Trustees’ Annual Report for the period
From 14.11.2019 To 02.04.2021
Charity name: HME-The New Generation
Charity registration number: 1186351
Objectives and Activities
| SORP reference |
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|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | The object of the CIO is to preserve and protect good health for the public benefit among persons suffering from Hereditary Multiple Exostoses (HME) their families and other carers, and to relieve needs arising from the condition, in particular but not exclusively by: a) providing support forums, information, practical advice and emotional support for sufferers of HME, their families and other carers. b) raising public awareness of HME through the provision of information designed to inform and educate the general public and the medical profession about the condition. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
‘Those affected by HME’ includes sufferers and anyone with a connection to that person. Facebook closed support group offering emotional support, information and a platform where those affected by the rare condition, HME, can communicate with each other and offer mutual support. Quarterly Zoom meetings for members offering support and interaction. This offers a different platform for sufferers to chat with others and share experiences, offering mutual support and relieves feelings of isolation. Occasional social activity on Zoom for support and interaction. These are based on building camaraderie and friendship for thoseintheHMEcommunity. |
| Sale of badges to raise awareness. Occasional sales are made. Information sheets. For example, it is sometimes helpful for a parent to hand a teacher a booklet with more information about their child’s condition and how this affects their day. Equally an information sheet on HME is often helpful for an employer to understand any special requirements. The charity would in normal circumstances, hold an annual face-to-face meeting for the Group, but this has been postponed due to COVID. This offers guest speakers who either specialise in the condition or offer motivational support. This meeting is also open to members of the public who want to learn more about HME. We have a website which provides information about the condition and signposts to the Facebook Group. |
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|---|---|---|
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | We have planned activities in order to meet the charity’s Objects and in doing so have been mindful of the Charity Commission’s guidance on public benefit. |
Additional information (optional)
You may choose to include further statements where relevant about:
| SORP reference |
||
|---|---|---|
| Policy on grant making | Para 1.38 | |
| Policy on social investment including program related investment |
Para 1.38 | |
| Contribution made by volunteers |
Para 1.38 | The Trustees are all volunteers and are grateful to others who volunteer their time to aid with the work of supporting those affected by HME. |
| Other |
Achievements and Performance
| SORP reference |
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|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | Due to the pandemic, we were unable to hold our annual face to face meeting and turned our support to virtual gatherings on Zoom. These have linked those people affected by HME and reduced feelings of isolation. By sharing experiences, people can learn from and support each other. This has been for all ages. Social interaction with Zoom quiz nights has reinforced this support. It is common for two or more generations of families to join this support network. Our Zoom activities are advertised across European and International HME support groups and everyone is welcome to attend. |
Additional information (optional)
You may choose to include further statements where relevant about:
| Achievements against objectives set |
Para 1.41 | |
| Performance of fundraising activities against objectives set |
Para 1.41 | |
| Investment performance against objectives |
Para 1.41 | |
| Other |
Financial Review
| Review of the charity’s financial position at the end of the period |
Para 1.21 | The charity is in a good financial position at the end of the period. We had lower outgoings then expected due to the Covid- 19 pandemic as we have not been able to hold any face to face meetings for members as it is not safe to do so. We have not been able to plan a future meeting due to the uncertainty of the pandemic but this is reviewed frequently by trustees. Fundraising and donations have continued throughout this time online increasing the amount of funds available to use for future events. |
|---|---|---|
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | Reserves will be held to cover the costs of outgoings such as insurances, zoom membership and any other costs that will be beneficial to the charity in supporting members. |
| Amount of reserves held | Para 1.22 | £350.00 |
| Reasons for holding zero reserves |
Para 1.22 | N/A |
| Details of fund materially in deficit |
Para 1.24 | N/A |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | N/A |
Additional information (optional)
You may choose to include further statements where relevant about:
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | |
|---|---|---|
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | |
| A description of the principal risks facing the charity |
Para 1.46 | |
| Other |
Structure, Governance and Management
| Description of charity’s trusts: |
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|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 |
Constitution dated 11 November 2019 |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | Charitable Incorporated Organisation |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Trustees are appointed or reappointed annually at a Trustees (Members) Meeting held in November. |
Additional information (optional)
You may choose to include further statements where relevant about:
| Policies and procedures adopted for the induction and training of trustees |
Para 1.51 | |
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | |
| Relationship with any related parties |
Para 1.51 | |
| Other | DBS checks are in progress for those Trustees without certificates. There have been difficulties with the online system, but these are being addressed. |
Reference and Administrative details
| Charity name | HME–The New Generation |
|---|---|
| Other name the charity uses | n/a |
| Registered charity number | 1186351 |
| Charity’s principal address | 1 North Place, Headington, Oxford OX3 9HX |
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee (ifany) |
|---|---|---|---|---|
| Helen Small | Chair | |||
| Lynda Tams | Secretary | |||
| Samantha Searle | Treasurer | |||
| Leigh Edwards | ||||
| Kate McEvoy | ||||
| Dawn Searle | ||||
| Rob Searle | ||||
| Adam Tams | ||||
| Jess Wernham | ||||
– Corporate trustees names of the directors at the date the report was approved
Director name n/a
Name of trustees holding title to property belonging to the charity
| Trustee name | Dates acted if not for whole year |
|
|---|---|---|
| n/a | ||
Funds held as custodian trustees on behalf of others
Description of the assets held n/a in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
| Additional information (optional) Names and addresses of advisers (Optional information) |
Additional information (optional) Names and addresses of advisers (Optional information) |
Additional information (optional) Names and addresses of advisers (Optional information) |
|---|---|---|
| Type of adviser Name Address |
||
| n/a | ||
Name of chief executive or names of senior staff members (Optional information)
n/a
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Full name(s) Helen May Small Position (eg Secretary, Chair Chair, etc) Date 20 December 2021
HME - The New Generation
No 1186351
Recei ts and a ments accounts p p y
CC16a
For the period 14/11/2019 02/04/2021 To from
Section A Receipts and payments
| Unrestricted funds |
Restricted funds | Endowment funds |
Total funds | Last year | Last year | ||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| to the nearest | £ | to the nearest £ | to the nearest £ | to the nearest £ | to the nearest £ | ||||||
| A1 Receipts | |||||||||||
| Fundraising | 2,663 | - | - | 2,663 | 3,367 | ||||||
| Donations | 1,601 | - | - | 1,601 | 572 | ||||||
| Other(1) | 150 | - | - | 150 | - | ||||||
| Event income | - | - | - | 2,810 | |||||||
| - | - | - | - | - | |||||||
| - | - | - | - | - | |||||||
| - | - | - | - | - | |||||||
| - | - | - | - | - | |||||||
| Sub total(Gross income for AR) | 4,414 | - | - | 4,414 | 6,749 |
| A2 Asset and investment sales, | |||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| (see table). | |||||||||||
| - | - | - | - | ||||||||
| - | - | - | - | - | |||||||
| Sub total | - | - | - | - | - | ||||||
| Total receipts | 4,414 | - | - | 4,414 | 6,749 | ||||||
| A3 Payments | |||||||||||
| Insurances | 146 | - | - | 146 | 199 | ||||||
| Zoom subscription | 158 | - | - | 158 | - | ||||||
| FundraisingRegulator | 50 | - | - | 50 | - | ||||||
| Event costs/ expenses | - | - | - | - | 4,561 | ||||||
| Badges(for resale) | - | - | - | - | 145 | ||||||
| - | - | - | - | - |
| - | - | - | - | - | |||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| - | - | - | - | - | |||||||
| - | - | - | - | - | |||||||
| **Sub total ** | 354 | - | - | 354 | 4,905 | ||||||
| A4 Asset and investment | |||||||||||
| purchases, (see table) | |||||||||||
| - | - | - | - | ||||||||
| - | - | - | - | ||||||||
| **Sub total ** | - | - | - | - | - | ||||||
| Total payments | 354 | - | - | 354 | 4,905 | ||||||
| Net of receipts/(payments) | 4,060 | - | - | 4,060 | 1,844 | ||||||
| A5 Transfers between funds | - | **- ** | - | - | - | ||||||
| A6 Cash funds last year end | - | - | - | - | - | ||||||
| Cash funds this year end | 4,060 | - | - | 4,060 | 1,844 |
Section B Statement of assets and liabilities at the end of the period
| Categories B1 Cash funds B2 Other monetary assets B3 Investment assets |
Details Bank Details Details Total cash funds (agree balances with receipts and payments account(s)) Badges for sale (number remaining 45) at cost price (2) Details |
Unrestricted funds to nearest £ 4,060 - - 4,060 OK Unrestricted funds to nearest £ 65 - - - - - Fund to which asset belongs Fund to which asset belongs |
Restricted funds to nearest £ - - - - OK Restricted funds to nearest £ - - - - - - Cost (optional) - - - - - Cost (optional) |
Endowment funds to nearest £ |
|---|---|---|---|---|
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| OK | ||||
| Endowment funds to nearest £ |
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| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| Current value (optional) |
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| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| Current value (optional) |
| B4 Assets retained for the | - | - | |||||||
|---|---|---|---|---|---|---|---|---|---|
| charity’s own use | - | - | |||||||
| - | - | ||||||||
| - | - | ||||||||
| - | - | ||||||||
| - | - | ||||||||
| - | - | ||||||||
| - | - | ||||||||
| - | - | ||||||||
| Fund to which | Amount due | When due | |||||||
| Details | liability relates | (optional) | (optional) | ||||||
| B5 Liabilities | - | ||||||||
| - | |||||||||
| - | |||||||||
| - | |||||||||
| - | |||||||||
| Signed by one or two trustees on behalf of all the trustees |
Signature | Name | Date of approval | ||||||
| Helen May Small | 20-Dec-21 | ||||||||
(1) Other- This amount was to settle a complaint with Lloyds bank regarding customer service. The amount was offered as an apology for this. (2) Badges with logo on - bought in June 2019 and sold to raise funds for charity. Price shown is the cost price as this is current value.