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2024-06-30-accounts

Trustees’ Annual Report for the period

From 01/07/2023 Period start date To 30/06/2024 Period end date

Charity name: ARFID Awareness UK

Charity registration number: 1185468

Objectives and Activities

SORP reference
Summary of the purposes of
the charity as set out in its
governing document		 Para 1.17 For the public benefit within the UK, the promotion and
protection of good health, and the relief of financial
need arising from ill health, among those suffering
from ARFID (Avoidant Restrictive Food Intake
Disorder) (“the condition”).
Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or services
identified in the accounts.		 Para 1.17 and
1.19		 a) raising awareness about the condition within the
medical and associated professions and the general
public in such ways as the trustees shall determine;
b) providing advice and information in such ways as
the trustees shall determine to enable and empower
parents and carers to advocate for the children in their
care who are suffering from the condition;
c) funding research into the condition, the useful
results of which will be published for the public benefit;
d) providing grants of financial assistance to enable
economically disadvantaged families of sufferers of the
condition to obtain necessary treatment and
medication unavailable via the NHS.
e) advancing the education of the public in the subject
of ARFID.
Statement confirming
whether the trustees have
had regard to the guidance		 Para 1.18 We confirm that all trustees have been
issued with the Charity Commission

issued by the Charity Guidelines on Public Benefit via email. Commission on public benefit

Additional information (optional) You may choose to include further statements where relevant about: SORP reference N/A Para 1.38 Policy on grant making N/A Para 1.38 Policy on social investment including program related investment N/A Para 1.38 Contribution made by volunteers N/A Other

Achievements and Performance

SORP reference

Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.		 Para 1.20 With the assistance of a new Social Media administrator
in March 2024 we have been able to post across all social
media 3x’s a week increasing engagement and starting a
new account in Tic Toc. This is in addition to Facebook,
Instagram and our website.
Sept 22 – Continued to employ our first Administrative
Assistant for 1 year until Sep 23 following a National
Lottery Grant of £10,000 in Sept 22. This role was then
undertaken on a voluntary basis.
Continuation of ARFID Awareness Cards
for Restaurants, Events and
Supermarkets to enable those living
with ARFID to have exceptions with
regards to food and drink taken into
and eaten at various venues as well as the Awareness
Card for Schools that enables children to take in
school lunchboxes to raise awareness of
ARFID and stop unnecessary queries
from teachers/lunchtime assistants
about the contents of their lunchbox.
During Eating Disorders Awareness Week Feb 2024 we
added a card for Hospitals to enable those with ARFID to
advocate for themselves to request medication via an
alternative to the oral route which may be difficult for
some. We gave away over 2000 cards during that week
to everyone that requested one.
Ran our first live webinar for free to over 150 parents and
carers in March 2024 allowing questions to be put to our
multidisciplinary team of experts from our Board of
Trustees.
Met with David Simmonds MP regarding ARFID
Awareness and put questions to parliament regarding
their plans for ARFID patient care across the UK.
Entered discussions with Helen Coulthard about
developing a Sensory Toolkit exclusively for ARFID to
enable parents and carers to access immediate support
while on waiting lists for ARFID diagnosis.
Responded for Circa 4000 emails and

posts from families and those living with ARFID to provide first line advice and reference in order to support them obtaining medical advice and/or supporting the ARFID person at home. Continued facilitation of best practice between NHS Trusts and providing connections for them to discuss the implementation of ARFID services for both adults and children. Continued presence at conferences and learning days to raise awareness in the medical community. Continued our partnership with the University of Winchester running the UK’s only ARFID course for health care professionals. Participated in Autistica’s webinar about ARFID which has raised awareness among the community due to the comorbidity between ARFID and Autism. Continued to distribute ‘Luka & The Food Cloud’ - a children’s picture book about ARFID commissioned by Helen Coultard at De Montfort University. The book is available on the ARFID Awareness Shop and is intended to be used to help facilitate discussions about ARFID with children in order to help them feel less isolated and confused about why they are the way that they are. Continue to give away for free ARFID Booklets for educational settings - “For Early Years” and “For Schools” commissioned by the Lancashire and South Cumbria Integrated Care Board (LSCIC). LSCIC are allowing us to distribute the booklets to schools nationally to assist teachers, school staff and pupils as well as their families. Accepted the resignation of one of our Board of Trustees Sarah Mason who retired and recruited Ailish Harrison, Specialist Speech and Language Therapist

to the Board.
Additional information (optional)
You may choose to include further statements where relevant about:
Achievements against
objectives set		 Para 1.41 a) raising awareness about the condition within the
medical and associated professions and the general
public in such ways as the trustees shall determine;
b) providing information and education in such ways
as the trustees shall determine to enable and
empower parents and carers to advocate for the
children in their care who are suffering from the
condition.
Performance of fundraising
activities against objectives
set		 Para 1.41 Continued use of the National Lottery Grant for first paid
employee for 1 year - £10,000.
Investment performance
against objectives		 Para 1.41 N/A
Other

Financial Review

Financial Review
Review of the charity’s
financial position at the end
of the period		 Para 1.21 Accounts reviewed and agreed at Trustee Meetings on
28.09.23, 01.02.24 and 05.09.24 as well as
ongoing review from the Treasurer, James Raymond.
Statement explaining the
policy for holding reserves
stating why they are held		 Para 1.22 The charity is committed to ensuring
that the amount held in reserve is
enough to cover 6 months of overhead running
costs which at present amounts to a
total of £1,500.
Amount of reserves held Para 1.22 £1,500
Reasons for holding zero
reserves		 Para 1.22 N/A
Details of fund materially in
deficit		 Para 1.24 N/A
Explanation of any
uncertainties about the
charity continuing as a going
concern		 Para 1.23 N/A

Additional information (optional)

You may choose to include further statements where relevant about:


The charity’s principal
sources of funds (including
any fundraising)
Para 1.47
Social funding through runs, public
donations, University of Winchester
Course which covers admin costs,
redevelopment costs and reinvestment
into the charity.
Investment policy and
objectives including any
social investment policy
adopted		 Para 1.46 N/A
A description of the principal
risks facing the charity		 Para 1.46

None Other

Structure, Governance and Management

Description of charity’s
trusts:
Type of governing document
(trust deed, royal charter)		 Para 1.25 Trust Deed
How is the charity
constituted?
(e.g unincorporated
association, CIO)		 Para 1.25 CIO
Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees		 Para 1.25 Appointed for their diverse expertise in
the diagnosis and treatment of ARFID.
Our newest Trustee replaced previous trustee who retired
ensuring continuity of input from Speech and Language
Specialist in ARFID. This was after a rigorous recruitment
process and consideration of several excellent
applications. As we look ahead to our next financial year,
further diversification of our Board to include more
individuals with backgrounds other than healthcare, is of
interest including Finance, charity management and those
from the ARFID Community.

Additional information (optional) You may choose to include further statements where relevant about:


Policies and procedures
adopted for the induction and
training of trustees
Para 1.51
Induction Process in place and expected
to sign confidentiality agreement and
declaration of no conflicts of interest. These are reviewed
annually.
The charity’s organisational
structure and any wider
network with which the
charity works		 Para 1.51 Nicole Kirkland; Chair and Co-Founder and Stacey
Lambert Secretary and Co-Founder both have unpaid
Director roles. All other trustees are Board Members
only without Director responsibilities. We have an
accountant, Administrative Assistant and Social Medial
Officer in place.

None. Para 1.51 Relationship with any related parties Other

Reference and Administrative details

Charity name ARFID Awareness UK
Other name the charity uses N/A
Registered charity number 1185468
Charity’s principal address 33 Long Lane
Ickenham, Middlesex
UB10 8QU

Names of the charity trustees who manage the charity

1
2		 Trustee name Office (if any) Dates acted if
not for whole
year		 Name of person (or
body) entitled to
appoint trustee (if
any)
Nicole Kirkland N/A
Stacey Lambert N/A

– Corporate trustees names of the directors at the date the report was approved Director name

N/A

Name of trustees holding title to property belonging to the charity

Trustee name Dates acted if not for whole year
N/A

Funds held as custodian trustees on behalf of others

Description of the assets N/A held in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets

Declarations

The trustees declare that they have approved the trustees’ report above.

----- Start of picture text -----
Signed on behalf of the charity’s trustees
Signature(s)
Full name(s) Nicole Kirkland Stacey Lambert
Position (eg Secretary, Chair Secretary
Chair, etc)
Date
30 March 2025
----- End of picture text -----

Income and Expenditure Summary Arfid Awareness UK Forthe yearended 30 June 2023 I￿1 Income Q667.57 4.442 62 7.868.80 1.472 28B.19 Inte￿il￿¢¢th Grants ID.rthth com￿￿FIel￿[0nE 7,583.70 7J91. Merchandi5eSalL 447.37 T42.58 FbcebookSalp5 2,188. 2￿71.29 5ale5 454.76 Adyè TOtslln(ome 1,197.32 31,632.84 la35&94 T,679.21 11,T53.33 1,4TI85 Costof Sales co￿1$e Foes S.595.00 2,27S. 9.01844 9,016A4 Totslcostofsaies 5,595.0 Ex en5e5 Adverti51nB&Matketing BankFee5 51.05 7&&3 2120 0.42 87. 0.72 LEgal&Piofe5*0nal 750.00 498.QO 3É0.$7 27É.M 52.11 Hotéls iis. 441.91 462.21 50&53 296.14 ITSoltwafeandCon5umbblo5 283.31 7￿.26 201.98 Ju5tGiwngPr(Ke551ng& Bènk Fee5 2.196.Q4 4.001. Postage.F￿lght$C¢Uti￿r 5A5 iB4.35 99.36 4.9ty5.46 231.00 Subs(rlptiDns sub￿St￿n[e 9&0D 6.00 95.20 3.91 AO Web51te 298.90 295. 0.40 loo.00 TOtalE¥penses lQ.368.53 179JO Z,104.80 4.379.14 524JQ Surplu5llDeficitl Is,￿￿.11 13041.021 7,374.19 94&35

Balance Sheet

Arfid Awareness UK As at 30 June 2024

Account Account 30 Jun 2024 30 Jun 2023
Current Assets
Cash at bank and in hand
31,738
29,992
Other debtors
0
670
Total Current Assets
31,738
30,662
Creditors: amounts falling due within oneyear		 31,738
29,992
0
670
Other Creditors
12
210
Total Creditors: amounts falling due with
12
210
Net Current Assets(Liabilities)
31,726
30,452
Total Assets less Current Liabilities
31,726
30,452
Net Assets
31,726
30,452
Capital and Reserves		 12
210
Net Current Assets(Liabilities) 31,726
30,452
Total Assets less Current Liabilities 31,726
30,452
Net Assets 31,726
30,452
Current Year Earnings 1,274
15,669
30,452
14,783
31,726
30,452

Income and Expenditure Summary

Arfid Awareness UK

For the year ended 30 June 2024

Account 2024 2023
Income
Donations 16,491 8,718
Grants 0 10,000
Course Fees 4,570 7,584
Merchandise 5,177 5,330
Total Income 26,238 31,632
Cost of Sales
Course Fees & Subcontractors 8,457 5,595
Merchandise 4,437 2,196
Total Cost of Sales 12,895 7,791
Expenses
Advertising& Marketing 1,410 350
General Office 6,207 1,509
Salaries 3,431 4,995
Insurance 534 442
Legal & Professional 45 750
Travel 213 95
Donations 228 30
Bank Fees 1 1
Total Expenses 12,069 8,172
Surplus /(Deficit) 1,274 15,669

Independent examiner's report on the accounts

Section A

Independent Examiner’s Report

Report to the trustees/ members of

Charity Name ARFID AWARENESS UK

On accounts for the year 30 June 2024 ended

Charity no 1185468 (if any)

Set out on pages

(remember to include the page numbers of additional sheets)

I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended DD / MM / YYYY 30/06/2024 .

Responsibilities and As the charity trustees of the Trust, you are responsible for the preparation basis of report of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).

I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent examiner's statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect:

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached.

~~01/04/2025~~ Signed: Date: Name: Inna Baldwin Relevant professional ACCA qualification(s) or body (if any): Address: 85 High Street Tunbridge Wells TN1 1XP

October 2018

1

IER

Section B Disclosure

Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).

Give here brief details of any items that the examiner wishes to disclose .

October 2018

2

IER