Ch*rlty rng18tratlon numbgr 1186346 Company r•gi•lrntion nwib•r CE019591 (England and Wal•sl ALEXANDER JANSONS MYOCARDITIS UK ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2022 ALEXANDER JANSONS MYOCARDITIS UK LEGAL AND ADMINISTRATIVE INFORMATION Tr￿￿OS MrA Jansons Mrs P Janson$ Mr Tomas Janw Mr t)erak V¥ll* MTS AV4Wst*r Charlty numb•r 1186345 CompHny numbef CE019591 R•gl8tsrgd offic• 13AstatiC￿ Road HP9 1NL Bankors Bwday$ Bank PLC 7 stst*￿ Parade 8uc*inghamshir• HP9 2PH Independent Examlner Ciitth*sAudit LLP 2>38 Hythe Bridge Street Oxford OX12EP ALEXANDER JANSONS MYOCARDITIS UK CONTENTS Pa Tn&8tees' Irwjependenl ex9￿ne¢S repyt Statem￿t of finaKaal acaivib Balance sheet Notes to th6 ffin￿￿ sLitemertg 6-10 ALEXANDER JANSONS MYOCARDITIS UK TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) FOR THE YEAR ENDED 31 DECEMBER 2022 The Trustees, who are also thre¢tO￿ of the charity for the ￿￿POse5 of the c￿laS A& present thelr annual report and the finanria Statem￿ ol Ajexarthr Jansons Myocard￿5 UK for the 12 n￿nthS ended 31$t December 2022. The financial StateM￿ts ¢CAnply with current slatulory rewirements. the dHrity'$ Constitution the wovlsions of the Statement of Recommended Praolice (SORPI a￿lCab￿ to dlaritses prepariNJ thew accounts in accordance wth Ihe Financial ReFKxts'ng Standard apph'catle in the UK and Republic of Ireland {FRS1021. objoct1v￿ •nd o¢tfvl¢l•* Tha objacls olthe dlarty are for the ber*fft to reli￿ the sickn￿. suffewirwj and distress of Ilw)se wr8on8 (and their families) vtho a￿ sUffe1v￿ frorn my(tard￿8 land other *n*aT related Conditi￿). in Parti￿rar bth not linNled to by womotin9 research into the caL*S. diagrK￿lS, tTeatn*rt and prevention of myocardilis. The tharity r8i8e8 fiJThJ$ to ffina￿e reswth in #¢CAJrdm *ilh its o*ts by seekry donation$ and by organisiTrJ fvndral￿ng ￿ents. A¢hlèv•ments and porfrnnc• In 2022 the dwrity raised £139.419 in th)nalions arKI from luThjr￿sln9 £150.000 has been donated to Royal Brompkn Hosw&l to fu￿ r•s￿rth Hi acoxdance *Ailh th• o14eL*V￿. Event in¢ome lotaued £31.377 in 2022 Ththich was made up frryn a rrwsic righ( r(yKfflg. 5 a SKle lootb811 and a charity ball. Flnandal rgvl At 31st December 2022 the tola of wrestrp*d reserves of the char*1 was £70.725. Ml roseN•s wll be dislribthed n acc￿￿3￿ wilh the dbarty's objects￿. Resevves ¥e by the dwty to fund resear¢h iti Myocarthbs. No18¥01 of r•serve$ 4¥e required to ￿ hld as salary ¢ost$ * covered by tnthe **Thticm. Once SLffoent reserves have bJilL a djnalion will be from th• thaiity to The Royal Brornpton Hospital br the purpose of funditvJ their rnsearch into Myr￿aT￿l￿$. structurnp go¥•m#nc• and m•n•g•m•nt THE CHARI Alexander Jar￿nS Myocarthts$ UK ￿ a chwltati￿ IncOr￿ted ckganisalM￿. rngstwed as a (*wity and govemed in aLxtydanc* *ith its c£Thtriukn ¢)n 14th ￿ber 2019. MEMBERS The trustees have Tr) bene￿ interest in the tharity. TNstees meet at not le$$ Ihan w.m(thty intervals to the tharity's perf0M￿nCe and adivilies in oJnne¢ti¢)n wllh its 0tr4'ects. In line with the ¢hariVs Constitution. ts truslees ¥e appcirknl vmbai p￿￿d oftjw Yea￿ and may h re- app)irrted thereafter. Apart from the fiTrt trust￿$. every trustee must b8 appr￿ by the FourKl8r. If the Founder ceases to be a charity trustee. w¢h shal be by resohjt*￿ ofthe d￿rity trusto9s. Mr AJan$on$ Mrs P Jansons Mr Tomas Janson8 Mr Derek Wlsher Mr$ A Wlsher ALEXANDER JANSONS MYOCARDITIS UK TRUSTEES, REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022 PU8UC BENEFIT The Trustees confimi that they have C(rfn￿IQd *Trth the duty in ser*￿ 4 of Part 1 ofthe ChaTiliesAct 2006 to have due regard to PLknli¢ benefft wid*Ke published by the ch￿ C￿lM￿lon in detemmning the ￿￿¥1116$ undertaken by the Charity. Thetru s approved by the Board of Truste•s. MrAJ Tnsstee Dated.. nwn• .G, 203 ALEXANDER JANSONS MYOCARDITIS UK INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF ALEXANDER JANSONS MYOCARDITIS UK I reFth lo the truslges on my exaMN￿￿On of the finan081 Statem￿ of AJexaThJor J￿$(￿8 Myocarditis UK {the charity) for the year ended 31 Decembw 2022. Re•ponJibilitl•s arml basls of report A5 the trustees of the charity (and also its direrknrs for the pwpOS￿ of Conwany t*v) you *• resFthsible for the preparalion of the fin¥na* Statem￿ in *ith thè requirerrnnts of the C￿1parte5 Act 2006 (the 20C6 Act). Having satisfied mysell th* ts financial statements of the charty are rewired to be 4￿JitOd under Part 16 of th8 2006 Ad 8nd are eligible for in￿Pendent examination, I reF#Jt ￿ resFec* of my examination of the ¢haTity's financial statements Carried out uTrXer sectM 145 of Ihe Chanties AL* 2011 {the 2011 A¢tl. In carrying out ry exaMn¥b'on I have follo*wd al the applKatle DI￿tionS given by the Charrty Ccrfnmi8siort undef section 145151(b) of the 2011 A In(knpgndgnt oxamln•ts 8lal•n•nt I have conweted my examination. I c(￿fiM7 that Th) matters have corr* to rffi att•nlp)n in c¥nn8ct*￿ the ¥xamin•ts"on giving me cause to belwe that in any mateiial reskvt a¢¢(xmling records ¥￿e not k•pt in respect of Ihe ch¥ity as r4we(l ty Sec*h￿ 388 ofthe 20C6Ad: or the financial ststemonts do not acc(¥d *ith those r8¢ord$; or th8 fina￿101 Stslemerts do not cLIm￿Y ￿ th• ac¢ounting requremenls of secfion 396 of the 20C6 Act Other than any requiTenRnt that tha ¥¢cwnts gNe a true and fair 71thith is not a matter •$ part of an independent èxaminalion.. or the finanry* stslements have not been wepar•d in a¢£*rd￿ with thè mth$ and prirKyfv of Ihe Statement of Recommende38 Hythe 8rKlge Street Oxft>rd OX12EP 1516123 ALEXANDER JANSONS MYOCARDITIS UK STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOMEAND EXPENDITUREACCOUNT FOR THE YEAR ENDED 31 DECEAIBER 2022 Total Unwostri¢tsd Restrfctod nds 2021 Total funds 2022 2022 2022 2021 2021 Donalion$ and legaaes Othef tradiry activities Other inc(rfn8 18.587 120.852 139.419 41.671 28,649 70.320 31,377 78 31.377 78 8.928 13.262 8,928 13.262 Total Incomo 50.022 120,852 170.874 63.861 28,649 92.510 dlture on: Raistng fuTrJs 10.798 28.653 39.451 12,300 25.059 37.359 Charilatle actiwb•s 74.893 92.199 167.092 1.382 1.382 Total •yndlturn 85.691 120.852 2C6.543 13.682 25.059 38.741 Gross transfers bat4¥8én fvnds M•t (ex￿nditUTeyln¢Qm9 for th• y•arl Net movom•nt in funds 3.590 13.590) (35.069) (35.669) 53.769 53.769 Fund balarKes at 1 Jarwjary 2022 1[￿.394 1￿.394 52.625 52.625 Fund bal•n¢o8 at 31 D•cemboT 2022 70.725 70.725 1Cfj,394 106.394 The stateffent offinancial aL￿￿ Ydud•s am gains loss8s rec4)wised in the year. All inw))• and expen1*￿18 dwi¥e from o)rknuiffj aLli¥ibes. The statement of financi4 ac41¥1￿$ a180 e￿wieS wilh the wirements an and expenditurn a¢￿￿t under the COff￿an1e8AGt 20C6. ALEXANDER JANSONS MYOCARDITIS UK BALANCE SHEET AS AT31 DECEMBER 2022 2022 2021 Dobtorg Cash al bank a￿1 in h¥KI 10 2.387 71.814 3.000 112,108 74.201 115.108 cr￿lIoTS. •mowrt8 f•lllng du• T*Athln ono ￿ar 11 {3.476) (8,714} Nel cuwent assets 70.725 106.394 Income funds Unrestricted funds Designated funds General unrestricted furKIs 13 9,000 97.394 70.725 70.725 ICE,394 70.725 1￿.394 Thg Company 13 entided to the exeiiwf￿ frcth th• 3￿Y1t reqiirem8rt cOntain￿j in Sed*￿ 477 of tho Companies A 2008. for the ye* ended 31 Decwnbw 2022. The directors aC*n¢￿Aedge their ￿$￿SibIlI￿e$ for &)mFtying w7th the requiTemonts of Ihe CC1))par￿es 2006 with resFed to actounb.ng records and the p￿paratiOn offinanaal statement The members have ncrt requwed Iha ¢onyny to obtain an a￿￿1 alits finaTh?al statements for the year in question in aC￿r￿3￿Ce Y+ith secticffi 476. These finartial statem•nts have been wepared n aC(￿d￿ with fl* provisms ￿p1ka￿a to companies S￿￿'eCt to th8 small companies regime. The MrA Jansons Trust•• Company reglstratlon number CE019591 ALEXANDER JANSONS MYOCARDITIS UK NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2022 Accounting pollcl Charfty Informthn Alexandgr Janson8 Myocarfrtis UK is a prrlate tsjmpary Inited by guarantse ino)vporal&J in En9land and Wales. The wstered offK• is 13AStation Road, Beaccfftsfiekl. B￿lI￿)hamshITe. HP9 1NL. 1.1 Accounllng convontlon The financHI stattrwits have teen wepared urthr the historK4 cost oJnv￿￿l￿. and kn accordanc• with the Financial Rewting StaThJards for Smaller Enlili•s leffec*ve April 20081 the Companio$ Ad 2￿)8 and Ihe requirements ofth* StsteThEnl of RewnmwbJed Prac*ice. Aco)Lthg Reporting by Ch*ities {2019). 1.2 Golng ¢oncffii The accounts are prep￿ed on a going conc*m baw* As at the b*nc* sheet date of 31s1 December 2022 thtr ¢haritatAe charity had net assets of £70.725 whth the trustees a)nsider aT8 suffioenl. The only ¢oThnitted spending is for salaries, whKh F$ CX)vered by cmwng th)nations from a trustee. on￿ rese￿e$ have built up a dOna1k￿ is made to fv Royal Brompton Hogytsl. 1.3 Incoming rosOu￿95 Incoming resources are induded in the StaterI￿t d Financial A¢*vrtie5 ¢h* is legally entitled to the income and the amount can be quantified wtih reasonable ac(w. 1,4 ReBources •xp•nd Expenditu￿ Is •crounled for ￿(¥U￿S basis ha8 been dassfvd wKJer heathng$ that a99regate all st related to the cateyy. 1.5 Taxatlon 1.6 Fund acGountlng UnreslTiCted fvnds ￿ be used in aWMda￿ with dwilable obie¢thEs at t1￿ thsueticfft olthe tru$t•es. Restricted funds are thnaled by a truqt•e and are to b& used to (¥Jver Ihe payroll ojsts. kny surplus h) the y•ar is transfeffed to ￿[eStrIcted Wbcome. DonatlonJ and kng•clg• T¢)tal 2022 2022 2021 2021 2021 Don•tion$ and uifts 18,567 120.852 139.419 41.871 28,649 70,320 ALEXANDER JANSONS MYOCARDITIS UK NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022 Oth•r Iradlng acllvltl Unrnstrletod Unrestrict8d fvnd* nds 2022 2021 Fundraisir4J 8vgrrts 31.377 8,928 Oth•r In¢¢m Vnrnstrict•d Unroslrided funds fLmds 2022 2021 Interest Furlough inc*ff 78 13.256 78 13,262 Ral8lng funds funds fuThJs 2022 2022 2021 2021 2021 Indeperbjent examination Bank charges Promotional materias Po¥tage Advertising and promotion bste design arKI maintsnance Fundrai￿n9 Staff fA>sts Tra￿1 expenses 2.100 2.100 1.8 139 1,890 139 3,228 112 112 4.391 4,391 3.838 3.838 28.653 7.0 25.059 28.653 25,059 161 Raising funds 10,798 28.653 39,451 12.3 25.059 37.359 ALEXANDER JANSONS MYOCARDITIS UK NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022 Charftablo actlvili Funds Charitablo donatsd Exwndlture 2022 2022 Total Charitablo 2022 Exp•ndrtur• 2021 Events Donalions to ROY￿ Brunpton Hosptsl 17.OW2 17.092 150.000 1,382 150.0(M) 150.000 17.092 167.092 1.382 150.01)0 17.092 167.092 1.382 Analy818 by fund Unreslrithd fvnds Restricted funds 57.801 92.199 17.092 74.893 2.199 1.382 150,C 17.092 167.092 1,382 NC￿ of the Irustses (or ￿ pws(Th C4)nrwAed them) r•cwved *y rem￿￿a￿n or benefits the charity during the year. EmployoOS The average montNy nurter d￿r￿j th8 ywwas: 2022 Numb•r 2021 Numb•r AdmNiistralbJn Employm•nt ¢￿ts 2022 2021 ges and salari8s 28.653 25.059 Taxation The tharity is exempt frcm tsx on incLYn? and 9wns ￿1r￿j *ilhin section 505 of the Taxes Ad 1988 or $oclion 252 of the Taxatic￿ ol Chargeat4e G•n$ Ad 1992 to the extent that these are applied to rts tharitable object5. ALEXANDER JANSONS MYOCARDITIS UK NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022 2022 2021 Amounts falllng d4* ￿￿thIn on• y•ar. Trade debttrS 2.387 3,000 2.387 3.000 11 Crgdltorn: amounts fallkng duo Thlthln ong y•Ar 2022 2021 12 5.500 3.214 Accruals 3.476 3.476 8,714 12 D•f•rrnd Income 2022 2024 Other deferred ir 5,500 Deferred inc¢yne is i￿1￿jed n the fmancaal slat*Twts as f(h*7￿. 2022 2021 Deferred ino)me is induded Current liati￿tieS 5,500 M¢Nom*tts in the year. Deferred income at 1 January 2022 Released from prewus pwiods Resources d8frrred in the year 5.SOO (s.soo) S.500 Deferred income at 31 Decenknr 2022 5,500 ALEXANDER JANSONS MYOCARDITIS UK NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022 13 D•*lgnated fundB The ftwKls of the charity indude the follrmirwJ (*nated funds vthK* hav8 b88n sol aside oul of unrestricted lunds by the trustees for SFwfic purFfjses: IAo¥omont In furMIs In funds r*KomiNd B•l*K• at Incornbng Balan¢0 at re•ow¢M1 Jam*ry 2022 re¥ourco8 31 D•¢•nth•r 2022 The Royal Brompkn Hospital s.￿0 9.0 (9.0001 9.000 (9.CW) 14 Afta￿ls of netaB8ets lund¥ Total funds 2022 fwd• 2021 2022 2022 2021 2021 Fund balances at 31 December 2022 are repreBented by.. Current asseW(liaililies) 70.725 70.725 1C6,394 106.394 70.725 70.725 106.394 106,394 15 Rolatod party tranmcllo In th8 period. £26,26212021.. £28.6491 was ty trustees aThJ rg*rithd to cbver payrdl costs. No trustees were reimburstrj in the year12021.. One trustee ￿1n￿r$ed £545). 10-