Charity number: 1188298 Company number: 11785842 (England and Wales) Success Life After Cure Limited Report of the Directors and Unaudited Financial Statements For the year ended 31 December 2021 Success Life After Cure Limited Contents Page For the year ended 31 December 2021 |Report of the Directors|1 to 11| |---|---| |Independent Examiner's Report to the Directors|12| |Statement of Financial Activities|13| |Statement of Financial Position|14| |Notes to the Financial Statements|15 to 20| ## Success Life After Cure Limited Report of the Directors ## For the year ended 31 December 2021 The Directors have pleasure in presenting their report and the financial statements for the charitable company for the year ended 31 December 2021. The Directors have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS 102) (effective 1 January 2019). ## **Chair's report - Cure Alone Is Not Enough** Whilst investment in cancer research and intensified treatments have translated into a 5-year cure for 80% of children with a brain tumour, the heavy price of 'cure' on the developing child is often overlooked. Almost two-thirds of survivors experience significant, long-term, life-threatening disabilities and often feel socially alienated and unable to thrive emotionally and professionally. This then later impacts on their ability to live full independent and rewarding adult lives over a subsequent average lifespan of 68 additional years from diagnosis. In 2021, a year in which the pandemic crisis stifled many businesses' ability to operate in a regular way, including this Charity, Success took the opportunity to review and re-launch its three-year plan. Behind this strategy is a philosophy that improving quality of life is just as important as life itself; this must necessarily include addressing the underlying brain injury from the very beginning and throughout a child's development. Our strategy sets out how we aim to redress the balance to ensure each child regains their future, beyond cure. ## **Our vision and objectives** Success exists to **enable brighter futures for childhood brain tumour survivors.** Underpinning our vision are two driving principles: to ensure every survivor achieves their full potential and ensure their needs are fully researched, recognised and represented. In developing our three-year plan, the Board of Trustees agreed on three broad objectives for the Charity against which all key projects and investment will align, namely: ## **1- Amplify the voice of survivors and their families** The Charity will aim to achieve this by advocating for better characterisation of, and interventional remediation for, the collective unrecognised and unmet holistic rehabilitative needs of this vulnerable group, throughout their critical developmental phases to maturity, and ensuring the 2005 NICE-recommended 'lifelong postcure' rehabilitative pathways are fully implemented and accessible to every individual, regardless of their innate ability and, with emphasis on 'hard to reach' and culturally or socially disadvantaged groups. In practice this will mean investing in the following areas: a)Strengthening relationships with government and other statutory and charitable organisations - b)Advocating for this brain injured minority of childhood cancer survivors through lobbying efforts in Parliament and within the NHS and NHSE During the pandemic, the usual activity of the all party parliamentary group (APPG) on brain tumours was suspended. Instead, in 2021, Success met with the CEO of Brain Tumour Research (BTR), an established charity holding the APPG's secretariat and raising funds for research into cure, and with the CEO and/or key representatives of the Brain Tumour Charity, the Little Brains Trust, the Child Brain Injury Trust and Together for Short Lives. These discussions were fruitful in generating: - collaborative agreement for the 'timeliness' of Success' efforts to focus a light on childhood survivors' developmental rehabilitative needs to effect a 'real' cure from the brain tumour itself, - in developing a Parliamentary advocacy working group within the board and with our patron, from which to develop and deliver our campaign. - agreement to interact with two more APPGs (for childhood cancer and acquired brain injury) and the allied clinical reference groups (CRG's) and leaders in NHSE, in 2022 and beyond. - 100% endorsement from our beneficiaries at the annual survivors' conference, to progress our campaign Cure Alone is Not Enough. - 100% professional agreement to lobby NHSE for specialist national commissioning of pituitary-tumour specific services for children, as is in place for adults and mandated by recently endorsed childhood guidance. ## **2- Reduce social isolation for survivors and their families** Success is working hard to create self-supporting communities and informal and formal peer networks and forums which recognise specific cultural and social differences, thereby enabling friendships and significant relationships, and improving mental health and employment outcomes. 1 of 20 ## Success Life After Cure Limited Report of the Directors Continued For the year ended 31 December 2021 In particular, the Charity wants to continue investment in: - a) An annual conference for survivors by survivors, with a 5th conference delivered in 2021 and another planned for October of 2022, with the possibility of expanding this effort to hold two conferences a year - b) Expanding peer to peer mentoring support to increase the number of both mentors and mentees following a successful pilot in 2021 - c) Developing a programme of structured workshops, as requested by beneficiaries, throughout 2022. Success managed to secure £24,000 in October 2021 to invest in this programme which has already delivered five in depth workshops, including a dedicated professionals' workshop, following the 2021 conference, and three subsequent ones in early 2022, with an ongoing monthly themed series planned in that year. ## **3- Be a catalyst for rehabilitative services for survivors and their families** Success is focusing on bettering access to, and increasing investment in, holistic (neuroendocrine) rehabilitation and providing evidence for benefit of targeted, informed and individualised interventions, improving and expanding existing services, identifying novel and digitally accessible opportunities for ongoing rehabilitation, and facilitating access to community health, special educational need and vocational support and transition to dedicated adult services for ongoing chronic health needs. Specifically, Success will focus on the following: - a) Investment in projects that enhance developmental and mental health, educational and vocational support. Success has already started to develop relationships with 4 of 16 NHS paediatric neuro-oncology treatment centres and their adult counterparts, with the aim of providing supervised and fully trained, key nursing / psychological advocates to each centre. This is the first part of an ambitious, long-term project to pump-prime, sustainable investment in strengthening existing early NHS survivorship services and equalising access to multidisciplinary, nursing, neurodevelopmental, endocrine and mental health professionals, as well as allied therapists (physio- occupational and speech and language therapy, and neuropsychology). - b) Continuing to work with ReAbility UK to complete the first year of our telerehabilitation bursary programme and expand it nationally over the next three years. I am grateful to all our volunteers, our donors, big and small, our board of trustees and patron, and to all the professionals, who have contributed much appreciated support and advice over the last year. In particular I extend my debt of gratitude to the cohort of survivors and their families from whom we learn and for whom we exist and who never cease to inspire us. Dr Helen Spoudeas 2 of 20 Success Life After Cure Limited Report of the Directors Continued ## For the year ended 31 December 2021 ## **OBJECTIVES AND ACTIVITIES** ## **Objectives and aims** Success Charity - Life After Cure exists to enable brighter futures for childhood brain tumour survivors. To promote and protect the physical and mental health, and relieve the needs of childhood brain tumour survivors ("survivors") treated in the United Kingdom by providing equipment, facilities and services not normally provided by the statutory authorities and in particular: - (i) providing information, resources, advocacy support and education support to the survivors, their families and their education professionals; - (ii) providing multi-disciplinary clinician led rehabilitation treatment ancillary to that provided by the statutory authorities; - (iii) undertaking research into the treatment and outcomes of survivors to identify rehabilitation needs and challenges and publishing the useful results; - (iv) providing mentoring and network groups for survivors and their families; and - (v) providing grants to survivors to access medical support. The Charity aims to achieve these objectives through a number of activities associated with its three driving ambitions of: - 1.Amplifying the voice of survivors and their families - 2.Reducing social isolation for survivors and their families - 3.Being a catalyst for rehabilitative services The Trustees have considered the Charity Commission’s guidance on public benefit, including the guidance “public benefit: running a charity (PB2)” and are satisfied that the aims of the Charity are carried out wholly in pursuit of its charitable aims for the public benefit. ## **ACHIEVEMENTS AND PERFORMANCE** ## **Significant activities** 2021 has been a year focused on consolidating key activities for Success, in its second year as an independent registered Charity. We sought to maintain momentum on key projects throughout the ongoing challenge of the COVID pandemic, despite which Success delivered on several planned objectives. In particular, the Board of Trustees worked hard to launch **Success' three year plan** and its related objectives, Cure Alone Is Not Enough, at the start of 2021. Achievements in the year included a **5th annual conference and related workshop programme** for survivors by survivors, held online again this year due to COVID restrictions, the **redevelopment of its website platform** to improve functionality, messaging and accessibility, completion of the first phase of certified training for **six peer mentors in its to peer mentoring programme** , and ongoing investment in progressing the **telerehabilitation protocol agreement** , training its therapists and co-ordinating its planned delivery and evaluation across the UK . 2021 is also the year in which Success became an employer and recruited two part time roles for the Charity; a charity administrator to effect timely administrative support to Success and a Success nurse advocate and project lead, to progress clinical initiatives such as our telerehabilitation project and nurse advocacy projects detailed in later sections of this annual report. Other activity has included broadening our **lobbying efforts** to advocate for ready and improved access to rehabilitative care for every survivor across the UK and **nurturing relationships with other charitable organisations** to strengthen our voice and provide for future collaboration. 3 of 20 Success Life After Cure Limited Report of the Directors Continued For the year ended 31 December 2021 ## **Prior to our 2020 Charity registration** Prior to registering as a Charity, Success was an allocated charitable fund within University College London Hospitals Charities, which was created specifically to support the growth of a novel, nationally recognised 'beacon' and award-winning service to the increasing survivors of childhood cancer and brain tumours and their families across both Great Ormond Street Hospital for Children and University College London Hospital (for the emerging numbers of adolescent and young adult survivors). Over a period of some 20 years since its inception in 2000 by Dr Helen Spoudeas, a paediatric neuro-endocrinologist, its aim was to provide age-appropriate, holistic and interdisciplinary assessments of complex health needs to a growing group of survivors of childhood cancer and brain tumours, in a one-stop outpatient setting. Activities included the provision of neuroendocrine holistic support services, with a focus on late treatment consequences, and raising awareness of the effects of cancer treatment and brain tumour location, on the hormone (endocrine) system. Since 2017 it focussed on the more complex and unpredicted consequences of curing brain tumours, especially those in the deep, primitive midbrain, close to vital visual, memory, behaviour and life-sustaining metabolic pathways, by part-funding clinical research, developing graphic educational tools for use in clinics with families and leading on a series of national guidelines for interprofessional management to improve health outcomes for such tumours https://mediapigeon.io/newsroom/pressat/releases/en/cclg-releases-first-in-a-series-of-guidelines-to-help-with-the-ma nagement-of-rarechildhood-tumours-9399 https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(21)00088-2/fulltext Since 2018 it has advocated in Parliament and lobbied professionally for earlier recognition, characterisation and comprehensive rehabilitation of the brain injury incurred by the tumour's position in the brain - not simply the tumour's grade and treatment imposed - and from diagnosis and throughout the growing years not, as for other childhood malignancies, 5 years after the last treatment imposed. It has accessed the voice of the survivors through three annual conferences 'for survivors by survivors', as a precursor of the November 2020 conference held digitally and as a registered charity for the first time. ## **Contribution made by volunteers** In the absence of a large charitable endowment at its start-up, much of the Charity's activity is necessarily still carried out by volunteers, with our first employees only starting in September 2021. As well as the Board of Trustees, other volunteers have given time and expertise with matters such as organising events, producing educational and information resources and providing support and legal advice. The charity has utilised consultants to assist with the operations, web-site development, marketing and communications, fundraising and governance in 2021 although it is looking at integrating these capabilities by investing in additional in-houses roles in 2022. A volunteer application process and role descriptions have been developed. ## **Achievements against objectives** The pandemic continued to create a challenging environment for much of 2021. As in the previous year, the COVID crisis has inevitably caused disruption and delay to many planned activities and cancellation of fundraising events. Nevertheless, the charity has made good steps towards a number of initiatives for beneficiaries. ## _Success Annual Survivor Conference_ The Success flagship event continued to be its annual **Survivors' Conference.** This was our 5th Annual Conference, held on 6th November 2021, and the 2nd one to be held online as we waited for the world to return to normal after two challenging years of COVID restrictions. The theme was Steps To Success focusing on the maturational needs of the growing body and brain across 4 key developmental stages from infancy to adulthood. The conference attracted over 200 household registrations and once again we were pleased to welcome twice the number of delegates than had been possible at previous, physical events, and to extend the reach to survivors and families from across the world. The conference included a mix of medical professionals, survivors sharing their stories and experiences and supporters as we continue to address one of Success Charity's core aims -the unmet rehabilitation and ongoing lifelong support needs of survivors of brain tumours diagnosed and treated in childhood. This is one of the Charity's core aims. 4 of 20 ## Success Life After Cure Limited Report of the Directors Continued For the year ended 31 December 2021 It was particularly gratifying to see that, when asked during an online poll, 100% of responding participants agreed with Success' key contention, that cure alone is not enough and 95% of them understood the Charity's aims and objectives. The conference updated beneficiaries on the ongoing Peer to Peer mentoring and ReAbility bursary programmes, with over two-thirds expressing interest in telerehabilitation. Derek Thomas MP, chair of the brain tumour APPG, kindly participated with a pre-recorded message, praising the Charity for its efforts in seeking to give all childhood brain tumour survivors a better life ahead, and voicing his support for this cause. The Conference was also an opportunity for professionals and key speakers to debate controversies on the practical implications of delivering specialist services to children with rare, complex, mid-brain tumours, the principles that should drive access to pituitary (midbrain) specialists, how and what quality of survival health data should be collected and how best to disseminate it and share it in order to improve long term health and quality of life outcomes. As always, the most highly rated sessions were those featuring the survivors themselves, each bringing their own inspirational 'voice' into the schooling and educational challenges encountered across each of the four key maturational stages, and the coping strategies they developed to mitigate some of the late consequences of treatment and cure. Over 50% of our 200 delegates were beneficiaries. Once again, the conference was very well received with 100% of survey participants saying they would recommend the conference to other survivors, and overall good ratings on the various sessions, from survivors' talks (100% very good and excellent) to keynote speakers (100% very good and excellent). ## _Workshop programme_ The first series of digital workshops was held immediately post-conference to afford a virtual networking opportunity and gain maximum exposure to beneficiaries on that day, start generating engagement and set expectations for future workshops throughout the year. This initial series comprised 5 workshops aligned with the theme of the conference and providing in-depth opportunities to explore topics introduced at the conference, namely - Legal advocacy for education and employment support, - Supported return to mainstream education and employment, - Meet the new mentors and hear about the peer mentoring programme, - Expressions of interest for the TeleRehabilitation bursary programme and - The closed Professional BSPED/CCLG HPAT networking group facilitated by Success The latter workshop was targeted at professionals (the other four being targeted at our main survivor and parent beneficiaries) and provided an update and forum for discussion on the perceived challenges to implementation and audit of newly published, inter-professional paediatric oncology (CCLG) and paediatric endocrinology (BSPED) pituitary tumour management guidelines, ensuring the patient's best interests were considered and endorsed by the national professional membership body of paediatricians (RCPCH). In answer to a structured post-conference feedback questionnaire, 33% thought further workshops across the year would be the single most helpful next step, 29% felt they had gained inspiration and hope for the future, 22% left with a better understanding of key challenges at each development stage, and a greater visibility of issues facing survivors and their families. Several more workshops have been planned for 2022 (3 delivered and 4 in the planning stage currently). ## _Peer Support_ **Peer Support** is a central tenet of the charity's offer for survivors. Other young people who have a shared lived experience of surviving a brain tumour are, with appropriate training and supervision, well placed to provide support for others going through a similar experience. An informal peer support network was established in previous years using a recognised online community forum (Health Unlocked) to enable survivors to meet and chat about their experiences together. A more formal service, training survivors to gain the skills to become Peer Mentors, planned in 2020, started in 2021 with an initial pilot scheme. Our partner in this area, Young People Matter, ran an accredited training course in **Effective Mentoring Skills** . Following an initial period of review, recruitment and selection, seven survivors older than 18 years of age, out of eight who applied, achieved a recognised qualification, and also gained confidence and valuable work/life experiences and skills, enhancing their self-esteem and employability. At present, five mentors are now actively involved in providing support to mentees, themselves survivors, who have requested the opportunity to be provided with emotional and social support from another young person who has successfully navigated a common brain tumour journey. Recognising that life events both past, present and future can also impact the well-being of our mentors, we have now implemented monthly supervision sessions of our mentors by our project lead nurse (who is able to deliver level 2 psychological support according to the NHS national cancer peer review measures). This affords development of the group by sharing experiences and tips of mentoring others and another level of collaborative problem solving peer support for the individual mentor and their mentee. 5 of 20 ## Success Life After Cure Limited Report of the Directors Continued For the year ended 31 December 2021 Over the course of 2022, we aim to expand the scheme by further identifying and pairing eligible mentees over 16 years of age, with existing and newly recruited mentors for training, whilst exploring the need for similar 'buddy' schemes that support younger survivors under 16 years of age, siblings and parents alike. At Success' annual conference mentors spoke about why they volunteered for, and their experience of, training as mentors and their aspirations for development of the peer to peer programme. They subsequently hosted a virtual post-conference workshop in which they answered questions put to them by their peers and recruited further individuals for mentoring support and mentor training. This is what some of our mentors and mentees had to say: _“I thought a recognised formal qualification such as the one offered by the mentoring programme would support my future employment opportunities as unfortunately I was unable to achieve qualifications at GCSE level”_ _“It could not have come at a better time. During lockdown everyone felt isolated and quite low. This gave us a platform to build on and feel part of a network”_ _“The best thing is getting to know everyone on the course. I feel like part of a team, and I know I could get support if I needed it”_ _“It was nice to belong to a group working towards a common goal”_ _“As Mentors we get just as much out of the relationship as the mentees do”_ ## _ReAbility UK_ **ReAbility Online UK** and Success continues their partnership to provide individually tailored and supervised digital neurophysiotherapy, cognitive and occupational rehabilitation exercises, available to practice daily from home or community educational settings. The Charity seeks to train and fund UK therapists on this game changing novel telerehabilitation platform developed in Israel and not otherwise available in the UK. It is offered 'pro bono' to our beneficiaries in a 3-monthly rolling bursary programme which is continuously evaluated for benefit. Following a successful feasibility study in 2020 presented at a dedicated brain tumour neurorehabilitation meeting of the British Paediatric Neurology Association, we have 30 potential recruits to, and funding for, the first 3-month phase of this programme. Progress was made in 2021 in completing the project protocol, agreeing funding streams, individual and shared responsibilities between Success and ReAbility UK, and appointing a data administrator to recruit and evaluate the project, and oversee aspects of project governance in relation to safeguarding participants, GDPR and research outcomes. Whilst GDPR agreements and policies, therapist disclosures and licenses to use the relevant paediatric psychological questionnaires (ie Peds QL and BRIEF) outcome measures, are now complete, the project has been significantly delayed by the difficulty and cost of obtaining liability insurance for such an innovative therapeutic intervention for which there was no comparable UK benchmarking against which insurance companies could assess cover. Success and ReAbility Online UK continue to work with the underwriters in the development of the relevant paperwork, with the aim of starting to enrol from our existing list of registrants in September 2022. ## _Website_ The charity continued development of its new **website begun in 2020 alongside enhancing its communications strategy** , improving functionality, visibility, marketing, and accessibility compared to the previous version. In 2021 Success contracted 'Waring Stewart Associates' to continuously improve the user interface with the website and facilitate beneficiaries' and supporters' ready and timely access to information about the charity and its events and programmes, our educational information and activities and easy signposting for appropriate support. ## _Advocacy_ Success aims to advocate for both the individual as well as the collective unrecognised and unmet rehabilitative needs of children surviving brain tumours and, ensure that we reach every child, whatever their ability or degree of brain injury but with particular emphasis on those who are 'hard to reach' and culturally or socially disadvantaged. Several initiatives were undertaken during the year under review: 6 of 20 ## Success Life After Cure Limited Report of the Directors Continued ## For the year ended 31 December 2021 - Success has continued to explore possible relationships with tertiary specialist NHS paediatric neuro-oncology and two new national proton radiation centres, in its bid to expand, upskill and optimise holistic rehabilitative multiprofessional services alongside and beyond cure pathways, to meet the developmental needs of survivors throughout their key life stages. This is part of an ambitious long-term plan which will require long-term focus and investment from Success. In particular, Success has been exploring the possibility of emulating the 10-year pump-primed charity investment in the Cambridge ('Brainbow') brain tumour survivorship service across the UK and to improve on this in collaboration with NHS key centres. We aim to explore areas for co-investment in new clinical and allied therapy roles in neurodevelopment and neuropsychiatry as well as neuroendocrinology, and to investigate the feasibility of fully integrating a parallel broader multidisciplinary rehabilitative service from diagnosis alongside the acute treatment and cure pathway within paediatric NHS neuro-oncology treatment centres - Success offers an open access email and telephone enquiry helpline monitored daily (Monday to Friday) with clinical queries triaged to Success' advocacy nurse or founder trustee (Dr Spoudeas). In 2021 we provided strong support letters to 4 beneficiaries who successfully appealed to their local educational authorities for supported Educational and Health Care Plans for special needs and also helped effect adult access to rehabilitative late effects services for another 4-5 patients whose transition to adult services had not been effected during the pandemic. In addition our nurse advocate delivered an experimental, open monthly virtual friendship and coffee morning to beneficiaries to discuss any individual questions, educational health care plans, peer relationships (mentoring), and rehabilitation from September 2021 which needs developing and marketing next year to improve uptake. Some feedback from this helpline, in particular in relation to support provided to secure additional educational provision was received as follows: _“Wow! Thank you! Massively appreciated. This is spot on and so compelling. I really appreciate this wonderful effort towards our application to the Borough.”_ _“I am so incredibly pleased to inform you that the local authority have agreed to cover the costs of the School that Laurence needs to attend and that they cover 4 full years. Very grateful to Success.”_ _“Thank you for the very useful booklets you sent me in the post and the links for the website that I can pass to the school.”_ - With support from, and in collaboration with, Novo Nordisk Pharmaceuticals, Success produced and published printed and digital versions of its educational tools in the form of an information booklet for parents, survivors and professionals in childhood cancer survivorship centres, entitled Surviving a Childhood Brain Tumour: Life After Cure. The leaflet is designed to inform all survivors of the specialised and service needs of those experiencing health effects as a result of a brain tumour, and to empower them to seek support and surveillance. - Finally, 2021 saw the long awaited endorsement by the Royal College of Paediatrics and Child Health (RCPCH) and publication launch on the professional paediatric oncology CCLG website, of two of three novel national collaborative inter-professional guidelines on managing rare pituitary tumours in children and young people, the first to address this topic worldwide. . https://www.cclg.org.uk/professionals/rare-endocrine-tumour-guidelines. These guidelines are part of a national endeavour to create a series of guidelines for rare endocrine tumours throughout the body specific for children, to improve outcomes from these conditions which differ in significant ways from those in adults. They were supported by funds from Success amongst other sponsors and devised, co-ordinated and led to their conclusion by our founder Dr Helen Spoudeas. Now Success will use this best practice mandate to lobby for specialist commissioning of age-appropriate national pituitary specialist services for these conditions, as in adults, alongside a national registry from which to determine effectiveness and future guideline change. This is an important milestone achieved in the journey to improve awareness and data-driven understanding of the complex aetiology behind poor health outcomes after tumours in the deep midbrain misattributed to radiation alone . ## **Performance of fundraising activities against objectives set** The COVID pandemic limited our event fundraising efforts during the year. Nevertheless, we persisted with our planned Christmas Carol Concert in December 2021 and were extremely grateful to the Norwich Cathedral Choir School and their choirmaster and parent of a survivor, Ashley Grote, for their generosity and much enjoyed and admired performance, as well as to the vicar and staff of the Church where its was held- St Stephen Walbrook in London. We were pleased to be able to sell enough tickets to cover our expenses and raise an additional £9,728 despite many being unable to attend the concert due to new restrictions at the last minute, and to launch our new booklet and raise awareness of our projects at that event. 7 of 20 ## Success Life After Cure Limited Report of the Directors Continued For the year ended 31 December 2021 Fundraising performance remained relatively good during the year, in particular against some of the Charity's stated objectives. We are particularly grateful to Novo Nordisk and Sandoz Pharmaceuticals for providing £15,092.40 and £24,000.00 respectively for the running of the annual conference and a new post conference series of workshops. These were educational grants from pharmaceutical companies and were in line with the regulations governing these. Gino Palmeri of GPIM continues to be a key supporter of the charity by sponsoring the carol concert again this year again with a donation of £10,000 and facilitating our online and in person Christmas appeal raising just over £9,000 as detailed above. We are thankful for ongoing PZ Cussons support and the third instalment of £25,000 (recognised in 2020) as part of their three year programme to help establish the charity's infrastructure, as well as for the Spurway Charitable Trust's £5,000 (the second of three instalments - recognised in 2020). Other general income was raised mainly from Trusts and Individual donors, including CMC market (£5,000), the Albert Hunt Charitable Trust (£2,000) and the National Lottery fund (£2,475), the latter specifically in support of our Peer Mentoring programme. Last year the charity set up its ability to receive donations directly through the website, as well as via an online fundraising platform. Several donations have come in through this route in 2021 totalling some £8,000 in total. These donations are very important to us as a new charity and we desperately need to raise more funds to continue to develop and deliver on our ongoing projects and future ambitious goals. We are enormously grateful to all our supporters and donors, large and small for this vital support which means so much to us and our board, to continue to develop. ## **FINANCIAL REVIEW** Like for many other Charities, the global COVID pandemic impacted on Success' ability to both deliver on its projects and raise funds accordingly, especially as we were just starting up as a registered charity. Whilst it seems that the most restrictive period of the pandemic is behind us, it is likely the recent crisis will have long-term repercussions on the economy, and the charitable sector. Despite the pandemic, Success has been able to manage its resources efficiently, finishing the year with a modest surplus of £1,123. It achieved income of £79,559 considered a good result in the circumstances. Costs remain under control with careful periodic review of management accounts as part of its quarterly trustee meetings. In 2021, Success committed £48,692 to charitable activities, 62% of its total expenditure, with just over 50% attributable to the running of the conference and associated workshops - which remain Success' most material event for beneficiaries - and just under £5,000 for our peer mentoring programme. Success remains in its early stages of development and the pandemic has unavoidably lengthened the period in which it finds itself operating as a start-up. As such, the Charity has not developed an ability to integrate resources and capabilities to generate ongoing revenue streams for its activities and projects. This was identified as a risk and the Board agreed to appoint a firm of business consultants to focus on Success' fundraising strategy in 2022 whilst longer term resources can be identified. Given the managed cost control environment, and a good level of unrestricted reserves (standing at £118k), the Board of Trustees believes it remains a going concern for the foreseeable future but acknowledge that rapid investment in fundraising is needed to deliver on the broader projects identified as part of its three-year plan. ## Reserves The Charity continues to monitor and consider appropriate levels of reserves on an ongoing basis. As a business, Success is still in start-up mode and we appreciate the need to balance maintaining adequate reserves with sufficient funding allocation to progress its charitable activities as detailed in above sections. Total unrestricted funds carried forward stand at £118,125 for the year ended 31 December 2021, with an additional £11,760 of restricted funds allocated to the conference in 2022 and the development of a monthly workshop series in 2022. Given its early stage of development, the Trustees do not believe it would be commercially meaningful to set a formulaic reserve policy, but agree to monitor costs and revenues on a quarterly basis as part of its risk and control procedures. Additionally, current reserves cover at least six months of operational expenses, and at this stage, the Trustees feel this is a reasonable commercial buffer to maintain - and this is reviewed quarterly as part of our Board meetings. 8 of 20 ## Success Life After Cure Limited Report of the Directors Continued For the year ended 31 December 2021 ## **The charity's principal sources of funds (including any fundraising)** The charity raises income through a combination of events, individual giving, corporate support and grants. During the year, the charity registered with Stripe and Justiving and donations have been received through these methods. Credit card and Paypal donations can be made directly through the website. ## **Risk Policy** The Board of Trustees has conducted a review of the major risks to which the charity is exposed using the Charity Commission framework. A risk register has been established and is reviewed and updated at least annually by the Board. A small working group has been formed to undertake this work, meeting more regularly and reporting directly to the Board for oversight. Where appropriate, systems or procedures have been established to mitigate the risks the charity faces. Internal control risks are minimised by the implementation of procedures for two levels of authorisation of all financial transactions. The two highest risks were identified to be: ## **(a) data management in line with the GDPR.** As a result, a data management project was implemented, addressing all aspects of the GDPR, taking pro bono legal advice to ensure the charity is compliant, and this risk is now much lower; and ## **(b) generating sustainable income in order to deliver services for its beneficiaries.** This item was therefore given higher priority on the next Board agenda, and a fundraising strategy and pipeline of support has been developed and a business consulting fundraising outfit identified to start work for Success in 2022, as well as board agreement to identify in-house resources to deliver on its fundraising strategy in the long-term ## **Additional information** During 2020 and part of 2021, the charity invested in external consultancy from individuals with widespread charity experience to help them become established as a registered charity. These individuals have now disengaged and the Board agreed to invest in staffing and identify a business consulting firm to help with its fundraising strategy. ## **STRUCTURE, GOVERNANCE AND MANAGEMENT** ## **Governing document** Success is a charitable company limited by guarantee and established under its Memorandum and Articles of Association. In the event of the company being wound up every member of the charity undertakes to contribute such amount as may be required (not exceeding £1). Trustee selection methods including details of any constitutional provisions: The Board spent time reviewing the Charity Commission guidance, the Charity Governance Code and other governance reference material. Trustee role descriptions and a Code of Conduct were produced and implemented. ## **Recruitment and appointment of directors** Trustee recruitment, selection and succession planning will be agreed as part of the ongoing governance of the organisation. This will include consideration of the requirements for a diverse board membership, ensuring that trustees have different backgrounds and experiences to enable better decisions. A comprehensive programme of governance training was included in board meetings, to ensure that trustees were aware of the responsibilities and expectations of them, and to be able to review their effectiveness. Plans to ensure ongoing board development and training are in progress. The charity is governed by the Board of Trustees, with advice and support from external freelance consultants, who operate as project managers for some aspects of charitable activity. A series of sub-groups and steering groups support the work of the Board and the operational delivery of charitable aims and objectives. External support is provided on a pro bono basis by a legal firm, as well as several volunteers. The charity operates within the wider environment of brain tumour charities and services, and has formed links with other charities and NHS services, through informal discussions, with the ultimate aim of enhancing the lives of brain tumour survivors. 9 of 20 ## Success Life After Cure Limited Report of the Directors Continued ## For the year ended 31 December 2021 ## **STATEMENT OF TRUSTEES' RESPONSIBILITIES** The trustees, who are also the directors of Success for the purpose of company law, are responsible for preparing the Trustees' Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). Company Law requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that year. In preparing these financial statements, the trustees are required to: - select the most suitable accounting policies and apply them consistently; - observe the methods and principles in the Charities SORP; - make judgements and estimates that are reasonable and prudent; and - prepare the financial statements on a going concern basis unless it is not appropriate to presume that the charity will continue in operation. The trustees are responsible for keeping adequate accounting records that disclose with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity's website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions. Approved by the Management Committee and signed on its behalf by Dr Helen Alexandra Spoudeas (Chair) Director 16 June 2022 10 of 20 Success Life After Cure Limited Report of the Directors Continued For the year ended 31 December 2021 ## **REFERENCE AND ADMINISTRATIVE INFORMATION** Success Life After Cure Limited **Name of Charity Charity registration number** 1188298 **Company registration number** 11785842 **Principal address** 100 New Bridge Street London United Kingdom EC4V 6JA ## **Directors** The directors of the charitable company are its trustees for the purpose of charity law. The trustees and officers serving during the year and since the year end were as follows: Philip John Austin Jane Elisabeth Hobson Richard Michael Crowther Louisa Jane Wright (resigned 22 June 2021) Jennifer Alison Limond Dr Helen Alexandra Spoudeas (Chair) Marco Previero ## **Independent examiner** Tom Wilcox Counterculture Partnership LLP Unit 115, Ducie House Ducie Street Manchester M1 2JW 11 of 20 ## Success Life After Cure Limited Independent Examiners Report to the Directors For the year ended 31 December 2021 I report to the trustees on my examination of the accounts of the charitable company for the year ended 31 December 2021. ## **Responsibilities and basis of report** The charity Directors are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 ('the 2006 Act'). Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity's accounts carried out under section 145 of the Charities Act 2011 ('the 2011 Act'). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act. ## **Independent examiners statement** I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect: 1. accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act; or 2. the accounts do not accord with those records; or 3. the accounts do not comply with the requirements of section 396 of the 2006 Act other than any requirement that the accounts give a 'true and fair view' which is not a matter considered as part of an independent examination; or 4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102). I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. Tom Wilcox Counterculture Partnership LLP Unit 115, Ducie House Ducie Street Manchester M1 2JW 16 June 2022 12 of 20 ## Success Life After Cure Limited ## Statement of Financial Activities (including Income and Expenditure Account) For the year ended 31 December 2021 |**Notes**
**Income and endowments from:**
Donations and legacies
2
Charitable activities
3
**Total**
**Expenditure on:**
Raising funds
4
Charitable activities
5/6
**Total**
**Transfers between funds**
**Net movement in funds**
**Reconciliation of funds**
Total funds brought forward
**Total funds carried forward**|**Unrestricted**
**funds**
**£**
37,365
-|**Restricted**
**funds**
**£**
3,102
39,092|**2021**
**£**
40,467
39,092|**2020**
**£**
189,177
14,200| |---|---|---|---|---| ||**37,365**|**42,194**|**79,559**|**203,377**| ||(8,025)
(35,796)|-
(34,615)|(8,025)
(70,411)|(1,711)
(72,904)| ||**(43,821)**|**(34,615)**|**(78,436)**|**(74,615)**| ||(4,181)|4,181|-|-| ||**(10,637)**|**11,760**|**1,123**|**128,762**| ||128,762|-|128,762|-| ||**118,125**|**11,760**|**129,885**|**128,762**| 13 of 20 Registered Number : 11785842 ## Success Life After Cure Limited Statement of Financial Position As at 31 December 2021 |**Notes**
**Current assets**
13
Debtors
Cash at bank and in hand
**Creditors: amounts falling due within one year**
14
**Net current assets**
**Total assets less current liabilities**
**Net assets**
**The funds of the charity**
Restricted income funds
15
Unrestricted income funds
15
**Total funds**|**£**
**2021**
7,407
128,286|**£**
**2020**
41,151
88,948| |---|---|---| ||**135,693**|**130,099**| ||(5,808)
**129,885**|(1,337)
**128,762**| ||**129,885**|**128,762**| |||| ||**129,885**|**128,762**| ||11,760
118,125|-
128,762| ||**129,885**|**128,762**| For the year ended 31 December 2021 the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies. The members have not required the company to obtain an audit of its accounts for the year in question in accordance with section 476, The directors acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts. These accounts have been prepared in accordance with the provisions applicable to companies subject to the small companies’ regime. The financial statements were approved and authorised for issue by the Board and signed on its behalf by: Marco Previero Director 16 June 2022 14 of 20 ## Success Life After Cure Limited Notes to the Financial Statements ## For the year ended 31 December 2021 ## **1. Accounting Policies** ## **Basis of accounting** The financial statements have been prepared under the historical cost convention, except for investments which are included at market value and the revaluation of certain fixed assets and in accordance with the Charities SORP (FRS 102) ‘Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102), and the Companies Act 2006. Success Life After Cure Limited meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note(s). ## **Going concern** The financial statements are prepared, on a going concern basis, under the historical cost convention. ## **Funds** The charity maintains a general unrestricted fund which represents funds which are expendable at the discretion of the trustees in furtherance of the objects of the charity. Such funds may be held in order to finance both working capital and capital investment. Designated funds comprise of unrestricted funds that have been set aside by the Trustees for particular purposes. Restricted funds have been provided to the charity for particular purposes, and it is the policy of the board of trustees to carefully monitor the application of those funds in accordance with the restrictions placed upon them. There is no formal policy of transfer between funds or on the allocation of funds to designated funds, other than that described above ## **Incoming resources** All incoming resources are included in the statement of financial activities when the Charity is entitled to the income and the amount can be quantified with reasonable accuracy. The following specific policies are applied to particular categories of income: ## **Donated goods, services and facilities** Donated services and facilities are included in the SOFA when received at the value of the gift to the charity provided the value of the gift can be measured reliably. Donated services and facilities that are consumed immediately are recognised as income with an equivalent amount recognised as an expense under the appropriate heading in the SOFA. ## **Resources expended** Liabilities are recognised as resources expended when there is a legal or constructive obligation committing the Charity to the expenditure: ## **Taxation** As a registered charity, the company is exempt from income and corporation tax to the extent that its income and gains are applicable to charitable purposes only. Value Added Tax is not recoverable by the company, and is therefore included in the relevant costs in the Statement of Financial Activities. ## **Debtors** Debtors (including trade debtors and loans receivable) are measured on initial recognition at settlement amount after any trade discounts or amount advanced by the charity. Subsequently, they are measured at the cash or other consideration expected to be received. ## **Irrecoverable VAT** Irrecoverable VAT is included in the Statement of Financial Activities, and is reported as part of the expenditure to which it relates. 15 of 20 ## Success Life After Cure Limited Notes to the Financial Statements Continued For the year ended 31 December 2021 ## **2. Income from donations and legacies** |Donations received
Grants received
Donated goods and services
**ncome from charitable activities**
**Restricted funds**
_Reduce social isolation_
Income from charitable activities
**xpenditure on generating donations and legacies**
**Unrestricted funds**
Donations
**osts of charitable activities by fund type**
Amplify voice of survivors
Reduce social isolation
Catalyst for post-cure recovery
Support costs|**Unrestricted**
**funds**
**£**
32,365
5,000
-|**Restricted**
**funds**
**£**
627
2,475
-|**2021**
**£**
32,992
7,475
-|**2020**
**£**
156,182
15,000
17,995| |---|---|---|---|---| ||**37,365**|**3,102**|**40,467**|**189,177**| ||**Unrestricted**
**funds**
**£**
1,574
7,568
4,935
21,719|**Restricted**
**funds**
**£**
-
34,615
-
-|**2021**
**£**
39,092
**2021**
**£**
8,025|**2020**
**£**
14,200
**2020**
**£**
1,711| ||||**8,025**|**1,711**| ||||**2021**
**£**
1,574
42,183
4,935
21,719|**2020**
**£**
20,985
30,713
-
21,206| ||**35,796**|**34,615**|**70,411**|**72,904**| ## **3. Income from charitable activities** ## **4. Expenditure on generating donations and legacies** ## **5. Costs of charitable activities by fund type** 16 of 20 ## Success Life After Cure Limited Notes to the Financial Statements Continued For the year ended 31 December 2021 ## **6. Costs of charitable activities by activity type** |**Support costs**
Amplify voice of survivors
Reduce social isolation
Catalyst for post-cure recovery|**Activities**
**undertaken**
**directly**
**£**
1,574
42,183
4,935|**Support costs**
**£**
4,343
6,516
10,860|**2021**
**£**
5,917
48,699
15,795|**2020**
**£**
42,191
30,713
-| |---|---|---|---|---| ||**48,692**|**21,719**|**70,411**|**72,904**| ## **7. Analysis of support costs** |**nalysis of support costs**|||| |---|---|---|---| |Management
General overheads
Website development
Governance costs|**Catalyst for**
**post-cure**
**recovery**
**Reduce social**
**isolation**
**Amplify voice**
**of survivors**
**£**
**£**
**£**
3,822
5,735
9,557
317
475
793
-
-
-
204
306
510
**4,343**
**6,516**
**10,860**|**2021**
**£**
19,114
1,585
-
1,020|**2020**
**£**
11,591
2,856
5,605
1,154| |||**21,719**|**21,206**| ## **8. Net income/(expenditure) for the year** |This is stated after charging/(crediting):||| |---|---|---| ||**2021**|**2020**| ||**£**|**£**| |Accountancy fees|1,020|500| |Staff pension contributions|336|-| ## **9. Staff costs and emoluments** Total staff costs for the year ended 31 December 2021 were: |Salaries and wages
Pension costs|**2021**
**£**
14,852
336|**2020**
**£**
-
-| |---|---|---| ||**15,188**|**-**| 17 of 20 ## Success Life After Cure Limited Notes to the Financial Statements Continued For the year ended 31 December 2021 |Staff numbers (FTE equivalent)
**Comparative for the Statement of Financial Activities**
**Income and endowments from:**
Donations and legacies
Charitable activities
**Total**
**Expenditure on:**
Raising funds
Charitable activities
**Total**
**Net income/expenditure**
**Total funds carried forward**
**Debtors**
**Amounts due within one year:**
Trade debtors
Prepayments and accrued income
**Creditors: amounts falling due within one year**
Trade creditors
Accruals and deferred income|**Unrestricted**
**funds**
**£**
189,177
-|**2021**
1|**2020**
0| |---|---|---|---| |||**1**|**0**| |||**Restricted**
**funds**
**£**
-
14,200|**2020**
**£**
189,177
14,200| ||**189,177**|**14,200**|**203,377**| ||(1,711)
(58,704)|-
(14,200)|(1,711)
(72,904)| ||**(60,415)**|**(14,200)**|**(74,615)**| ||**128,762**|**-**|**128,762**| ||**128,762**|**-**|**128,762**| |||**2021**
**£**
500
6,907|**2020**
**£**
6,151
35,000| |||**7,407**|**41,151**| |||**2021**
**£**
4,788
1,020|**2020**
**£**
837
500| |||**5,808**|**1,337**| ## **12. Comparative for the Statement of Financial Activities** ## **13. Debtors** ## **14. Creditors: amounts falling due within one year** 18 of 20 ## Success Life After Cure Limited Notes to the Financial Statements Continued ## For the year ended 31 December 2021 ## **15. Movement in funds** ## **Unrestricted Funds** |_General_
General
**Unrestricted Funds - Previous year**
_General_
General
**Restricted Funds**
Conference
Mentoring
**Restricted Funds - Previous year**
Conference|**Balance at**
**01/01/2021**
**£**
128,762|**Incoming**
**resources**
**£**
37,365|**Outgoing**
**resources**
**£**
(43,821)|**Transfers**
**£**
(4,181)|**Balance at**
**31/12/2021**
**£**
118,125| |---|---|---|---|---|---| ||**128,762**|**37,365**|**(43,821)**|**(4,181)**|**118,125**| ||**Balance at**
**01/01/2020**
**£**
-|**Incoming**
**resources**
**£**
189,177|**Outgoing**
**resources**
**£**
(60,415)|**Transfers**
**£**
-|**Balance at**
**31/12/2020**
**£**
128,762| ||**-**|**189,177**|**(60,415)**|**-**|**128,762**| |||**Incoming**
**resources**
**£**
39,719
2,475|**Outgoing**
**resources**
**£**
(27,959)
(6,656)|**Transfers**
**£**
-
4,181|**Balance at**
**31/12/2021**
**£**
11,760
-| |||**42,194**|**(34,615)**|**4,181**|**11,760**| |||**Incoming**
**resources**
**£**
14,200|**Outgoing**
**resources**
**£**
(14,200)|**Transfers**
**£**
-|**Balance at**
**31/12/2020**
**£**
-| |||**14,200**|**(14,200)**|**-**|**-**| ## **Purpose of restricted funds** ## Conference The Charity generated a surplus of £11,760 against the Conference in 2021. Part of those funds are allocated to the conclusion of its monthly workshop series over the course of 2022, and the balance will be re-invested in the Conference planned for October 2022. 19 of 20 ## Success Life After Cure Limited Notes to the Financial Statements Continued For the year ended 31 December 2021 ## **16. Analysis of net assets between funds** |**Unrestricted funds**
_General_
General
**Restricted funds**
Conference
**Previous year**
**Unrestricted funds**
_General_
General
**Restricted funds**|**Net current**
**assets /**
**(liabilities)**
**Net Assets**
**£**
**£**
118,125
118,125
11,760
11,760| |---|---| ||**129,885**
**129,885**| ||**Net current**
**assets /**
**(liabilities)**
**Net Assets**
**£**
**£**
128,762
128,762| ||**128,762**
**128,762**| ## **17. Company limited by guarantee** Success Life After Cure Limited is a company limited by guarantee and accordingly does not have a share capital. 20 of 20