Charity Registration No. 1185307
Company Registration No. 12038212 (England and Wales)
THE DARBY RIMMER MND FOUNDATION
ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2025
THE DARBY RIMMER MND FOUNDATION
LEGAL AND ADMINISTRATIVE INFORMATION
| Trustees | M Buck | |
|---|---|---|
| J Currie | ||
| J Garrett | ||
| M Hovell | ||
| L Stewart | ||
| Country of incorporation | United Kingdom | 12038212 |
| (England and Wales) | ||
| Charity registration | England and Wales | 1185307 |
| Registered office | 2 Cedar Court | |
| South Hetton | ||
| Durham | ||
| DH6 2TE | ||
| Independent examiner | Mark Turner FCA | |
| 1 Worsley Court | ||
| High Street | ||
| Worsley | ||
| Manchester | ||
| M28 3NJ |
THE DARBY RIMMER MND FOUNDATION
CONTENTS
| Page | |
|---|---|
| Trustees' report | 1 - 5 |
| Independent examiner's report | 6 |
| Statement of financial activities | 7 |
| Balance sheet | 8 |
| Notes to the financial statements | 9 - 12 |
THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) FOR THE YEAR ENDED 30 JUNE 2025
The Trustees present their annual report and financial statements for the year ended 30 June 2025.
The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the Foundation's governing document, the Companies Act 2006 and "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)".
Objectives and activities
Objectives
The objectives of the Foundation are for the benefit of the public generally:
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to promote any purpose which is exclusively charitable according to the laws of England and Wales; and
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for the general purposes of such charitable bodies as the Trustees may from time to time decide;
and, in particular, but without prejudice to the generality of the foregoing:
To promote and protect health, including (but not restricted to) by:
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the provision of support, assistance and information to people affected, whether directly or indirectly, by motor neurone disease;
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the promotion of research into the nature, causes, diagnosis, prevention, treatment and cure of motor neurone disease and the publication of the useful results of such research; and
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to relieve the suffering of persons affected by debilitating, life threatening or terminal illnesses through the provision of financial assistance and such other support as the Trustees think fit.
Activities
The main source of fundraising in the accounting period was the March of the Day II event, with a large group of core charity supporters with support from, the general public walking from Wembley to Ipswich Town Football Club in March 2025.
Other fundraising activities in the period included fundraising golf days, supporters running marathons and half marathons, charity evenings and ad-hoc individual fundraising challenges.
Structure, governance and management
The Foundation is a company limited by guarantee.
Recruitment and appointment of trustees
The Trustees, who are also the directors for the purpose of company law, and who served during the year and up to the date of signature of the financial statements were:
M Buck J Currie J Garrett M Hovell L Stewart
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2025
The Foundation recognises that an effective board of trustees is essential to the charity achieving its objectives. The Foundation should seek to have a board that is representative of the people with whom the charity works and should have a balance of the knowledge and skills required to run the charity. Individual trustees must have sufficient knowledge to enable them to carry out their role and to represent the charity at meetings and events.
Whenever a Trustee departs, a skills audit of the board will be done. Efforts at recruiting a replacement will take account of the skills audit and of the skills being lost by the departure. Consideration must also be given to any specific roles or duties that the individual leaving the board was undertaking.
Where a need has been identified to recruit Trustees, the existing board of Trustees will manage the process. This group has responsibility for ensuring that the recruitment and induction process is carried out. This includes ensuring that new Trustees have a clear understanding of the aims and objectives of the Foundation and of their responsibilities as a trustee.
Trustees for the Foundation offer their time on a voluntary basis.
None of the Trustees has any beneficial interest in the Foundation, however all of the Trustees are members of the Foundation and guarantee to contribute £1 in the event of a winding up.
The Foundation’s current policy concerning the payment of trade creditors is to follow the CBI’s Prompt Payers Code (copies are available from the CBI, Centre Point, 103 New Oxford Street, London, WC1A 1DU).
The Foundation’s current policy concerning the payment of trade creditors is to:
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settle the terms of payment with suppliers when agreeing the terms of each transaction;
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ensure that suppliers are made aware of the terms of payment by inclusion of the relevant terms in contracts: and
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pay in accordance with the company’s contractual and other legal obligations.
Public Benefit Statement
The Trustees confirm that they have complied with the requirements of section 17 of the Charities Act 2011 to have due regard to the public benefit guidance published by the Charity Commission for England and Wales.
Achievements and performance
Financial Review
It is the policy of the Foundation that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to between three and six-months expenditure. The Trustees considers the reserves at this level will ensure that, in the event of a significant drop in funding, they will be able to continue the Foundation’s current activities while consideration is given to ways in which additional funds may be raised. At the year end, the Foundation’s level of reserves was higher than anticipated. The Foundation has made a number of commitments to support research projects, however, these projects have all commenced but not been invoiced for payment at the point of the year end.
The Trustees have assessed the major risks to which the Foundation is exposed and are satisfied that systems are in place to mitigate exposure to the major risks.
Donations
The charity made a sixth donation of £50,000 in this reporting period, extending from its initial three-year commitment to support the Motor Neurone Disease Association into a fifth year. Darby Rimmer MND Foundation total contributions to the Motor Neurone Disease Association now total £300,000. The monies donated to the Motor Neurone Disease Association are for specific support to care grants for motor neurone disease sufferers and their families. This funding level is matched by the Motor Neurone Disease Association.
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2025
The Motor Neurone Disease Association
The Motor Neurone Disease Association (MND Association) is a British charity, operating in England, Wales and Northern Ireland, established in 1979 by a group of volunteers to coordinate care, support, and research for people affected by amyotrophic lateral sclerosis, which is a form of motor neurone disease (MND) (also known as Charcot disease, ALS or, in the United States, Lou Gehrig's disease).
The Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by Motor Neurone Disease. It is a membership organisation with over 9,000 members forming a national and local network that provides information and support alongside fighting for improved services. It has over 7,000 active volunteers in England, Wales and Northern Ireland and around 170 paid staff, whose specialist skills and knowledge are dedicated to improving the lives of people affected by MND.
The Darby Rimmer MND Foundation supports the MNDA Care Grants Programme. The first £250 of each Support Grant covered within the partnership is provided from the funds granted by the Foundation. For children and Young Persons grants the first £125 is provided from funds granted by the Foundation. The balance of funds up to the maximum available is then provided by the MND Association. The MND Association also covers all the programmes overhead costs.
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2025
During the period 01/09/2024 – 31/08/2025, to which the Darby Rimmer MND Foundation provided a supporting gift of £50,000, the following grants were provided to people living with MND:
| Grant Type | Support Care (riser recliners) | Support Care (riser recliners) | Children & Young Persons | Children & Young Persons | |
|---|---|---|---|---|---|
| Number of beneficiaries |
146 |
108 | |||
| Total value of support (MND Association) |
£131,738 |
£26,817 | |||
| DRF Contribution |
£36,500 | £13,500 | |||
| Age breakdown (years) |
31–40: | 1 | 31–40: | 7 | |
| 41–50: | 7 | 41–50: | 51 | ||
| 51–60: | 26 | 51–60: | 40 | ||
| 61–70: | 42 | 61–70: | 6 | ||
| 71–80: | 50 | 71–80: | 4 | ||
| 81–90: | 18 | 81–90: | 0 | ||
| 90+: | 1 | 90+: | 0 | ||
| Unknown: | 1 | Unknown: | 0 | ||
| Gender split | Male | 79 | Male | 77 | |
| Female | 54 | Female | 29 | ||
| Prefer not to say | 13 | Prefer not to say | 2 | ||
| Ethnicity breakdown |
English/Welsh/Scottish/Northern Irish/British |
95 | English/Welsh/Scottish/Northern Irish/British |
65 | |
| Irish | 1 | Irish | 2 | ||
| Other White | 1 | Other White | 2 | ||
| Indian | 2 | Indian | 0 | ||
| Other Asian | 1 | Other Asian | 6 | ||
| Bangladeshi | 0 | Bangladeshi | 2 | ||
| Other Black/African/Caribbean | 1 | Other Black/African/Caribbean | 15 | ||
| Other Ethnic Group | 1 | Other Ethnic Group | 3 | ||
| Prefer not to say | 44 | Prefer not to say | 23 |
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2025
Research Grants
During the accounting period the following research projects have received grants from the Darby Rimmer MND Foundation:
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The charity made donations of £88,674.75 for the research into ‘Integration of Epigenetic Profile in MND Clinical Trials Design’, with a funding grant agreed to the level of £88,674.75.
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The charity made donations of £16,874.47 for the research into ‘Investigating The Role of Mitochondrial Variants in Amyotrophic Lateral Sclerosis’, with a funding grant agreed to the level of £102,399.48.
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The charity made donations of £53,240.21 for the research into Target Identification of Oxidative Stress Response-Modifying Drugs in an ESC-Derived Motor Neuron Model of ALS, with a funding grant agreed to the level of £79,991.29.
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The charity made donations of £4,769.66.47 for the research into ‘From Biology to Quality of Life In Motor Neurone Disease’, with a funding grant agreed to the level of £178,814.87.
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The Foundation contributed a third of funding (£17,507.11) along with matched contributions by the My Name Is Doddie Foundation and the Motor Neurone Association towards the ‘Motor Neurone Disease and Football Study’.
The Trustees of the Darby Rimmer MND Foundation previously agreed to fund the following research project grants, that commenced during the next accounting period:
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Non-invasive monitoring of human motoneuron properties in Amyotrophic Lateral Sclerosis progression, with a grant totalling £137,257.00 over a 24-month term.
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Validation of novel drug candidates focused on restoring protein homeostasis in C9ALS/FTD, with a grant totalling £156,863.00 over a 24-month term.
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Investigating The Roles Of SCFD1 And G2E3 In ALS with a grant totalling £155,610.59 over an 18month period.
Chris Rimmer Grant
The Foundation awarded the second Chris Rimmer grant in memory of founder, Chris. A care grant of £10,000 was made to Mrs Sally Harwin, following a selection process completed by the Motor Neurone Disease Association.
The Trustees' report was approved by the Board of Trustees.
J Currie
Trustee Dated: 31 March 2026
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THE DARBY RIMMER MND FOUNDATION
INDEPENDENT EXAMINER'S REPORT
TO THE TRUSTEES OF THE DARBY RIMMER MND FOUNDATION
I report to the Trustees on my examination of the financial statements of The Darby Rimmer MND Foundation (the Foundation) for the year ended 30 June 2025.
Responsibilities and basis of report
As the Trustees of the Foundation (and also its directors for the purposes of company law), you are responsible for the preparation of the financial statements in accordance with the requirements of the Companies Act 2006.
Having satisfied myself that the financial statements of the Foundation are not required to be audited under Part 16 of the Companies Act 2006 and are eligible for independent examination, I report in respect of my examination of the Foundation’s financial statements carried out under section 145 of the Charities Act 2011. In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the Charities Act 2011.
Independent examiner's statement
Since the Foundation’s gross income exceeded £250,000, the independent examiner must be a member of a body listed in section 145 of the Charities Act 2011. I confirm that I am qualified to undertake the examination because I am a member of ICAEW, which is one of the listed bodies.
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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1 accounting records were not kept in respect of the Foundation as required by section 386 of the Companies Act 2006.
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2 the financial statements do not accord with those records; or
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3 the financial statements do not comply with the accounting requirements of section 396 of the Companies Act 2006 other than any requirement that the financial statements give a true and fair view, which is not a matter considered as part of an independent examination; or
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4 the financial statements have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their financial statements in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102).
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.
Mark Turner FCA
1 Worsley Court High Street Worsley Manchester M28 3NJ 31 March 2026
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THE DARBY RIMMER MND FOUNDATION
STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT
FOR THE YEAR ENDED 30 JUNE 2025
| Unrestricted | Unrestricted | ||
|---|---|---|---|
| funds | funds | ||
| 2025 | 2024 | ||
| Notes | £ | £ | |
| Income from: | |||
| Donations and legacies | 2 | 708,711 | 689,936 |
| Total income | 708,711 | 689,936 | |
| Expenditure on: | |||
| Raising funds | 3 | 24,845 | 16,470 |
| Charitable activities | 4 | 243,852 | 358,960 |
| Total expenditure | 268,697 | 375,430 | |
| Net income and movement in funds | 440,014 | 314,506 | |
| Reconciliation of funds: | |||
| Fund balances at 1 July 2024 | 1,315,225 | 1,000,719 | |
| Fund balances at 30 June 2025 | 1,755,239 | 1,315,225 |
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
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THE DARBY RIMMER MND FOUNDATION
BALANCE SHEET
AS AT 30 JUNE 2025
| Notes Current assets Cash at bank and in hand Creditors: amounts falling due within one year 10 Net current assets The funds of the Foundation Unrestricted funds 11 |
2025 £ £ 1,756,739 (1,500) 1,755,239 1,755,239 1,755,239 |
2024 £ £ 1,316,725 (1,500) 1,315,225 1,315,225 1,315,225 |
2024 £ £ 1,316,725 (1,500) 1,315,225 1,315,225 1,315,225 |
|---|---|---|---|
| 1,315,225 | |||
| 1,315,225 |
The company is entitled to the exemption from the audit requirement contained in section 477 of the Companies Act 2006, for the year ended 30 June 2025.
The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of financial statements.
The members have not required the company to obtain an audit of its financial statements for the year in question in accordance with section 476.
These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies regime.
The financial statements were approved by the Trustees on 31 March 2026
J Currie Trustee
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THE DARBY RIMMER MND FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2025
1 Accounting policies
Charity information
The Darby Rimmer MND Foundation is a private company limited by guarantee incorporated in England and Wales. The registered office is 2 Cedar Court, South Hetton, Durham, DH6 2TE.
1.1 Basis of preparation
The financial statements have been prepared in accordance with the Foundation's governing document, the Companies Act 2006, FRS 102 "The Financial Reporting Standard applicable in the UK and Republic of Ireland" and the Charities SORP "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)". The Foundation is a Public Benefit Entity as defined by FRS 102.
The Foundation has taken advantage of the provisions in the SORP for charities not to prepare a statement of cash flows.
The financial statements are prepared in sterling, which is the functional currency of the Foundation. Monetary amounts in these financial statements are rounded to the nearest £.
The financial statements have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.
1.2 Going concern
At the time of approving the financial statements, the Trustees have a reasonable expectation that the Foundation has adequate resources to continue in operational existence for the foreseeable future. Thus the Trustees continue to adopt the going concern basis of accounting in preparing the financial statements.
1.3 Charitable funds
Unrestricted funds are available for use at the discretion of the Trustees in furtherance of their charitable objectives.
1.4 Income
Income is recognised when the Foundation is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.
Cash donations are recognised on receipt. Other donations are recognised once the Foundation has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.
Legacies are recognised on receipt or otherwise if the Foundation has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.
1.5 Expenditure
Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement, and the amount of the obligation can be measured reliably.
Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges are allocated on the portion of the asset’s use.
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THE DARBY RIMMER MND FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2025
1 Accounting policies
(Continued)
1.6 Cash and cash equivalents
Cash and cash equivalents include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less, and bank overdrafts. Bank overdrafts are shown within borrowings in current liabilities.
Basic financial assets
Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.
Basic financial liabilities
Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.
Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.
Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.
Derecognition of financial liabilities
Financial liabilities are derecognised when the Foundation’s contractual obligations expire or are discharged or cancelled.
2 Income from donations and legacies
| Unrestricted | Unrestricted | |
|---|---|---|
| funds | funds | |
| 2025 | 2024 | |
| £ | £ | |
| Donations and gifts | 708,711 | 689,936 |
3 Expenditure on raising funds
| Unrestricted | Unrestricted | |
|---|---|---|
| funds | funds | |
| 2025 | 2024 | |
| £ | £ | |
| Fundraising and publicity | ||
| Advertising | 24,283 | 15,908 |
| Other fundraising costs | 562 | 562 |
| 24,845 | 16,470 |
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THE DARBY RIMMER MND FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2025
4 Expenditure on charitable activities
| 4 | Expenditure on charitable activities | ||||
|---|---|---|---|---|---|
| MND | MND | ||||
| Awareness | Awareness | ||||
| 2025 | 2024 | ||||
| £ | £ | ||||
| Direct costs | |||||
| Donations to MND association | 50,000 | 50,000 | |||
| Research grants | 191,912 | 306,010 | |||
| 241,912 | 356,010 | ||||
| Share of support and governance costs (see note 5) | |||||
| Governance | 1,940 | 2,950 | |||
| 243,852 | 358,960 | ||||
| Analysis by fund | |||||
| Unrestricted funds | 243,852 | 358,960 | |||
| 5 | Support costs | ||||
| Support | Governance |
2025 |
2024 | ||
| costs | costs | ||||
| £ | £ | £ | £ | ||
| Audit fees | - | 1,620 | 1,620 | 1,620 | |
| Legal and professional | - | 150 | 150 | 1,207 | |
| Bank charges | - | 170 | 170 | 123 | |
| - | 1,940 | 1,940 | 2,950 | ||
| Analysed between | |||||
| Charitable activities | - | 1,940 | 1,940 | 2,950 | |
| 6 | Net movement in funds | 2025 | 2024 | ||
| £ | £ | ||||
| The net movement in funds is stated after charging/(crediting): | |||||
| Fees payable for the independent examination of the charity's financial | |||||
| statements | 1,620 | 1,620 |
7 Trustees
None of the Trustees (or any persons connected with them) received any remuneration or benefits from the Foundation during the year.
8 Employees
The average monthly number of employees during the year was nil.
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THE DARBY RIMMER MND FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2025
9 Taxation
The charity is exempt from taxation on its activities because all its income is applied for charitable purposes.
10 Creditors: amounts falling due within one year
| Creditors: amounts falling due within one year | ||
|---|---|---|
| 2025 | 2024 | |
| £ | £ | |
| Accruals and deferred income | 1,500 | 1,500 |
11 Unrestricted funds
The unrestricted funds of the charity comprise the unexpended balances of donations and grants which are not subject to specific conditions by donors and grantors as to how they may be used. These include designated funds which have been set aside out of unrestricted funds by the trustees for specific purposes.
| At 1 General funds Previous year: At 1 General funds |
July 2024 Incoming resources Resources expended At 30 June 2025 £ £ £ £ 1,315,225 708,711 (268,697) 1,755,239 July 2023 Incoming resources Resources expended At 30 June 2024 £ £ £ £ 1,000,719 689,936 (375,430) 1,315,225 |
|---|---|
12 Related party transactions
M Hovell is a trustee of The Darby Rimmer MND Foundation and also a partner for Mills & Reeve LLP. During the year the foundation paid Mills & Reeve LLP £NIL (2024: £1,194) for legal work in regards to the privacy policy.
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