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2021-06-30-accounts

Charity Registration No. 1185307

Company Registration No. 12038212 (England and Wales)

THE DARBY RIMMER MND FOUNDATION ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS

FOR THE YEAR ENDED 30 JUNE 2021

THE DARBY RIMMER MND FOUNDATION

LEGAL AND ADMINISTRATIVE INFORMATION

Trustees

M Buck J Currie J Garrett M Hovell

Charity number 1185307 Company number 12038212 Registered office Edward House Woodward Road Knowsley Industrial Park Liverpool Merseyside L33 7UY Independent examiner Mark Turner FCA 1 Worsley Court High Street Worsley Manchester M28 3NJ

THE DARBY RIMMER MND FOUNDATION

CONTENTS

Page
Trustees' report 1 - 6
Independent examiner's report 7
Statement of financial activities 8
Balance sheet 9
Notes to the financial statements 10 - 12

THE DARBY RIMMER MND FOUNDATION

TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) FOR THE YEAR ENDED 30 JUNE 2021

The Trustees present their report and financial statements for the year ended 30 June 2021.

The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the Foundation's governing document, the Companies Act 2006 and "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)".

Objectives and activities

Objectives

The objectives of the Foundation are for the benefit of the public generally:

and, in particular, but without prejudice to the generality of the foregoing:

To promote and protect health, including (but not restricted to) by:

Activities

The Foundation organised its second ‘100k in May’ event, which runs with minimal administrative fundraising costs, as it is based on members of the general public competing a 100km challenge by running, swimming, walking or cycling the distance and generating sponsorship. Whilst the event didn’t reach the fundraising levels of the previous year of the initiative (May 2020) which was in the period of coronavirus lockdown, it still had over 60 participants raised over £11,000 for the Foundation. The event also served to promote a significant level of awareness of motor neurone disease.

Fundraising activates in the period included the Andy Bissett Challenge 194. Darby Rimmer MND Foundation supporters, Andy, Harry and Scott walked 194 kilometres, over a three-day period, walking from Huddersfield to Liverpool calling at 20 footballs stadiums en-route to raise awareness and funds. The fundraising from the walk raised £11,750 for the charity.

A Way of the Roses cycle team that included Steve Parkin and Kevin Hunter, alongside their friends took part in “The Way of The Roses” cycle over three days covering approximately 180 miles in aide of the charity. The funds raised from their support totalled £15,368.

THE DARBY RIMMER MND FOUNDATION

TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2021

Darby Rimmer MND Foundation supporter, Lucy Parkin undertook the challenge of participating in the Yorkshire Marathon to raise funds for the charity and raised a figure of £2,012.

Bob’s Big Challenge was a fundraiser that included supporters walking 10 miles a day, every day throughout 2021 which at the point of the accounting period has so far raised £4,498 for the charity.

A number of Darby Rimmer MND Foundation supporters undertook the challenge of running the Great North Run Half Marathon and in doing so raised a total of £4,500 for the charity.

Further fundraising activity included ‘Freddie’s 4 miles every four hours for 48 hours’ which took place in March 2021. With fundraising participants running four miles, every four hours for two days and raised a further £4,396.

Structure, governance and management

The Foundation is a company limited by guarantee.

Recruitment and appointment of trustees

The Trustees, who are also the directors for the purpose of company law, and who served during the year and up to the date of signature of the financial statements were:

M Buck J Currie J Garrett M Hovell

The Foundation recognises that an effective board of trustees is essential to the charity achieving its objectives. The Foundation should seek to have a board that is representative of the people with whom the charity works and should have a balance of the knowledge and skills required to run the charity. Individual trustees must have sufficient knowledge to enable them to carry out their role and to represent the charity at meetings and events.

Whenever a Trustee departs, a skills audit of the board will be done. Efforts at recruiting a replacement will take account of the skills audit and of the skills being lost by the departure. Consideration must also be given to any specific roles or duties that the individual leaving the board was undertaking.

Where a need has been identified to recruit Trustees, the existing board of Trustees will manage the process. This group has responsibility for ensuring that the recruitment and induction process is carried out. This includes ensuring that new Trustees have a clear understanding of the aims and objectives of the Foundation and of their responsibilities as a trustee.

Trustees for the Foundation offer their time on a voluntary basis.

None of the Trustees has any beneficial interest in the Foundation, however all of the Trustees are members of the Foundation and guarantee to contribute £1 in the event of a winding up.

The Foundation’s current policy concerning the payment of trade creditors is to follow the CBI’s Prompt Payers Code (copies are available from the CBI, Centre Point, 103 New Oxford Street, London, WC1A 1DU).

The Foundation’s current policy concerning the payment of trade creditors is to:

THE DARBY RIMMER MND FOUNDATION

TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2021

Public Benefit Statement

The Trustees confirm that they have complied with the requirements of section 17 of the Charities Act 2011 to have due regard to the public benefit guidance published by the Charity Commission for England and Wales.

Achievements and performance

Financial Review

It is the policy of the Foundation that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to between three- and six-months expenditure. The Trustees considers the reserves at this level will ensure that, in the event of a significant drop in funding, they will be able to continue the Foundation’s current activities while consideration is given to ways in which additional funds may be raised. This level of reserves has been exceeded again, throughout the period due to the limitations on fundraising due to the coronavirus. At the year end, the Foundation’s level of reserves was higher than anticipated. The Foundation has made a number of commitments to support research projects, however, these projects have all commenced but not been invoiced for payment at the point of the year end.

The Trustees have assessed the major risks to which the Foundation is exposed and are satisfied that systems are in place to mitigate exposure to the major risks.

Donations

The charity made a second donation of £50,000 in this reporting period, as part of a three-year commitment to support the Motor Neurone Disease Association to a minimum level of £150,000 in that period. The monies donated to the Motor Neurone Disease Association are for specific support to care grants for motor neurone disease sufferers and their families. This funding level is matched by the Motor Neurone Disease Association.

The Motor Neurone Disease Association

The Motor Neurone Disease Association (MND Association) is a British charity, operating in England, Wales and Northern Ireland, established in 1979 by a group of volunteers to coordinate care, support, and research for people affected by amyotrophic lateral sclerosis, which is a form of motor neurone disease (MND) (also known as Charcot disease, ALS or, in the United States, Lou Gehrig's disease).

The Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by Motor Neurone Disease. It is a membership organisation with over 9,000 members forming a national and local network that provides information and support alongside fighting for improved services. It has over 7,000 active volunteers in England, Wales and Northern Ireland and around 170 paid staff, whose specialist skills and knowledge are dedicated to improving the lives of people affected by MND.

The impact on the families of those living with MND is considerable. Children and young people (CYP) who have a parent or other family member living with MND can often feel this impact as much as anyone.

THE DARBY RIMMER MND FOUNDATION

TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2021

The breakdown on how the initial donation has been utilised up until the accounting period on 30 June 202 1 is highlighted in the table below. The data is provided by the MNDA .

The age demographic breakdown of the Darby Rimmer MND Foundation grants in unison with the MNDA is as follows

THE DARBY RIMMER MND FOUNDATION

TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2021

The following are examples of feedback received from recipients of grants partly funded by the Foundation and which demonstrate the positive impacts your support for these grants is having on the lives of those living with and affected by MND.

“Just to let you know that I am so grateful for the assistance both charities have given me to get this chair. I have even fallen asleep in it many times as well. I have been using it regularly every day since delivery, and it is so comfortable, and practical, and really appreciate the kind efforts of Darby Rimmer, and the MND association in their work. Thank you for your help”. Anonymous, shared by MDNA

“On the 19th March, 2019, my life was turned upside down after falling in the garden. I thought I’d pulled a muscle but my ability to walk was immediately affected. Within a few months I had gone from being an active 57-year-old who loved hiking, swimming and playing cricket to a housebound person using a walking frame. After two years of hospital investigations, I was given the MND diagnosis. Suddenly, the need to adapt the home and purchase specialist equipment – all at the same time became financially and emotionally overwhelming. Being disabled is expensive. Without the support of the Occupational Therapist, who wrote to the MND on our behalf, I would not have been able to purchase the riser chair for some time in the future. I had become more and more reliant on my wife to help pull me out of the chair and felt increasingly guilty about the shoulder and neck problems that I was causing for her. On a few occasions recently, I had fallen when trying to get out of my chair and the risk of injury was becoming more each day. The riser chair has given me the ability to be independent in doing something that most people take for granted and reduce the risk of injury. Thank you”. Anonymous, shared by MDNA

“I was initially quite scared of the thought of using a riser-recliner chair and also that it would be huge and would look out of place, however I am pleased to say that not only is it quite small, but it is incredibly comfortable, so I was worrying unnecessarily, furthermore it has made it so much easier and safer for me to rise from a sitting position. I would like to thank the MNDA and the Darby Rimmer Foundation for their generous donation that has made such a difference to my day-to-day activities”. Anonymous, shared by MDNA

“Receiving a grant has made a difference because…The support from the MND Association Leicestershire & Rutland Branch and the help from the Darby Rimmer foundation is an important part of a hope that we have for me to be able to stay in my home for longer and importantly remain sharing a bedroom with my wife of 20 years. The funds will go towards a combination profiling double bed that will mean that we will be able to stay together in the same bedroom, sharing the same bed, but with my side being able to lift and profile, (and be ready for an air mattress etc). My partner will be able to help me at night without getting up and crossing the house. The bed from Laybrook Beds costs £3,800. Our local authority is providing £1,100 of funding. NHS assistive technology is providing £345 of assistance. With the MND a support of £750, we now have a gap of £1,600, so are much closer to our goal of being able to remain sleeping in close proximity as we have done for 30 years. Thank you very much for your help”. Anonymous, shared by MDNA

THE DARBY RIMMER MND FOUNDATION

TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2021

Scientific Advisory Board

The Trustees of the Darby Rimmer MND Foundation appointed a skilled and experienced Scientific Advisory Board in order to evaluate the grant applications to the Foundation in respect of treatment and effects of motor neurone disease and to advise the Trustees on medical advancements and needs.

The Scientific Advisory Board appointed by the Trustees of the Foundation for the period until the end of June 2021, consisted of Professor Carolyn Young, Professor Dame Pamela Shaw, Dr Alfredo Iacoangelo, Professor John Quinn, Dr Ahmad al Khleifat with Brian Quinn, Phd from the MNDA acting as an independent observer.

The Trustees of the Darby Rimmer MND Foundation agreed grants to support the following research projects into Motor Neurone Disease:

A grant of £50,333 into the study of ‘Understanding Nutrition in MND’, a donation of £60,356.82 to the stud y of ‘From Biology to Quality of life in MND’ and a grant of £137,585 into the study of ‘Development, validation and application of a novel multiplexed cell-based drug screening assay to discover novel drug candidates focused on restoring protein homeostasis in C9ALS/FTD’.

A further round of grant applications has taken place for future grant support to motor neurone disease research in the accounting period and the review and awards of grants will be take place and be reported on in the next accounting period.

The Trustees' r eport was approved by the Board of Trustees.

J Currie

Trustee Dated: 9 November 2021

THE DARBY RIMMER MND FOUNDATION

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF THE DARBY RIMMER MND FOUNDATION

I report to the Trustees on my examination of the financial statements of The Darby Rimmer MND Foundation (the Foundation) for the year ended 30 June 2021.

Responsibilities and basis of report

As the Trustees of the Foundation (and also its directors for the purposes of company law) you are responsible for the preparation of the financial statements in accordance with the requirements of the Companies Act 2006 (the 2006 Act).

Having satisfied myself that the financial statements of the Foundation are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of the Foundation’s financial statements carried out under section 145 of the Charities Act 2011 (the 2011 Act) . In carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.

Independent examiner's statement

I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.

Mark Turner FCA

1 Worsley Court High Street Worsley Manchester M28 3NJ

Dated: 9 November 2021

THE DARBY RIMMER MND FOUNDATION

STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 30 JUNE 2021

Unrestricted Unrestricted
funds funds
2021 2020
Notes
£		 £
Income from:
Donations and legacies 2 118,079 705,479
Expenditure on:
Raising funds 3 1,474 1,944
Charitable activities 4 50,900 51,980
Total resources expended 52,374 53,924
Net income for the year/
Net movement in funds 65,705 651,555
Fund balances at 1 July 2020 651,555 -
Fund balances at 30 June 2021 717,260 651,555

The statement of financial activities includes all gains and losses recognised in the year.

All income and expenditure derive from continuing activities.

The statement of financial activities also complies with the requirements for an income and expenditure account under the Companies Act 2006.

THE DARBY RIMMER MND FOUNDATION

BALANCE SHEET

AS AT 30 JUNE 2021

Notes
Current assets
Cash at bank and in hand
Creditors: amounts falling due within
one year
8
Net current assets
Income funds
Unrestricted funds		 2021
£
718,160
(900)		 £
717,260
717,260
717,260		 2020
£
653,055
(1,500)		 £
651,555
651,555
651,555

The company is entitled to the exemption from the audit requirement contained in section 477 of the Companies Act 2006, for the year ended 30 June 2021.

The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of financial statements.

The members have not required the company to obtain an audit of its financial statements for the year in question in accordance with section 476.

These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies regime.

The financial statements were approved by the Trustees on 9 November 2021

J Currie

Trustee

Company Registration No. 12038212

THE DARBY RIMMER MND FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2021

1 Accounting policies

Charity information

The Darby Rimmer MND Foundation is a private company limited by guarantee incorporated in England and Wales. The registered office is Edward House, Woodward Road, Knowsley Industrial Park, Liverpool, Merseyside, L33 7UY.

1.1 Accounting convention

The financial statements have been prepared in accordance with the Foundation's [governing document], the Companies Act 2006 and "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)". The Foundation is a Public Benefit Entity as defined by FRS 102.

The Foundation has taken advantage of the provisions in the SORP for charities applying FRS 102 Update Bulletin 1 not to prepare a Statement of Cash Flows.

The financial statements are prepared in sterling , which is the functional currency of the Foundation. Monetary a mounts in these financial statements are rounded to the nearest £.

The financial statements have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.

1.2 Going concern

At the time of approving the financial statements, the Trustees have a reasonable expectation that the Foundation has adequate resources to continue in operational existence for the foreseeable future. Thus the Trustees continue to adopt the going concern basis of accounting in preparing the financial statements.

1.3 Charitable funds

Unrestricted funds are available for use at the discretion of the Trustees in furtherance of their charitable objectives.

1.4 Income

Income is recognised when the Foundation is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.

Cash donations are recognised on receipt. Other donations are recognised once the Foundation has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.

Legacies are recognised on receipt or otherwise if the Foundation has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.

1.5 Expenditure

Expenditure is accounted for when incurred. All costs are directly attributable to specific activities.

1.6 Cash and cash equivalents

Cash and cash equivalents include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less, and bank overdrafts. Bank overdrafts are shown within borrowings in current liabilities.

THE DARBY RIMMER MND FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2021

1 Accounting policies

(Continued)

Basic financial assets

Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.

Basic financial liabilities

Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future p aymen ts discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.

Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.

Derecognition of financial liabilities

Financial liabilities are derecognised when the Foundation’s contractual obligations expire or are discharged or cancelled.

2 Donations and legacies

Unrestricted Unrestricted
funds funds
2021 2020
£ £
Donations and gifts 118,079 705,479
Raising funds
Unrestricted Unrestricted
funds funds
2021 2020
£ £
Fundraising and publicity
Advertising 970 1,854
Other fundraising costs 504 90
Fundraising and publicity 1,474 1,944
1,474 1,944

3 Raising funds

THE DARBY RIMMER MND FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2021

4 Charitable activities

MND MND
awareness awareness
2021 2020
£ £
Donations to MND association 50,000 50,000
Share of governance costs (see note 5) 900 1,980
50,900 51,980
Support costs
Support
Governance		 2021 2020
costs
costs
£
£		 £ £
Audit fees -
900		 900 1,500
Legal and professional -
-		 - 480
-
900		 900 1,980
Analysed between
Charitable activities -
900		 900 1,980

5 Support costs

6 Trustees

None of the Trustees (or any persons connected with them) received any remuneration or benefits from the Foundation during the year.

7 Employees

The average monthly number of employees during the year was nil.

8 Creditors: amounts falling due within one year

Creditors: amounts falling due within one year
2021 2020
£ £
Accruals and deferred income 900 1,500

9 Related party transactions

There were no disclosable related party transactions during the year .