# HME - THE NEW GENERATION

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1186351
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Nov. 14, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1186351


## Contact

- **Address:** 9 Conway Drive, BOURNE, Lincolnshire
- **Postcode:** PE10 2BL
- **Phone:** 07891 668149
- **Email:** hmetng@gmail.com
- **Website:** www.hmetng.org.uk



## Activities

**Objects:** THE OBJECT OF THE CIO IS TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT AMONG PERSONS SUFFERING FROM HEREDITARY MULTIPLE EXOSTOSES (HME) THEIR FAMILIES AND OTHER CARERS, AND TO RELIEVE NEEDS ARISING FROM THE CONDITION, IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING SUPPORT FORUMS, INFORMATION, PRACTICAL ADVICE AND EMOTIONAL SUPPORT FOR SUFFERERS OF HME, THEIR FAMILIES AND OTHER CARERS.B) RAISING PUBLIC AWARENESS OF HME THROUGH THE PROVISION OF INFORMATION DESIGNED TO INFORM AND EDUCATE THE GENERAL PUBLIC AND THE MEDICAL PROFESSION ABOUT THE CONDITION.

**Activities:** HME - The New Generation provides support forums for those affected by Hereditary Multiple Exostoses by way of a closed Facebook Group, Zoom get togethers and annual face-to-face meetings.  We also organise occasional social events such as an on-line quiz night.  The charity also provides information about the condition with material available to raise public awareness.




## Classification

- **How:** Provides Advocacy/advice/information, Other Charitable Activities
- **What:** Disability
- **Who:** People With Disabilities, Other Defined Groups



## Geography

- Ireland
- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Robert Paul Searle** | Chair | Sept. 22, 2018 |
| Adam Tamms |  | July 20, 2025 |
| Dawn Patricia Searle |  | Feb. 19, 2018 |
| Hannah Louise Whitelock |  | Dec. 20, 2022 |
| Kate Helen McEvoy |  | Sept. 26, 2019 |
| Lynda Tams |  | Feb. 19, 2018 |
| Minna Johanna Korjonen |  | Dec. 20, 2022 |
| Samantha Louise Searle |  | Oct. 19, 2018 |




