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2022-12-31-accounts

Charity registration number 1188298

Company registration number 11785842 (England and Wales)

SUCCESS LIFE AFTER CURE LIMITED ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2022

SUCCESS LIFE AFTER CURE LIMITED

LEGAL AND ADMINISTRATIVE INFORMATION

Trustees Philip Austin
Jane Hobson
Hugh Stewart (Appointed 15 September 2022)
Richard Crowther
Jennifer Limond
Marco Previero
Dr Helen Spoudeas
Charity number 1188298
Company number 11785842
Registered office 100 New Bridge Street
London
EC4V 6JA
Independent examiner Tom Wilcox
Counterculture Partnership LLP
Unit 115, Ducie House
Ducie Street
Manchester
M1 2JW

SUCCESS LIFE AFTER CURE LIMITED

CONTENTS

Page
Chair's Report 1 - 3
Directors report 4 - 14
Independent examiner's report 15
Statement of financial activities 16
Balance sheet 17
Notes to the financial statements 18 - 24

SUCCESS LIFE AFTER CURE LIMITED

CHAIR'S REPORT

FOR THE YEAR ENDED 31 DECEMBER 2022

The Directors have pleasure in presenting their report and the financial statements for the charitable company for the year ended 31 December 2022. The Directors have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS 102) (effective 1 January 2019).

Chair's report - Cure Alone Is Not Enough

Whilst investment in cancer research and intensified treatments have translated into a 5-year cure for 80% of children with a brain tumour, the heavy price of 'cure' on the developing child is often overlooked. Almost two-thirds of survivors experience significant, long-term, life-threatening disabilities and often feel socially alienated and unable to thrive emotionally and professionally. This then later impacts on their ability to live full independent and rewarding adult lives over a subsequent average lifespan of 68 additional years from diagnosis.

Back in 2021, a year in which the pandemic crisis stifled many businesses' ability to operate in a regular way, including this Charity, SUCCESS took the opportunity to review and re-launch its three-year plan. Behind this strategy is a philosophy that improving quality of life is just as important as life itself; this must necessarily include addressing the underlying brain injury when we know we can make the greatest recovery impact; that is from the very beginning of the injury and throughout a child's developmental years. This means until the age of 25 years when physical and brain maturation are fully complete.

The effect of the pandemic on the charitable world extended beyond 2021. Financial pressures on charities continued in 2022 with a more challenging commercial environment for the sector, a greater need to use reserves and more care in ensuring cost-effective management of charitable activity. However, it also provided opportunities to meet more easily on-line, facilitating communication with a wider beneficiary and colleague stakeholder base than our London starting home, and to extend our national reach.

Nevertheless, Success was able to progress several key aspects of its strategy during 2022, which it pursues with resolute commitment – with an overall aim to redress the funding and service balance to ensure each one of those 80% children who now survive brain tumours, truly regain their future, beyond cure.

Our vision and objectives

Success exists to enable brighter futures for childhood brain tumour survivors. Underpinning our vision are two driving principles: to ensure every survivor across the UK achieves their full potential and ensure their needs are fully researched, recognised and represented

Our three-year plan, established in 2021, was reviewed in the early parts of 2022, and the Board of Trustees agreed to continue its focus on three broad objectives for the Charity against which all key projects and investment will align, namely:

1- Amplify the voice of survivors and their families

The Charity aims to achieve this by advocating for better characterisation of, and interventional remediation for, the collective unrecognised and unmet holistic rehabilitative needs of this vulnerable group, throughout their critical developmental phases to maturity, and ensuring the 2005 NICE-recommended 'lifelong postcure' rehabilitative pathways are fully implemented and accessible to every individual, regardless of their innate ability and, with emphasis on 'hard to reach' and culturally or socially disadvantaged groups. In practice this will mean investing in the following areas:

Significant activity has taken place in this area, so further details on this has been included in our Achievement against objective section under Advocacy.

SUCCESS LIFE AFTER CURE LIMITED

CHAIR'S REPORT (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

2- Reduce social isolation for survivors and their families

SUCCESS is working hard to create a national network of self-supporting communities and informal and formal peer networks and support forums which recognise specific cultural and social differences, thereby enabling friendships and significant relationships.

In particular, the Charity wants to continue investment in:

SUCCESS LIFE AFTER CURE LIMITED

CHAIR'S REPORT (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

3- Be a catalyst for rehabilitative services for survivors and their families

Success is focusing on bettering access to, and increasing investment in, holistic (neuroendocrine) rehabilitation and providing evidence for benefit of targeted, informed and individualised interventions, improving and expanding existing services, identifying novel and digitally accessible opportunities for ongoing rehabilitation, and facilitating access to community health, special/specific educational needs and vocational support and transition to dedicated adult services for ongoing chronic health care needs.

Specifically, SUCCESS has focused on the following:

I am grateful to all our many parent, lay and professional volunteers, our donors, big and small, our board of trustees and patron, and to all the professionals, who have contributed much appreciated support and advice over the last year. In particular I would like to single out Lord Sandhurst who together with Dominic Grieve, encouraged me to create a Parliamentary lobby group with Derek Thomas MP and made ‘SUCCESS’ his mission. Our Parliamentary voice and increased awareness is in no small part thanks to him, and our progress greatly facilitated by the support of Elaine our enterprising administrator and Doug our flexible charity business adviser. In particular I extend my debt of gratitude to the cohort of courageous survivors and their families from whom we learn and for whom we exist and who never cease to inspire us.

Dr Helen Spoudeas

Chairman

12.10.2023 Date: .........................

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) FOR THE YEAR ENDED 31 DECEMBER 2022

Objectives and activities

Success Charity - Life After Cure exists to enable brighter futures for childhood brain tumour survivors.

To promote and protect the physical and mental health, and relieve the needs of childhood brain tumour survivors ("survivors") treated in the United Kingdom by providing equipment, facilities and services not normally provided by the statutory authorities and in particular:

The trustees have paid due regard to guidance issued by the Charity Commission in deciding what activities the charity should undertake.

The Charity aims to achieve these objectives through a number of activities associated with its three driving ambitions of:

  1. Amplifying the voice of survivors and their families

  2. Reducing social isolation for survivors and their families

  3. Being a catalyst for rehabilitative services

The Trustees have considered the Charity Commission’s guidance on public benefit, including the guidance “public benefit: running a charity (PB2)” and are satisfied that the aims of the Charity are carried out wholly in pursuit of its charitable aims for the public benefit.

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

2022 has been a year focused on consolidating key activities for SUCCESS, in its third year as an independent registered Charity. Throughout the course of the year the Board of Trustees has worked hard to deliver on SUCCESS' strategic plan. The year has been a continuation of SUCCESS’ core services, such as workshops, peer mentoring programme, and planning the annual conference as well as improving its communications and PR strategy and social media campaigns through an upgrade of its website and administration system.

Looking ahead, the board of trustees has been laying the foundations to start building an operational team to drive forward growth and development of these services. Appointing Waring Stewart as our charity consultant to provide our fundraising and communications roles on the executive has been of key strategic benefit in helping us to raise our profile and awareness of our survivors’ predicament.

Achievements for 2022 include delivering a series of workshops and webinars, aimed at empowering survivors and giving them tools to be able to succeed. Topics included ‘Finding your inner strength: Building resilience to cope with stress’, ‘Making sense of job advertisements & CV Writing,’ and ‘Developing an understanding of how brains function and how this affects stress responses and behaviours post cure’.

2022 was due to include the 6th annual conference. As a result of last-minute rail strikes the event had to be postponed to March 2023. Nevertheless, the event for up to 300 delegates was fully planned and contractually prepaid with several parallel events for different age groups from aged 8 years upwards for the first time, parents and professionals, and many survivor speakers, supporters, Parliamentarians and decision-makers and medical professionals due to attend from across the UK.

Other activity has included broadening our lobbying efforts to advocate for improved access to rehabilitative care for every survivor across the UK and nurturing relationships with the APPG on Brain Tumours and other charitable organisations to strengthen our voice and provide for future collaboration. In particular, SUCCESS obtained the commitment in principle from Great Ormond Street Hospital to look at the possible implementation of an audit project aimed at identifying current gaps in rehabilitation services against accepted NHS standards. This would be the stepping stone of SUCCESS’ much broader ambition to identify an endorsed SUCCESS recovery standard of excellence against which NHS services could be commissioned and to pump-prime the creation and development of national centres of rehabilitative excellence for survivors from diagnosis through to transition into adulthood and beyond. It is our belief that those with midbrain hypothalamic tumours require more dedicated pituitary expertise and neuroendocrine and neurodevelopmental research than those with peripheral tumours, and the position of the tumour, more than the treatment, dictates the neuroendocrine injury and rehabilitative need and commissioned pathways should acknowledge these differences in such rare disease including a dedicated national pituitary forum.

Finally, 2022 saw us begin to update our website with information for parents and professionals, a potentially interactive forum dedicated to the survivors themselves and the beginning of our social media and communications strategy; these were a vital missing link to ensuring our accessibility to our beneficiaries and supporters. The regular weekly ‘unfocussed’ zoom meetings with our founder and administrator has proved a popular way of sharing ideas and providing support. It has also led directly to the creation our quarterly editions of our ‘Bravehearts’ magazine, written and edited by and for survivors. The magazine features contributions from survivors and from our Founder – Dr Helen Spoudeas. This magazine showcases the voices, images and art from survivors themselves and also includes a Q/A with inspiring individuals the survivors choose.

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

Prior to our 2020 Charity registration

Prior to registering as a Charity, Success was an allocated charitable fund within University College London Hospitals Charities, which was created specifically to support the growth of a novel, nationally recognised 'beacon' and award-winning service to the increasing survivors of childhood cancer and brain tumours and their families across both Great Ormond Street Hospital for Children and University College London Hospital (for the emerging numbers of adolescent and young adult survivors).

Over a period of some 20 years since its inception in 2000 by Dr Helen Spoudeas, a paediatric neuroendocrinologist, its aim was to provide age-appropriate, holistic and interdisciplinary assessments of complex health needs to a growing group of survivors of childhood cancer and brain tumours, in a one-stop outpatient setting. Activities included the provision of neuroendocrine holistic support services, with a focus on late treatment consequences, and raising awareness of the effects of cancer treatment and brain tumour location, on the hormone (endocrine) system.

Since 2017 it focussed on the more complex and unpredicted consequences of curing brain tumours, especially those in the deep, primitive midbrain, close to vital visual, memory, behaviour and life-sustaining metabolic pathways, by part-funding clinical research, developing graphic educational tools for use in clinics with families and leading on a series of national guidelines for interprofessional management to improve health outcomes for such tumours:

https://mediapigeon.io/newsroom/pressat/releases/en/cclg-releases-first-in-a-series-of-guidelines-to-help-with-thema nagement-of-rarechildhood-tumours-9399

https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(21)00088-2/fulltext

Since 2018 it has advocated in Parliament and lobbied professionally for earlier recognition, characterisation and comprehensive rehabilitation of the brain injury incurred by the tumour's position in the brain - not simply the tumour's grade and treatment imposed - and from diagnosis and throughout the growing years not, as for other childhood malignancies, 5 years after the last treatment imposed. It has accessed the voice of the survivors through three annual conferences 'for survivors by survivors', as a precursor of the November 2020 conference held digitally and as a registered charity for the first time.

Contribution made by volunteers

In the absence of a large charitable endowment at its start-up, much of the Charity's activity is necessarily still carried out by volunteers, with our first employees only starting in September 2021. As well as the Board of Trustees, other volunteers have given time and expertise with matters such as organising events, producing educational and information resources and providing support and legal advice. In particular Lord Sandhurst has provided an inspirational lead to our first Parliamentary lobbying efforts and together with our patron Dominic Grieve, this endeavour is bearing early fruit and we will continue to build a head of steam towards our goal of achieving transformational change in the way brain tumour care for children is delivered. The charity has utilised consultants to assist with the operations, web-site development, marketing and communications, fundraising and governance although it is looking at integrating these capabilities by investing in additional in-houses roles in 2023 and beyond. A volunteer application process and role descriptions have been developed.

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

Achievements against objectives

Whilst the charity continues to grow, the focus has been on maintaining the Charity’s core services and objectives, while laying the seeds to grow the charity and increase the outreach. Despite still being in the initial growth stages, the charity has made good steps towards a number of initiatives for beneficiaries.

Success Annual Survivor Conference

SUCCESS’ flagship event continues to be its annual Survivors' Conference. For 2022 – due to be the 6th annual conference - a decision was made to return to an in-person event, following previous years of holding the event online due to COVID restrictions. In addition, we aimed to offer parallel sessions to a national audience of as large as 300 made up of both survivors [from as young as 8 years for the first time] their families and professionals with an interactive debate with decision-makers . Unfortunately, the rail strikes of 2022 interfered with the chosen date. The board of trustees decided to postpone the event to March 2023 to ensure safe and convenient travel for attendees and a national audience with well-publicised outcomes .

The event has now been held and has proved to be hugely successful and very well received. Broadly, the conference attracts around 150 delegates; including a mix of medical professionals and survivors sharing their stories and experiences and interacting with key decision-makers and politicians. Through the conference we continue to address one of Success Charity's core aims -the unmet rehabilitation and ongoing lifelong support needs of survivors of brain tumours diagnosed and treated in childhood. The conference updated beneficiaries on the ongoing Peer to Peer mentoring and ReAbility bursary programmes. The event is also an opportunity for professionals and key speakers to debate controversies on the practical implications of delivering specialist services to children with rare, complex, mid-brain tumours, the principles that should drive access to pituitary (midbrain) specialists, how and what quality of survival health data should be collected and how best to disseminate it and share it in order to improve long term health and quality of life outcomes. This year we also filmed it and edited the content so it is freely available on our own You-tube channel. It is also an excellent lobby platform and an opportunity to provide and share our information leaflets, resources and support offerings as well as interacting with centres across the UK, and generating useful webinars for our on-line library.

As always, survivors were involved both as attendees but also as participants, sharing their inspirational stories, and bringing their own 'voice' into the challenges encountered across each of the four key maturational stages of development , and the coping strategies they developed to mitigate some of the late consequences of treatment and cure. A variety of workshops was also held, led by both survivors and professionals on topics ranging from business and employment to arts and crafts and drama.

Feedback was captured following the conference, so we can continually grow and develop as an organisation. Details of its impact on beneficiaries, together with detailed evaluation will be published as part of the 2023 annual report, and separately later this year as part of our ongoing commitment to demonstrate value against the Charity’s stated objectives.

Workshop programme

In 2022 digital workshops and webinars were held to provide in-depth opportunities to explore topics introduced at the conference, namely

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

Peer Support

Peer Support is a central tenet of the charity's offer for survivors. Other young people who have a shared lived experience of surviving a brain tumour are, with appropriate training and supervision, well placed to provide support for others going through a similar experience. An informal peer support network was established in previous years using a recognised online community forum (Health Unlocked) to enable survivors to meet and chat about their experiences together.

As indicated in our previous Annual Report, but worth a reminder here, a more formal service, training survivors to gain the skills to become Peer Mentors, planned in 2020, started in 2021 with an initial pilot scheme. Our partner in this area, Young People Matter, ran an accredited training course in Effective Mentoring Skills. Following an initial period of review, recruitment and selection, seven survivors older than 18 years of age, out of eight who applied, achieved a recognised qualification, and also gained confidence and valuable work/life experiences and skills, enhancing their self-esteem and employability.

At present, five mentors are now actively involved in providing support to mentees, themselves survivors, who have requested the opportunity to be provided with emotional and social support from another young person who has successfully navigated a common brain tumour journey. Recognising that life events both past, present and future can also impact the well-being of our mentors, some monthly supervision sessions of our mentors by our project lead nurse (who is able to deliver level 2 psychological support according to the NHS national cancer peer review measures) took place in the year under review. This afforded development of the group by sharing experiences and tips of mentoring others and another level of collaborative problem-solving peer support for the individual mentor and their mentee.

In 2022 we also performed an analysis of the programme and completed an action plan of how to grow and improve the service. Over the course of 2023 we aim to market the programme to potential mentees and increase the number of applicants for both mentees and mentors. Through our conference and creating a video containing testimonials, we will show the value of the joining the programme and how both the mentees and mentors benefit from taking part.

At SUCCESS' annual conference some mentors spoke about why they volunteered for, and their experience of, training as mentors and their aspirations for development of the peer-to-peer programme.

ReAbility UK

ReAbility Online UK and Success continues their partnership to provide individually tailored and supervised digital neurophysiotherapy, cognitive and occupational rehabilitation exercises, available to practice daily from home or community educational settings. The Charity seeks to train and fund UK therapists on this game changing novel telerehabilitation platform developed in Israel and not otherwise available in the UK. It is offered 'pro bono' to our beneficiaries in a 3-monthly rolling bursary programme which is continuously evaluated for benefit. Following a successful feasibility study in 2020 presented at a dedicated brain tumour neurorehabilitation meeting of the British Paediatric Neurology Association, we identified 30 potential recruits and potential funding streams for the first 3- month phase of this programme.

Progress started in 2021 to complete the project protocol, agree funding streams, individual and shared responsibilities between Success and ReAbility UK, and appointing a data administrator to recruit and evaluate the project, and oversee aspects of project governance in relation to safeguarding participants, GDPR and research outcomes. Whilst GDPR agreements and policies, therapist disclosures and licenses to use the relevant paediatric psychological questionnaires (i.e. Peds QL and BRIEF) outcome measures, are now complete, the project has been significantly delayed by the difficulty and cost of obtaining liability insurance for such an innovative therapeutic intervention for which there was no comparable UK benchmarking against which insurance companies could assess cover. Success and ReAbility Online UK continue to work with the underwriters in the development of the relevant paperwork, with the aim of starting to enrol from our existing list of registrants in September 2022.

We can now report that the insurance issues further delayed the project development and contributed to the loss of the project administrator’s role from September 2022. Since the spring of 2023 when the insurance funding was obtained, the project has been re-energised and we are progressing the finalised project proposal, database accessibility, questionnaire collection, and legal permissions with volunteers, whilst actively applying for funds.

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

Website

The charity continued development of its new website begun in 2020 alongside enhancing its communications strategy, improving functionality, visibility, marketing, and accessibility compared to the previous version. In 2021 SUCCESS contracted 'Waring Stewart Associates' to continuously improve the user interface with the website and facilitate beneficiaries' and supporters' ready and timely access to information about the charity and its events and programmes, our educational information and activities and easy signposting for appropriate support. This has been ongoing in 2022 with the creation of a space for professionals’ information and our lobbying strategy and a dedicated space for the young people themselves. We launched our first social media strategy and our own Youtube channel for holding our educational videos and webinar and our own shopping and ticketing site . In this way we were able to offer our own online Christmas cards in 2022 designed by the young people themselves and will increase our offering in 2023.

Advocacy

SUCCESS aims to advocate for both the individual as well as the collective unrecognised and unmet rehabilitative needs of children surviving brain tumours and ensure that we reach every child, whatever their ability or degree of brain injury but with particular emphasis on highlighting the specifically differing needs of those with rare hypothalamo-pituitary tumours in the deep midbrain and those who are 'hard to reach' and culturally or socially disadvantaged. Several initiatives were undertaken during the year under review:

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

Performance of fundraising activities against objectives set

Fundraising continues to be challenging in a post-COVID market environment, where Charities are competing for ever more selective donors and cancer research into cure still takes priority despite the 80% survival rate in this paediatric field. Nevertheless, Success managed to raise some funds and donations in the year.

SUCCESS held its annual Christmas Carol Concert in December 2022. This Carol Concert was in support of our Christmas Appeal (‘Light in the Shadows’ Appeal). The aim was to raise £27,000, in order to pay for half the costs of employing our very first Success Nurse (and seek match-funding for the other half), to be an advocate for the many young survivors. In time, Success would like specially trained SUCCESS nurses, of which this would be the first, to bridge the gap between a legacy rehabilitative pathway currently available, and a second parallel non-oncology specialist team at each major treatment centre -neurodevelopmentalists, endocrinologists, psychiatrists, psychologists, allied rehabilitation therapists , dieticians and educationalists – working in parallel and alongside them from tumour diagnosis.

The concert itself had an excellent turnout, including a pre-concert reception attended by key potential donors of Success, members of parliament and the house of Lords and other influencers. We were extremely grateful to the Norwich Cathedral Choir School and their choirmaster and parent of a survivor, Ashley Grote, for their generosity and much enjoyed and admired performance, as well as to the vicar and staff of the Church where it was held- St Stephen Walbrook in London and the neighbouring Walbrook Club which hosted the reception.

Together with the sale of Christmas cards, the carol concert managed to raise £27,500. After associated costs, the amount raised still falls short of the Charity’s net target and we continue to seek further funds to reach the stated amount required. These are restricted funds in the accounts as at 31 December 2022.

As in previous years, the Charity was grateful to Gino Palmeri of GPIM who continues to be a key supporter of Success and part-sponsored the carol concert again this year- with a donation of £5,000. We are also thankful to The Belgravia Centre for their ongoing and continued support of our cause, donating £1,000 towards the costs of our Light in Shadow Appeal.

We are thankful to Merck Serono Limited for their donation of £5,820 to continue to improve Success’ website and digital platforms. The website is now a key asset of the Charity through which it publishes all its news and updates for beneficiaries, their families and professionals. Additionally, Success’ presence on Twitter continues to increase with the Charity making better use of this platform to communicate key events and updates.

Success was pleased to support Walking on the Edge: Thoughts on life and parenting after childhood brain cancer, a book written by one of the Charity’s’ own Trustee (Marco Previero) with a foreword by Helen Spoudeas. The book was written in support of Success to raise awareness of late side effects experienced by many survivors following treatment of brain cancer, with a donation by Marco Previero of £6,000 to cover costs associated with the publication and exposure of the story. Mentions of Success charity included several national BBC radio stations, a front cover feature on The Times on Saturday, and other mentions on online magazines such Bookbrunch.

Dr Helen Spoudeas continues to personally support the charity with a substantial donation at the start of the financial year of £20,000 as clear demonstration of the commitment she has in the delivery of the charity’s stated objectives.

These donations are very important to us as a new charity and we desperately need to raise more funds to continue to develop and deliver on our ongoing projects and future ambitious goals. We are enormously grateful to all our supporters and donors, large and small for this vital support which means so much to us and to our board, to continue to develop.

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

Financial review

The post-COVID environment continues to be tough for charities. The flat growth period which followed the pandemic (and continues through 2023), sees increasing demand for crucial services provided by the third sector but an overall decline in the ability of the sector to raise funds. It is a time of economic uncertainty for charities and voluntary organisations and people, corporates and grant donors tend to either give less or be more selective on how they distribute funds, and generally give less per charity. Success has experienced this difficulty first-hand in 2022.

Despite such unprecedented uncertainties, Success has managed to turn a small surplus in the year of £11,348 and deliver a major fund-raising event through the Carol Concert at the end of 2022. Additionally, it managed to raise more income in the year amounting to £85,312, against £79,559 in 2021.

Costs remain under control with careful periodic review of management accounts as part of its quarterly trustee

meetings.

In 2022, Success committed £49,751 to charitable activities, 67% of its total expenditure (up from 62% in 2021), with just over 40% attributable to the Carol Concert and conference, and 20% for the development of the pilot magazine “Braveheart”.

Included in prepayment is an amount of £43,000 being associated costs relating to the conference which was due to be held in 2022, but was postponed to March 2023. These costs will be recognised in 2023. No income related to the conference has been recognised in 2022.

The pandemic and post-pandemic period have undoubtedly delayed the development and growth of Success as a charity. Additionally, Success’ stated objectives and aims comprise complex projects requiring the buy-in and commitment of several interdisciplinary healthcare-related stakeholders. These projects cannot grow and be delivered quickly and require long-term focus to reach some level of critical mass.

A risk identified last year was the Charity’s underdeveloped capability to generate ongoing revenue streams for its activities and projects. Success appointed a firm of business consultants in 2022 which is beginning to make inroads into the Charity having better visibility to external potential donors and bodies of influence.

Despite these difficulties, the Charity’s unrestricted reserves have risen from £118,125 to £125,373 and the Board of Trustees believes it remains a going concern for the foreseeable future. It does acknowledge that rapid investment in fundraising is needed to deliver on the broader projects identified as part of its three-year plan.

It is the policy of the charity that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to between three and six month’s expenditure. The trustees consider that reserves at this level will ensure that, in the event of a significant drop in funding, they will be able to continue the charity’s current activities while consideration is given to ways in which additional funds may be raised. This level of reserves has been maintained throughout the year.

The Charity continues to monitor and consider appropriate levels of reserves on an ongoing basis. As a business, Success is still in start-up mode and we appreciate the need to balance the maintenance of adequate reserves with sufficient fund allocation to progress its charitable activities as detailed above.

Total unrestricted funds carried forward stand at £125,625 for the year ended 31 December 2022, with an additional £15,860 of restricted funds allocated to the conference in 2023 and the development of a monthly workshop series in 2023. Given its early stage of development, the Trustees do not believe it would be commercially meaningful to set a formulaic reserve policy, but agree to monitor costs and revenues on a quarterly basis as part of its risk and control procedures. Additionally, current reserves cover at least six months of operational expenses, and at this stage, the Trustees feel this is a reasonable commercial buffer to maintain - and this is reviewed quarterly as part of our Board meetings.

The charity's principal sources of funds (including any fundraising)

The charity raises income through a combination of events, individual giving, corporate support and grants. During the year, the charity registered with Stripe, Just giving and Easy Fund Raising and donations have been received through these methods. Credit card and PayPal donations can be made directly through the website.

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

Risk Policy

The Board of Trustees has conducted a review of the major risks to which the charity is exposed using the Charity Commission framework. A risk register has been established and is reviewed and updated at least annually by the Board. A small working group has been formed to undertake this work, meeting more regularly and reporting directly to the Board for oversight. Where appropriate, systems or procedures have been established to mitigate the risks the charity faces. Internal control risks are minimised by the implementation of procedures for two levels of authorisation of all financial transactions.

The main risk identified is:

a. generating sustainable income in order to deliver services for its beneficiaries.

This item was therefore given higher priority on the next Board agenda with the decision to recruit a full-time COO and engage a firm of fundraising business consultants to directly address and mitigate this risk.

Structure, governance and management Governing document

Success is a charitable company limited by guarantee and established under its Memorandum and Articles of Association. In the event of the company being wound up every member of the charity undertakes to contribute such amount as may be required (not exceeding £1).

Trustee selection methods including details of any constitutional provisions:

The Board spent time reviewing the Charity Commission guidance, the Charity Governance Code and other governance reference material. Trustee role descriptions and a Code of Conduct were produced and implemented.

The trustees, who are also the directors for the purpose of company law, and who served during the year and up to the date of signature of the financial statements were:

Philip Austin Jane Hobson Hugh Stewart (Appointed 15 September 2022) Richard Crowther Jennifer Limond Marco Previero Dr Helen Spoudeas

Trustee recruitment, selection and succession planning will be agreed as part of the ongoing governance of the organisation. This will include consideration of the requirements for a diverse board membership, ensuring that trustees have different backgrounds and experiences to enable better decisions.

A comprehensive programme of governance training was included in board meetings, to ensure that trustees were aware of the responsibilities and expectations of them, and to be able to review their effectiveness. Plans to ensure ongoing board development and training are in progress.

The charity is governed by the Board of Trustees, with advice and support from external freelance consultants, who operate as project managers for some aspects of charitable activity. A series of sub-groups and steering groups support the work of the Board and the operational delivery of charitable aims and objectives. External support is provided on a pro bono basis by a legal firm, as well as several volunteers.

The charity operates within the wider environment of brain tumour charities and services and has formed links with other charities and NHS services, through informal discussions, with the ultimate aim of enhancing the lives of childhood brain tumour survivors.

SUCCESS LIFE AFTER CURE LIMITED

DIRECTORS REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

The Directors report was approved by the Board of Trustees.

.............................. Dr Helen Spoudeas Director 12.10.2023 Date: .............................................

SUCCESS LIFE AFTER CURE LIMITED

INDEPENDENT EXAMINER'S REPORT

TO THE TRUSTEES OF SUCCESS LIFE AFTER CURE LIMITED

I report to the trustees on my examination of the financial statements of Success Life After Cure Limited (the charity) for the year ended 31 December 2022.

Responsibilities and basis of report

As the trustees of the charity (and also its directors for the purposes of company law) you are responsible for the preparation of the financial statements in accordance with the requirements of the Companies Act 2006 (the 2006 Act).

Having satisfied myself that the financial statements of the charity are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of the charity’s financial statements carried out under section 145 of the Charities Act 2011 (the 2011 Act). In carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.

Independent examiner's statement

I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.

Tom Wilcox Counterculture Partnership LLP Unit 115, Ducie House Ducie Street Manchester M1 2JW

Dated: ......................... 18.10.2023

SUCCESS LIFE AFTER CURE LIMITED

STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT

FOR THE YEAR ENDED 31 DECEMBER 2022

Unrestricted
Restricted
funds
funds
2022
2022
Notes
£
£
Income from:
Donations and
legacies
3
59,675
25,637
Charitable activities
4
-
-
Total income
59,675
25,637
Expenditure on:
Raising funds
5
3,789
945
Charitable activities
6
48,638
20,592
Total expenditure
52,427
21,537
Gross transfers
between funds
-
-
Net income for the year/
Net movement in funds
7,248
4,100
Fund balances at 1 January
2022
118,125
11,760
Fund balances at 31
December 2022
125,373
15,860		 Total
Unrestricted
Restricted
funds
funds
2022
2021
2021
£
£
£
85,312
37,365
3,102
-
-
39,092
85,312
37,365
42,194
4,734
8,025
-
69,230
35,796
34,615
73,964
43,821
34,615
-
(4,181)
4,181
11,348
(10,637)
11,760
129,885
128,762
-
141,233
118,125
11,760		 Total
2021
£
40,467
39,092
79,559
8,025
70,411
78,436
-
1,123
128,762
129,885

The statement of financial activities includes all gains and losses recognised in the year.

All income and expenditure derive from continuing activities.

The statement of financial activities also complies with the requirements for an income and expenditure account under the Companies Act 2006.

SUCCESS LIFE AFTER CURE LIMITED

BALANCE SHEET

AS AT 31 DECEMBER 2022

Notes
Fixed assets
Tangible assets
10
Current assets
Debtors
11
Cash at bank and in hand
Creditors: amounts falling due within
one year
12
Net current assets
Total assets less current liabilities
Income funds
Restricted funds
13
Unrestricted funds		 2022
£
58,410
96,196
154,606
(13,582)		 £
209
141,024
141,233
15,860
125,373
141,233		 2021
£
7,407
128,286
135,693
(5,808)		 £
-
129,885
129,885
11,760
118,125
129,885

The company is entitled to the exemption from the audit requirement contained in section 477 of the Companies Act 2006, for the year ended 31 December 2022.

The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of financial statements.

The members have not required the company to obtain an audit of its financial statements for the year in question in accordance with section 476.

These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies regime.

The financial statements were approved by the Trustees on .........................

.............................. Marco Previero Trustee

Company registration number 11785842

SUCCESS LIFE AFTER CURE LIMITED

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2022

1 Accounting policies

Charity information

Success Life After Cure Limited is a private company limited by guarantee incorporated in England and Wales. The registered office is 100 New Bridge Street, London, EC4V 6JA.

1.1 Accounting convention

The financial statements have been prepared in accordance with the charity's [governing document], the Companies Act 2006, FRS 102 “The Financial Reporting Standard applicable in the UK and Republic of Ireland” (“FRS 102”) and the Charities SORP "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019). The charity is a Public Benefit Entity as defined by FRS 102.

The charity has taken advantage of the provisions in the SORP for charities not to prepare a Statement of Cash Flows.

The financial statements are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £.

The financial statements have been prepared under the historical cost convention, [modified to include the revaluation of freehold properties and to include investment properties and certain financial instruments at fair value]. The principal accounting policies adopted are set out below.

1.2 Going concern

At the time of approving the financial statements, the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus the trustees continue to adopt the going concern basis of accounting in preparing the financial statements.

1.3 Charitable funds

Unrestricted funds are available for use at the discretion of the trustees in furtherance of their charitable objectives.

Restricted funds are subject to specific conditions by donors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements.

Endowment funds are subject to specific conditions by donors that the capital must be maintained by the charity.

1.4 Income

Income is recognised when the charity is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.

Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.

Legacies are recognised on receipt or otherwise if the charity has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.

SUCCESS LIFE AFTER CURE LIMITED

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

1 Accounting policies

(Continued)

1.5 Expenditure

Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement, and the amount of the obligation can be measured reliably.

Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges are allocated on the portion of the asset’s use.

1.6 Tangible fixed assets

Tangible fixed assets are initially measured at cost and subsequently measured at cost or valuation, net of depreciation and any impairment losses.

Depreciation is recognised so as to write off the cost or valuation of assets less their residual values over their useful lives on the following bases:

Fixtures and fittings 20% reducing balance basis

The gain or loss arising on the disposal of an asset is determined as the difference between the sale proceeds and the carrying value of the asset, and is recognised in the statement of financial activities.

1.7 Impairment of fixed assets

At each reporting end date, the charity reviews the carrying amounts of its tangible assets to determine whether there is any indication that those assets have suffered an impairment loss. If any such indication exists, the recoverable amount of the asset is estimated in order to determine the extent of the impairment loss (if any).

1.8 Cash and cash equivalents

Cash and cash equivalents include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less, and bank overdrafts. Bank overdrafts are shown within borrowings in current liabilities.

1.9 Financial instruments

The charity has elected to apply the provisions of Section 11 ‘Basic Financial Instruments’ and Section 12 ‘Other Financial Instruments Issues’ of FRS 102 to all of its financial instruments.

Financial instruments are recognised in the charity's balance sheet when the charity becomes party to the contractual provisions of the instrument.

Financial assets and liabilities are offset, with the net amounts presented in the financial statements, when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.

Basic financial assets

Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.

SUCCESS LIFE AFTER CURE LIMITED

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

1 Accounting policies

(Continued)

Basic financial liabilities

Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.

Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.

Derecognition of financial liabilities

Financial liabilities are derecognised when the charity’s contractual obligations expire or are discharged or cancelled.

1.10 Employee benefits

The cost of any unused holiday entitlement is recognised in the period in which the employee’s services are received.

Termination benefits are recognised immediately as an expense when the charity is demonstrably committed to terminate the employment of an employee or to provide termination benefits.

2 Critical accounting estimates and judgements

In the application of the charity’s accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.

The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods.

3 Donations and legacies

Unrestricted
Restricted
funds
funds
2022
2022
£
£
Donations and gifts
59,675
25,637
Grants received
-
-
59,675
25,637		 Total
Unrestricted
Restricted
funds
funds
2022
2021
2021
£
£
£
85,312
32,365
627
-
5,000
2,475
85,312
37,365
3,102		 Total
2021
£
32,992
7,475
40,467

SUCCESS LIFE AFTER CURE LIMITED

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

4 Income from charitable activities

Restricted Funds
Reduce social isolation
Income from charitable activities		 2022
£
-
-		 2021
£
39,092
39,092

5 Expenditure on generating donations and legacies

Unrestricted funds
Donations		 2022
£
3,789
3,789		 2022
£
945
945		 2022
£
4,734
4,734		 2021
£
8,025
8,025

SUCCESS LIFE AFTER CURE LIMITED

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

6 Costs of charitable activities by fund type

Unrestricted
Restricted
Funds
Funds
2022
2022
£
£
Amplify voice of survivors
19,271
21,537
Reduce solical isolation
6,700
-
Catalyst for post-cure recovery
2,242
-
Support costs
24,213
-
Staff costs
41,039
-
52,427
21,537
Costs of charitable activity by
activity type
Undertaken
Support
directly
costs
£
£
Support costs
Amplify voice of survivors
40,808
19,654
Reduce solical isolation
6,700
3,227
Catalyst for post-cure recovery
2,242
1,332
49,751
24,213
Analysis of support costs
Amplify
Reduce
Catalyst
voice
isolation
post-cure
£
£
£
Managment
13,335
2,190
733
General overheads
4,119
676
326
Website development
1,362
224
75
General Governance
837
137
198
-
-
-
19,654
3,227
1,332		 2022
£
40,808
6,700
2,242
24,213
41,039
73,964
2022
£
60,462
9,927
3,574
73,964
2022
£
16,258
5,022
1,661
1,172
-
24,213		 2021
£
1,574
42,183
4,935
21,719
15,188
70,411
2021
£
5,917
48,699
15,795
70,411
2021
£
19,114
1,585
-
1,020
-
21,719

SUCCESS LIFE AFTER CURE LIMITED

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

7 Trustees

None of the trustees (or any persons connected with them) received any remuneration or benefits from the charity during the year.

8 Employees

The average monthly number of employees during the year was:

2022 2021
Number Number
1 1

There were no employees whose annual remuneration was more than £60,000.

9 Taxation

The charity is exempt from tax on income and gains falling within section 505 of the Taxes Act 1988 or section 252 of the Taxationof Chargeable Gains Act 1992 to the extent that these are applied to its charitable objects.

10 Tangible fixed assets

Tangible fixed assets
Fixtures and fittings
£
Cost
Additions 209
At 31 December 2022 209
Carrying amount
At 31 December 2022 209

11 Debtors

Amounts falling due within one year:
Trade debtors
Other debtors		 2022
£
7,398
51,012
58,410		 2021
£
500
6,907
7,407

SUCCESS LIFE AFTER CURE LIMITED

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

12 Creditors: amounts falling due within one year

Creditors: amounts falling due within one year
Trade creditors
Accruals and deferred income		 2022
£
12,410
1,172
13,582		 2021
£
4,788
1,020
5,808

13 Restricted funds

The income funds of the charity include restricted funds comprising the following unexpended balances of donations and grants held on trust for specific purposes:

Conference
Nurse Appeal		 Movement in funds
Incoming
resources
Resources
expended
£
£
39,719
(27,959)
2,475
(6,656)
42,194
(34,615)		 Movement in funds
Transfers
Balance at
1 January 2022
Incoming
resources
Resources
expended
Balance at
31 December
2022
£
£
£
£
£
-
11,760
-
-
11,760
4,181
-
25,637
(21,537)
4,100
4,181
11,760
25,637
(21,537)
15,860		 Movement in funds
Transfers
Balance at
1 January 2022
Incoming
resources
Resources
expended
Balance at
31 December
2022
£
£
£
£
£
-
11,760
-
-
11,760
4,181
-
25,637
(21,537)
4,100
4,181
11,760
25,637
(21,537)
15,860
15,860

The Charity generated a surplus of £11,760 against the Conference in 2021. The balance will be re-invested in the Conference planned for March 2023.

The Nurse Appeal aims to develop a long term project of training nurses to bridge the gap between legacy rehabilitative pathways and second non-oncology pathways. This includes funding projects aimed at facilitating the long-term development of this specialist team.

14 Analysis of net assets between funds

Unrestricted
funds
Restricted
funds
2022
2022
£
£
Fund balances at 31
December 2022 are
represented by:
Tangible assets
209
-
Current assets/(liabilities)
125,164
15,860
125,373
15,860		 Total Unrestricted
funds
Restricted
funds
2022
2021
2021
£
£
£
209
-
-
141,024
118,125
11,760
141,233
118,125
11,760		 Total
2021
£
-
129,885
129,885