12-15 per quarter and treated over a 12 week period - according to adherence. Trustees Drs Jenny Limond and Helen Spoudeas and Jane Hobson have led clinical and legal protocol preparation and contractual agreements, and secured restricted funds to start the 12-week therapy programme for the first 25 patients. This has occurred alongside newly secured project management to finalise contractual terms to ensure the interests of beneficiaries and the Charity are prioritised, which has taken longer than anticipated. The launch was postponed with an anticipated date of 1.3.25 for training of UK therapists and patient recruitment, and a study start date of 1.6.25 . Continued efforts to prioritise fundraising to ensure the programme's success for the first 12 months and beyond this phase into 2nd and 3rd years .
Amplify the Voice of Survivors and their Families
SUCCESS strives to amplify the voices of survivors and families, addressing unmet needs, especially in hard-toreach and disadvantaged groups. SUCCESS believes that lobbying is vital to amplify the voices of survivors, ensuring their needs are heard at the highest levels. Without advocacy, critical gaps in rehabilitation, education, and healthcare remain overlooked. By engaging policymakers, SUCCESS aims to drive systemic change in the long term in order to secure equitable services for all, funding, and recognition for brain tumour survivors and their lifelong recovery needs.
The Charity's lobbying and advocacy efforts focus on key areas.
Lobbying Committee
Led by Lord Guy Sandhurst and Dr Helen Spoudeas since 2022, with input from SUCCESS parents, Lords Stewart Wood and Sharpe, and our Patron Dominic Grieve KC, this group advocates for national representation of the unmet recovery needs of survivors at parliamentary and NHSE levels. Over the last 12 months, our desire to expand engagement across major centres and decision-makers in NHSE and government to define a cost-efficient, safe, and effective integrated recovery pathway alongside cure, setting measurable goals for national implementation has been taken a step further with the recruitment of a neurorehabilitation trustee, Dr Jane Williams, to the board and to this initiative, and strategic advice from Sir Bruce Keogh, the outgoing NHSE National Clinical Director. We have pursued our request for a face to face audience with childrens cancer commissioners and those responsible for highly specialised funding pertinent to the need for bespoke pituitary tumour services, which has been scheduled for 14th January 2025. This is a significant opportunity granted to SUCCESS and is an early hopeful indication of the appropriateness of our approach to lobbying through Parliament and NHSE, which also includes an approach to the Department of Health by Dr Spoudeas through her local MP. We continue to reinforce this group and formalise its governance as part of the Charity's overall structure.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
We need to continue to expand engagement across major paediatric neuroncology centres and decision-makers in NHSE and government to define and endorse a cost-efficient, safe, and effective integrated recovery pathway, setting measurable goals for national implementation. This is something we are currently working on with Lord Sandhurst and our Patron, Dominc Grieve, and will continue to develop further in 2025. We will also continue to collaborate closely with the Children and Young People's Cancer Coalition of Charities and the Brain Tumour APPG, and are alert to any new initiatives launched by the new Labour Department of Health and Social Care [DHSC] in the area of children's cancer, which work streams were first announced by Dame Caroline Dinnenage before the general election.
Additionally, we will begin feasibility assessments about the possibility of developing designated paediatric pituitary centres of expertise, with associated HR-QOL outcome national data registries, integrating new CCLGcommissioned and RCPCH-endorsed national guidelines for rare pituitary tumours affecting <50 CYP annually. This will be subject to funding, but continues to be a priority for the charity.
Clinical Advisory Experts/Group.
Launched in early 2024, this initiative, started by our founder and now led by trustee Dr Jane Williams with Dr Jenny Limond as deputy, brought together NHSE commissioning and health research experts in neuroncology, neurosurgery, neuropsychology, neuroendocrinology and allied therapy. The goal is to ensure we support equitable healthcare evaluation studies in the survivorship field and quality improvements in any medically-related projects we undertake or commission. Membership of this Expert Group has generated significant support from the clinical community which can be found on our website.
Parent Council
2025 will also see the development of a Parent Council with a lead parent trustee and at least six volunteer parents of survivors already engaged and charged with developing further engagement from their community to feedback to the Board on a quarterly basis.
Survivor Council
In recognition of the importance of the survivor voice to be heard at the board, we are also launching a Survivor Council to work alongside the parents' council with a lead survivor trustee and deputy, ensuring the survivor voice is formally recognised in the Governance of the Charity, and reporting to the Board on a quarterly basis.
Contribution made by volunteers
In the absence of a large charitable endowment at its start-up, much of the Charity's activity, is necessarily still carried out by volunteers, including the role of our CEO which is undertaken by our Founder trustee. As well as the Board of Trustees, other volunteers have given time and expertise with matters such as organising events, producing educational and information resources and providing support and legal and governance advice. The charity has had a part-time administrator for 3 years and a fixed term appointment part-time project manager this year, utilising consultants to assist with the operations, web-site development, marketing and communications, and fundraising. Due to limited funding, the Charity and the Board are restructuring in 2025, to increase volunteer involvement and skills, prioritise income generation and fundraising, optimise the activities of committees reporting to the board, and limit administrative expenses.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
Achievements and performance
Significant activities and achievements against objectives
Performance of fundraising activities against objectives set
Sector challenges
SUCCESS continues to face significant fundraising difficulties as competition for grants and donations intensifies in an increasingly challenging environment for the third-sector. Further, this chronic survivorship area of cancer care is notoriously difficult to secure funding for, competing as it does with the much easier fundraising call for the cancer cure itself. Securing sustainable funding has thus become doubly harder. Many corporate donors only prioritize larger charities, and/or make donations proportionate to 10% of annual income streams, making it difficult for small, specialist organisations like SUCCESS to access critical funding streams. The eventual drying up of EU funding since Brexit, and the economic uncertainty has generated unprecedented competition for grants from Trusts, Foundations and the National Lottery and reduced individual giving, while complex grant application processes require resources that small charities must use prudently. Despite these difficulties, we remain committed to our mission, focusing on diversifying income streams and strengthening donor engagement. We have, as a Board, decided to invest more fully in an integrated CRM system, consolidate our stakeholder base, create a legacy opoortunity and engage in more specific targetting of donor groups to maximise our ability to raise funds from a category of donors more likely to provide initial funds.
Engaging our community
A key strategy for overcoming these sector challenges has been to strengthen our engagement with our community of fundraisers and donors through meaningful events. These not only serve as vital fundraising opportunities but also enable stronger meaningful connections, ensuring our supporters feel involved in our mission and appreciate the lasting impact of their contributions.
They included:
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SUCCESS Summer of Fundraising: Building on last year's SUCCESS picnic, we encouraged our community to raise funds for Success Charity with our Summer of FUN-raising activities. Throughout the month, we shared fundraising tips on our social channels and encouraged our supporters to share their journey with us. Overall, we managed to raise £28k including contribution from Helen's Tangathon (£5.5k), Fernando De Jesus and the team at Stow Ho House Event (£5.4k), Patricia Grady's Rusty Bike Cafe week (£1.8k), Jane Hobson's afternoon tea, tombola and silent auction (£8k) Sara Levy's fundraiser (£1.7k), and John Evason's donation (£1.5k). We were delighted so many of our supporters managed to raise donations and awareness and have committed to building on this initiative in 2025 with 3 additional marathon places at the London Parks halfmarathon. We also continue to sell the 10,000 £1 printed 'Successful Experiences' raffle tickets which we will draw at our Spring conference on 15th March 2025, and which prizes and printing costs have been generously donated by our consultants, Waring Stewart Associates.
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SUCCESS Carol Concert: this is now a central celebratory and fundraising event in SUCCESS's calendar, taking place annually with the prestigious Norfolk Cathedral Choir, their choirmaster Ashely Grote, himself a SUCCESS parent, and our patron, in different historic, City of London Churches. It attracts an audience from London and its hospitals and as far afield as Nottingham and Edinburgh, creates a sense of community, hope, giving and solidarity, bringing the survivor voice to a wider donor and supporter audience from whom we have identified new trustees and volunteers, whilst raising awareness of our need for crucial support during challenging times. This year, SUCCESS managed to raise some £33k (65% more than last year) welcoming 230 guests. As in previous years, we are very grateful to Gino Palmieri of GPIM for his company's continuing committed contribution of £5,000 towards the choir, venue and production costs, but also to our other sponsors, BUPA Cromwell who gave £10,000, as well as The Belgravia Centre (£2,000), Burnett Hodd and Tam Optometry (£1,000k) and to Lord Lee of Trafford who donated £1,000 to our Light in the Shadows Appeal alongside many others, whilst tickets sales and the collection totalled some £10,000 on the night. A post-event reception for 80, catered generously by the Walbrook Club and hosted by Dr Spoudeas attracted key donors, with support from our Patron, Dominic Grieve and Lord Sandhurst.
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11 -
SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
SUCCESS Will continue to build on what has now become an iconic event in its community and fundraising diary, and has committed to venues in 2025 and 2026.
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Annual SUCCESS conference and Roadshows: Although SUCCESS views these events as a service to our beneficiaries - our survivor and clinical community - we nevertheless attracted just over £15,000 in sponsorship, professional CPD ticket sales and voluntary donations, which included £1,000 from Bolt Burdon Kemp lawyers towards travel costs and a £12,000 grant for patient benefit from Pfizer Global Shared Services Europe. The charity is extremely grateful for their ongoing support. We are also grateful to the William Arthur Rudd Memorial Trust who have generously increased their annual grant to us, gifting £15,000 in December to support our conference programme in 2025.
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Digital Therapy: SUCCESS is also grateful to its founder, Helen Spoudeas, for her donation of £25,000 towards our Digital Therapy programme with ReAbility Online UK, which supplements the £5,000 restricted to this project from the William Arthur Rudd Memorial Trust ("Hunter's Law").
Overall, SUCCESS managed to generate income amounting to £114,900 across all activities. We are enormously grateful to all our supporters and donors, large and small for this vital development support, which means so much to us, our board and to our beneficiaries at this early time of our foundation.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
Financial review
Overview
SUCCESS's income has decreased from £117,355 in 2023 to £114,975 in 2024, boosted by restricted funds of £47,000 including a personal donation of £25,000 from SUCCESS's founder, Helen Spoudeas, towards our Digital Therapy project. Other material donations included Pfizer Global Shared Services Europe amounting to £12,000, BUPA Cromwell's £10,000 sponsorship of our 'Light in the Shadows' Christmas Carol Concert at GPIM Ltd's £5,000 contribution towards the same appeal.
The Summer of FUN-draising generated twice as much income this year as in 2023; this is a cost effective activity the Charity will continue to focus on as a major fundraising event in its calendar, together with the Carol Concert which generated £33,428 in 2024 (some 65% more than in 2023). The Charity was less successful than in previous year in generating sustainable, other income from its supporter base, amounting to just £7,813 (against approximately £16,476 last year). Planned investment in a more integrated CRM will hopefully provide opportunities for more targeted campaigns aimed at generating a regular income from its donor base.
In 2024, SUCCESS committed £96,409 to charitable activities (71% of its total expenditure - against a similar level last year), with £46,376 attributable to the conference and roadshow, £22,500 to fund the Gap Analysis (drawn from restricted reserves brought forward). The conference used to attract more pharmaceutical companies prepared to support this type of event, but obtaining funds from this group of stakeholders has become increasingly restricted and challenging. The 2025 conference and roadshow will go ahead, with some restricted funds of £15,000 secured from William Arthur Rudd trust, but it is anticipated this will be a cost leader in the context of SUCCESS' endeavour to grow its base of supporters and deliver on its mission.
The Carol Concert fundraising event was delivered at a similar cost to last year, but managed to generate more income, providing a greater contribution to general reserves.
Overall, the Charity made a deficit of £26,857 in 2024 against a deficit of £11,300 in 2023 further depleting its general reserves.
Included in prepayment and accrued income of £5,980 is £6,072 deposit for SUCCESS' 2025 Annual Conference, and accruals and deferred income includes a balance of £15,000 from the William Arthur Memorial Trust towards our conference programme in 2025, and a provision for costs of £3,100 attributable to the Norwich Cathedral Choir incurred in December 2024.
As in previous years, the charity's limited capacity to generate sustainable revenue streams for its initiatives and the staffing salaries to support them continues to be a material risk. To address this, SUCCESS engaged a business consulting and fundraising firm two years ago. Excluding costs attributable to the Survivorship Gap Analysis Study funded by reserves brought forward, this cost represents 25% of the total in 2024 (an increase from 21% last year). The expectation is that this proportion will continue to increase in 2025 as the Charity loses the administrator role and shifts its investment in salaried costs (fixed costs) to variable costs, to address economic uncertainties faced by the sector and continue to operate as a going concern.
The Board and Risk Committee continue to acknowledge that an urgent focus on fundraising is needed to deliver on the broader projects identified as part of its strategic plan.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED)
FOR THE YEAR ENDED 31 DECEMBER 2024
Reserves policy
The Charity continues to monitor reserves on an ongoing basis, including at the last two Board Meetings on 6th December 2024 and 28th January 2025. The Board appreciates the need to balance reserves with sufficient fund allocation for progression of charitable activities as detailed above.
Total unrestricted reserves carried forward stand at £71,759 for the year ended 31 December 2024 (a decline of approximately 30% on last year), with an additional £31,317 restricted funds allocated to the delayed launch of SUCCESS' Digital Therapy project. Total reserves therefore stand at £103,076 (against £129,993 at the end of last year).
The Trustees continue to believe a formulaic reserve policy is not commercially meaningful, but agrees to monitor costs and revenues on a quarterly basis as part of its risk and control procedures. Current reserves cover at least six months of operational expenses, now that a reorganisation to reduce fixed costs has been effected. At this stage, the Trustees feel this is a reasonable commercial buffer to maintain and review it quarterly at Board meetings.
Principal funding sources
The charity's principal sources of funds (including any fundraising)
The charity raises income through individual giving, community fundraising, corporate support and grants. Last year, we registered with Stripe and Just giving, receiving donations through these methods. Credit card and PayPal donations can be made directly through the website. In 2025, a fundraising strategy will be developed with a new fund-raising committee in a re-aligned board structure, alongside a refreshed board of more trustees with time and relevant skill sets. Our goal is to provide detailed 12 month, and high level 5- year fundraising targets, as well as a legacy programme, against which we can budget for the projects we aim to deliver.
Major risks
Risk Policy
The Risk Committee conducts a review of the major risks to which the charity is exposed using the Charity Commission framework and has a risk register updated at least annually by the Governance Committee and presented to the Board).
Where appropriate, systems or procedures have been established to mitigate the risks the charity faces, including ensuring all trustees and patient facing staff have appropriate DBS checks within 6 weeks of appointment as well as updating our safeguarding and recruitment policies, ensuring safeguarding training at the earliest opportunity as a condition of appointment, given the vulnerable children and adults we help. We also take cybersecurity seriously and are aware our safety needs testing as a priority, despite the limited funds to allocate to this at present. We currently have two levels of authorisation for all financial transactions, though one is salaried staff and requires reconsideration.
The main risks identified remain similar to previous years:
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generating sustainable income in order to deliver services for its beneficiaries - SUCCESS believes it should continue to drive income generation and leverage on the investment its CEO has made to date in a firm of fundraising and business consultants; and
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operational delivery of projects - rests with the voluntary CEO and the outsourced support from Waring Stewart Associates and other contractual staff for project delivery. The Board is committed to reviewing this cost on an ongoing basis.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
Structure, governance and management Governing document
Success is a charitable company limited by guarantee and established under its Memorandum and Articles of Association. In the event of the company being wound up every member of the charity undertakes to contribute such amount as may be required (not exceeding £1).
Trustee selection methods including details of any constitutional provisions:
The Board spent time reviewing the Charity Commission guidance, the Charity Governance Code and other governance reference material. Trustee role descriptions and a Code of Conduct were produced and implemented.
The trustees, who are also the directors for the purpose of company law, and who served during the year and up to the 31[st] December 2024 were:
Philip Austin Jane Hobson Hugh Stewart Jennifer Limond Marco Previero Dr Helen Spoudeas Dr Jane Williams Richard Crowther (Retired by rotation, 9[th] February 2024)
Recruitment and appointment of trustees
Trustee recruitment, selection and succession planning will be agreed as part of the ongoing governance of the organisation. This will include consideration of the requirements for a diverse board membership, ensuring that trustees have different backgrounds and experiences to enable better decisions.
A comprehensive programme of governance training was included in board meetings, to ensure that trustees were aware of the responsibilities and expectations of them, and to be able to review their effectiveness. Plans to ensure ongoing board development and training are in progress.
The charity is governed by the Board of Trustees, with advice and support from external freelance consultants, who operate as project managers for some aspects of charitable activity. A series of sub-groups [committees] and steering [Advisory] groups support the work of the Board and the operational delivery of its charitable aims and objectives. External HR and legal advice is provided on a pro bono basis by a legal firm.
The charity operates within the wider environment of children's cancer, brain tumour and brain injury charities and services and has formed links with other charities and NHS services, through informal discussions, with the ultimate aim of enhancing the lives of childhood brain tumour survivors.
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SUCCESS LIFE AFTER CURE LIMITED
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
The trustees' report was approved by the Board of Trustees.
Hugh Stewart Director 4 April 2025
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SUCCESS LIFE AFTER CURE LIMITED
STATEMENT OF TRUSTEES' RESPONSIBILITIES
FOR THE YEAR ENDED 31 DECEMBER 2024
The trustees, who are also the directors of Success for the purpose of company law, are responsible for preparing the Trustees' Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
Company Law requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that year.
In preparing these financial statements, the trustees are required to:
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select the most suitable accounting policies and apply them consistently;
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observe the methods and principles in the Charities SORP;
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make judgements and estimates that are reasonable and prudent; and
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prepare the financial statements on a going concern basis unless it is not appropriate to presume that the charity will continue in operation.
The trustees are responsible for keeping adequate accounting records that disclose with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity's website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.
Approved by the Management Committee and signed on its behalf by
Hugh Stewart (Chair)
Director
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SUCCESS LIFE AFTER CURE LIMITED
INDEPENDENT EXAMINER'S REPORT
TO THE TRUSTEES OF SUCCESS LIFE AFTER CURE LIMITED
I report to the trustees on my examination of the financial statements of Success Life After Cure Limited (the charity) for the year ended 31 December 2024.
Responsibilities and basis of report
As the trustees of the charity (and also its directors for the purposes of company law), you are responsible for the preparation of the financial statements in accordance with the requirements of the Companies Act 2006.
Having satisfied myself that the financial statements of the charity are not required to be audited under Part 16 of the Companies Act 2006 and are eligible for independent examination, I report in respect of my examination of the charity's financial statements carried out under section 145 of the Charities Act 2011. In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the Charities Act 2011.
Independent examiner's statement
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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1 accounting records were not kept in respect of the charity as required by section 386 of the Companies Act 2006.
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2 the financial statements do not accord with those records; or
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3 the financial statements do not comply with the accounting requirements of section 396 of the Companies Act 2006 other than any requirement that the financial statements give a true and fair view, which is not a matter considered as part of an independent examination; or
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4 the financial statements have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their financial statements in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102).
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.
Tom Wilcox
Counterculture Partnership LLP Bank Chambers Main Street Hawes North Yorkshire DL8 3QL 8 April 2025
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SUCCESS LIFE AFTER CURE LIMITED
STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT
FOR THE YEAR ENDED 31 DECEMBER 2024
| Notes Income from: Donations and legacies 3 Total income Expenditure on: Raising funds 4 Charitable activities 5 Total expenditure Net income/(expenditure) Transfers between funds Net movement in funds 6 Reconciliation of funds: Fund balances at 1 January 2024 102,896 27,037 Fund balances at 31 December 2024 71,759 31,317 Unrestricted funds Restricted funds 2024 2024 £ £ 67,975 47,000 67,975 47,000 7,670 - 90,979 43,183 98,649 43,183 (30,674) 3,817 (463) 463 (31,137) 4,280 |
129,933 125,373 15,860 103,076 102,896 27,037 Total Unrestricted funds Restricted funds 2024 2023 2023 £ £ £ 114,975 79,973 37,382 114,975 79,973 37,382 7,670 11,079 4,374 134,162 80,535 32,667 141,832 91,614 37,041 (26,857) (11,641) 341 - (10,836) 10,836 (26,857) (22,477) 11,177 |
141,233 129,933 Total 2023 £ 117,355 117,355 15,453 113,202 128,655 (11,300) - (11,300) |
|---|---|---|
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
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SUCCESS LIFE AFTER CURE LIMITED
BALANCE SHEET
AS AT 31 DECEMBER 2024
| 2024 Notes £ Fixed assets Tangible assets 10 Current assets Debtors 11 16,750 Cash at bank and in hand 115,322 132,072 Creditors: amounts falling due within one year 12 (29,464) Net current assets Total assets less current liabilities The funds of the charity Restricted income funds 14 Unrestricted funds 15 |
2023 £ £ 468 48,785 94,950 143,735 (14,011) 102,608 103,076 31,317 71,759 103,076 |
£ 209 129,724 |
|---|---|---|
| 129,933 | ||
| 27,037 102,896 |
||
| 129,933 |
The company is entitled to the exemption from the audit requirement contained in section 477 of the Companies Act 2006, for the year ended 31 December 2024.
The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of financial statements.
The members have not required the company to obtain an audit of its financial statements for the year in question in accordance with section 476.
These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies regime.
The financial statements were approved by the trustees on 4 April 2025
Hugh Stewart Director
Company registration number 11785842 (England and Wales)
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SUCCESS LIFE AFTER CURE LIMITED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2024
1 Accounting policies
Charity information
Success Life After Cure Limited is a private company limited by guarantee incorporated in England and Wales. The registered office is 280 Bishopsgate, London, EC2M 4RB.
1.1 Accounting convention
The financial statements have been prepared in accordance with the charity's Memorandum of Association, the Companies Act 2006, FRS 102 "The Financial Reporting Standard applicable in the UK and Republic of Ireland" and the Charities SORP "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)". The charity is a Public Benefit Entity as defined by FRS 102.
The charity has taken advantage of the provisions in the SORP for charities not to prepare a statement of cash flows.
The financial statements are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £.
The financial statements have been prepared under the historical cost convention, [modified to include the revaluation of freehold properties and to include investment properties and certain financial instruments at fair value]. The principal accounting policies adopted are set out below.
1.2 Going concern
At the time of approving the financial statements, the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus the trustees continue to adopt the going concern basis of accounting in preparing the financial statements.
1.3 Charitable funds
Unrestricted funds are available for use at the discretion of the trustees in furtherance of their charitable objectives.
Restricted funds are subject to specific conditions by donors or grantors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements.
Endowment funds are subject to specific conditions by donors that the capital must be maintained by the charity.
1.4 Income
Income is recognised when the charity is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.
Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.
Legacies are recognised on receipt or otherwise if the charity has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.
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SUCCESS LIFE AFTER CURE LIMITED
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
1 Accounting policies
(Continued)
1.5 Expenditure
Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement, and the amount of the obligation can be measured reliably.
Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges are allocated on the portion of the asset's use.
1.6 Tangible fixed assets
Tangible fixed assets are initially measured at cost and subsequently measured at cost or valuation, net of depreciation and any impairment losses.
Depreciation is recognised so as to write off the cost or valuation of assets less their residual values over their useful lives on the following bases:
Fixtures and fittings 20% on reducing balance basis Computer equipment 33% on reducing balance basis
The gain or loss arising on the disposal of an asset is determined as the difference between the sale proceeds and the carrying value of the asset, and is recognised in the statement of financial activities.
1.7 Impairment of fixed assets
At each reporting end date, the charity reviews the carrying amounts of its tangible assets to determine whether there is any indication that those assets have suffered an impairment loss. If any such indication exists, the recoverable amount of the asset is estimated in order to determine the extent of the impairment loss (if any).
1.8 Cash and cash equivalents
Cash and cash equivalents include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less, and bank overdrafts. Bank overdrafts are shown within borrowings in current liabilities.
1.9 Financial instruments
The charity has elected to apply the provisions of Section 11 'Basic Financial Instruments' and Section 12 'Other Financial Instruments Issues' of FRS 102 to all of its financial instruments.
Financial instruments are recognised in the charity's balance sheet when the charity becomes party to the contractual provisions of the instrument.
Financial assets and liabilities are offset, with the net amounts presented in the financial statements, when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.
Basic financial assets
Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.
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SUCCESS LIFE AFTER CURE LIMITED
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 31 DECEMBER 2024
1 Accounting policies
(Continued)
Basic financial liabilities
Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.
Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.
Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.
Derecognition of financial liabilities
Financial liabilities are derecognised when the charity's contractual obligations expire or are discharged or cancelled.
1.10 Employee benefits
The cost of any unused holiday entitlement is recognised in the period in which the employee's services are received.
Termination benefits are recognised immediately as an expense when the charity is demonstrably committed to terminate the employment of an employee or to provide termination benefits.
2 Critical accounting estimates and judgements
In the application of the charity's accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.
The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods.
3 Income from donations and legacies
| Unrestricted | Restricted | **Total ** | Unrestricted | Restricted | Total | |
|---|---|---|---|---|---|---|
| funds | funds | funds | funds | |||
| 2024 | 2024 | 2024 | 2023 | 2023 | 2023 | |
| £ | £ | £ | £ | £ | £ | |
| Donations and gifts | 67,975 | 47,000 | 114,975 | 79,973 | 37,382 | 117,355 |
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SUCCESS LIFE AFTER CURE LIMITED
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 31 DECEMBER 2024
4 Expenditure on raising funds
| Unrestricted | Restricted | **Total ** | Unrestricted | Restricted | Total | |
|---|---|---|---|---|---|---|
| funds | funds | funds | funds | |||
| 2024 | 2024 | 2024 | 2023 | 2023 | 2023 | |
| £ | £ | £ | £ | £ | £ | |
| Fundraising and publicity | ||||||
| Seeking donations, grants | ||||||
| and legacies | 7,670 | - | 7,670 | 11,079 | 4,374 | 15,453 |
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SUCCESS LIFE AFTER CURE LIMITED
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 31 DECEMBER 2024
5 Costs of charitable activities by fund type
| Unrestricted Restricted Funds Funds 2024 2024 £ £ Amplify voice of survivors 4,885 - Reduce solical isolation 42,653 5,000 Catalyst for post-cure recovery 5,688 38,183 Support costs 37,752 - 90,978 43,183 Costs of charitable activity by activity type Undertaken Support directly costs £ £ Support costs Amplify voice of survivors 4,885 1,913 Reduce solical isolation 47,653 18,660 Catalyst for post-cure recovery 43,872 17,179 96,409 37,752 Analysis of support costs Amplify Reduce Catalyst voice isolation post-cure £ £ £ Managment 397 3,877 3,569 General overheads 1,242 12,115 11,153 Website development 122 1,192 1,097 General Governance 151 1,476 1,359 1,913 18,659 17,179 |
2024 £ 4,885 47,653 43,872 37,752 134,162 2024 £ 6,798 66,313 61,051 134,162 2024 £ 7,844 24,510 2,411 2,987 37,752 |
2023 £ 6,559 60,620 13,403 32,620 |
|---|---|---|
| 113,202 | ||
| 2023 £ 9,215 85,171 18,816 |
||
| 113,203 | ||
| 2023 £ 17,031 8,201 6,217 1,171 |
||
| 32,720 |
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SUCCESS LIFE AFTER CURE LIMITED
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 31 DECEMBER 2024
| 6 | Net movement in funds | 2024 | 2023 |
|---|---|---|---|
| £ | £ | ||
| The net movement in funds is stated after charging/(crediting): | |||
| Fees payable for the independent examination of the charity's financial | |||
| statements | - | - | |
| Depreciation of owned tangible fixed assets | 180 | - |
7 Trustees
None of the trustees (or any persons connected with them) received any remuneration or benefits from the charity during the year.
8 Employees
The average monthly number of employees during the year was:
| 2024 | 2023 |
|---|---|
| Number | Number |
| 1 | 1 |
There were no employees whose annual remuneration was more than £60,000.
9 Taxation
The charity is exempt from taxation on its activities because all its income is applied for charitable purposes.
| 10 | Tangible fixed assets | |||
|---|---|---|---|---|
| Fixtures and | Computer | Total | ||
| fittings | equipment | |||
| £ | **£ ** | £ | ||
| Cost | ||||
| At 1 January 2024 | 209 | - | 209 | |
| Additions | - | 648 | 648 | |
| Disposals | (209) | - | (209) | |
| At 31 December 2024 | - | 648 | 648 | |
| Depreciation and impairment | ||||
| Depreciation charged in the year | - | 180 | 180 | |
| At 31 December 2024 | - | 180 | 180 | |
| Carrying amount | ||||
| At 31 December 2024 | - | 468 | 468 | |
| At 31 December 2023 | 209 | - | 209 |
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SUCCESS LIFE AFTER CURE LIMITED
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 31 DECEMBER 2024
11 Debtors
| Debtors | ||
|---|---|---|
| Amounts falling due within one year: Trade debtors Other debtors |
2024 £ 10,770 5,980 16,750 |
2023 £ 1,534 47,251 |
| 48,785 |
12 Creditors: amounts falling due within one year
| Notes Deferred income 13 Trade creditors Accruals |
2024 £ 20,004 8,210 1,250 29,464 |
2023 £ - 12,839 1,172 |
|---|---|---|
| 14,011 |
13 Deferred income
| Deferred income | ||
|---|---|---|
| 2024 | 2023 | |
| **£ ** | £ | |
| Other deferred income | 20,004 | - |
Deferred income is included in the financial statements as follows:
| Deferred income is included within: Current liabilities Movements in the year: Deferred income at 1 January 2024 Resources deferred in the year Deferred income at 31 December 2024 |
2024 £ 20,004 - 20,004 20,004 |
2023 £ - |
|---|---|---|
| - - |
||
| - |
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SUCCESS LIFE AFTER CURE LIMITED
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2024
14 Restricted funds
The restricted funds of the charity comprise the unexpended balances of donations and grants held on trust subject to specific conditions by donors as to how they may be used.
| At 1 January | Incoming | Resources | Transfers | At 31 | |
|---|---|---|---|---|---|
| 2024 | resources | expended | December | ||
| 2024 | |||||
| £ | £ | £ | £ | £ | |
| - | - | - | - | - | |
| Conference | - | 12,000 | (12,000) | - | - |
| Nurse Appeall/MDT | 22,037 | - | (22,500) | 463 | - |
| ReAbility | 5,000 | 30,000 | (3,683) | - | 31,317 |
| Carol Concert 2024 | - | 5,000 | (5,000) | - | - |
| 27,037 | 47,000 | (43,183) | 463 | 31,317 | |
| Previous year: | At 1 January | Incoming | Resources | Transfers | At 31 |
| 2023 | resources | expended | December | ||
| 2023 | |||||
| £ | £ | £ | £ | £ | |
| - | - | - | - | - | |
| Conference | 11,760 | 11,930 | (23,690) | - | - |
| Nurse Appeal | 4,100 | 20,000 | (2,063) | - | 22,037 |
| ReAbility | - | 5,452 | (11,288) | 10,836 | 5,000 |
| 15,860 | 37,382 | (37,041) | 10,836 | 27,037 |
Note to the restricted funds
SUCCESS received a £12,000 grant for patient benefit from Pfizer Global Shared Services Europe for the 2024 conference. ReAbility is an online rehabilitative tool that helps people with neurological damage get better; and enables them to lead better lives. The Charity was the beneficiary of a donation of £25,000 from Helen Spoudeas, restricted for the use of this project, and £5,000 received from The Albert Hunt Trust as a contribution towards this project, making up £30,000. £5,000 related to sponsorship of the Carol Concert from GPIM Ltd as contribution towards the choir, venue and production costs.
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SUCCESS LIFE AFTER CURE LIMITED
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 31 DECEMBER 2024
15 Unrestricted funds
The unrestricted funds of the charity comprise the unexpended balances of donations and grants which are not subject to specific conditions by donors and grantors as to how they may be used. These include designated funds which have been set aside out of unrestricted funds by the trustees for specific purposes.
| At 1 January | Incoming | Resources | Transfers | At 31 | |
|---|---|---|---|---|---|
| 2024 | resources | expended | December | ||
| 2024 | |||||
| £ | £ | £ | £ | £ | |
| General funds | 102,896 | 67,975 | (98,649) | (463) | 71,759 |
| Previous year: | At 1 January | Incoming | Resources | Transfers | At 31 |
| 2023 | resources | expended | December | ||
| 2023 | |||||
| £ | £ | £ | £ | £ | |
| General funds | 125,373 | 79,973 | (91,614) | (10,836) | 102,896 |
16 Analysis of net assets between funds
| Unrestricted | Restricted | Total | |
|---|---|---|---|
| funds | funds | ||
| 2024 | 2024 | 2024 | |
| £ | £ | £ | |
| At 31 December 2024: | |||
| Tangible assets | 468 | - | 468 |
| Current assetsl/(liabilities) | 71,291 | 31,317 | 102,608 |
| 71,759 | 31,317 | 103,076 | |
| Unrestricted | Restricted | Total | |
| funds | funds | ||
| 2023 | 2023 | 2023 | |
| £ | £ | £ | |
| At 31 December 2023: | |||
| Tangible assets | 209 | - | 209 |
| Current assetsl/(liabilities) | 102,687 | 27,037 | 129,724 |
| 102,896 | 27,037 | 129,933 |
17 Related party transactions
There were no disclosable related party transactions during the year (2023 - none).
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