EQ£iVLg thei pouvu, H-ope UVL the REGISTERED COMPANY NUMBER: 10766434 (England and Wales) REGISTERED CHARITY NUMBER: 1187199 ## ABOUT US ## **About Our Foundation… We Help People to Overcome Stigma & Barriers.** Crohn’s and Colitis Relief (CCR) was set up as a free service to improve the quality of life of people across the country affected by Inflammatory Bowel Disease as well as similar related illnesses. CCR primarily targets the Jewish Ashkenazi where there is an community exceptionally high percentage of people suffering from these diseases. Our work is dedicated to funding and delivering activities to support and relieve people suffering from IBD/IBS, and to improve their lives. Since a diagnosis of Inflammatory Bowel Disease can initially prove overwhelming for a patient and their family, CCR’s dedicated group of volunteer support workers is available to help families to understand the condition, offer informed answers to questions and suggest further sources of support. **"We make a living by what we get, but we make a life by what we give" Winston Churchill** ## PROJECTS ## **Diet** ## **Library** A lending resource consisting of DVDs, recipe books and publications specifically relevant to the cultural needs of our users. ## **Awareness Raising** - School heads and teachers - • Hospital staff on particular needs of Crohn's and Colitis sufferers in the cultural context. ## **Support** Financial support for initial medical consultations, stool and blood tests, MRI & colonoscopy imaging in emergency cases, phone and email support, face to face meetings with IBD patients/parents, following up hospital referrals to speed things up, stock of items in case of emergency. - Culturally specific: - Dietary advice from dieticians - • Delivering dietary specific foods to hospital patients - • Support groups - • Cookery/baking lessons - • Healthy living classes. ## **Linking Schools** Raising awareness of IBD/S among children via arts and crafts, making get well soon cards; and festival celebrations. ## **Medication** Collecting patients' prescribed medication from the hospital or pharmacy. Sick patients don't always have the strength to leave the house, especially if they are anaemic or constantly need the bathroom. ## PROJECTS ## **Respite** Patients and their families need to unwind after surgery. We plan to finance holiday accommodation, camp/day camp fees, hotel stays and special travel expenses. ## **Sports** Exercise for keeping fit and relieving stress such as personal trainers, swimming, cycling and other sports. ## **Visitors** ## **Transport** Provision of free transport to medical appointments, surgery, colonoscopy/endoscopy, and individualised travel if needed to attend school, work or anywhere else. Due to covid we were limited with visits and entertainment in hospital or at home. Therefore we had a hotline for people to call for support. The volunteers would give out gifts and arrange for therapists, mental health counsellors, a cheer up squad, music lessons, lego therapy, magicians and educational games. ## **Modulen** Modulen support for children including incentives, buddy and befriending; liaising with school and family; family trips, fridge for school/work to store Modulen and equipment packs for making Modulen. ## **Benefits** Help with accessing benefits and grants to support patients who are unable to work due to IBD through assisting with form filling for DLA and PIP claims. **Have a heart, lend a hand, stand out and MAKE A DIFFERENCE.** WHAT THEY SAY… ## **- Sandy -** "I once called CCR at three in the morning in severe abdominal pain. Their volunteer coordinator contacted Hatzolah and ensured that I was taken to the hospital where I am regularly treated rather than to the nearest A&E. The continuity of care by the same medical team resulted in relief of sickness, as well as therapy, counselling, and improving the regularity and safety of drug monitoring." ## **- Ruthy -** "As an IBD patient, I was concerned about stigma and hesitant to engage in treatment. CCR supported me in obtaining medical support and I began treatment and a diet immediately. This stopped the progression of the disease and surgery was not needed. CCR also worked to relieve my stress, fear of pain, illness and fear of stigma by involving community activists and other charity organisations such as Bikur Cholim and Camp Simcha to support my family and me." ## **- Josh -** "My wife was in hospital following surgery and was left with a stoma. She constantly suffered anxiety, had no appetite and was losing weight drastically. But then CCR volunteers came to visit her. They gave her support and sang to her, which reduced her anxiety. They brought fresh and enticing food daily to increase her appetite. They encouraged her to eat so that she would put on weight and regain her strength, physically and emotionally." FAGTS & FIGURE created a loca I emergency resource suppty of Modulen la Crohn's friendly nutritional formula) and stomach pouch bags, available at all hours if ieeded in cases o iergen -?ported oi_. 250 patients to date, through practical advice; emotional support, medical referrals and hospital advocacy: accompanying them to appointments; providing interpreters as needed; transpo- "i and from hospital; arranginc pecial food and signpostir- to doctors and other resources. ¥vrfly culturaiiy appropriate featui e a rticles, disseminated across the community, ontaining medical articles Iritten by senior doctors iii .1 t. IBD field, also used , ' esource inforniati- packo vvv have a medical Adviso Board to include gastro doctors, surgeons and other medical professionals i the field. vvv ¢Stablished . ulturally sensitiv,.. b Ljddy and befriendi 11 c service connecting )atients with their peer., who are suffering ilar conditi( upen aay awareness event - ield in conjunction wit Fwish Digest, another Ib. roviaea Itural training ai i literature to 30 IBD medical registrars, •U •• charity which focuses on IBD awareness. 200 peoplp -.tended; all IBD suffere I s and parentslcarers of hildren with IBD surgeons and consultants from 10 lic)SPitals in London Mancheste. CROHN'S AND COLMS RELIEF cONTEP￿s OF THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2021 Page Reference and Administrative Details Report of the Trustoes Independent Examinerf$ Report Statemént of Flnan¢Sal Actfvltlès Balance Sheet Noles to the Flnanclal Slatements 8 to 12 CROHN'S AND COLrris RELIEF REFERENCE AND ADMINISTRATIVE DETAILS FOR THE YEAR ENDED 31 MAY 2021 TRUSTEES Mr P Grosz Mr M Kthan Mr L Y Schapiro COMPANY SECRETARY Mr M Kahan REGISTERED OFFICE 58 Fortjurg Road London N166HT REGISTERED COMPANY NUMBER 10766434 (England and Wales} REGISTERED CHARITY NUMBER 1187199 INDEPENDENT EXAMINER Sugarnvhiie Meyef HS Ltd First Flwr 94 Stamford Hill London N166XS Page 1 CROHN'S AND COLITIS RELIEF (REGISTERED NUMBER: 10766434) REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2021 The trvstees who are also directors of the charrty for the purposes of the Companies Act 2006, presenl their report with the financial statements of the charity for the year ended 31 May 2021. The trustees have adopted the provisions of Accountsng and Reporting by Charities". Stalement of Recommended Piactice applicatde to charities preparing Iheir accounts in accordance with the Finan￿al Repo￿ng Standard applicable in the UK and 4epublic of Ireland IFRS 1021 (effective 1 January 20191. REFERENCE AND ADMINISTRATIVE INFORMATION The infomiation is shown on page 1 of Ihe fina￿la1 ststements and forms part of this rep)rt. OBJECTIVES AND ACTIVITIES Objèetives and aims The objects of the charity are the relief ol wckness and Ihe preservatKJn of health especially Crohn's disease, colitis and all forms of inflammatory bow81 disease arKI the advancem8nt of educaticn of those dis8as8S. Slgnlflcant actlvltles Crohn's and Colitis Relief {CCRI wa5 sel up to improve the qualty of life of people across the country affected by Inflammatory Bowel Disease as wdl as similar related ilnesses. CCR primarily tsryets the Jewish Ashkenazi community where there 15 an exceptionally high percentage of people suffering from these diseases. Our work is dedicated lo funding and delivering activities to support and relieve people suffering from irritsble bowel syndrome, and to improve their lives. Since a diagnosis of Inflanmatory Bowel Disease can initially prove overwhelming for a patient and their farnity, CCR'S dedicatod group of volunteer supp(xt workers is available to help families lo understand the condition, offer informed answers to questions and suggest further sources of support. The trustees are satisfied wi(h progress made this year. FINANCIAL REVIEW Financial review The trustees are pleased wilh ￿s￿lI8 for the year. There was ana almost fivefold inwse in income. This enabled the trus18es to giv8 help and advice to mora p8opI8 suff8ring CCR and their relatives. Res•rrfes pollcy The trustees do not seek to maintain reserves, other than to ensure that they rAn ￿tinue the aCtNit￿5 ol the charity. Reserves at the year end were £12.86212020 - £3,321)- STRUCTURE, GOVERNANCE AND MANAGEMENT Charlty constitutlon The charity is constituted as a company limiled by guarantee and is governed by ils Memorandum and Arb"cles of Association dated 11 May 2017 Organisational structure The charily has three Iruslees whom meet regularly in order to discuss and ccffltrol its activitie& Ml Iruslees and the administrator act on a voluntsry basis and r￿1ve no remuneration or reimbursement of expenses. The power lo appoint new trustees is vested in Ihe tK>ard. 11 is not the intention of the trustees to appoint any new Iruslees. Should the situation change in the future, the trustees wll apply suitable recruitment induction and training procedures. Risk management The trustees have reviewed the major risks to whith the charity is exposed and confirm that they have estsblished systems lo mitigate them. Page 2 CROHN'S AND COLITIS RELIEF (REGISTERED NUMBER: 10766434) REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2021 This report has been p￿pared in acC￿anCe wth the spec4al provisions of Part 15 of the Companies Act 2Q06 relating to small companies. Approved by order of Ihe board of trustees on 24 Februwy 2022 and s*3ned on its behalf by: , If Mr M Kahan- Trustee Page 3 INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF CROHN'S AND COLMS RELIEF Ind6p•ndgnt gxamlnor's roport to the trustees of Crohn's And ColSlls Rellef Ilho Company'l I report to the charity trustees on my ey3mlnatic￿ of the accounts of the Company lor the year ended 31 May 2021. Responsibilities and basis of report As the ¢harity's trustees of the Company land also its directors for the purposes of company lawl you are responsibl8 for the preparation of the accounts in accrxdance with the requirements of the Companies Act 2(X)6 llhe 2006 Acr). Having satisfied mysdf th81 the accwits of the Company are rK)t require(I to be audited under Part 16 of the 2006 Act and are eligible for independ￿1 exaM￿ation, I report in respect of my examination of your charity's accounls as carried out under section 145 of the Charitie5 Act 2011 I'lhe 2011 ACYI. In caTying out my examination I have followed the Directions given by the Charity Commission under Secti{￿ 145151 (bl of ihe 2011 Act. Independenl examiner's $tatemerbt I have completed my examinalion. I confirm thal no matters have come lo my attention in Connection with the examination giving me ¢au5e to believe: accounting records were not kepl in respect of Ihe Company as required by section 386 of Ihe 2006 Act., or the accounts co not accord wrth those re(xJrits", or the accourbts do not u)mply wth the &counting ￿qUIrementS of section 396 of the 2006 Act other than any requirement that the accounts give a true and fair view which is not a matter consKlered as part of an independent examination.. or the accounts have not been prepared in accordan￿ the methods and principles of the Statement of Recommended practi￿ for accounting and rewbng by chaiibes (applicable lo charities preparing their accounts in accordance with the Financaa ReportirwJ Standard appluble in the UK and Republic of Ireland IFRS 10211. I have no concems and have come across no other malters in connection wtth the examination to which attention should be drawn in this report in order to enab￿ a proper understanding of the acc4)unts to t* reached. S Sleinhaus FCA Sugarwhile Meyer HS Ltd First Floor 94 Stamford Hill London N166XS 24 February 2022 Page 4 CROHN'S AND COLMS RELIEF STATEMENT OF FINANCIAL ACTIVITIES {INCORPORATING AN INCOME AND EXPENDITURE ACCOUNT) FOR THE YEAR ENDED 31 MAY 2021 2021 Totsi funds 2020 Totsl funds Unrnstricted Restricted fund fund Notes INCOME AND ENDOWMENTS FROM Donalions and legacies 28.828 21.5 50.328 10,347 EXPENDITURE OM Charitable activities Medical Assistance Charitable Governance 16,984 1,758 1.045 21,500 38.484 1,758 1.045 5,638 762 1.024 Total 19.787 21,5 41.287 7.424 NET INCOME 9.041 9.041 2,923 RECONCIUATION OF FUNDS Total funds brought forward 3.821 3.821 898 TOTAL FUNDS CARRIED FORWARD The not&s on page O form part of these fin￿¢18] statements Page 5 CROHN'S AND COLITIS RELIEF (REGISTERED NUMBER: 10766434) BALANCE SHEET 31 MAY 2021 2021 2020 Notrs FIXED ASSETS Tangible assets 2.287 CURRENT ASSETS Deblors Cash al bank 175 17.260 17.435 6,500 1.284 7,784 CREDITORS Amounts falling due within one year 16,860) {3,9631 NET CURRENT ASSETS 1Q,575 3,821 TOTAL ASSETS LESS CURRENT LIABILITIES 12,862 3,821 NET ASSETSI{UABILITIESI FUNDS Unrestricted funds.. General fund TOTAL FUNDS 11 12.862 3.821 The charitable company is enlilled to exemption from audit under Section 4T7 of the Companies Act 2￿6 for the year ended 31 May 2021. The members have not required the (xmnpany to obtsin an audtt of its finanryal statements for the year ended 31 May 2021 in accordance with Section 476 of the Companies Act 2006. The trustees acknowledge their responsibilities for 181 ensuring thal ihe chantsble company keeps a(wJnting records that cornply with Sections 386 and 387 of the Companies Act 2006 and preparing financial statements which give 8 Irue #nd fair view of the state of affair5 of the charitable company ag al the end of each financial year and of its SLrplus or defieil for each fin2nci21 year in accord8nce with the requirements of Secti¢Ms 394 and 395 and which otherwse comply wilh the requirements Df the Companies Act 2006 relaling to financial stslemenls. so far as applicable to the charitable wmpany. Ibl The notes on Pa￿ O fom part of Ihese fin￿Cial stslements Page 6 CROHN'S AND COLITIS RELIEF (REGISTERED NUMBER: 10766434) BALANCE SHEET- Continued 31 MAY 2021 These financial slalements have been prepared in accordance with the provisKns applicable to charitsble companies subject to the small companies regime. The financial statements were approved by the Board of Trustees and aLrthorised for issue on 24 February 2022 and were signed on its behalf by.. b,If Mr M Kahan- Twstee The notes on page O fomi part of these fin￿rya1 statements Page 7 CROHN'S AND COLMS RELIEF NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2021 ACCOUMTING POLICIES Basls of prèpar6ng th• financlal stalemènts The financial siatements ol the thariiable comFony. which is a public benefil enlily under FRS 102. have been prepared in a(tordance with the Char￿.8$ SORP IFRS 1021'AccxJuntr'ng and Reporting by Charities.. Statement of Recommended Praclice applicable lo charities preparing their accounts in accordance with Ihe Financial Reporting Standard apDlicable in the UK and Re?ublic of IrelaTKI IFRS 1021 {effective 1 January 20191,, Finanual Reporting S18ndard 102 'The Financial Reporling Standard appIl￿ble in the UK and Republic of Ireland. and the Companies Acl 2006. The financial slatements have been prepared under the histoical cost convenlion. Incornè A11 income is recognised in the Statement of Financial Activities once the tharity has entitlement to the funds. il Is probahle that the intx)me will be r￿1Ved and the amount can be measiired reliably Expenditure Liabilities are recognised as expendilure as s￿n as there is a legal or constructive obligation committing the chanty to that expenditure. rt is probable Ihat a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliabty- Expenditure is a¢¢ounted for on an ac¢ruals basis and has been classified under headings that aggregate all cost related lo the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent wilh the use of resources. Tangible fixed assets DepreCiat￿n is provided at the followlig annual rates in order lo write off each asset over ils estimated usefvl lif8. Taxalion Th8 tharity IS 8X8mpt from corporation tsx on rts charitabl8 ￿tIVI￿"8s. Golng cor)cem There are no material uncertainties about the charivs to ccffilinue. DONATIONS AND LEGACIES 2021 Total funds 2020 Total funds Unrestrlcted funds R85trl¢t•d funds Donations Grants 1.517 27,311 1.517 48.811 10,101 246 21.500 21 500 Grants received, inclu