2022-04-02-accounts

Trustees’ Annual Report for the period

From 03.04.21 To 02.04.2022

Charity name: HME-The New Generation

Charity registration number: 1186351

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	The object of the CIO is to preserve and protect good health for the public benefit among persons suffering from Hereditary Multiple Exostoses (HME) their families and other carers, and to relieve needs arising from the condition, in particular but not exclusively by: a) providing support forums, information, practical advice and emotional support for sufferers of HME, their families and other carers. b) raising public awareness of HME through the provision of information designed to inform and educate the general public and the medical profession about the condition.
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	‘Those affected by HME’ includes sufferers and anyone with a connection to that person. Facebook closed support group offering emotional support, information and a platform where those affected by the rare condition, HME, can communicate with each other and offer mutual support. Quarterly Zoom meetings for members offering support and interaction. This offers a different platform for sufferers to chat with others and share experiences, offering mutual support and relieves feelings of isolation. In the reported year, this was developed to include focussed topic related meetings eg. ‘Sharing coping mechanisms for pain’. Occasional social meetings on Zoom for support andinteraction.Theseare based on

		building camaraderie and friendship for those in the HME community, eg. a ‘Quiz Night’. Sale of badges to raise awareness. Occasional sales are made. Information sheets. For example, it is sometimes helpful for a parent to hand a teacher a booklet with more information about their child’s condition and how this affects their day. Equally an information sheet on HME is often helpful for an employer to understand any reasonable adjustments. The charity would in normal circumstances, hold an annual face-to-face meeting for the Group, but this was postponed during the reported period due to COVID. This offers guest speakers who either specialise in the condition or offer motivational support. This meeting is also open to members of the public and health professionals who want to learn more about HME. We have a website which provides information about the condition and signposts to the Facebook Group. A regular newsletter is produced as a further method of communicating with members and this is also made available to those outside of the charity.
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	We have planned activities to meet the charity’s Objects and in doing so have been mindful of the Charity Commission’s guidance on public benefit.

Additional information (optional) You may choose to include further statements where relevant about:

	SORP reference
Policy on grant making	Para 1.38
Policy on social investment including program related investment	Para 1.38
	Para 1.38	The Trustees are all volunteers and are grateful to others who volunteer their time

Contribution made by volunteers		to aid with the work of supporting those affected by HME.
Other

Achievements and Performance

	SORP reference
Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	Due to the pandemic, we were unable to hold our annual face to face meeting and turned our support to virtual gatherings on Zoom. These have linked those people affected by HME and reduced feelings of isolation. By sharing experiences, people can learn from and support each other. This has been for all ages. In addition, the topic focussed meetings have been informative in a specific area relating to HME. Social interaction with Zoom meetings has reinforced this support. It is common for two or more generations of families to join the support network. Our Zoom activities are advertised across European and International HME support groupsand everyoneis welcometoattend.

Additional information (optional) You may choose to include further statements where relevant about:

Achievements against objectives set	Para 1.41
Performance of fundraising activities against objectives set	Para 1.41

Investment performance against objectives	Para 1.41
Other

Financial Review

Review of the charity’s financial position at the end of the period	Para 1.21	The charity is in a good financial position at the end of the period. We had lower outgoings then expected due to the uncertainty of the Covid-19 pandemic continuing so we had not been able to hold any face to face meetings for members as it is not safe to do so. We have begun planning for a face to face meeting to be held later on in 2022. Fundraising and donations have continued throughout this time online increasing the amount of funds available to use for future events.
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	Reserves will be held to cover the costs of outgoings such as insurances, zoom membership and any other costs that will be beneficial to the charity in supporting members.
Amount of reserves held	Para 1.22	£350.00
Reasons for holding zero reserves	Para 1.22	N/A
Details of fund materially in deficit	Para 1.24	N/A
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	N/A

Additional information (optional)

You may choose to include further statements where relevant about:

The charity’s principal sources of funds (including any fundraising)	Para 1.47
Investment policy and objectives including any social investment policy adopted	Para 1.46
A description of the principal risks facing the charity	Para 1.46
Other

Structure, Governance and Management

Description of charity’s trusts:
Type of governing document (trust deed, royal charter)	Para 1.25	Constitution dated 11 November 2019
How is the charity constituted? (e.g unincorporated association, CIO)	Para 1.25	Charitable Incorporated Organisation
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	Trustees are appointed or reappointed annually at a Trustees (Members) Meeting held in November.

Additional information (optional) You may choose to include further statements where relevant about:

Policies and procedures adopted for the induction and training of trustees	Para 1.51
The charity’s organisational structure and any wider network with which the charity works	Para 1.51
Relationship with any related parties	Para 1.51
Other		DBS checks are in progress for those Trustees without certificates. There have been difficulties with the online system, but theseare beingaddressed.

Reference and Administrative details

Charity name	HME–The New Generation
Other namethe charity uses	n/a
Registered charity number	1186351
Charity’s principal address	1 North Place, Headington, Oxford OX3 9HX

Names of the charity trustees who manage the charity

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20	Trustee name	Office (if any)	Dates acted if not for whole year	Name of person (or body) entitled to appoint trustee (if any)
	Helen Small	Chair
	Lynda Tams	Secretary
	Samantha Searle	Treasurer
	Leigh Edwards
	Kate McEvoy
	Dawn Searle
	Rob Searle
	Adam Tams
	Jess Wernham

– Corporate trustees names of the directors at the date the report was approved

Director name n/a

Name of trustees holding title to property belonging to the charity

Trustee name	Dates acted if not for whole year
n/a

Funds held as custodian trustees on behalf of others

Description of the assets held n/a in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)
Type of adviser Name Address
n/a
Name of chief executive or names of senior staff members (Optional information)
n/a

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Helen May Small Position (eg Secretary, Chair Chair, etc) Date 16 November 2022

HME-The New Generation	HME-The New Generation	HME-The New Generation	No 1186351
Receipts andpayments accounts
For the period from	03/04/2021	To	02/04/2022

Section A Receipts and payments

A1 Receipts	Unrestricted funds to the nearest £	Unrestricted funds to the nearest £	Restricted funds to the nearest £	Restricted funds to the nearest £	Endowment funds to the nearest £	Endowment funds to the nearest £	Total funds to the nearest £
Fundraising	1,346		-		-		1,346
Donations	250		-		-		250
Other(1)	-		-		-		-
	-		-		-		-
	-		-		-		-
	-		-		-		-
	-		-		-		-
	-		-		-		-
Sub total(Gross income for AR)	1,596		-		-		1,596
A2 Asset and investment sales, (see table).
	-						-
	-						-
Sub total	-						-
Total receipts A3 Payments
							1,596
Insurances	128		-		-		128
Zoom subscription	144		-		-		144
FundraisingRegulator	50		-		-		50
	-		-		-		-
	-		-		-		-
	-		-		-		-
	-		-		-		-
	-		-		-		-
	-		-		-		-
**Sub total **	322		-		-		322
A4 Asset and investment purchases, (see table)
	-						-
	-						-
**Sub total **	-						-
Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end
							322
	1,275						1,275
	-						-
	-						-
	1,275						1,275

CCXX R1 accounts (SS)

08/12/2022

1

Section B Statement of assets and liabilities at the end of the period

Categories B1 Cash funds B2 Other monetary assets B4 Assets retained for the charity’s own use B5 Liabilities B3 Investment assets	Details Details Bank Details Details Total cash funds (agree balances with receipts and payments account(s)) Badges for sale (number remaining 39) at cost price (2) Details	Unrestricted funds to nearest £ 1,275 - - 1,275 OK Unrestricted funds to nearest £ 56 - - - - - Fund to which asset belongs Fund to which asset belongs Fund to which liability relates	Restricted funds to nearest £
			-
			-
			-
			-
			OK
			Restricted funds to nearest £
			-
			-
			-
			-
			-
			-
			Cost (optional)
			-
			-
			-
			-
			-
			Cost (optional)
			-
			-
			-
			-
			-
			-
			-
			-
			-
			Amount due (optional)
			-
			-
			-
			-
			-

Signed by one or two trustees on behalf of all the trustees

Signature

Print Name

CCXX R2 accounts (SS)

08/12/2022

2

----- Start of picture text -----
CC16a
----- End of picture text -----

Last year

to the nearest £

2,663 1,601 150 - - - - - 4,414

4,414

146 158 50 - - - - - - 354

354 4,060 - - 4,060

CCXX R3 accounts (SS)

08/12/2022

3

Endowment funds to nearest £ - - - -

OK Endowment funds to nearest £

-

Current value (optional) - - - - -

Current value (optional)

-

When due (optional)

Date of approval

CCXX R4 accounts (SS)

08/12/2022

4

(1) Other- This amount was to settle a complaint with Lloyds bank regardin (2) Badges with logo on - bought in June 2019 and sold to raise funds for

ng customer service. The amount was offered as an apology for this. r charity. Price shown is the cost price as this is current value.