**CHARITY REGISTRATION NUMBER: 1184699**
## **OURBRAINBANK CIO**
## **Unaudited Financial Statements 31 December 2021**
## **BURGESS HODGSON LLP**
Chartered accountants Camburgh House 27 New Dover Road Canterbury Kent CT1 3DN
## **OURBRAINBANK CIO**
## **Financial Statements**
## **Year ended 31 December 2021**
||**Page**|
|---|---|
|Trustees' annual report|**1**|
|Statement of financial activities|**5**|
|Statement of financial position|**6**|
|Notes to the financial statements|**7**|
## **OURBRAINBANK CIO**
## **Trustees' Annual Report**
## **Year ended 31 December 2021**
The trustees present their report and the unaudited financial statements of the charity for the year ended 31 December 2021.
## **Reference and administrative details**
**Registered charity name** OURBRAINBANK CIO **Charity registration number** 1184699 **Principal office** �2 Cala��ia �oad London N5 ���
## **The trustees**
A Coulson J J Morris J N H Bamping OBE J Bennett OBE J Arnold-Forster R Clemmow S D Matthews A B Clemmow E Pilkington L Nuttall N Nuttall
(Appointed 22 March 2021) (Deceased 8 June 2021) (Resigned 9 March 2022) (Deceased 11 January 2022)
(Appointed 5 July 2022) (Appointed 24 June 2022) (Appointed 22 June 2022) (Appointed 22 June 2022)
## **Accountants**
Burgess Hodgson LLP Chartered accountants Camburgh House 27 New Dover Road Canterbury Kent CT1 3DN
## **Structure, governance and management**
OurBrainBank is run on a voluntary basis by its experienced UK Board of Trustees, which meets and engages regularly to provide direction and oversight of the charity's activities in the UK. OurBrainBank currently has no UK employees, but we work closely with our colleagues at OurBrainBank US and our Trustees join global board meetings to collaborate across areas of strategic development, communications and fundraising initiatives.
OurBrainBank also benefits from robust medical and patient advisors, based in the US, co-headed by leading neuro-oncologists Fabio Iwamoto MD of Columbia University, and Lakshmi Nayak MD of Dana-Farber Cancer Institute. The advisors bring together a wide range of clinical specialists spanning neuro-surgery, psychiatry and neuro-oncology. The patient advisors include patients and caregivers.
Over time, we aim to build similar engagement with the UK glio�lastoma (GBM) medical research and patient community, and continue to build links with other brain tumour and GBM-focused charities.
**1**
## **OURBRAINBANK CIO**
## **Trustees' Annual Report** _**(continued)**_
## **Year ended 31 December 2021**
## **Objectives and activities**
Created by the late Jessica Morris as a direct result of her own diagnosis, OurBrainBank is an innovative, patient-led movement designed to move glioblastoma (GBM) from terminal to treatable, powered by patients. It's the first non-profit created by, for, and with people with GBM, a rare and deadly brain cancer whose 5-year survival rate is 5%. Glioblastomas are the most common high grade (cancerous) primary brain tumour in adults. A glioblastoma is the fastest growing form of glioma brain tumour and is extremely difficult to treat.
The objectives of OurBrainBank are:
"the advancement of health by the provision of support, assistance and information to persons living with glioblastoma, and by research into the nature, causes, diagnosis and treatment of glioblastoma and the advancement of the education of the general public in all areas relating to glioblastoma."
OurBrainBank aims to raise awareness and understanding of GBM, improving standards of patient care and quality of life, and the importance of GBM-focused research and clinical trials. Globally, it engages with GBM patients and their carers through a variety of channels, and uses its external channels, fundraising activities and advocacy initiatives to reach broader stakeholders.
**2**
## **OURBRAINBANK CIO**
## **Trustees' Annual Report** _**(continued)**_
## **Year ended 31 December 2021**
## **Achievements and performance**
2021 marked a year of transition following the untimely death of our US and UK Chair and inspirational founder, Jessica Morris. Jessica created OurBrainBank after being diagnosed with GBM in January 2016. She worked closely with her neuro-oncologist and technology leaders to found a movement that will live on, helping people living with glioblastoma and researchers seeking new and better treatments.
Jessica's death prompted an outpouring of support for OurBrainBank in the US and in the UK, from friends, family and supporters who wish to see Jessica's inspirational work continue, for which we are extremely grateful and will help us build our future plans. For example, we were inspired to see a group of Jessica's friends in London organise an evening in her memory and an auction that raised more than £10,000 for OurBrainBank.
To emphasise further the devastating nature of this disease, at the start of 2022 we were deeply saddened to see the passing of our dear colleague and UK Trustee, Jana Bennett OBE, who also died of glioblastoma. Jana was one of the most distinguished broadcast executives of her generation, whose drive and inspiration will be much missed among the UK and US boards. Both Jessica and Jana's deaths were widely covered in obituaries including in the New York Times, The Guardian and The Times.
In 2021, a wider strategic review, led by our colleagues in the US, refocused the role of the OurBrainBank app, which has to date been the key tool to enable patients to donate their symptom data to medical researchers.
In 2018, OurBrainBank launched its pilot glioblastoma study using a free app that patients or carers used to track health indicators and volunteered to share their data with leading researchers. In 2021 OurBrainBank announced it would close the initial pilot study (although people can continue to use the original app if they wish) and develop OurBrainBank 2.0 using new technologies to continue to harness the power of patients.
OurBrainBank is working with researchers at a top US university to design a new app that collects quality of life data with minimal burden on the patient and carers and we hope will be a far more effective way of collecting and sharing critical patient data with leading researchers worldwide. The new version is currently being developed in the US and we then hope to see it rolled out in the UK.
In parallel, we are developing a number of UK-specific activities to raise awareness of glioblastoma in the UK, and support patients and carers:
- We a�e �e�uilding ou� website so that it becomes the first port of call for GBM patients and their families in the UK and helps overcome the problems they face including isolation, a lack and complexity of information and general powerlessness.
- Under the umbrella of the Bill of Rights we launched in 2020, we will be focusing our campaigning on taking the UK standard of care - which is surgery, radiotherapy, and chemotherapy - to incorporate the important area of genomic profiling.
Thanks to the generosity of our individual donors, OBB UK has generated sufficient funds to undertake all these activities and plans to recruit dedicated and skilled administrative support to assist us.
In the slightly longer term OBB UK aims to connect the work being done in the US to develop OBB 2.0 to a hospital group and research centre in the UK so that our first pilot becomes truly transatlantic.
OurBrainBank, led by its US colleagues, engages a dynamic global community of people affected by
**3**
## **OURBRAINBANK CIO**
## **Trustees' Annual Report** _**(continued)**_
## **Year ended 31 December 2021**
glioblastoma throughout the world via social media, its newsletter and YouTube channel. In May 2021, we collaborated with the UK brain cancer charity brainstrust, hosting a webinar aimed at UK patients and carers with Dr Helen Bulbeck, brainstrust co-founder and Director of Services and Policy.
In July, British actor Julian Sands, who lost a close friend to GBM, recorded a special reading of OBB's Bill of Rights.
In October, the findings of OurBrainBank's pilot study was published in Neuro-Oncology Practice. OBB founder Jessica Morris was one of the authors along with Dr. Florien Boele from the University of Leeds Institute of Medical Research and Leeds Institute of Health Sciences, who conducted the first UK study using the OBB app when we launched in 2019.
## **Financial review**
During the accounting period to December 2021, the charity has received donations of £33,040 and incurred costs of £2,802. This has resulted in the charity increasing their unrestricted reserves by £30,238 to a total of £47,956.
19th Oct 2022 The trustees' annual report was approved on .............................. and signed on behalf of the board of trustees by:
J Arnold-Forster Chair and Trustee
**4**
## **OURBRAINBANK CIO**
## **Statement of Financial Activities**
## **Year ended 31 December 2021**
|||||Period from|
|---|---|---|---|---|
|||||31 Jul 19 to|
|||**Year to** **31 Dec 21**||31 Dec 20|
|||Unrestricted|||
|||funds|**Total funds**|Total funds|
||**Note**|**£**|**£**|£|
|**Income and endowments**|||||
|Donations and legacies|**4**|33,040|33,040|23,349|
|||``|``|``|
|**Total income**||33,040|33,040|23,349|
|||``|``|``|
|**Expenditure**|||||
|Expenditure on charitable activities|**5,6**|2,802|2,802|5,631|
|||``|``|``|
|**Total expenditure**||2,802|2,802|5,631|
|||``|``|``|
|||``|``|``|
|**Net income and net movement in funds**||30,238|30,238|17,718|
|||``|``|``|
|**Reconciliation of funds**|||||
|Total funds brought forward||17,718|17,718|–|
|||``|``|``|
|**Total funds carried forward**||47,956|47,956|17,718|
|||``|``|``|
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
**The notes on pages 7 to 10 form part of these financial statements.**
**5**
## **OURBRAINBANK CIO**
## **Statement of Financial Position**
## **31 December 2021**
|||**2021**|2020|
|---|---|---|---|
||**Note**|**£**|£|
|**Current assets**||||
|Cash at bank and in hand||48,496|17,718|
|**Creditors: amounts falling due within one year**|**10**|540|–|
|||``|``|
|**Net current assets**||47,956|17,718|
|||``|``|
|**Total assets less current liabilities**||47,956|17,718|
|||``|``|
|**Net assets**||47,956|17,718|
|||``|``|
|**Funds of the charity**||||
|Unrestricted funds||47,956|17,718|
|||``|``|
|**Total charity funds**|**11**|47,956
``|17,718
``|
These financial statements were approved by the board of trustees and authorised for issue on 19th Oct 2022 ........................, and are signed on behalf of the board by:
J Arnold-Forster Chair and Trustee
**The notes on pages 7 to 10 form part of these financial statements.**
**6**
**OURBRAINBANK CIO**
## **Notes to the Financial Statements**
## **Year ended 31 December 2021**
## **1. General information**
The charity is a public benefit entity and a registered charity in England and Wales and is unincorporated. The address of the principal office is 62 Calabria Road, London, N5 1HU.
## **2. Statement of compliance**
These financial statements have been prepared in compliance with FRS 102, 'The Financial Reporting Standard applicable in the UK and the Republic of Ireland', the Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (Charities SORP (FRS 102)) and the Charities Act 2011.
## **3. Accounting policies**
## **Basis of preparation**
The financial statements have been prepared on the historical cost basis, as modified by the revaluation of certain financial assets and liabilities and investment properties measured at fair value through income or expenditure.
The financial statements are prepared in sterling, which is the functional currency of the entity.
## **Going concern**
There are no material uncertainties about the charity's ability to continue.
## **Judgements and key sources of estimation uncertainty**
The preparation of the financial statements requires management to make judgements, estimates and assumptions that affect the amounts reported. These estimates and judgements are continually reviewed and are based on experience and other factors, including expectations of future events that are believed to be reasonable under the circumstances.
## **Fund accounting**
Unrestricted funds are available for use at the discretion of the trustees to further any of the charity's purposes.
Designated funds are unrestricted funds earmarked by the trustees for particular future project or commitment.
Restricted funds are subjected to restrictions on their expenditure declared by the donor or through the terms of an appeal, and fall into one of two sub-classes: restricted income funds or endowment funds.
**7**
**OURBRAINBANK CIO**
## **Notes to the Financial Statements** _**(continued)**_
## **Year ended 31 December 2021**
## **3. Accounting policies** _**(continued)**_
## **Incoming resources**
All incoming resources are included in the statement of financial activities when entitlement has passed to the charity; it is probable that the economic benefits associated with the transaction will flow to the charity and the amount can be reliably measured. The following specific policies are applied to particular categories of income:
- income from donations or grants is recognised when there is evidence of entitlement to the gift, receipt is probable and its amount can be measured reliably.
- legacy income is recognised when receipt is probable and entitlement is established.
- income from donated goods is measured at the fair value of the goods unless this is impractical to measure reliably, in which case the value is derived from the cost to the donor or the estimated resale value. Donated facilities and services are recognised in the accounts when received if the value can be reliably measured. No amounts are included for the contribution of general volunteers.
- income from contracts for the supply of services is recognised with the delivery of the contracted service. This is classified as unrestricted funds unless there is a contractual requirement for it to be spent on a particular purpose and returned if unspent, in which case it may be regarded as restricted.
## **Resources expended**
Expenditure is recognised on an accruals basis as a liability is incurred. Expenditure includes any VAT which cannot be fully recovered, and is classified under headings of the statement of financial activities to which it relates:
- expenditure on raising funds includes the costs of all fundraising activities, events, noncharitable trading activities, and the sale of donated goods.
- expenditure on charitable activities includes all costs incurred by a charity in undertaking activities that further its charitable aims for the benefit of its beneficiaries, including those support costs and costs relating to the governance of the charity apportioned to charitable activities.
- other expenditure includes all expenditure that is neither related to raising funds for the charity nor part of its expenditure on charitable activities.
All costs are allocated to expenditure categories reflecting the use of the resource. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs are apportioned between the activities they contribute to on a reasonable, justifiable and consistent basis.
**8**
## **OURBRAINBANK CIO**
## **Notes to the Financial Statements** _**(continued)**_
## **Year ended 31 December 2021**
## **3. Accounting policies** _**(continued)**_
## **Financial instruments**
Financial liabilities and equity instruments are classified according to the substance of the contractual arrangements entered into.
Debtors and creditors with no stated interest rate and receivable or payable within one year are recorded at transaction price. Any losses arising from impairment are recognised in the profit and loss account in other administrative expenses.
Loans and borrowings are initially recognised at the transaction price including transaction costs. Subsequently, they are measured at amortised cost using the effective interest rate method, less impairment. If an arrangement constitutes a finance transaction it is measured at present value.
## **4. Donations and legacies**
|||Unrestricted|**Total Funds**|Unrestricted|Total Funds|
|---|---|---|---|---|---|
|||Funds|**2021**|Funds|2020|
|||£|**£**|£|£|
||**Donations**|||||
||Donations|33,040|33,040|23,349|23,349|
|||``|``|``|``|
|**5.**|**Expenditure on charitable activities**|**by fund type**||||
|||Unrestricted|**Total Funds**|Unrestricted|Total Funds|
|||Funds|**2021**|Funds|2020|
|||£|**£**|£|£|
||Support costs|2,802|2,802|5,631|5,631|
|||``|``|``|``|
|**6.**|**Expenditure on charitable activities**|**by activity type**||||
|||||**Total funds**|Total fund|
||||Support costs|**2021**|2020|
||||£|**£**|£|
||Support costs||2,262|2,262|5,631|
||Governance costs||540|540|–|
||||``|``|``|
||||2,802|2,802|5,631|
||||``|``|``|
|**7.**|**Analysis of support costs**|||||
||||Analysis of|||
||||support costs|**Total 2021**|Total 2020|
||||£|**£**|£|
||Communications and ma�keting||2,072|2,072|5,500|
||General office||190|190|131|
||||``|``|``|
||||2,262|2,262|5,631|
||||``|``|``|
**9**
## **OURBRAINBANK CIO**
## **Notes to the Financial Statements** _**(continued)**_
## **Year ended 31 December 2021**
## **8. Staff costs**
The average head count of employees during the year was Nil (2020: Nil).
No employee received employee benefits of more than £60,000 during the year (2020: Nil).
## **9. Trustee remuneration and expenses**
No remuneration or other benefits from employment with the charity or a related entity were received by the trustees; or
## **10. Creditors: amounts falling due within one year**
|||||**2021**|2020|
|---|---|---|---|---|---|
|||||**£**|£|
||Accruals and deferred income|||540|–|
|||||``|``|
|**11.**|**Analysis of charitable funds**|||||
||**Unrestricted funds**|||||
|||At|||**At**|
||1|January 202||**31 December**||
|||1|Income|Expenditure|**2021**|
|||£|£|£|£|
||General funds|17,718|33,040|(2,802)|47,956|
|||``|``|``|``|
||||||At|
|||At||31 December||
|||31 July 2019|Income|Expenditure|2020|
|||£|£|£|£|
||General funds|–|23,349|(5,631)|17,718|
|||``|``|``|``|
|**12.**|**Analysis of net assets between funds**|||||
|||||Unrestricted|**Total Funds**|
|||||Funds|**2021**|
|||||£|**£**|
||Current assets|||48,496|48,496|
|||||``|``|
|||||Unrestricted|Total Funds|
|||||Funds|2020|
|||||£|£|
||Current assets|||17,718|17,718|
|||||``|``|
**10**