## **Trustees’ Annual Report for the period** **From Period start date 1[st] April 2021 To Period end date 31[st] March 2022** **Charity name: Local Families with Bleeding Disorders Charity registration number: 1186979** ## **Objectives and Activities** **----- Start of picture text -----**
SORP reference
Summary of the Para 1.17 Our charitable purpose at Local
purposes of the charity Families with Bleeding Disorders
as set out in its is to promote social inclusion
governing document among children with bleeding
disorders and their parents,
carers, siblings and other family
members who offer them support
and, to raise awareness of
bleeding disorders and the
impact they have on lives to
ensure a wider understanding
and acceptance among the
broader general public.
Summary of the main Para 1.17 and We run an active Facebook group
1.19
activities in relation to to support over 200 members on
those purposes for the advice, support, event
public benefit, in publication and competitions.
particular, the activities, During the year we launched a
projects or services new database to help ensure
identified in the better communication with our
accounts. members, with over 75 members
so far and continuing to grow.
During this year, we received an
extremely generous anonymous
donation via a family we have got
to know well, which will enable us
to continue in our work. One
member has chosen us as her
charity to support through her
work matched scheme, and two
members did their Duke of
Edinburgh Award volunteering
with us.
We have retained accurate
accounts, including using the new
GDPR safe database for member
details to improve our
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**communications. We held a strategic planning day for the committee, facilitated by an external consultant, which enabled both the committee and trustee team to refresh the charity’s vision, plan for the coming year and review the charity structure in terms of making sure we are working in the most efficient way. We intend to repeat this on an annual cycle, with a six-month review online.** Statement confirming Para 1.18 **The trustees have had regard to** whether the trustees **the guidance issued by the** have had regard to the **Charity Commission on public** guidance issued by the **benefit.** Charity Commission on public benefit ## **Additional information (optional)** You may choose to include further statements where relevant about: **----- Start of picture text -----**
SORP reference
Para 1.38
Policy on grant making
Para 1.38
Policy on social
investment including
program related
investment
Para 1.38
Contribution made by
volunteers
Other
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## **Achievements and Performance** SORP reference ||Summary of the main
achievements of the
charity, identifying the
diference the charity’s
work has made to the
circumstances of its
benefciaries and any
wider benefts to society
as a whole.|Para 1.20|**As Covid restrictions eased, we**
**have been supporting our**
**families through a mixture of**
**online and in person events,**
**including:**

**Trip to London Zoo**

**An activity day with a**
**choice of Go Ape and**
**Battersea Children’s Zoo,**
**joining together for a picnic**
**afterwards**

**Issuing bravery awards to**
**encourage children going**
**through challenges**

**Running a Christmas card**
**design competition**

**Webinars, including school**
**starting, women’s support**
**socials, science of gene**
**therapy and shared patient**
**experiences**

**Needle phobia online**
**workshop**
**Both the London Zoo trip and the**
**Battersea trip had around 150**
**attendees, and were great**
**opportunities to meet up, making**
**new connections and supporting**
**each other in person after a long**
**time apart.**|| |---|---|---|---|---| ## **Additional information (optional)** You may choose to include further statements where relevant about: **----- Start of picture text -----**
Achievements against Para 1.41
objectives set
Performance of
fundraising activities Para 1.41
against objectives set
Investment performance Para 1.41
against objectives
Other
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## **Financial Review** **----- Start of picture text -----**
Review of the charity’s Para 1.21 As at the end of the period, the
financial position at the charity held sufficient cash
end of the period reserves to enable it to continue
to fulfil its charitable purpose
Statement explaining Para 1.22 No funds are held specifically as
the policy for holding reserves
reserves stating why
they are held
Amount of reserves held Para 1.22
Reasons for holding zero Para 1.22 The charity is not of a size that is
reserves deemed to require specific
reserves, and has very few
regular outgoings, but cashflow is
carefully monitored and managed
Details of fund materially Para 1.24 No funds are in deficit
in deficit
Explanation of any Para 1.23 There are no uncertainties
uncertainties about the regarding the charity continuing
charity continuing as a as a going concern
going concern
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## **Additional information (optional)** You may choose to include further statements where relevant about: **----- Start of picture text -----**
The charity’s principal
sources of funds Para 1.47
(including any
fundraising)
Investment policy and
objectives including any Para 1.46
social investment policy
adopted
A description of the Para 1.46
principal risks facing the
charity
Other
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## **Structure, Governance and Management** **----- Start of picture text -----**
Description of charity’s
trusts:
Type of governing Para 1.25
document
(trust deed, royal
charter)
How is the charity Para 1.25 CIO
constituted?
(e.g unincorporated
association, CIO)
Trustee selection Para 1.25
methods including
details of any
constitutional provisions
e.g. election to post or
name of any person or
body entitled to appoint
one or more trustees
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## **Additional information (optional)** You may choose to include further statements where relevant about: **----- Start of picture text -----**
Policies and procedures
adopted for the induction Para 1.51
and training of trustees
The charity’s
organisational structure Para 1.51
and any wider network
with which the charity
works
Relationship with any Para 1.51
related parties
Other
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## **Reference and Administrative details** **----- Start of picture text -----**
Charity name Local Families with Bleeding Disorders
Other name the charity LFWBD
uses
Registered charity 1186979
number
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**----- Start of picture text -----**
Charity’s principal 26 Tibbets Close
address Wimbledon
London
England
SW19 6EF
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## **Names of the charity trustees who manage the charity** **----- Start of picture text -----**
Name of person (or body)
Dates acted if not for
Trustee name Office (if any) entitled to appoint trustee
whole year
(if any)
1 Lisa Steadman Chair
2 Sarah West
3 Anna Harris
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
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Corporate trustees – names of the directors at the date the report was approved **Director name** Name of trustees holding title to property belonging to the charity **----- Start of picture text -----**
Trustee name Dates acted if not for
whole year
**----- End of picture text -----**
## **Funds held as custodian trustees on behalf of others** Description of the assets N/A held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** **Type of Name Address adviser** **Name of chief executive or names of senior staff members (Optional information)** ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details ## **Other optional information** ## **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s)** **Full name(s)** Sarah West **Position (eg** Treasurer **Secretary, Chair, etc)** **Date** 6[th] October 2022 CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner's Report Report to the trusteesl mombgrs of Local Families with Ble8ding Disorders On accounts for the year endod 31" March 2022 Charity no (if any) 1186979 Set out on pagos I report to tha trustees on my examination of the accounts of the above charity (°the Trusf,) for the year ended SIN li Responslbllltles and As the charity trustees of the Trust, you are responsible for the preparation basis of report of the accounts in accordance wilh the requirements of the Charities Act 2011 ("Ihe Acr). I report in respect of my examination of the Trust's accounts carried out under section 145 of the 2011 Act and in carying out my examination, I have followed the applicable Directions given by the Charlty Commission under seclion 14515)(b) of the Act. I have completed my examination. I confim Ihat no material matters have come lo my attention (other than that disclosed below ') in connection wilh the examination which gives me caus8 to believe that in, any material respect.. accounting re¢ords were not kept in accordance with section 130 of tho Act or the accounts do not a¢¢ord with Ihe accounting records Independent oxaminer's statement I have no concerns and have come across no other matters in connection wilh Ihe examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached. Please delete the words in tho brackets if they do not apply. Slgned.. Date: 30th June 2022 Name.. Tim Cobley Relevant professional qualification(s) or body {rfany): FCCA, CTA, TEP, ATT (Fellow) Bsc Hons, BA Hons Address: Cobley D8sborough, Artisans, House 7 Queensbridge, Northampton NN4 7BF IER October 2018 Section B Disclosure Only complete if the examiner needs to highlSght matters of concern (see CC32, Independent examination of charity a¢¢ounts: directions and guidance for examiners). No detail available to support income origln or completeness due to limited intemal processes. Glve here brief details of any items that the 8xamlnerwishas to dlsclose. IER October 2018 rofit ar￿ L05$ Com ocal FarD arl550n In Dls0rdgr 2022 2021 Turnovor Arnazon Stnile contribjl1￿ to evwts Event donatlons Fundralslng Events Income Chrfslmas Card Sales Company Donab'ons Grants 0th8r Donauons Spon50tshlp Regular Donalths rgin Money S2.48 39.95 631.00 1,645.90 3,145.56 228.00 13,272.33 3,416.66 2,883.66 300.00 150.00 361.70 140.06 59.00 14,814.07 2,520.25 662.60 Total Turnover 11048.36 28,074.78 Co8¢ of Sa188 C08t ol Goods Sold Dlrect Exp8n888 Famlly Events Fundrdlsing costs anners Matkelng mèrthandls6 273.50 495.33 2,691.36 1,214.58 396.48 5,248.53 I￿.19 1S5.20 2.09 Total Cost of Sales 6,538.49 4.674.77 Gross Profit 11,509.87 21,399.99 Admlnlstratlvo Costs Audit & Accountancy f88S Advert151ng & marketing Flr5t Aid Iralnl Bank Feas DBS Costs Telephone General Expen$e8 Trav81 & sub81slenc8 Insurance IT sof￿var? and Consumables Postage, Frelghl & Courfer Charitable Donations ICO fee 300.00 621.31 252.60 20.13 249.00 15.00 172.79 197.05 423.65 161.05 378.45 129.00 05.54 38.67 474.52 28.78 1.99 100.00 40.00 Totsl Admln18tratlv8 C08t8 1.71&50 2,491.83 Operatlng Proflt 9.791.37 18,908.16