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2022-03-30-accounts

STAND AGAINST MND

ANNUAL RETURN

FINANCIAL YEAR ENDING 31 MARCH 2022

Stand Against MND was formed in January 2020 by Sam Perkins following his diagnosis of motor neurone disease (MND) in March 2019. The purpose of the charity is two-fold:

(1) to raise funds and awareness to support research into a cure for MND.

(2) to provide funds to palliative care services that assist those who are affected by MND, including those diagnosed with MND, but also their family and friends.

The charity continues to achieve its objectives through a range of fundraising activities and promotional events some of which are set out in the report below.

A message from our founder, Sam Perkins:

An MND diagnosis brings with it a massive amount of uncertainty. I was told at the age of just 37 that 50% of people with my condition pass away within 2 years of their diagnosis. Having my life-expectations, dreams and ambitions altered so dramatically made it extremely difficult to think about the future - let alone plan for it.

Given that uncertainty, to sit here today and introduce the second annual report of a charity my wife and I founded following my diagnosis, makes me reflect with pride on the scale of the achievements of the charity so far and excited for the possibilities which may yet lie ahead.

I would like to place on record my thanks to everyone who has contributed to our successful fundraising this year and motivated me to remain positive in the face of adversity.

Given the constraints we continued to operate under for much of this year, I am delighted by the creativity and ingenuity of our fundraisers and the sheer volume of donations we received. We have launched our first targeted fundraising campaign, “SAMs 40”, which has already engaged a new band of fundraisers and looks set to exceed its £20k fundraising objective. In addition to this, our social media following and informative content production continues to deliver on our objective to raise awareness of MND, which we know proves to have an equally positive impact on the MND community.

As we come out of Covid restrictions, I welcome the expanded opportunities now available to our charity for fundraising activities and awareness campaigns. I look forward to keeping in touch with the research projects we have already helped to fund and seeing the impact those projects make.

Looking forward I am confident that our charity will be healthy, impactful, full of hope and inspiration.

Stand Against MND is a charitable incorporated organisation

Registration Number: 1187436 Registered Address:12 Leveret Way, East Leake, Loughborough, Leicestershire, LE12 6XX

info@standagainstmnd.com

1

Our Year in Review
Section 1
Trustee Report
Section 2
Accounts
Section 3
1. OUR YEAR IN REVIEW

Fundraising[1]

We have set out some of our primary fundraising activities and partnerships for the year 1 April 2021 – 31 March 2022 below to give a flavour of how we raise funds to support research into a cure for MND and services offering palliative care to those diagnosed with the disease.

We started the year still in lockdown and having to be creative in our fundraising endeavours. Despite those restrictions, we still managed to generate awareness and funds through a range of unique methods.

We registered on Amazon Smile so you can give whilst you shop, joined Just Giving to make donating easier and subscribed to Paypal to give another option for purchasing our merchandise.

We have had supporters undertake their own

personal and team challenges ranging from team triathlons, bike rides, charity quizzes, raffles, climbing mountains, charity beer, selling inspirational calendars

Key fundraisers included:

We can’t thank our supporters enough for joining us in our stand against MND.

1 The charity raises funds from the public without engaging with professional fundraisers. The charity worked informally, without the need for a formal written agreement, with a small number of commercial organisations in the FYE 31 March 2022 including, HDI Global, HUUB Design, and Delichon Limited. The charity did not receive income from contracts with central government or local authorities or from outside the United Kingdom.

2

Charity partners: Rushcliffe Golf Club and VFE

SAM was proud to be the charity partner of both the Rushcliffe Golf Club and VFE in 2021.

Rushcliffe Golf Club

Sam has always been a passionate sportsperson and golfer. Sam was a junior member at the Rushcliffe Golf Club and in his adulthood often played a round there with various relatives and friends who are still members of the Club today.

The Golf Club offered amazing support by selling the Good Deed charity beer in the Club House, running charity quizzes and, of course, charity golf days.

The SAM golf team challenged the Battle Back team in a fundraising match and the ladies team played three courses in one day to raise funds for Stand Against MND.

We are thoroughly delighted to have this partnership in play.

VFE

Sam’s Uncle, Philip Neath, is a senior member of the team at VFE and put us forward to be their Charity of the Year.

VFE undertook a range of charity events, the key activity being their ‘Spin Against MND’ challenge. The team of eight riders, plus Sam himself (using specialist pedals), cycled the equivalent distance of Lands’ End to John o Groats and back again, spanning a total of 1,748 miles. The ride took place over a 9 day period and was ridden in the team’s local areas either on the roads or on stationary bikes.

This partnership has given us great experience of working with a commercial organisation which we hope will feature in our future strategy.

Donations

The charity made the following donation in FYE 31 March 2022:

3

Awareness

You Tube series: Sam Chats with…

Sam spoke with a range of different people who had supported him in his MND journey so far, either personally or as part of the Charity. Interviewees were from a range of backgrounds:

Inside Tri: guest interviewee

Sam appeared as the featured guest on the ‘Inside Tri’ podcast where he discussed his MND diagnosis and the impact it has had on both himself and his family. He also talked about how the mental strength he developed in his years as an amateur endurance athlete have helped him in his MND journey so far. Sam also took the opportunity to discuss his ambition to undertake one more long-distance triathlon.

BBC East Midlands Today appearance

Sam, his sister Victoria and niece Lily appeared on East Midlands Today to raise awareness of the charity and speak about the new Lily, Sam & Bertie book.

4

2. TRUSTEE REPORT

Finances

The Charity's financial period runs from 1 April to 31 March.

At the start of the financial year the Charity had a carry over of £26,672.32 from the previous year.

Income for the financial year ending 31 March 2022 was £38,384.63.

Spending for the financial year ending 31 March 2022 was £2,153.67.

Donations for the financial year ending 31 March 2022 was £10,000.00.

As a result of this, the Charity ended the financial year holding £52,903.28.

The Charity didn’t donate as much as originally intended this financial year. The primary reason for this was that the Charity planned to make a sizable donation at the end of the financial year, however due to the availability of Trustee’s this donation went through in April and will now show in next years’ accounts.

The Charity Trustees received no remuneration for the work they did as Trustees.

The Trustees declare that there have been no serious incidents and, as such, no serious incidents have been reported to the Charity Commission.

Trustee payments

Through the business, Aloha Creative Limited, Rebecca Clark (Trustee of the Charity and director of Aloha Creative Limited) received payment for graphic design, merchandise and printing services provided to the Charity.

Paragraph references in the tables below are to SORP FRS 102.

Charity name Stand Against MND
Other name the charity uses SAM
Registered charity number 1187436
Charity’s principal address 12 Leveret Way, East Leake, Loughborough, Leicestershire,
LE12 6XX

5

Trustee name Office (if any) Dates acted if not
for whole year		 Name of person (or body)
entitled to appoint
trustee (if any)
Alan Samuel Perkins Founder and Chair N/A N/A
Emma Reid Secretary N/A N/A
Alastair John Hall Treasurer N/A N/A
Rebecca Clark N/A N/A N/A
Victoria Clare Alvis N/A N/A N/A
Greg William Mitchell N/A N/A N/A
Richard Carey N/A N/A N/A
Summary of the purposes of
the charity as set out in its
governing document		 Para 1.17 The purpose of the charity is:
1) the promotion and funding of research into
the nature, causes, diagnosis, prevention,
treatment and cure of motor neurone
disease and the publication of the results of
such research; and
2) the provision of support, assistance and
information to people affected (directly or
indirectly) by motor neurone disease
through clinical, hospice or other forms of
palliative care.
Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or services
identified in the accounts.		 Para 1.17 and
1.19		 The charity has undertaken arrange of
activities to raise funds and awareness in line
with its purpose.
In particular, fundraising activities have
included: taking part in sponsored challenges
in support of the charity (John O’ Groats

6

virtual cycle challenge, sale of bespoke art
work).
Awareness of MND has taken place by using
social media to create ‘Sam’s Chats With…’
series where Sam speaks with various people
who have supported him since his diagnosis
as well as Sam appearing on BBC news
broadcasts and podcast programmes.
Statement confirming whether
the trustees have had regard
to the guidance issued by the
Charity Commission on public
benefit		 Para 1.18 The trustees receive updates from the Charity
Commission regarding being a trustee.
Policy on grant making Para 1.38 The charity policy on grant making permits
the trustees to approve the making of a grant
to organisations that have the same or similar
objectives to the charity.
Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to the
circumstances of its
beneficiaries and any wider
benefits to society as a whole.		 Para 1.20 The charity has provided £10,000 of funding
to organisations that work towards
researching a cure for MND.

Financial Review

Review of the charity’s
financial position at the end of
the period
Para 1.21 The charity carried over £26,672.32 from the
previous period. This period we raised
£38,384.63. Of this total the charity donated
£10,000.00, and spent £2,153.67 on
administrative fees and merchandise.
This left a total £52,903.28. in cash funds and
approximately assets worth £1,500.00.

7

Statement explaining the
policy for holding reserves
stating why they are held		 Para 1.22 The charity’s policy is to hold about £10,000
in reserve. This is to fund merchandise and
events that we will look to hold throughout
the year.
Amount of reserves held Para 1.22 £52,903.28 in cash funds and £1,500.00 worth
of merchandise assets.
Reasons for holding zero
reserves		 Para 1.22 N/A
Details of fund materially in
deficit		 Para 1.24 N/A
Explanation of any
uncertainties about the charity
continuing as a going concern		 Para 1.23 N/A
The charity’s principal sources
of funds (including any
fundraising)		 Para 1.47 The charity’s principal sources of funds are
from private fundraising.
Investment policy and
objectives including any social
investment policy adopted		 Para 1.46 The charity is not investing any of its funds.
A description of the principal
risks facing the charity		 Para 1.46 The key principal risk for the charity remains
the effect the pandemic has had on the ability
to coordinate in-person events that provide an
opportunity to raise funds and awareness of
the charity and its objectives.
Type of governing document Para 1.25 Constitution
How is the charity constituted? Para 1.25 Charitable Incorporated Organisation (CIO)
Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of any		 Para 1.25 As set out in the constitution, apart from the
first charity trustees, every trustee must be
appointed by a resolution passed at a properly
convened meeting of the charity trustees. In
selecting individuals for appointment as
charity trustees, the charity trustees must

8

person or body entitled to
appoint one or more trustees		 have regard to the skills, knowledge and
experience needed for the effective
administration of the charity.
Relationship with any related
parties		 Para 1.51 The charity uses Aloha Creative Limited to
provide graphic design and printing services.
Rebecca Clark (trustee) is a director of Aloha
Creative Limited.

Declarations

The Trustees declare that they have approved the trustees’ report above. Signed on behalf of the charity’s trustees

----- Start of picture text -----
Signature
Full name Emma Reid Alastair John Hall
Position Secretary Treasurer
Date 22 January 2023 20 January 2023
----- End of picture text -----

9

3. ACCOUNTS

Stand Against MND No (if any) Receipts and payments accounts CC16a Period start Period end For the period date To date from 01/04/2021 31/03/2022

Section A Receipts and payments

Unrestricted
funds
to the nearest
£
236
350
55
989
189		 Restricted
funds
to the
nearest £
-
-
-
-
-		 Endowment
funds
to the nearest
£
-
-
-
-
-		 Total
funds
to the
nearest
£
236
350
55
989
189		 Last year
to the nearest
£
A1 Receipts Date

GIVING COM LTD SAF		 30/03/2022 236 - - 236 -
JUSTGIVING 28/03/2022 350 - - 350 -
JUSTGIVING 22/03/2022 55 - - 55 -
JUSTGIVING 21/03/2022 989 - - 989 -
JUSTGIVING 15/03/2022 189 - - 189 -

Stand Against MND is a charitable incorporated organisation

Registration Number: 1187436 Registered Address:12 Leveret Way, East Leake, Loughborough, Leicestershire, LE12 6XX

info@standagainstmnd.com

1

JUSTGIVING 15/03/2022 615 - - 615 -
Stripe Payments UK 11/03/2022 15 - - 15 -
Stripe Payments UK 09/03/2022 15 - - 15 -
JUSTGIVING 08/03/2022 607 - - 607 -
JUSTGIVING 07/03/2022 2,613 - - 2,613 -
A Stonehouse 07/03/2022 10 - - 10 -
Stripe Payments UK 04/03/2022 55 - - 55 -
Stripe Payments UK 02/03/2022 10 - - 10 -
JUSTGIVING 01/03/2022 2,788 - - 2,788 -
Stripe Payments UK 28/02/2022 10 - - 10 -
Stripe Payments UK 24/02/2022 10 - - 10 -
AMAZON EUROPE CORE 23/02/2022 73 - - 73 -
JUSTGIVING 23/02/2022 95 - - 95 -
JUSTGIVING 21/02/2022 288 - - 288 -
JUSTGIVING 16/02/2022 178 - - 178 -
Stripe Payments UK 16/02/2022 10 - - 10 -
JUSTGIVING 14/02/2022 617 - - 617 -
Stripe Payments UK 09/02/2022 53 - - 53 -
JUSTGIVING 08/02/2022 64 - - 64 -
JUSTGIVING 07/02/2022 666 - - 666 -
RUSHCLIFFE GOLF CLUB 03/02/2022 500 - - 500 -

2

Stripe Payments UK 03/02/2022 29 - - 29 -
JUSTGIVING 02/02/2022 134 - - 134 -
JUSTGIVING 01/02/2022 116 - - 116 -
JUSTGIVING 26/01/2022 487 - - 487 -
JUSTGIVING 25/01/2022 949 - - 949 -
JUSTGIVING 18/01/2022 465 - - 465 -
Stripe Payments UK 18/01/2022 14 - - 14 -
Stripe Payments UK 12/01/2022 29 - - 29 -
JUSTGIVING 11/01/2022 492 - - 492 -
Stripe Payments UK 10/01/2022 14 - - 14 -
Stripe Payments UK 06/01/2022 43 - - 43 -
Stripe Payments UK 31/12/2021 169 - - 169 -
JUSTGIVING 24/12/2021 224 - - 224 -
Stripe Payments UK 23/12/2021 14 - - 14 -
VIRGINMONEY GIVING 22/12/2021 129 - - 129 -
Stripe Payments UK 22/12/2021 276 - - 276 -
Stripe Payments UK 21/12/2021 29 - - 29 -
JUSTGIVING 20/12/2021 469 - - 469 -
Stripe Payments UK 20/12/2021 29 - - 29 -
Stripe Payments UK 17/12/2021 72 - - 72 -
Stripe Payments UK 16/12/2021 43 - - 43 -

3

Stripe Payments UK 15/12/2021 29 - - 29 -
JUSTGIVING 14/12/2021 385 - - 385 -
Stripe Payments UK 14/12/2021 29 - - 29 -
AMAZON EUROPE CORE 13/12/2021 56 - - 56 -
Stripe Payments UK 13/12/2021 87 - - 87 -
Stripe Payments UK 10/12/2021 116 - - 116 -
Stripe Payments UK 09/12/2021 52 52
VIRGINMONEY GIVING 08/12/2021 470 470
Stripe Payments UK 08/12/2021 344 344
Stripe Payments UK 07/12/2021 242 242
Stripe Payments UK 06/12/2021 116 116
VIRGINMONEY GIVING 01/12/2021 34 34
JUSTGIVING 30/11/2021 78 78
AMATI GLOBAL INVES 30/11/2021 750 750
VIRGINMONEY GIVING 24/11/2021 15 15
JUSTGIVING 23/11/2021 214 214
000000 CREDIT 18/11/2021 239 239
000000 CREDIT 18/11/2021 25 25
VIRGINMONEY GIVING 03/11/2021 215 215
VIRGINMONEY GIVING 20/10/2021 15 15
VIRGINMONEY GIVING 13/10/2021 77 77

4

VIRGINMONEY GIVING 06/10/2021 45 45
A Stonehouse 30/09/2021 88 88
VIRGINMONEY GIVING 29/09/2021 726 726
VIRGINMONEY GIVING 22/09/2021 15 15
VIRGINMONEY GIVING 08/09/2021 836 836
VIRGINMONEY GIVING 02/09/2021 399 399
VIRGINMONEY GIVING 25/08/2021 15 15
VIRGINMONEY GIVING 18/08/2021 666 666
AMAZON EUROPE CORE 17/08/2021 52 52
A Stonehouse 12/08/2021 17 17
VIRGINMONEY GIVING 11/08/2021 271 271
000000 CREDIT 06/08/2021 3,210 3,210
000000 CREDIT 06/08/2021 312 312
000000 CREDIT 06/08/2021 250 250
VIRGINMONEY GIVING 04/08/2021 2,802 2,802
VIRGINMONEY GIVING 28/07/2021 266 266
VIRGINMONEY GIVING 21/07/2021 1,069 1,069
VIRGINMONEY GIVING 14/07/2021 352 352
VIRGINMONEY GIVING 07/07/2021 1,010 1,010
VIRGINMONEY GIVING 30/06/2021 2,997 2,997
VIRGINMONEY GIVING 23/06/2021 1,161 1,161

5

VIRGINMONEY GIVING 16/06/2021 925 925
VIRGINMONEY GIVING 09/06/2021 1,027 1,027
VIRGINMONEY GIVING 03/06/2021 122 122
VIRGINMONEY GIVING 26/05/2021 296 296
AMAZON EUROPE CORE 24/05/2021 54 54
A Stonehouse 19/05/2021 8 8
VIRGINMONEY GIVING 19/05/2021 169 169
VIRGINMONEY GIVING 12/05/2021 167 167
VIRGINMONEY GIVING 06/05/2021 34 34
VIRGINMONEY GIVING 21/04/2021 15 15
PAYPAL CODE 1268 19/04/2021 0 0
VIRGINMONEY GIVING 14/04/2021 79 79
VIRGINMONEY GIVING 08/04/2021 5 5
- - - -
- - - -
- - - -
Sub total(Gross income for
AR)		 38,385 - - 38,385 -
A2 Asset and investment
sales, (see table).
- - - -
- - - - -

6

Sub total

Total receipts

- - - - -
38,385 - - 38,385 -
A3 Payments Date





-
-
-		 -
-
-		 -
49
-
1
-
18
-
48
-
1
-
8
-
172
-
62
-
155
-
4
-
8
-
18
-
1,388
-
29
-
1
-
46
-
1
6147 SHOPIFY*1353 10/03/2022 -
49		 - - -
49		 -
6147 CCC GBP 49.49 10/03/2022 -
1		 - - -
1		 -
6147 Google Cloud 03/03/2022 -
18		 -
18
6147 SHOPIFY*1327 08/02/2022 -
48		 -
48
6147 CCC GBP 48.34 08/02/2022 -
1		 -
1
6147 Google Cloud 03/02/2022 -
8		 -
8
Andy Stonehouse 18/01/2022 -
172		 -
172
Andy Stonehouse 18/01/2022 -
62		 -
62
6147 SHOPIFY*1301 10/01/2022 -
155		 -
155
6147 CCC GBP 154.8 10/01/2022 -
4		 -
4
6147 Google Cloud 04/01/2022 -
8		 -
8
GIVING.COM-JUSTG 29/12/2021 -
18		 -
18
Aloha Creative Ltd 20/12/2021 -
1,388		 -
1,388
6147 SHOPIFY*1275 10/12/2021 -
29		 -
29
6147 CCC GBP 29.33 10/12/2021 -
1		 -
1
6147 SHOPIFY*1274 09/12/2021 -
46		 -
46
6147 CCC GBP 46.30 09/12/2021 -
1		 - - -
1		 -

7

6147 SHOPIFY*1271 06/12/2021 -
48		 - - -
48		 -
6147 CCC GBP 48.49 06/12/2021 -
1		 - - -
1		 -
6147 Google Cloud 03/12/2021 -
8		 - - -
8		 -
GIVING.COM-JUSTG 25/11/2021 -
18		 -
18
6147 Google Cloud 03/11/2021 -
8		 -
8
6147 Google Cloud 04/10/2021 -
8		 -
8
6147 Google Cloud 02/09/2021 -
8		 -
8
Donation to MND Association 16/08/2021 -
10,000
-
10,000
6147 GOOGLE*GSUIT 03/08/2021 -
8		 -
8
6147 GOOGLE GSUIT 05/07/2021 -
8		 -
8
6147 GOOGLE*GSUIT 02/06/2021 -
8		 -
8
6147 GOOGLE GSUIT 04/05/2021 -
8		 -
8
6147 GOOGLE*GSUIT 06/04/2021 -
7		 -
7
Sub total - -
12,154 - - 12,154 -
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total
- - - - -
Total payments -
12,154		 - - -
12,154		 -

8

Net of receipts/(payments)

A5 Transfers between funds

A6 Cash funds last year end

Cash funds this year end

38,385 -

- 38,385 -
- - - - -
26,672 - - 26,672 -
52,903 - - 52,903 -

Section B Statement of assets and liabilities at the end of the period

Unrestricted
funds
to nearest £
26,672
-
-
26,672		 Restricted
funds
to nearest £
-
-
-
-		 Endowment
funds
to nearest £
26,672 - -
- - -
- - -
26,672 - -

Categories

Details

Money raised not yet donated.

B1 Cash funds

Total cash funds

(agree balances with receipts and payments account(s))

B2 Other monetary assets

Details

Unrestricted
funds
to nearest £
-
-
-		 Restricted
funds
to nearest £
-
-
-		 Endowment
funds
to nearest £
- - -
- - -
- - -

9

B3 Investment assets

B4 Assets retained for the charity’s own use

Fund to which Cost Current value Details asset belongs (optional) (optional) - - - - - - - - - - Fund to which Cost Current value Details asset belongs (optional) (optional) Charity Merchandise Unrestricted 1,500 - - - - - - - - - - - - - - - -

10

B5 Liabilities

Signed by one or two trustees on behalf of all the trustees

Details
Signature		 Fund to which
liability relates
Signature Print Name
Alastair Hall
Emma Reid

11