Trustees’ annual report
Charity name[Charity No (if any) : ] 1185468
Period start date Period end date 01/07/2021 - 30/06/2022
ARFID AWARENESS UK
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SORP
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Summary of the Para 1.17 For the public benefit within the UK, the
purposes of the charity promotion and protection of good
as set out in its health, and the relief of financial need
governing document arising from ill health, among those
suffering from ARFID (Avoidant
Restrictive Food Intake Disorder) (“the
condition”).
Summary of the main Para a) Raising awareness about the
activities in relation to 1.17 and condition within the medical and
those purposes for the 1.19 associated professions and the general
public benefit, in public in such ways as the trustees
particular, shall determine;
the activities, projects or b) providing advice an information in
services identified in the such ways as the trustees shall
accounts. determine to enable an empower
parents an carers to advocate for the
children in their care who are suffering
with the condition
c) funding research into the condition,
the useful results of which will be
published for the public benefit
d) Providing grants of financial
assistance to enable economically
disadvantaged families of sufferers of
the condition to obtain necessary
treatment and medication unavailable
via the NHS.
e) advancing the education of the
public in the subject of A FI R D.
Statement confirming Para 1.18 We confirm that all trustees have been
whether the trustees issued with the Charity Commission
have had regard to the Guidelines on Public Benefit via email
guidance issued by the on 30 April 2023.
Charity Commission on
public benefit
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Additional information (optional)
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SORP N/A
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Policy on grant making Para 1.38 N/A
Policy on social investment Para 1.38 N/A
including program related
investment
Contribution made by Para 1.38 N/A
volunteers
Other N/A
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Summary of the main Para 1.20 Sept 22 - Awarded £10,000 grant from
achievements of the the National Lottery for first salaried
charity, identifying the position for Administrative Assistance
difference the charity’s for 1 year.
work has made to the
circumstances of its Introduction of ARFID Awareness Cards
beneficiaries and any wider for Schools for children to take in their
benefits to society as a school lunchboxes to raise awareness of
whole. ARFID and stop unnecessary queries
from teachers/lunchtime assistants
about the contents of their lunchbox.
Continuation of ARFID Awareness Cards
for Restaurants, Events and
SuperMarkets to enable those living
with ARFID to have exceptions with
regards to food and drink taken into
and eaten at various venues.
Responded for Circa 500 emails and
posts from families and those living
with ARFID to provide first line advice
and reference in order to support them
obtaining medical advice and/or
supporting the ARFID person at home.
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Facilitating best practice between NHS Trusts and providing connections for them to discuss the implementation of ARFID services for both adults and children. Continued presence at conferences and learning days to raise awareness in the medical community. Continued success with our online CPD accredited training course ‘Introduction to ARFID’ for healthcare professionals in partnership with the University of Winchester Involvement in the British Dietetics’ Association’s publication of a Position on ARFID raising awareness among the medical community and enhancing the experience of those seeking support via dieticians within the UK for ARFID. Working with Helen Coultard at DE Montfort University to have a children's picture book on ARFID written. This will be published for children to feel less isolated and in order to open discussions within the nursery and school settings. There is nothing like this currently within the UK and it is essential children have a reference point for their experiences. Signing an agreement with 'RunforCharity' to enable us to secure places in some of the UK's most soughtafter fundraising runs. Creation of an ARFID For Schools pamphlet with accreditation from ARFID Awareness UK which will be available to schools nationally to assist teachers, school staff and pupils as well as their families. Partnership with Danone/Nutricia to create an informational leaflet on ARFID for Specialist Dietitians
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Opening up conversation with local
MP’s to further the research and
awareness of ARFID. Building network
connections and discussions around
implementing a working group in
parliament.
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Achievements against Para 1.41 A) Raising awareness within the
objectives set medical community and public
achieved through the book
publications and Winchester
University Course
B) Supporting families with the
ARFID Awareness Cards and
online/email assistance.
Performance of fundraising Para 1.41 National Lottery Grant for first paid
activities against employee for 1 year - £10,000.
objectives set
Investment Para 1.41 N/A
performance against
objectives
Other
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Review of the charity’s Para 1.21 Reviewed at Trustee Meeting on
financial position at 07.09.22 and 12.01.23 as well as
the end of the period ongoing review from the Treasurer.
Statement explaining the Para 1.22 The charity is committed to ensuring
policy for holding that the amount held in reserve is
reserves stating why they enough to cover 6 months of running
are held costs which at present amounts to a
total of £777, 50. This total also
includes the grant for salary of
Administrative Assistant for 1 year.
New 3 year strategy to be developed
on the basis that we now have clear
funds for implementing the UK’s first
ARFID Conference and also the
possibility of subsidizing ARFID families
during the cost of living crisis.
Amount of reserves held Para 1.22 14,782.96
Reasons for holding zero Para 1.22 N/A
reserves
Details of fund materially in Para 1.24 N/A
deficit
Explanation of any Para 1.23 N/A
uncertainties about the
charity continuing as a
going concern
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The charity’s principal Para 1.47 Social funding through runs, public
sources of funds donations, University of Winchester
(including any Course which covers admin costs,
fundraising) redevelopment costs and reinvestment
into the charity.
Investment policy and Para 1.46 N/A
objectives including any
social investment policy
adopted
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A description of the Para 1.46 N/A
principal risks facing the
charity
Other
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Description of charity’s SORP
trusts: reference
Type of governing Para 1.25 Trust Deed
document (trust
deed, royal charter)
How is the charity Para 1.25 CIO
constituted? (e.g
unincorporated
association, CIO)
Trustee selection methods Para 1.25 Appointed for their diverse expertise in
including details of any the diagnosis and treatment of ARFID.
constitutional New Trustees with financial background
provisions e.g. election and NHS ARFID experience have
to post or name of any recently been appointed. All appointed
person or body via recommendation and agreement of
entitled to appoint one the rest of the board.
or more trustees
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Policies and procedures Para 1.51 Induction Process in place and expected
adopted for the induction to sign confidentiality agreement and
and training of trustees declaration of no conflicts of interest.
The charity’s organisational Para 1.51 Nicole Kirkland and Stacey Lambert are
structure and any wider co-founders and Trustees, all other
network with which the Trustees are board members only. One
charity works paid employee for 1 year -
Administrative Assistant
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Relationship with any Para 1.51 Motion accountancy is responsible for
related parties filing the annual tax returns of Nicole
Kirkland Ltd.
Other
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Charity name ARFID AWARENESS UK
Other name the charity
uses
Registered charity number 1185468
Charity’s principal address 33 Long Lane, Ickenham, UB10 8QU
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Names of the charity trustees who manage
the charity
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Trustee name Office (if any) Dates acted if Name of person (or
not for whole body) entitled to
year appoint trustee (if
any)
James Raymond Treasurer June 2023 to date
Nicole Kirkland Chair 2022/23
Rosan Meyer N/A 2022/23
Gillian Harris N/A 2022/23
Sarah Mason N/A 2022/23
Claire Fenton N/A 2022/23
Stacey Lambert Secretary 2022/23
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Corporate trustees – names of the directors at the date the report was approved
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Director name
custodian trustees on behalf of others
Description of the assets N/A
held in this capacity
Name and objects of the N/A
charity on whose behalf
the assets are held and
how this falls within the
custodian charity’s
objects
Details of arrangements N/A
for safe custody and
segregation of such
assets from the charity’s
own assets
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Additional information (optional)
Names and addresses of advisers (Optional information)
Type of adviser Name Address
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
N/A
Other optional information
N/A
The trustees declare that they
have approved the trustees’ report above. Signed on behalf of the charity’s trustees
Declarations The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees Signature(s) Full name(s) Nicole Kirkland
Secretary, Chair, etc) Chair Secretary
Stacey Lambert Position (eg
Balance Sheet
Arfid Awareness UK
As at 30 June 2022
| Account | 30 Jun 2022 | 30 Jun 2021 | |
|---|---|---|---|
| Current Assets | |||
| Cash at bank and in hand | |||
| Arfid Awareness UK | 14,240.05 | 4,052.31 | |
| Mrs Nicole M Kirkland c/o AAUK | 0.79 | 0.79 | |
| Total Cash at bank and in hand | 14,240.84 | 4,053.10 | |
| Other debtors | 542.12 | 827.42 | |
| Total Current Assets | 14,782.96 | 4,880.52 | |
| Creditors: amounts falling due withinone year | |||
| Other creditors | 0.00 | 0.00 | |
| Total Creditors: amounts falling due within o | 0.00 | 0.00 | |
| Net Current Assets(Liabilities) | 14,782.96 | 4,880.52 | |
| Total Assets less Current Liabilities | 14,782.96 | 4,880.52 | |
| Net Assets | 14,782.96 | 4,880.52 | |
| Capital and Reserves | |||
| Retained Earnings | 14,782.96 | 4,880.52 | |
| Total Capital and Reserves | 14,782.96 | 4,880.52 |