STAND AGAINST MND ANNUAL RETURN FINANCIAL YEAR ENDING 31 MARCH 2025
Stand Against MND (‘ SAM ’, ‘ Charity ’) was registered as a charitable incorporated organisation on 17 January 2020 following Sam Perkins being diagnosed with motor neurone disease (MND) in March 2019[1] .
The purposes of the Charity are:
(1) to raise funds and awareness to support research into a cure for MND; and
(2) to provide funds to support palliative care services that assist those who are affected by MND, including those diagnosed with MND, but also their family and friends.
We are proud to report that the Charity continues to achieve its objectives through a range of fundraising activities and promotional events coordinated by a range of individuals and organisation with or on behalf of the Charity.
A message from our Trustees
On 9 February 2025, we sadly lost our founder and leader, Sam Perkins to motor neurones disease. Sam passed peacefully with his family by his side. Sam was a force of nature and is sorely missed. The BBC quickly shared the news in a short report on 9 February 2025.
Testimonies poured out on social media, cards and letters of condolence from friends, family, MP’s, and the Motor Neurones Disease Association were received, a longer tribute to Sam was aired by the BBC and a one minute applause at the City Ground.
Sam’s funeral was attended in the hundreds, including family, friends, footballers, celebrities and, of course, the press and was featured in a segment on the BBC.
As a group of Trustees, we represent Sam’s friends and family and are committed to continuing our Stand Against MND and we thank each and every person who has shared condolences or continued to raise funds and awareness following Sam’s passing.
1 The charity raises funds from the public without engaging with professional fundraisers. The charity worked informally, without the need for a formal written agreement, with a small number of commercial organisations in the FYE 31 March 2025 including, HDI Global and Delichon Limited. The charity did not receive income from contracts with central government or local authorities or from outside the United Kingdom.
Stand Against MND is a charitable incorporated organisation
Registration Number: 1187436 Registered Address:12 Leveret Way, East Leake, Loughborough, Leicestershire, LE12 6XX info@standagainstmnd.com
1
Trustee Report
Finances
The Charity's financial period runs from 1 April to 31 March.
At the start of the financial year ending 31 March 2024 the Charity carried over £26,780.00.
Income for the financial year ending 31 March 2025 was £121,063 Expenses for the financial year ending 31 March 2025 was £4,828 Donations for the financial year ending 31 March 2025 was £35,000
This meant at the end of the financial year the Charity held £108,015.32, which is still more than the Charity's constitution originally intended. The reason for this is that the Charity raised a significant sum (circa £20,000.00) in February and March due to in memoriam donations made following the passing of our Founder.
Going forward the Charity is going to examine how much money it should be holding at any one time due to the significant amount of money we have raised and the donation strategy we will apply to ensure the Charity’s purpose is achieved and a legacy remains for our founder, Sam.
The Charity trustees received no remuneration for the work they did as trustees.
The Trustees declare that there have been no serious incidents and, as such, no serious incidents have been reported to the Charity Commission.
Trustee payments
Through the business, Aloha Creative Limited, Rebecca Clark (trustee and director of Aloha Creative Limited) received payment of £1,482 for graphic design, merchandise and printing services provided to the Charity.[2]
| servicesprovided to the Charity.2 | |
|---|---|
| Charity name | Stand Against MND |
| Other name the Charity uses | SAM |
| Registered Charity number | 1187436 |
| Charity’s principal address | 12 Leveret Way, East Leake, Loughborough, Leicestershire, LE12 6XX |
2 Paragraph references in the tables below are to SORP FRS 102.
2
Trustee Board
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Trustee name Office (if any) Dates acted if not Name of person (or
for whole year body) entitled to
appoint trustee (if
any)
Alan Samuel Perkins Founder and Chair 16 January 2020 to N/A
9 February 2025
Emma Reid Secretary and N/A N/A
Chair (from 10
February 2025)
Alastair John Hall Treasurer N/A N/A
Rebecca Jane Clark N/A N/A N/A
Victoria Clare Alvis N/A N/A N/A
Greg William Mitchell N/A N/A N/A
Richard Carey N/A N/A N/A
Victoria Helen N/A 25 March 2025 N/A
Stonehouse
Thomas James Rawling N/A 25 March 2025 N/A
William Henry Rawling N/A 25 March 2025 N/A
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Constitution
| Summary of the purposes of the Charity as set out in its governing document |
Para 1.17 | The purpose of the Charity is: 1) the promotion and funding of research into the nature, causes, diagnosis, prevention, treatment and cure of motor neurone disease and the publication of the results of such research; and 2) the provision of support, assistance and information to people affected (directly or indirectly) by motor neurone disease through clinical, hospice or other forms of palliative care. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
The Charity has undertaken a range of activities to raise funds and awareness in line with its purpose. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | The trustees receive updates from the Charity Commission regarding being a trustee. The trustees have had regard to the guidance issued by the Charity Commission in public benefit. |
| Policy on grant making | Para 1.38 | The Charity policy on grant making permits the trustees to approve the making of a grant to organisations that have the same or similar objectives to the Charity. |
| Summary of the main achievements of the Charity, identifying the difference the Charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | The Charity made the following donations: £10,000 to LOROS Hospice £25,000 to The Nottinghamshire Hospice |
4
Financial Review
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Review of the Charity’s Para 1.21 At the end of the period the Charity had
financial position at the raised a total of £121,063 with an additional
end of the period amount of £26,780.00 remaining from the
previous period. Of this combined total the
Charity donated £35,000, spent £3,346 on
administrative fees and purchased around
£1,482 in merchandise.
This left a total £108,015.32 in cash funds
and assets worth approximately £3,000.00.
Statement explaining the Para 1.22 The Charity’s policy is to hold about £10,000
policy for holding reserves in reserve. This is to fund merchandise and
stating why they are held events that we will look to hold throughout the
year.
Amount of reserves held Para 1.22 £108,015.32 in cash funds and approximately
£3,000.00 worth of merchandise assets.
Reasons for holding zero Para 1.22 N/A
reserves
Details of fund materially Para 1.24 N/A
in deficit
Explanation of any Para 1.23 N/A
uncertainties about the
Charity continuing as a
going concern
The Charity’s principal Para 1.47 The Charity’s principal sources of funds are
sources of funds from private fundraising.
(including any fundraising)
Investment policy and Para 1.46 The Charity is not investing any of its funds.
objectives including any
social investment policy
adopted
A description of the Para 1.46 The principal risks for the Charity are the
principal risks facing the ability to continue fundraising during a difficult
Charity economic climate and maintaining
momentum following the passing of its
founder, Sam, who drove many of the
flagship fundraising challenges and held
relationships with our patrons and supporters.
Type of governing Para 1.25 Constitution
document
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| How is the Charity constituted? |
Para 1.25 | Charitable Incorporated Organisation (CIO) |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | As set out in the constitution, apart from the first Charity trustees, every trustee must be appointed by a resolution passed at a properly convened meeting of the Charity trustees. In selecting individuals for appointment as Charity trustees, the Charity trustees must have regard to the skills, knowledge and experience needed for the effective administration of the Charity. |
| Relationship with any related parties |
Para 1.51 | The Charity uses Aloha Creative Limited to provide graphic design and printing services. Rebecca Clark (trustee) is a director of Aloha Creative Limited. |
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the Charity’s trustees
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Signature
signed on 29/01/2026, 16:26:08 GMT
signed on 29/01/2026, 14:25:08 GMT
Full name
Emma Reid Alastair John Hall
Position Secretary Treasurer
Date 29/01/2026 29/01/2026
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| Charity Name | No (if any) | |||
|---|---|---|---|---|
| Stand Against MND | 1187436 | |||
| Receipts andpayments accounts | CC16a | |||
| For the period from |
Period start date 01/04/2024 |
Period end date To 31/03/2025 |
| Section A Receipts and payments | Section A Receipts and payments | Section A Receipts and payments | Last year to the nearest £ |
||||||
|---|---|---|---|---|---|---|---|---|---|
| A1 Receipts | Unrestricted funds to the nearest £ |
Restricted funds to the nearest £ |
Endowment funds to the nearest £ |
Total funds to the nearest £ |
|||||
| Donations received | 121,063 | 121,063 | |||||||
| Sub total(Gross income for AR) |
121,063 | - | - | 121,063 | - | ||||
| A2 Asset and investment sales, (see table). |
|||||||||
| - | - | - | |||||||
| Sub total | - | - | - | ||||||
| Total receipts A3 Payments |
|||||||||
| - | |||||||||
| Charitable activities: Donations granted |
35,000 | ||||||||
| Independent examiner 2024 | 1,200 | ||||||||
| Independent examiner 2023 | 1,170 | ||||||||
| Merchandise | 1,482 | ||||||||
| Office costs | 976 | ||||||||
| **Sub total ** | 39,828 | - | |||||||
| A4 Asset and investment purchases, (see table) |
|||||||||
| - | |||||||||
| - | |||||||||
| **Sub total ** | - | - | |||||||
| Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end |
|||||||||
| - | |||||||||
| 81,235 | 81,235 | - | |||||||
| - | - | - | |||||||
| 26,780 | 26,780 | - | |||||||
| 108,015 | 108,015 | - |
Section B Statement of assets and liabilities at the end of the period
| Categories B1 Cash funds CCXX R1 accounts (SS) |
Details Total cash funds (agree balances with receipts and payments account(s)) Money raised not donated 1 |
Unrestricted funds to nearest £ 108,015 - - 108,015 OK |
Restricted funds Endowment funds to nearest £ to nearest £ - - - - - - - - OK OK 28/01/2026 |
Endowment funds to nearest £ |
|---|---|---|---|---|
| - | ||||
| - | ||||
| - | ||||
| - |
| Signed by one or two trustees on behalf of all the trustees B5 Liabilities B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use |
Details Merchandise Details Details Details Signature signed on 29/01/2026, 14:25:08 GMT |
Unrestricted funds Restricted funds to nearest £ to nearest £ 3,000 - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) - - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name A J Hall 29/01/20 |
Endowment funds to nearest £ |
|
|---|---|---|---|---|
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| Current value (optional) |
||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| Current value (optional) |
||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| When due (optional) |
||||
| Date of approval |
||||
| 26 | ||||
CCXX R2 accounts (SS)
28/01/2026
2
Independent examiner's report on the accounts
Section A Independent Examiner’s Report
Report to the trustees Stand Against MND On accounts for the year 31 March 2025 Charity no 1187436 ended (if any) Set out on pages Report Pg 1-6 & Accounts Pg1-2
I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 31/03/2025.
Responsibilities and As the charity's trustees, you are responsible for the preparation of the basis of report accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent I have completed my examination. I confirm that no material matters have examiner's statement come to my attention in connection with the examination which gives me cause to believe that in, any material respect:
-
the accounting records were not kept in accordance with section 130 of the Charities Act; or
-
the accounts did not accord with the accounting records; or
-
the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
~~29/01/2026~~ Signed: Date: ~~signed on 29/01/2026, 16:46:20 GMT~~ Name: Mrs L G Parkes FCA FCCA Relevant professional ICAEW qualification(s) or body (if any): Address: The Rowleys Partnership Ltd, Charnwood House, Harcourt Way, Meridian Business Park, Leicester LE19 1WP
Oct 2018
1
IER
Section B Disclosure
Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
Give here brief details of any items that the examiner wishes to disclose .
Oct 2018
2
IER
Stand Against MND
The Rowleys Partnership Ltd Charnwood House
Harcourt Way
Meridian Business Park
Leicester
LE19 1WP
Dear Trustees
The following representations are made on the basis of enquiries of management and staff with relevant knowledge and experience such as we consider necessary in connection with your independent examination of the charity’s financial statements for the year ended 31 March 2025. These enquiries have included inspection of supporting documentation where appropriate and are sufficient to satisfy ourselves that we can make each of the following representations. All representations are made to the best of our knowledge and belief.
General
-
We acknowledge that the work performed by you is substantially less in scope than an audit performed in accordance with International Standards on Auditing (UK) and that you do not express an audit opinion.
-
We confirm that the charity was entitled to exemption under section 144 of the Charities Act 2011 the requirement to have its financial statements for the financial year ended 31 March 2025 audited.
-
We have fulfilled our responsibilities as trustees as set out in the terms of your engagement letter, under the Charities Act 2011 for preparing financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice), for being satisfied that they give a true and fair view and for making accurate representations to you.
-
All the transactions undertaken by the charity have been properly reflected and recorded in the accounting records.
-
All the accounting records have been made available to you for the purpose of your independent examination. We have provided you with unrestricted access to all appropriate persons within the charity, and with all other records and related information requested, including minutes of all management and trustee meetings and correspondence with The Charity Commission.
-
The financial statements are free of material misstatements, including omissions.
-
The effects of uncorrected misstatements are immaterial both individually and in total.
Assets and liabilities
-
The charity has satisfactory title to all assets and there are no liens or encumbrances on the charity’s assets, except for those that are disclosed in the notes to the financial statements.
-
All actual liabilities, contingent liabilities and guarantees given to third parties have been recorded or disclosed as appropriate.
-
We have no plans or intentions that may materially alter the carrying value and, where relevant, the fair value measurements or classification of assets and liabilities reflected in the financial statements.
Accounting estimates
- The methods, data and significant assumptions used by us in making accounting estimates, and their related disclosures, are appropriate to achieve recognition, measurement and disclosure that is reasonable in the context of the applicable financial reporting framework.
Loans and arrangements
- The charitable company has not granted any advances or credits to, or made guarantees on behalf of, directors other than those disclosed in the financial statements.
Stand Against MND
Legal claims
- We have disclosed to you all claims in connection with litigation that have been, or are expected to be, received and such matters, as appropriate, have been properly accounted for and disclosed in the financial statements.
Laws and regulations
- We have disclosed to you all known instances of non-compliance or suspected non-compliance with laws and regulations whose effects should be considered when preparing the financial statements.
Related parties
- Related party relationships and transactions have been appropriately accounted for and disclosed in the financial statements. We have disclosed to you all relevant information concerning such relationships and transactions and are not aware of any other matters which require disclosure in order to comply with legislative and accounting standards requirements.
Subsequent events
- All events subsequent to the date of the financial statements which require adjustment or disclosure have been properly accounted for and disclosed.
Going concern
- We believe that the charity's financial statements should be prepared on a going concern basis on the grounds that current and future sources of funding or support will be more than adequate for the charity's needs. We have considered a period of twelve months from the date of approval of the financial statements. We believe that no further disclosures relating to the charity's ability to continue as a going concern need to be made in the financial statements.
Grants and donations
- All grants, donations and other income, the receipt of which is subject to specific terms or conditions, have been notified to you. There have been no breaches of terms or conditions in the application of such income. Restricted grants and donations are included in the financial statements.
Yours faithfully
signed on 29/01/2026, 16:26:08 GMT ..............................................................................................................................
Signed on behalf of the board of trustees of Stand Against MND
Date: 29/01/2026
Signatures' technical details
Signatures
alastair.hall2@justice.gov.uk
29/01/2026, 14:25:08 GMT
Fingerprint
15ae9346a06ef5d4d2d0464f55651cbff77803b6
emmaperkins82@gmail.com
29/01/2026, 16:26:08 GMT
Fingerprint
e4a5d9a2ede80ffe1210b5473a0ba8098b60e8b5
lisa@rowleys.biz
29/01/2026, 16:46:20 GMT
Fingerprint
cef016ccee65efdb8046b18dfb9caa6e0458687b
Event log
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