## **Trustees' Annual Report for the period** Period start date Period end date 01 01 2020 31 12 2020 **From** **To** ## Section A Reference and administration details **Charity name** The Hypermobility Syndromes Association **Other names charity is known by** The HMSA **Registered charity number (if any)** 1186735 **Charity's principal address** 49 Greek Street, London **Postcode W1D 4EG** ## **Names of the charity trustees who manage the charity** **----- Start of picture text -----**
Dates acted if not for whole Name of person (or body) entitled
Trustee name Office (if any)
year to appoint trustee (if any)
1 Keith Diaper Trustee From April 2020
2 Hannah Turner Acting Chair
3 Dr Philip Bull Trustee Until November 2020
4 Rachel King Trustee From December 2020
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## **Names of the trustees for the charity, if any, (for example, any custodian trustees)** **Name Dates acted if not for whole year** March **2012** **TAR** 1 ## **Names and addresses of advisers (Optional information)** **----- Start of picture text -----**
Type of adviser Name Address
Organisational Gil Hilleard
Development
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## **Name of chief executive or names of senior staff members (Optional information)** Executive Manager recruited on a part time, consultancy basis from July to November. ## **Section B Structure, governance and management** ## **Description of the charity’s trusts** Constitution Type of governing document (eg. trust deed, constitution) Association How the charity is constituted (eg. trust, association, company) Elected by other trustees Trustee selection methods - (eg. trust, association, company) - (eg. appointed by, elected by) ## **Additional governance issues (Optional information)** Restructured from a small informal structure to a more formal one, and You **may choose** to include created clearer roles and role division between the operational aspects of additional information, where the charity (managed by the Executive Manager) and the governance role relevant, about: of the board of trustees.  policies and procedures Joined the NCVO, and ensured all trustees watched their trustee overview adopted for the induction and training of trustees; training videos. - the charity’s organisational structure and any wider network with which the charity works; Recruited a new Executive Manager. Recruited a new trustee. Set up new bank accounts and carried out all the administrative tasks needed in relation to moving from an unincorporated charity to a CIO. - relationship with any related parties; - Reviewed and updated or created multiple policies and procedures, -  trustees’ consideration of including recruitment and volunteer management. major risks and the system and procedures to manage Reviewed and updated the strategy. them. ## **Section C Objectives and activities** March **2012** **TAR** 2 RELIEF OF SICKNESS AND THE IMPROVEMENT PRESERVATION AND PROTECTION OF HEALTH OF PERSONS SUFFERING FROM HYPERMOBILITY SYNDROME ## **Summary of the objects of the charity set out in its governing document** ||RELIEF OF SICKNESS AND THE IMPROVEMENT PRESERVATION AND
PROTECTION OF HEALTH OF PERSONS SUFFERING FROM
HYPERMOBILITY SYNDROME| |---|---| |**Summary of the main**
**activities undertaken for the**
**public benefit in relation to**
**these objects (include within**
**this section the statutory**
**declaration that trustees have**
**had regard to the guidance**
**issued by the Charity**
**Commission on public**
**benefit)**|Our main activities have included:

Continued to provide evidence based information, joining the
Patient Information Forum, with a view to gaining the TICK
information quality mark.

Providing advice and support via email, phone, and social media.

Continuing our membership scheme and online local support
groups.

Providing free weekly relaxation sessions (useful for both
condition management and coping with COVID restrictions)

Providing monthly OT live-streaming sessions full of practical self-
management advice and information.

Producing a journal full of articles and information on the latest
developments regarding hypermobility syndromes and patient
stories. (the first journal of the year was produced by the
unincorporated charity rather than the CIO)

Carrying out a complete review of the Kent Model, and
relaunching it as the HMSA Professional Education Model, with a
dedicated team focused on delivering it.

Switched the Professional Masterclass originally planned in
March 2020 and delayed by the pandemic, to an online version
(delivered in Feb 2021).

Supported multiple research projects, assisting researchers in
finding participants, and in disseminating results.

Consulting on the Nice pain management guidelines, working with
ARMA.

Worked on a joint project with EDS UK to create an online
schools toolkit on EDS and HSD/JHS – launched May 2021.| ## **Additional details of objectives and activities (Optional information)** Our team of around 40 volunteers is responsible for delivering the majority of our services, including local groups, helpline, and information and support provided to our community through social media. Volunteers You **may choose** to include have also kept the administrative functions going. further statements, where relevant, about: All volunteers are trained in safeguarding and GDPR, and also given appropriate support and training specific to their roles. - policy on grantmaking; - policy programme related investment; - contribution made by volunteers. ## Section D Achievements and performance March **2012** **TAR** 3 ## Section D Achievements and performance |**Summary of the main**
**achievements of the charity**
**during the year**|
Increased membership from 519 at the end of 2019, to 547 at the
end of 2020.

The social media volunteer team continued their work with ARMA
and all its member charities to provide information on the
COVID19 pandemic, vaccines, and shielding – as well as self-
management during these times. And through all this, continuing
to deliver support and information to the hypermobile community
and the wider population.

Continued to run our local support groups online, setting up 2
additional groups (Surrey and Wales). Some groups also doubled
their frequency, with one session being our usual self-
management focused session and the other being a general
supportive chat to provide social and mental support to members
self-isolating or struggling with lockdown. Feedback has included
_“The Leader was amazing and allowed people time to talk about_
_their week or current concerns”_
_“Really well facilitated”_

The ‘Wellbeing Officer’ role continued to help our volunteers
balance volunteering with their health management, work, and
other life commitments, creating a more sustainable and reliable
workforce.

Continued to support the wider hypermobile community via our
website, helpline (over 200 calls), email, and social media, (with
41K Facebook followers, 11k twitter followers, and 3k Instagram
followers, with 155 separate individuals supported via private
message on Facebook.

Carried out all the administrative tasks needed to complete the
move from being an unincorporated charity to a CIO.

Planned the first online Masterclass (which took place in Feb
2021)| |---|---| ## **Section E Financial review** We aim to keep a reserve of £5000 for 3 months essential expenditure, **Brief statement of the** and emergency closure of the organisation (expenditure below this level **charity’s policy on reserves** needs board approval), plus a £5000 ‘buffer’ that can be dipped into when needed for issues with staff cover, to cover temporary income reduction, or to provide initial funds for setting up new projects. **Details of any funds materially in deficit** ## **Further financial review details (Optional information)** You **may choose** to include Following grants to the unincorporated HMSA (Registered charity number additional information, where 1011063), at the time of switchover, we were able to transfer relevant about: approximately £24000, and had over £10000 above reserves and  the charity’s principal restricted funds. sources of funds (including any fundraising); - how expenditure has supported the key objectives of the charity; March **2012** **TAR** 4 - investment policy and objectives including any ethical investment policy adopted. ## **Section F Other optional information** ## **Section G Declaration** **Signature(s)** **Full name(s)** Hannah Turner **Position (eg Secretary, Chair,** Interim Chair **etc)** **Date** 23/09/2021 March **2012** **TAR** 5 CHARITY COMMISSION FOR ENGLANO AND WALES Receipts and payments accounts CC16a For the period frorn To Section A Receipts and payments Unrestricted lund$ to the npare$i Restricte funds Endowment lunds Total funds Last year to the no•rè8t£ tho nèaresL£ to the neaiest £ tothp nearest £ Al Receipts Doiisiions and Logacies Chafjlawe A¢bvilie5 TFad1ng Vested iTrcome 4.913 S.322 2.628 19.SB 5,322 2,82 34,5?9 15.031 Sub total(Gffjss income for AR) 32,451 15.031 47,482 A2 Asset and Investment sales, (see table). Sub total 32.451 15,031 47.482 A3 Payment8 Ch8riiab4e Athvibes Other Vested assets 15.503 4,505 21,OOB Sub total 16.StsJ 4,505 21.008 A4 Asset and investment urchases. see tsblel Sub total Totsl payments 16,503 4.505 21.008 Net of receiplsl(paymonts) A5 Tran8fèr8 between funds A6 Cash funds last year end C•sh funds this year end 15,948 10.526 26,474 15,948 10,526 26,474 CCXX R1 accounts ISSI 0110912021 Section B Statement of assets and liabilities at the end of the period Unrestricted funds to nèarestt Restri¢t•d funds to nearFst £ Endowment funds to n¢8re8t £ Categories Detalls 81 Cash funds Bank accounts 15.948 10,526 rotal cash funds 15.948 10,528 iagree b3￿nCe￿Wil￿￿$(wptSanll payment5 acc￿￿15￿} Unrestricted funds Restrictè funds to nearest £ Endowment funds Oetails lo noar•st £ to nèarèst f Fund to which asset belo Current valvè Details Cost (Optior￿lI 83 Inve8tment assets Fund to wttich asset bploil DÈtails C05t loption811 Current value on81 B4 Assets retslnod for the charity's own us¢ Fund to which relats Amount due ional Details B5 Liabiliti•s S¥ned by one or hvo Iru518es on behalf of all the trustees Signature Print Name Dale or roval CCXX R2 accounts ISSI 0111%12021 ## **Independent examiner's report on the accounts** **Section A** **Independent Examiner’s Report** ## **Report to the trustees/** Hypermobility Syndromes Association **members of** |31 December 2020|**Charity no**
**(if any)**|CIO19863| |---|---|---| **On accounts for the year ended Set out on pages** 1-2 I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended **DD / MM / YYYY** 31 December 2020. **Responsibilities and** As the charity trustees of the Trust, you are responsible for the preparation **basis of report** of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”). I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. **Independent** I have completed my examination. I confirm that no material matters have **examiner's statement** come to my attention (other than that disclosed below *) in connection with the examination which gives me cause to believe that in, any material respect: - accounting records were not kept in accordance with section 130 of the Act or - the accounts do not accord with the accounting records I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached. * _Please delete the words in the brackets if they do not apply._ **Signed: Date:** 23rd September 2021 **Name:** Virginia Santer **Relevant professional** FCCA **qualification(s) or body (if any): Address:** Sovereign House, 22 Shelley Road, Worthing, West Sussex, BN11 1TU **October 2018** 1 **IER** **Section B Disclosure** Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners). **Give here brief details of any items that the examiner wishes to disclose** . **October 2018** 2 **IER**