Trustees Annual Report 

From   January 2024   To    December 2024 

Charity Name   -   Leigh Network 

Registration No.  1184735 

Objectives and Activities 

The purpose of the charity is to support families whose lives are affected by mitochondrial disease. To raise awareness of mitochondrial disease.  And to raise funds for research into mitochondrial disease, as well as  giving families days out where they can come together with others, share experiences and understanding of the same or similar issues affecting each other. 

The objectives are to enhance the lives of people who have a degenerative disorder for which there is no cure or treatment.  Because it is a rare condition and people often feel isolated, allowing people to meet others going through the same thing. 

We offer a family fun day out in places all over the country.  Sometimes with a medical expert present to inform the family of any new developments in the field of mitochondrial disease.  New medications or trials. 

As the condition can be quite isolating we feel it is important to ensure the mitochondrial families we support feel included and part of our ‘mito family’. 

We have continued  monthly zoom calls with the families which have been very useful and have had encouraging feedback.  We have also started a bereaved parents zoom call which has had a positive outcome and something we are finding there is a need for. 

Our main event this year was an adult weekend in Blackpool for our adult families. This took place in a hotel for disabled people. 

Leigh Network were invited to take part in an art exhibition were a selection of paintings were sold and a donation made to Leigh Network. 

The charity was slightly affected by personal bereavement which impacted on some events, but we are back on track to continue our important work for our families. 

Leigh Network continues to deliver blankets to sick children spending time in hospital. Also butterfly boxes to families who are struggling with coming to terms with diagnosis. 

We continue to raise funds, by doing sponsored events, coffee mornings, folk night (mito on the mic) 

Trustees who manage the charity 

Amanda Wylie                                   Treasurer    01/06/2025 

Erin Wilkinson 

Sarah Bradshaw 

Sophie Thompson 

The trustees declare that they have approved the trustees report above 



## **Leigh Network** 

Charity Number 

**1184735** 

## **Receipts and Payments Accounts** 

Period : 01/01/24 

To : 31/12/24 

## **Receipts** 

Income from fundraising 

## **Payments** 

Expenditure 

Net of Receipts 

Cash Funds last year end 

Cash funds this year end 

## **Assets &  liabilities at end of period** 

Cash Funds 

other monetary assets 

Investment assets 

Assets retained for own use 

Liabilities 

**Signed by trustee on behalf of all Trustees** 

Amanda Wylie 



61612025

_£_ 

15520 

7306 

8214 

8641 

16855 

16855 

nil 

nil nil 

nil