Charity Registration No. 1185307
Company Registration No. 12038212 (England and Wales)
THE DARBY RIMMER MND FOUNDATION
ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2023
THE DARBY RIMMER MND FOUNDATION
LEGAL AND ADMINISTRATIVE INFORMATION
Trustees
M Buck J Currie J Garrett M Hovell L Stewart
(Appointed 21 March 2023)
Charity number 1185307 Company number 12038212 Registered office Edward House Woodward Road Knowsley Industrial Park Liverpool Merseyside L33 7UY Independent examiner Mark Turner FCA 1 Worsley Court High Street Worsley Manchester M28 3NJ
THE DARBY RIMMER MND FOUNDATION
CONTENTS
| Page | |
|---|---|
| Trustees' report | 1 - 9 |
| Independent examiner's report | 10 |
| Statement of financial activities | 11 |
| Balance sheet | 12 |
| Notes to the financial statements | 13 - 16 |
THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) FOR THE YEAR ENDED 30 JUNE 2023
The Trustees present their annual report and financial statements for the year ended 30 June 2023.
The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the Foundation's governing document, the Companies Act 2006 and "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)".
Objectives and activities
Objectives
The objectives of the Foundation are for the benefit of the public generally:
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to promote any purpose which is exclusively charitable according to the laws of England and Wales; and
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� for the general purposes of such charitable bodies as the Trustees may from time to time decide;
and, in particular, but without prejudice to the generality of the foregoing:
To promote and protect health, including (but not restricted to) by:
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the provision of support, assistance and information to people affected, whether directly or indirectly, by motor neurone disease;
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the promotion of research into the nature, causes, diagnosis, prevention, treatment and cure of motor neurone disease and the publication of the useful results of such research; and
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to relieve the suffering of persons affected by debilitating, life threatening or terminal illnesses through the provision of financial assistance and such other support as the Trustees think fit.
Activities
Roads for Rimmer - On Sunday 26th March 2023, 150 walkers took to the streets on a 21 mile trek starting and ending at Liverpool’s Anfield Stadium and visiting Everton FC, Marine AFC, Aintree Racecourse and Liverpool Football Club’s AXA Training Centre along the way. They raised over £34,000.
Great North Run - On Sunday 11th September 2022, 15 people took part in the Great North Run for the Foundation raising over £9,000.
Manchester marathon - On 16th April 2023, a number of people entered the Manchester marathon in support of the Foundation. Kian and Finley Stewart ran the marathon and raised £4,310.53. Misty Smith ran the marathon raising £790.69. Nathan Clarke also ran the marathon raising £1,035.61.
Winter Walk 2023 - On 29th January 2023, a group of 46 walkers completed the ultra challenge marathon around London raising over £29,000.
On29th April 2023 Chris Yates completed the Isle of White ultra-challenge raising £1,961.81.
Throughout the whole month of May 2023, Chris Talbot raised £276.26 by walking 400 miles over the 31 days.
Scott Murray and Ian Lewsey both completed sky dives and raised £3,456.03 and £1,912.32 respectively.
The Claret and Amber Ramble - Friday 14th April 2023 saw Bradford City staff members walk from the University of Bradford Stadium to Rochdale’s Crown Oil Arena, in the Claret and Amber Ramble, raising £20,630.30.
AFC Liverpool completed a sponsored walk of Snowden on 14th April 2023 raising £1,172.46.
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
Charity Football Match between All Stars v South West legends at Bristol Rovers FC, on 13th May 2023 raised £80,000.
Mike Turbert’s at Ipswich Town FC head shave raised £6,600 in June 2023.
Paul Chenoweth and his team raised £20,281 at a music night, charity match and Snowdon climb .
Sarah Andrews and Abi Slee in Feb 2023 held a yoga event and marathon walk and raised £1,210.
Ellie Shail ran the Bristol Half marathon on 14th May 2023 and raised £1,035.
Structure, governance and management
The Foundation is a company limited by guarantee.
Recruitment and appointment of trustees
The Trustees, who are also the directors for the purpose of company law, and who served during the year and up to the date of signature of the financial statements were:
M Buck J Currie J Garrett M Hovell L Stewart (Appointed 21 March 2023)
The Foundation recognises that an effective board of trustees is essential to the charity achieving its objectives. The Foundation should seek to have a board that is representative of the people with whom the charity works and should have a balance of the knowledge and skills required to run the charity. Individual trustees must have sufficient knowledge to enable them to carry out their role and to represent the charity at meetings and events.
Whenever a Trustee departs, a skills audit of the board will be done. Efforts at recruiting a replacement will take account of the skills audit and of the skills being lost by the departure. Consideration must also be given to any specific roles or duties that the individual leaving the board was undertaking.
Where a need has been identified to recruit Trustees, the existing board of Trustees will manage the process. This group has responsibility for ensuring that the recruitment and induction process is carried out. This includes ensuring that new Trustees have a clear understanding of the aims and objectives of the Foundation and of their responsibilities as a trustee.
Trustees for the Foundation offer their time on a voluntary basis.
None of the Trustees has any beneficial interest in the Foundation, however all of the Trustees are members of the Foundation and guarantee to contribute £1 in the event of a winding up.
The Foundation’s current policy concerning the payment of trade creditors is to follow the CBI’s Prompt Payers Code (copies are available from the CBI, Centre Point, 103 New Oxford Street, London, WC1A 1DU).
The Foundation’s current policy concerning the payment of trade creditors is to:
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settle the terms of payment with suppliers when agreeing the terms of each transaction;
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ensure that suppliers are made aware of the terms of payment by inclusion of the relevant terms in contracts: and
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pay in accordance with the company’s contractual and other legal obligations.
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
Public Benefit Statement
The Trustees confirm that they have complied with the requirements of section 17 of the Charities Act 2011 to have due regard to the public benefit guidance published by the Charity Commission for England and Wales.
Achievements and performance
Financial Review
It is the policy of the Foundation that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to between three and six-months expenditure. The Trustees considers the reserves at this level will ensure that, in the event of a significant drop in funding, they will be able to continue the Foundation’s current activities while consideration is given to ways in which additional funds may be raised. At the year end, the Foundation’s level of reserves was higher than anticipated. The Foundation has made a number of commitments to support research projects, however, these projects have all commenced but not been invoiced for payment at the point of the year end.
The Trustees have assessed the major risks to which the Foundation is exposed and are satisfied that systems are in place to mitigate exposure to the major risks.
Donations
The charity made a fourth donation of £50,000 in this reporting period, extending from its initial three-year commitment to support the Motor Neurone Disease Association into a fourth year. Darby Rimmer MND Foundation total contributions to the Motor Neurone Disease Association now total £200,000. The monies donated to the Motor Neurone Disease Association are for specific support to care grants for motor neurone disease sufferers and their families. This funding level is matched by the Motor Neurone Disease Association.
The Motor Neurone Disease Association
The Motor Neurone Disease Association (MND Association) is a British charity, operating in England, Wales and Northern Ireland, established in 1979 by a group of volunteers to coordinate care, support, and research for people affected by amyotrophic lateral sclerosis, which is a form of motor neurone disease (MND) (also known as Charcot disease, ALS or, in the United States, Lou Gehrig's disease).
The Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by Motor Neurone Disease. It is a membership organisation with over 9,000 members forming a national and local network that provides information and support alongside fighting for improved services. It has over 7,000 active volunteers in England, Wales and Northern Ireland and around 170 paid staff, whose specialist skills and knowledge are dedicated to improving the lives of people affected by MND.
The Darby Rimmer MND Foundation supports the MNDA Care Grants Programme. The first £250 of each Support Grant covered within the partnership is provided from the funds granted by the Foundation. For children and Young Persons grants the first £125 is provided from funds granted by the Foundation. The balance of funds up to the maximum available is then provided by the Association. The Association also covers all the programmes overhead costs.
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
The breakdown on how the initial donation has been utilised up until the accounting period on 30 June 2023 is highlighted in the table below. The data is provided by the MNDA.
Number and value of grants Year One
- Other areas supported include 5 items of personal care, 1 stairlift rental, 1 stair climber, 1 head support, 4 vehicle adaptions, 1 door opening system and 1 home adaptation
Number and value of grants Year Two
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Other areas supported include 5 items of personal care and 1 electric door opening system
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
Number and value of grants Year Three
There is an under spend of £3,158 which has been added to the fourth award bringing the total available for the fourth year £53,158.
The age, gender and ethnicity breakdown people with MND** applying for grants over the three-year period are as follows:
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
Breakdown of National Office and Branch & Group Contributions
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
**Note: Branch/Group recharging is in arrears so figures may vary with total number of grants agreed / awarded.
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THE DARBY RIMMER MND FOUNDATION
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
Research Grants
During the accounting period the Trustees of the Darby Rimmer MND Foundation agreed grants to support the following research projects into Motor Neurone Disease:
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‘From Biology to Quality of Life in Motor Neuron Disease’, with a total grant from the Foundation of £57,454.58.
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‘Understanding Nutrition in MND’, with a funding grant agreed to the level of £50,333, of which £14,546.36 has currently been distributed.
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‘Development, validation and application of a novel multiplexed cell-based drug screening assay to discover novel drug candidates focused on restoring protein homeostasis C9ALS/FTD, with a funding grant agreed to the level of £137,000, of which £109,445.22 has currently been distributed.
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Target Identification of Oxidative Stress Response-Modifying Drugs in an ESC-Derived Motor Neuron Model of ALS, with a funding grant agreed to the level of £79,991.29, of which £26,733.40 has currently been distributed.
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‘Investigating The Role of Mitochondrial Variants in Amyotrophic Lateral Sclerosis’, with a funding grant agreed to the level of £102,399.48, of which £28,853.78 has currently been distributed.
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‘Integration of Epigenetic Profile in MND Clinical Trials Design’, with a funding grant agreed to the level of £83,376.84, of which no claims have yet been made.
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‘From Biology to Quality of Life in Motor Neuron Disease’, with a funding grant agreed to the level of £195,159.68, of which £64,264.92 has currently been distributed.
All the research projects funded by the Foundation have commenced, with all due for completion by mid 2024.
The Trustees' report was approved by the Board of Trustees.
J Currie
Trustee Dated: 22 March 2024
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THE DARBY RIMMER MND FOUNDATION
INDEPENDENT EXAMINER'S REPORT
TO THE TRUSTEES OF THE DARBY RIMMER MND FOUNDATION
I report to the Trustees on my examination of the financial statements of The Darby Rimmer MND Foundation (the Foundation) for the year ended 30 June 2023.
Responsibilities and basis of report
As the Trustees of the Foundation (and also its directors for the purposes of company law) you are responsible for the preparation of the financial statements in accordance with the requirements of the Companies Act 2006 (the 2006 Act).
Having satisfied myself that the financial statements of the Foundation are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of the Foundation’s financial statements carried out under section 145 of the Charities Act 2011 (the 2011 Act). In carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145 (5)(b) of the 2011 Act.
Independent examiner's statement
Since the Foundation’s gross income exceeded £250,000 your examiner must be a member of a body listed in section 145 of the 2011 Act. I confirm that I am qualified to undertake the examination because I am a member of ICAEW, which is one of the listed bodies.
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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1 accounting records were not kept in respect of the Foundation as required by section 386 of the 2006 Act; or
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2 the financial statements do not accord with those records; or
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3 the financial statements do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination; or
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4 the financial statements have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102).
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.
Mark Turner FCA
1 Worsley Court High Street Worsley Manchester M28 3NJ
Dated: 22 March 2024
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THE DARBY RIMMER MND FOUNDATION
STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT
FOR THE YEAR ENDED 30 JUNE 2023
| Unrestricted | Unrestricted | ||
|---|---|---|---|
| funds | funds | ||
| 2023 | 2022 | ||
| Notes | £ | £ | |
| Income from: | |||
| Donations and legacies | 2 | 557,083 | 107,177 |
| Expenditure on: | |||
| Raising funds | 3 | 22,406 | 755 |
| Charitable activities | 4 | 275,186 | 82,454 |
| Total expenditure | 297,592 | 83,209 | |
| Net income and movement in funds | 259,491 | 23,968 | |
| Reconciliation of funds: | |||
| Fund balances at 1 July 2022 | 741,228 | 717,260 | |
| Fund balances at 30 June 2023 | 1,000,719 | 741,228 |
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
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THE DARBY RIMMER MND FOUNDATION
BALANCE SHEET
AS AT 30 JUNE 2023
| Notes Current assets Cash at bank and in hand Creditors: amounts falling due within one year 9 Net current assets The funds of the Foundation Unrestricted funds |
2023 £ £ 1,002,219 1,500 1,000,719 1,000,719 1,000,719 |
2022 £ £ 742,728 1,500 741,228 741,228 741,228 |
2022 £ £ 742,728 1,500 741,228 741,228 741,228 |
|---|---|---|---|
| 741,228 | |||
| 741,228 |
The company is entitled to the exemption from the audit requirement contained in section 477 of the Companies Act 2006, for the year ended 30 June 2023.
The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of financial statements.
The members have not required the company to obtain an audit of its financial statements for the year in question in accordance with section 476.
These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies regime.
The financial statements were approved by the Trustees on 22 March 2024
J Currie Trustee
Company registration number 12038212 (England and Wales)
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THE DARBY RIMMER MND FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2023
1 Accounting policies
Charity information
The Darby Rimmer MND Foundation is a private company limited by guarantee incorporated in England and Wales. The registered office is Edward House, Woodward Road, Knowsley Industrial Park, Liverpool, Merseyside, L33 7UY.
1.1 Accounting convention
The financial statements have been prepared in accordance with the Foundation's [governing document], the Companies Act 2006, FRS 102 “The Financial Reporting Standard applicable in the UK and Republic of Ireland” (“FRS 102”) and the Charities SORP "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019). The Foundation is a Public Benefit Entity as defined by FRS 102.
The Foundation has taken advantage of the provisions in the SORP for charities not to prepare a Statement of Cash Flows.
The financial statements are prepared in sterling, which is the functional currency of the Foundation. Monetary amounts in these financial statements are rounded to the nearest £.
The financial statements have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.
1.2 Going concern
At the time of approving the financial statements, the Trustees have a reasonable expectation that the Foundation has adequate resources to continue in operational existence for the foreseeable future. Thus the Trustees continue to adopt the going concern basis of accounting in preparing the financial statements.
1.3 Charitable funds
Unrestricted funds are available for use at the discretion of the Trustees in furtherance of their charitable objectives.
1.4 Income
Income is recognised when the Foundation is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.
Cash donations are recognised on receipt. Other donations are recognised once the Foundation has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.
Legacies are recognised on receipt or otherwise if the Foundation has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.
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THE DARBY RIMMER MND FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
1 Accounting policies
(Continued)
1.5 Expenditure
Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement, and the amount of the obligation can be measured reliably.
Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges are allocated on the portion of the asset’s use.
1.6 Cash and cash equivalents
Cash and cash equivalents include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less, and bank overdrafts. Bank overdrafts are shown within borrowings in current liabilities.
Basic financial assets
Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.
Basic financial liabilities
Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.
Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.
Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.
Derecognition of financial liabilities
Financial liabilities are derecognised when the Foundation’s contractual obligations expire or are discharged or cancelled.
2 Income from donations and legacies
| Unrestricted | Unrestricted | |
|---|---|---|
| funds | funds | |
| 2023 | 2022 | |
| £ | £ | |
| Donations and gifts | 557,083 | 107,177 |
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THE DARBY RIMMER MND FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
3 Expenditure on raising funds
| Fundraising and publicity Advertising Other fundraising costs Expenditure on charitable activities Direct costs |
Unrestricted Unrestricted funds funds 2023 2022 £ £ 21,844 180 562 575 22,406 755 MND MND Awareness Awareness 2023 2022 £ £ 100,000 - 163,578 80,935 10,000 - 273,578 80,935 1,608 1,519 275,186 82,454 275,186 82,454 Support costs Governance costs 2023 2022 £ £ £ £ - 1,500 1,500 1,500 - 108 108 19 - 1,608 1,608 1,519 - 1,608 1,608 1,519 |
Unrestricted Unrestricted funds funds 2023 2022 £ £ 21,844 180 562 575 22,406 755 MND MND Awareness Awareness 2023 2022 £ £ 100,000 - 163,578 80,935 10,000 - 273,578 80,935 1,608 1,519 275,186 82,454 275,186 82,454 Support costs Governance costs 2023 2022 £ £ £ £ - 1,500 1,500 1,500 - 108 108 19 - 1,608 1,608 1,519 - 1,608 1,608 1,519 |
|---|---|---|
| Donations to MND association | ||
| Research grants | ||
| Other grants Share of support and governance costs (see note 5) Governance Analysis by fund Unrestricted funds Support costs Audit fees Bank charges Analysed between Charitable activities |
||
| 80,935 1,519 |
||
| 82,454 | ||
| 82,454 | ||
| 2022 £ 1,500 19 |
||
| 1,519 | ||
| 1,519 |
4 Expenditure on charitable activities
5 Support costs
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THE DARBY RIMMER MND FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
6 Trustees
None of the Trustees (or any persons connected with them) received any remuneration or benefits from the Foundation during the year.
7 Employees
The average monthly number of employees during the year was nil.
8 Taxation
The charity is exempt from taxation on its activities because all its income is applied for charitable purposes.
9 Creditors: amounts falling due within one year
| Creditors: amounts falling due within one year | ||
|---|---|---|
| 2023 | 2022 | |
| £ | £ | |
| Accruals and deferred income | 1,500 | 1,500 |
10 Unrestricted funds
The unrestricted funds of the charity comprise the unexpended balances of donations and grants which are not subject to specific conditions by donors and grantors as to how they may be used. These include designated funds which have been set aside out of unrestricted funds by the trustees for specific purposes.
| At 1 General funds Previous year: At 1 General funds |
July 2022 Incoming resources Resources expended At 30 June 2023 £ £ £ £ 741,228 557,083 (297,592) 1,000,719 July 2021 Incoming resources Resources expended At 30 June 2022 £ £ £ £ 717,260 107,177 (83,209) 741,228 |
|---|---|
11 Related party transactions
There were no disclosable related party transactions during the year.
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