## **Trustees’ Annual Report for the period** ## **From 03.04.24 To 02.04.2025** ## **Charity name: HME-The New Generation** ## **Charity registration number: 1186351** ## **Objectives and Activities** |**Objectives and Activities**||| |---|---|---| ||SORP
reference|| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|The object of the CIO is to preserve and
protect good health for the public
benefit among persons suffering from
Hereditary Multiple Exostoses (HME)
their families and other carers, and to
relieve needs arising from the
condition, in particular but not exclusively
by:
a) providing support forums, information,
practical advice and emotional
support for sufferers of HME, their families
and other carers.
b) raising public awareness of HME
through the provision of information
designed to inform and educate the general
public and the medical profession
about the condition.| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|‘Those affected by HME’ includes sufferers
and anyone with a connection to that
person.
Facebook closed support group offering
emotional support, information and a
platform where those affected by the rare
condition, HME, can communicate with
each other and offer mutual support.
Quarterly Zoom meetings for members
offering support and interaction. This
offers a different platform for sufferers to
chat with others and share experiences,
offering mutual support, and relieves
feelings of isolation.
In the reported year a Zoom call was held
for members to launch an HME Podcast as
a form of information for sufferers but also
as a way of raising public awareness of the
condition. This project is ongoing.| |||Sale of badges to raise awareness.
Occasional sales are made.
Information sheets. For example, it is
sometimes helpful for a parent to hand a
teacher a booklet with more information
about their child’s condition and how this
affects their day. Equally an information
sheet on HME is often helpful for an
employer to understand any reasonable
adjustments.
The charity aims to organise an annual
face-to-face meeting for its members. This
may be a conference style with guest
speakers who either specialise in the
condition or offer motivational support.
This meeting is also open to members of the
public and health professionals who want to
learn more about HME.
Alternatively it may be in the format of a
social gathering over a weekend, with hotel
accommodation, leisure centre activities
and bowling.
The charity has a website which provides
information about the condition and
signposts to the Facebook Group.
A regular newsletter is produced as a
further method of communicating with
members and this is also made available to
those outside of the charity.| |---|---|---| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|We have planned activities to meet the
charity’s Objects and in doing so have been
mindful of the Charity Commission’s
guidance on public benefit.| ## **Additional information (optional)** ## You may choose to include further statements where relevant about: ||
SORP
reference|| |---|---|---| |Policy on grant making|Para 1.38|| |Policy on social investment
including program related
investment|Para 1.38|| |Contribution made by
volunteers|Para 1.38|The Trustees are all volunteers and are
grateful to others who volunteer their time
to aid with the work of supporting those
affected by HME.| |---|---|---| |Other||| ## **Achievements and Performance** ||SORP
reference|| |---|---|---| |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|In the reported year, we held a social event
at Wokingham Leisure Centre over a
weekend in September 2024. The main
activities took place on the Saturday,
featuring a range of equipment in the sports
hall for everyone to enjoy — including a
bouncy castle and badminton. A section of
the swimming pool was reserved
exclusively for our members, allowing
them to relax and feel comfortable among
others who understand their experiences
and, in some cases, share the same
condition. The day concluded with a fun
evening of bowling.
This event provided a wonderful
opportunity for members with HME, along
with their families and carers, to connect
and engage with one another. It also gave
children the chance to interact and build
friendships through play.
Before the event, we hosted a Zoom
meeting to help attendees meet each other
in advance and share important information
about the weekend. All members are
welcome at our events, which are typically
attended by most of the trustees. Our
Facebook platform also continues to be a
valuable space where members can ask
questions, connect with others, and stay
informed about upcoming activities.| **Additional information (optional)** You may choose to include further statements where relevant about: Achievements against objectives set Para 1.41 |||| |---|---|---| |Performance of fundraising
activities against objectives
set|Para 1.41|| |Investment performance
against objectives|Para 1.41|| |Other||| **Financial Review** |Review of the charity’s
financial position at the end
of the period|Para 1.21|The charity is in a good financial position at
the end of the period. We held a social
event for members in September 2024
which was very successful. We have
continued to hold zoom meetings in
between face to face events and are active
on Facebook for our members. Looking
ahead to next year, we aim to hold another
social event for members after the success
of the previous one. Fundraising and
donations have continued both online and
through fundraising events increasing the
amount of funds available to use for future
events.| |---|---|---| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|Reserves will be held to cover the costs of
outgoings such as insurances, zoom
membership and any other costs that will be
beneficial to the charity in supporting
members.| |Amount of reserves held|Para 1.22|£550.00| |Reasons for holding zero
reserves|Para 1.22|N/A| |Details of fund materially in
deficit|Para 1.24|N/A| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|N/A| ## **Additional information (optional)** You may choose to include further statements where relevant about: |
The charity’s principal
sources of funds (including
any fundraising)|
Para 1.47|| |---|---|---| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|| |A description of the
principal risks facing the
charity|Para 1.46|| |Other||| **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document
(trust deed, royal charter)|Para 1.25|Constitution dated 11 November 2019| |How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|Charitable Incorporated Organisation| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Trustees are appointed or reappointed
annually at a Trustees (Members) Meeting
held in November. A recruitment policy
and process is in place for appointments to
be made throughout the year if necessary.| **Additional information (optional)** You may choose to include further statements where relevant about: |
Policies and procedures
adopted for the induction
and training of trustees|
Para 1.51|| |---|---|---| |The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|| |Relationship with any
related parties|Para 1.51|| |Other||All Trustees have enhanced DBS checks.| **Reference and Administrative details** |Charity name|HME–The New Generation| |---|---| |Other name the charity uses|n/a| |Registered charity number|1186351| |Charity’s principal address|9 Conway Drive, Bourne, PE10 2BL| ||| **Names of the charity trustees who manage the charity** |1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for**
**whole year**|**Name of person (or body)**
**entitled to appoint trustee**
**(ifany)**| |---|---|---|---|---| ||Helen Small|Chair|3.4.24-30.11.24|| ||Lynda Tams|Secretary||| ||Samantha Searle|Treasurer||| ||Leigh Edwards|||| ||Kate McEvoy|Chair|30.11.24-2.4.25|| ||Dawn Searle|||| ||Rob Searle|Chair|30.11.24-2.4.25|| ||Hannah Whitelock|||| ||Minna Korjonen|||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| – Corporate trustees names of the directors at the date the report was approved **Director name n/a** Name of trustees holding title to property belonging to the charity |**Trustee name**|**Dates acted if not for**
**whole year**|| |---|---|---| |**n/a**||| |||| |||| |||| |||| |||| **Funds held as custodian trustees on behalf of others** Description of the assets held n/a in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** |**Type of**
**adviser**|**Name**
**Address**|**Name**
**Address**| |---|---|---| |**n/a**||| |||| |||| |||| **Name of chief executive or names of senior staff members (Optional information)** n/a ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details ## **Other optional information** **Declarations** **The trustees declare that they have approved the trustees’ report above. Signed on behalf of the charity’s trustees** **Signature(s) Full name(s)** Kate McEvoy **Position (eg Secretary,** Chair **Chair, etc) Date** 12.11.2025 ||**HME-The New Generation**
|**HME-The New Generation**
|**HME-The New Generation**
|**HME-The New Generation**
|**CC16a**| |---|---|---|---|---|---| ||**For the period**
**from**|4/3/2024|**To**||| ||||||| |**Section A Receipts and payments**|||||| |**A1 Receipts**
Fundraising
**25**
Donations
**550**
Conference/Social event income
**548**
**-**
**-**
**-**
**-**
**-**
**1,123**
**-**
**-**
**_Sub total_ -**
**_Total receipts_ 1,123**
**A3 Payments**
Insurances
**179**
Zoom subscription
**156**
FundraisingRegulator
**-**
Conference/Social event expenses
**2,149**
Badgepostage
**-**
Badges
**211**
Trustee expenses
**444**
**-**
**_Sub total_ 3,140**
**-**
**-**
**_Sub total_ -**
**_Total payments_ 3,140**
**_Net of receipts/(payments)_ - 2,016**
**A5 Transfers between funds**
**-**
**A6 Cash funds last year end**
**59,664**
**_Cash funds this year end_ 57,648**
**Unrestricted**
**funds**
**to the nearest £**
Transfer from HMESG charity number
1091069
**_Sub total_**(Gross income for AR)
**A2 Asset and investment sales,**
**(see table).**
**A4 Asset and investment**
**purchases,(see table)**||**to the nearest £**
**Restricted**
**funds**|**to the nearest £**
**Endowment**
**funds**|**Total funds**
**to the nearest £**|**Last year**
**to the nearest £**| |||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**25**
**550**
**548**
**-**
**-**
**-**
**-**
**-**
**1,123**|**1,585**| ||||||**450**| ||||||**1,045**| ||||||**53,742**| ||||||**-**| ||||||**-**| ||||||**-**| ||||||**-**| ||||||**56,822**| ||||||| |||**-**
**-**
**-**|**-**
**-**
**-**|**-**
**-**
**-**|| ||||||**-**| ||||||**-**| ||||||| |||**-**|**-**|**1,123**|**56,822**| ||||||| |||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**179**
**156**
**-**
**2,149**
**-**
**211**
**444**
**-**
**-**
**3,140**|**166**| ||||||**144**| ||||||**50**| ||||||**4,077**| ||||||**4**| ||||||| ||||||**-**| ||||||**-**| ||||||**-**| ||||||**4,441**| ||||||| |||**-**
**-**
**-**|**-**
**-**
**-**|**-**
**-**
**-**|| ||||||| ||||||**-**| ||||||| |||**-**|**-**|**3,140**|**4,441**| ||||||| |||**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**|**- 2,016**
**-**
**59,664**
**57,648**|**52,382**| ||||||**-**| ||||||**-**| ||||||**52,382**| ## **Section B Statement of assets and liabilities at the end of the period** |**Categories**
**Details**
**B1 Cash funds**
Bank
**Details**
**B2 Other monetary assets**
**Details**
**B3 Investment assets**
**Details**
**Details**
**B5 Liabilities**
Signature
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
Badges for sale (number remaining 29) at
cost price (2)
Badges for sale (number remaining 100) at
costprice(3)
**B4 Assets retained for the**
**charity’s own use**
Signed by one or two trustees on behalf
of all the trustees|**to nearest £**
**to nearest £**
**57,648**
**-**
**-**
**-**
**-**
**-**
**57,648**
**-**
OK
OK
**to nearest £**
**to nearest £**
**14**
**-**
**211**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
Print Name
SAMANTHA SEARLE
**Unrestricted**
**funds**
**Restricted**
**funds**
**Unrestricted**
**funds**
**Restricted**
**funds**
**Fund to which**
**asset belongs**
**Fund to which**
**asset belongs**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**|**to nearest £**
**Endowment**
**funds**| |---|---|---| |||**-**| |||**-**| |||**-**| |||**-**| |||OK| |||**to nearest £**
**Endowment**
**funds**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**Current value**
**(optional)**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**Current value**
**(optional)**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**When due**
**(optional)**| |||| |||| |||| |||| |||| |||| |||Date of
approval| ||SAMANTHA SEARLE|12.11.2025| |||| (1) Funds transferred from HME Support Group charity as group was inactive and has (2) Badges with logo on - bought in June 2019 and sold to raise funds for charity. Pric -3 Badges with logo on - bought in August 2024 and sold to raise funds for charity. P s now closed down, transferring remaining funds for research purposes to HME- The New Generation ce shown is the cost price as this is current value. rice shown is the cost price as this is current value.