Trustees’ Annual Report for the period
From 01/07/ 2022 Period start date To 30/06/2023 Period end date
Charity name: ARFID Awareness UK
Charity registration number: 1185468
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | For the public benefit within the UK, the promotion and protection of good health, and the relief of financial need arising from ill health, among those suffering from ARFID (Avoidant Restrictive Food Intake Disorder) (“the condition”). |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
a) raising awareness about the condition within the medical and associated professions and the general public in such ways as the trustees shall determine; b) providing advice and information in such ways as the trustees shall determine to enable and empower parents and carers to advocate for the children in their care who are suffering from the condition; c) funding research into the condition, the useful results of which will be published for the public benefit; d) providing grants of financial assistance to enable economically disadvantaged families of sufferers of the condition to obtain necessary treatment and medication unavailable via the NHS. e) advancing the education of the public in the subject of ARFID. |
| Statement confirming whether the trustees have had regard to the guidance |
Para 1.18 | We confirm that all trustees have been issued with the Charity Commission |
issued by the Charity Guidelines on Public Benefit via email Commission on public on 30 April 2023. benefit
Additional information (optional) You may choose to include further statements where relevant about:
SORP reference N/A Para 1.38 Policy on grant making N/A Para 1.38 Policy on social investment including program related investment N/A Para 1.38 Contribution made by volunteers N/A Other
Achievements and Performance
SORP reference
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | Sept 22 - Awarded £10,000 grant from the National Lottery for first salaried position for Administrative Assistance for 1 year. Continuation of ARFID Awareness Cards for Restaurants, Events and SuperMarkets to enable those living with ARFID to have exceptions with regards to food and drink taken into and eaten at various venues as well as the Awareness Card for Schools that enables children to take in their school lunchboxes to raise awareness of ARFID and stop unnecessary queries from teachers/lunchtime assistants about the contents of their lunchbox. Responded for Circa 2000 emails and posts from families and those living with ARFID to provide first line advice and reference in order to support them obtaining medical advice and/or supporting the ARFID person at home. Continued facilitation of best practice between NHS Trusts and providing connections for them to discuss the implementation of ARFID services for both adults and children. Continued presence at conferences and learning days to raise awareness in the medical community. Updated our online CPD accredited training course |
||
|---|---|---|---|---|
‘Introduction to ARFID’ for healthcare professionals in partnership with the University of Winchester with the most up-to-date research. Continued involvement in the British Dietetics’ Association’s publication of a Position on ARFID raising awareness among the medical community and enhancing the experience of those seeking support via dieticians within the UK for ARFID. Helped with the editing and finalisation, as well as launch of ‘Luka & The Food Cloud’ - a children’s picture book about ARFID commissioned by Helen Coultard at DeMontfort University. The book is available on Amazon and is intended to be used to help facilitate discussions about ARFID with children in order to help them feel less isolated and confused about why they are the way that they are. Finalised and launched two ARFID Booklets for educational settings - “For Early Years” and “For Schools” commissioned by the Lancashire and South Cumbria Integrated Care Board (LSCIC). LSCIC are allowing us to distribute the booklets to schools nationally to assist teachers, school staff and pupils as well as their families. Accepted the resignation of one of our Board of Trustees and welcomed another who also took on the responsibility of Treasurer.
Additional information (optional) You may choose to include further statements where relevant about:
| Achievements against objectives set |
Achievements against objectives set |
Para 1.41 | a) raising awareness about the condition within the medical and associated professions and the general public in such ways as the trustees shall determine; b) providing information and education in such ways as the trustees shall determine to enable and empower parents and carers to advocate for the children in their care who are suffering from the condition. |
|---|---|---|---|
Performance of fundraising activities against objectives Continued use of the National Lottery Grant for first paid set Para 1.41 employee for 1 year - £10,000. N/A Investment performance against objectives Para 1.41 Other
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | Reviewed at Trustee Meeting on 07.09.22 and 12.01.23 as well as ongoing review from the Treasurer. |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | The charity is committed to ensuring that the amount held in reserve is enough to cover 6 months of overhead running costs which at present amounts to a total of £1,000. |
| Amount of reserves held | Para 1.22 | £1,000 |
| Reasons for holding zero reserves |
Para 1.22 | N/A |
| Details of fund materially in deficit |
Para 1.24 | N/A |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | N/A |
Additional information (optional)
You may choose to include further statements where relevant about:
The charity’s principal sources of funds (including any fundraising) |
Para 1.47 |
Social funding through runs, public donations, University of Winchester Course which covers admin costs, redevelopment costs and reinvestment into the charity. |
|---|---|---|
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | N/A |
| A description of the principal risks facing the charity |
Para 1.46 |
None Other
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | Trust Deed |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | CIO |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Appointed for their diverse expertise in the diagnosis and treatment of ARFID. Our newest Trustee and Treasurer has a financial background. He was appointed via recommendation and agreement of the rest of the board. As we look ahead to our next financial year, further diversification of our Board to include more individuals with backgrounds other than healthcare, is of interest. |
Additional information (optional) You may choose to include further statements where relevant about:
Policies and procedures adopted for the induction and training of trustees |
Para 1.51 |
Induction Process in place and expected to sign confidentiality agreement and declaration of no conflicts of interest. |
|---|---|---|
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | Nicole Kirkland; Chair and Co-Founder and Stacey Lambert Secretary and Co-Founder both have Director roles. All other trustees are Board Members only without Director responsibilities. |
| Relationship with any related parties |
Para 1.51 | None. |
|---|---|---|
| Other |
Reference and Administrative details
| Charity name | ARFID Awareness UK |
|---|---|
| Other name the charity uses | N/A |
| Registered charity number | 1185468 |
| Charity’s principal address | 33 Long Lane Ickenham, Middlesex UB10 8QU |
Names of the charity trustees who manage the charity
| 1 2 |
Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee (if any) |
|---|---|---|---|---|
| Nicole Kirkland | N/A | |||
| Stacey Lambert | N/A |
– Corporate trustees names of the directors at the date the report was approved Director name
N/A
Name of trustees holding title to property belonging to the charity
| Trustee name | Dates acted if not for whole year | |
|---|---|---|
| N/A | ||
Funds held as custodian trustees on behalf of others
Description of the assets N/A held in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees Signature(s) Full name(s) Nicole Kirkland Stacey Lambert Position (eg Chair Secretary Secretary, Chair, etc) Date 27.04.24
Income and Expenditure Summary Arfid Awareness UK Forthe yearended 30 June 2023 I1 Income Q667.57 4.442 62 7.868.80 1.472 28B.19 Inteil¢¢th Grants ID.rthth comFIel[0nE 7,583.70 7J91. Merchandi5eSalL 447.37 T42.58 FbcebookSalp5 2,188. 271.29 5ale5 454.76 Adyè TOtslln(ome 1,197.32 31,632.84 la35&94 T,679.21 11,T53.33 1,4TI85 Costof Sales co1$e Foes S.595.00 2,27S. 9.01844 9,016A4 Totslcostofsaies 5,595.0 Ex en5e5 Adverti51nB&Matketing BankFee5 51.05 7&&3 2120 0.42 87. 0.72 LEgal&Piofe5*0nal 750.00 498.QO 3É0.$7 27É.M 52.11 Hotéls iis. 441.91 462.21 50&53 296.14 ITSoltwafeandCon5umbblo5 283.31 7.26 201.98 Ju5tGiwngPr(Ke551ng& Bènk Fee5 2.196.Q4 4.001. Postage.Flght$C¢Utir 5A5 iB4.35 99.36 4.9ty5.46 231.00 Subs(rlptiDns subStn[e 9&0D 6.00 95.20 3.91 AO Web51te 298.90 295. 0.40 loo.00 TOtalE¥penses lQ.368.53 179JO Z,104.80 4.379.14 524JQ Surplu5llDeficitl Is,.11 13041.021 7,374.19 94&35
Income and Expenditure Summary
Arfid Awareness UK
For the year ended 30 June 2023
| 2023 | 2022 | 2021 | 2020 | 2019 | |
|---|---|---|---|---|---|
| Income | |||||
| Donations | 8,667.57 | 7,120.19 | 4,442.62 | 7,868.80 | 1,472.80 |
| Fundraiser | 50.22 | 288.19 | 59.42 | 3,141.51 | - |
| Interest Income | - | - | - | 0.44 | 0.05 |
| Grants | 10,000.00 | - | - | - | - |
| Course Fee Income | 7,583.70 | 7,391.00 | - | - | - |
| Merchandise Sales | - | - | 447.37 | 742.58 | - |
| Facebook Sales | 1,752.87 | 2,188.00 | 2,671.29 | - | - |
| Amazon Sales | 454.76 | 172.24 | 58.52 | - | - |
| Adyen | 3,123.72 | 1,197.32 | - | - | - |
| Total Income | 31,632.84 | 18,356.94 | 7,679.22 | 11,753.33 | 1,472.85 |
| Cost of Sales | |||||
| Course Fees | 5,595.00 | 2,275.00 | 9,016.44 | - | - |
| Total Cost of Sales | 5,595.00 | 2,275.00 | 9,016.44 | - | - |
| Expenses | |||||
| Advertising & Marketing | 51.05 | 76.83 | 222.20 | 800.42 | 87.60 |
| Bank Fees | 0.72 | 0.62 | - | - | - |
| Charitable and Political Donations | 30.00 | - | - | - | - |
| Legal & Professional | 750.00 | - | - | 498.00 | - |
| General Office | 528.12 | - | - | - | - |
| GSuite | 360.97 | 276.00 | 274.89 | 181.14 | 52.11 |
| Hotels | - | - | - | 316.00 | 115.00 |
| Insurance | 441.91 | 462.21 | 508.53 | 296.14 | - |
| IT Software and Consumables | 283.31 | 753.26 | 201.98 | - | - |
| Just Giving Processing & Bank Fees | - | - | 1.95 | 125.98 | - |
| Merchandise | 2,196.04 | 4,001.00 | 173.61 | 815.65 | - |
| Postage, Freight & Courier | 5.85 | 184.35 | 99.36 | 169.50 | 62.39 |
| Salaries | 4,995.46 | - | - | - | - |
| Subscriptions | 231.00 | 129.60 | 96.00 | 6.00 | - |
| Subsistence | - | - | - | 116.00 | 40.40 |
| Travel - National | 95.20 | - | - | 823.91 | 79.40 |
| Website | 298.90 | 295.63 | 526.28 | 230.40 | 87.60 |
| Fines | 100.00 | - | - | - | - |
| Total Expenses | 10,368.53 | 6,179.50 | 2,104.80 | 4,379.14 | 524.50 |
| Surplus / (Deficit) | 15,669.31 | 9,902.44 | (3,442.02) | 7,374.19 | 948.35 |
Income and Expenditure Summary Arfid Awareness UK
26 Sep 2023 Page 1 of 1
Independent examiner's report on the accounts
Section A Independent Examiner’s Report Report to the trustees Charity Name ARFID AWARENESS UK On accounts for the year Charity no ended 30 JUNE 2023 (if any) 1185468 Set out on pages (remember to include the page numbers of additional sheets) I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended DD / MM / YYYY 30 06 2023 . Responsibilities and As the charity's trustees, you are responsible for the preparation of the basis of report accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent [The charity’s gross income exceeded £25,000 and I am qualified to examiner's statement undertake the examination by being a qualified member of ACCA
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect:
-
the accounting records were not kept in accordance with section 130 of the Charities Act; or
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the accounts did not accord with the accounting records; or
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the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
| Signed: Name: Relevant professional qualification(s) or body |
Date: | |
|---|---|---|
| 29/04/2024 | ||
| Violet Karamagi | ||
| ACCA |
Oct 2018
1
IER
| (if any): Address: |
|
|---|---|
| 32 Norbury Cross, London, SW16 4JQ | |
Section B Disclosure
Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
Give here brief details of any items that the examiner wishes to disclose .
Oct 2018
2
IER