REGISTERED CHARITY NUMBER: 1187991
Report of the Trustees and
Unaudited Financial Statements for the Year Ended 1 April 2022
for
Henrik's Troopers
Harris Lacey and Swain Suite 1 The Riverside Building Hessle East Yorkshire HU13 0DZ
Henrik's Troopers
Contents of the Financial Statements for the Year Ended 1 April 2022
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Page
Report of the Trustees 1 to 3
Independent Examiner's Report 4
Statement of Financial Activities 5
Balance Sheet 6
Notes to the Financial Statements 7 to 9
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Henrik's Troopers
Report of the Trustees for the Year Ended 1 April 2022
The trustees present their report with the financial statements of the charity for the year ended 1 April 2022. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
OBJECTIVES AND ACTIVITIES
Objectives and aims
This organization was formed in 2020 and its objective is the relief of sickness and preservation of health among children suffering from Cerebral Palsy, by providing grants to parents or carers seeking to self- fund children qualifying for Selective Dorsal Rhizotomy surgery/ treatment, including pre and post – operative therapy and equipment.
We want to help families who don’t have the financial means or ability to self- fund children qualifying for Selective Dorsal Rhizotomy.
The occurrence of Cerebral Palsy in developed countries is at around 2/1000 live births. Approximately 40% of Cerebral Palsy cases are children who have been born prematurely. With a birth rate of around 700,000 per year, 1 in 400 children will have a form of Cerebral Palsy.
Taking into consideration the various subtypes of Cerebral Palsy 75% of children will have spastic muscle tone of which 1/3 will have diplegic pattern (lower limb predominantly). This constitutes to around 1/1000 live births. Considering the birth rate of 700,000 per year the estimated occurrence of children born with diplegia in England is around 700/ year1.
For children with Cerebral Palsy who has spasticity mainly affecting their legs (lower limbs) and with not much weakness SDR can be considered.
Selective Dorsal Rhizotomy (SDR) is an operation used to reduce spasticity (muscle stiffness) in Cerebral Palsy. Cerebral Palsy is a descriptive term for a problem of motor control caused by an irreversible structural difference or damage to the brain that happens at birth, around the birth or in the first 2 years of life. Although the brain injury does not get any worse as the child gets older, the difficulties it causes can change in the growing child. The problem of movement can often be accompanied by other clinical, functional and development challenges.
The pattern of movement problems are dependent on which part of the brain has been damaged. Sometimes the main problems stiffness (spasticity), sometimes weakness and sometimes a problem with controlling patterns of movement (dystonia).
The extent of the area of brain damage usually determines the severity of movement problems. The severity of the child’s motor problems is described on a scale of one to five (one the least and five the most) using the Gross Motor Functional Classification System (GMFCS). As with any child movement changes with growth and stiffness in the muscles this can lead to pain and tightness over time and can impair the child’s ability to walk.
SDR is a complex specialized neurosurgical procedure/ surgery involving cutting nerves in the lower spine that are responsible for muscle stiffness in order to ease muscle spasticity and improve mobility in people with Cerebral Palsy. The overall treatment also includes pre and post- operative physiotherapy.
Before 2019 the surgery was not funded by the NHS. Since 2019 the NHS has commissioned selective dorsal rhizotomy to a selective group of children. However, when NHS commissioned the clinical research on SDR they only did it for children in GMFCS levels II & III and excluded the research on children in GMFCS levels I,IV & V.
FINANCIAL REVIEW
Reserves policy
The Trustees aim to carry such reserves as enables them to facilitate operations for all who need their help.
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Henrik's Troopers
Report of the Trustees for the Year Ended 1 April 2022
FINANCIAL REVIEW
Funding
The charity’s ongoing administration cost will be 100% funded by Rina and Frank Ehmer. Consequently, 100% of donations will go towards providing grants.
The cost of the surgery at the Portland Hospital is £34,500 which includes the cost of the surgery, 1 week of inpatient (physio twice daily) and then 2 weeks of outpatient physio twice daily and the follow ups at 6, 12 and 24 months.
FUTURE PLANS
The idea of the organisation was born when we as a family had to go through this operation with our son Henrik, when he was 4 years old. We were deeply saddened at the time to learn that the surgery was not funded by the NHS at all. Given the substantial cost of the surgery, we realised that it must be difficult for families with limited financial means. This made us think that we wanted to help those families. We experienced with our son Henrik how beneficial this surgery can be and therefore want to help children to get the benefit of treatment as well.
Lucy is the only surgery we have supported so far and that referral came through Dr Aquilina at the Great Ormond Street Hospital. We plan to support more children going forward and are trying to market the charity through Dr Aquilina and with help from other professionals that have worked with our son over the years.
STRUCTURE, GOVERNANCE AND MANAGEMENT Governing document
The charity is controlled by its governing document, a deed of trust and constitutes an unincorporated charity.
Organisational structure
The Organisation will take a legal form of Charitable Incorporated Organisation (“CIO”) who’s only voting members are its charity trustees.
The Organisation will be governed by a board of 3 Trustees;
Rina Ehmer Philip Muelder Frank Ehmer
The day to day operation of the Organisation will be done by Rina Ehmer. At this stage there is no need for any further staffing.
The organisation will be based and operated out of 13 Clareville Grove, London, SW7 5AU. At this stage there is no need for any other premises.
Induction and training of new trustees
The Trustees/ Funding committee takes no view on whether a child qualifies or not qualifies for the surgery/ treatment. That decision is made by the specialist surgeon and their team. The Trustees/ Funding committee rely on the surgeon’s recommendation to perform or not perform the surgery/ treatment.
There is no pre-existing relationship between the Trustees and the applicants.
Marketing Strategy and Grant Funding
The grants will initially be marketed through specialist surgeons, who will be empowered to mention to families this alternative for funding. Dr Kristian Aquilina who is the surgeon that performs this surgery at Great Ormond Street Hospital and the Portland Hospital has already agreed to do so. The idea is to broaden this marketing basis over time.
The funding for the grants will not be made directly to the applicant, but directly to the hospital, organisation and/or therapy center where the surgery/ treatment is being performed.
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Henrik's Troopers
Report of the Trustees for the Year Ended 1 April 2022
REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number 1187991
Principal address 13 Clareville Grove London SW7 5AU
Trustees
Mrs R Ehmer Chair Mr F Ehmer Trustee Mr P Ehmer Trustee
Independent Examiner
Harris Lacey and Swain Suite 1 The Riverside Building Hessle East Yorkshire HU13 0DZ
Approved by order of the board of trustees on 31 August 2022 and signed on its behalf by:
Mrs R Ehmer - Trustee
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Independent Examiner's Report to the Trustees of Henrik's Troopers
Independent examiner's report to the trustees of Henrik's Troopers
I report to the charity trustees on my examination of the accounts of Henrik's Troopers (the Trust) for the year ended 1 April 2022.
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').
I report in respect of my examination of the Trust's accounts carried out under section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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accounting records were not kept in respect of the Trust as required by section 130 of the Act; or
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the accounts do not accord with those records; or
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the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Richard D Lacey BA, BFP, FCA Harris Lacey and Swain Suite 1 The Riverside Building Hessle East Yorkshire HU13 0DZ
1 September 2022
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Henrik's Troopers
Statement of Financial Activities for the Year Ended 1 April 2022
| Year Ended 1.4.22 Unrestricted fund Notes £ INCOME AND ENDOWMENTS FROM Donations and legacies 101,000 EXPENDITURE ON Raising funds 2 1,215 Charitable activities Surgeries 34,500 Total 35,715 NET INCOME 65,285 RECONCILIATION OF FUNDS Total funds brought forward - TOTAL FUNDS CARRIED FORWARD 65,285 |
Period 17.2.20 to 1.4.21 Total funds £ - - - - - - - |
|---|---|
The notes form part of these financial statements
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Henrik's Troopers
Balance Sheet 1 April 2022
| 2022 Unrestricted fund Notes £ CURRENT ASSETS Cash at bank 66,485 CREDITORS Amounts falling due within one year 5 (1,200) NET CURRENT ASSETS 65,285 TOTAL ASSETS LESS CURRENT LIABILITIES 65,285 NET ASSETS 65,285 FUNDS 6 Unrestricted funds 65,285 TOTAL FUNDS 65,285 |
2021 Total funds £ - - - - - - - |
|---|---|
The financial statements were approved by the Board of Trustees and authorised for issue on 31 August 2022 and were signed on its behalf by:
Mrs R Ehmer - Trustee
The notes form part of these financial statements
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Henrik's Troopers
Notes to the Financial Statements for the Year Ended 1 April 2022
1. ACCOUNTING POLICIES
Basis of preparing the financial statements
The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.
Critical accounting judgements and key sources of estimation uncertainty
Estimates and judgements are continually evaluated and are based on historical experience and other factors, including expectations of future events that are believed to be reasonable under the circumstances. Although these estimates are based on the Directors' best knowledge of the amount, events or actions, actual results ultimately differ from these estimates. The Directors do not consider there to be any material estimates and judgements.
Income
Income received for services provided is accounted for on an accruals basis.
Cash donations, gifts and legacies are included in full in the income and expenditure account as they are received. Any significant non-cash donations are included in the income and expenditure account at the trustees' estimate of their market value when received. The value of voluntary help is not included in the accounts.
Expenditure
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Taxation
The charity is exempt from tax on its charitable activities.
Fund accounting
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
Financial instruments
The company only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments, including trade and other debtors and creditors are initially recognised at transaction value and subsequently measured at their settlement value.
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Henrik's Troopers
Notes to the Financial Statements - continued for the Year Ended 1 April 2022
2. RAISING FUNDS
Raising donations and legacies
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|---|---|---|
|Period|
|17.2.20|
|Year Ended|to|
|1.4.22|1.4.21|
|£|£|
|Support costs|15|-|
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3. TRUSTEES' REMUNERATION AND BENEFITS
There were no trustees' remuneration or other benefits for the year ended 1 April 2022 nor for the period ended 1 April 2021.
Trustees' expenses
There were no trustees' expenses paid for the year ended 1 April 2022 nor for the period ended 1 April 2021.
4. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
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|---|---|---|---|
|Total|
|funds|
|£|
|NET INCOME|-|
|TOTAL FUNDS CARRIED FORWARD|-|
|5.|CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR|
|2022|2021|
|£|£|
|Other creditors|1,200|-|
|6.|MOVEMENT IN FUNDS|
|Net|
|movement|At|
|At 2.4.21|in funds|1.4.22|
|£|£|£|
|Unrestricted funds|
|General fund|-|65,285|65,285|
|TOTAL FUNDS|-|65,285|65,285|
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Henrik's Troopers
Notes to the Financial Statements - continued for the Year Ended 1 April 2022
6. MOVEMENT IN FUNDS - continued
Net movement in funds, included in the above are as follows:
| Unrestricted funds General fund TOTAL FUNDS |
Incoming resources £ 101,000 101,000 |
Resources Movement expended in funds £ £ (35,715) 65,285 (35,715) 65,285 |
|---|---|---|
7. RELATED PARTY DISCLOSURES
During the period ended 01 April 2022, donations of £51,000 (2021 - £nil) where made by Mr F Ehmer and Mrs R Ehmer, both of which are trustees of the charity.
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