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Down Syndrome UK Trustees’ Annual Report 2021-22
Title Annual Report Text Report and accounts for the year ended 31 August 2022
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Down Syndrome UK Trustees’ Annual Report 2021-22
Title
Text
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Down Syndrome UK Trustees’ Annual Report 2021-22
Contents
| Contents | |
|---|---|
| Introduction | 4 |
| Meet the team | 5 |
| Achievements and performance | 6 |
| Our year in numbers | 12 |
| Feedback | 13 |
| Funding | 14 |
| Financial review | 15 |
| Organisational structure | 16 |
| Statement of Trustees’ responsibilities | 17 |
| Statement of fnancial activities | 18 |
| Notes to the accounts | 20 |
| Independent examiners report | 24 |
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Down Syndrome UK Trustees’ Annual Report 2021-22
Introduction
The Board of Trustees present their Annual Report for the year ended 31 August 2022 under the Charities Act 2011, together with the financial statements for the year. The Board confirms that the latter comply with the requirements of the Charities Act 2011, the trust deed and the Charities SORP FRS 102 (2015) (update bulletin 1).
Objects of the Charity
Relief of those in need by reason of parents and families of children and young people with Down syndrome in the UK through the provision of a forum that provides accurate up to date information on the realities of living with Down syndrome and is a central hub of information and resources for the condition.
The objects are exclusively for the public benefit to promote the effectiveness or efficiency of charities and to advance any other charitable purpose within the meaning of English Law.
The Trustees have referred to the guidance contained in the Charity Commission’s general guidance on public benefit when reviewing the Charity’s purposes and aims, and when planning future activities. In particular, we consider how planned activities will contribute to the achievement of the objectives and aims.
Beliefs and aims for 2022
Down Syndrome UK works to improve the lives of people with Down syndrome, and their families. We primarily work in maternity care and the early years providing resources, training and support to parents and professionals to empower those with Down syndrome to thrive and flourish.
We believe every parent should receive the best possible care and support.
We believe the arrival of every baby with Down syndrome should be celebrated.
We believe every child with Down syndrome should be given every opportunity to flourish and thrive.
To enact these beliefs, we have 4 core aims which underpin our work:
1. Raising awareness of the modern reality of living with Down syndrome in the UK today.
2. Connecting parents of children with Down syndrome to experts, best practice, and each other.
3. Ensuring all children with Down syndrome have the best start in life, and access to the support to enable them to live their lives to the full.
4. Helping parents, the public, professionals, policy makers, and politicians to celebrate and support people with Down syndrome as valued and important members of society.
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Down Syndrome UK Trustees’ Annual Report 2021-22
Meet the team
Caroline Warren Casimir Knight Trustee Trustee
Jude Simpson Trustee
Richard Baker Trustee & Treasurer (appointed April 2023)
Nicola Enoch (resigned April 2023) Sarah Costerton (resigned February 2022)
Staff
Nicola Enoch CEO
Vicky Price-John Administrator
Lorraine McCabe Parent Supporter
Farah Cutter Design Lead
Lucienne Cooper Training Manager
Rozie Haines Heart Buddies Coordinator
Holli Sheahan Marketing & Social Media Manager
Rachel Hristov Community Fundraising Coordinator
Caroline Turner Sarah Ojar Regional Maternity Breastfeeding Supporter Manager
Heidi & James Carter Patrons
June Rogers MBE Children’s Specialist Continence Nurse
Leon Harrop Patron
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Down Syndrome UK Trustees’ Annual Report 2021-22
Achievements and performance
Review of Achievements and Performance for 2022
In this third year of charitable registration, DSUK has undergone a rapid expansion of activities, outreach, and engagement.
From our inception as a charity providing the lived experience to expectant and new parents via a website, and then distributing contemporary literature to maternity staff and units, we have built on this work, improving, and expanding our excellent website and producing an accompanying book #NobodyToldMe the truth about Down syndrome, that is sent to expectant and new parents of a baby with Down syndrome. Our aim is to reach all expectant and new parents of a baby with a high chance or confirmed result of Down syndrome.
In addition, we have strengthened our online communities, with dedicated closed Facebook pages for expectant women, for new parents, for grandparents, for bereaved parents and for preschool parents amongst many others. These groups are carefully moderated and monitored by an experienced group of DSUK volunteers along with experts in their field and whilst they are mostly used for hugely appreciated peer support, they have also been useful in identifying issues that parents have worried about but not been able to name and assisting in referral to the correct professionals.
In March 2021 we celebrated World Down Syndrome Day with a community fundraiser and were delighted to raise over £60,000.
Buoyed by this level of community engagement we have moved to increase our reach further by employing a small team of part-time staff. These staff provide administrative support, design services, social media presence and community fundraising support. With this step change in activities, we also employed Nicola Enoch as Chief Executive Officer, a role that until July 2021 she had been undertaking voluntarily. On behalf of the community, the Trustees thank her for all the voluntary work she has done over the years and all that she continues to do for the Down syndrome community.
Covid has, of course, provided a unique challenge, but the advent and widespread societal uptake of effective online communications platforms, such as Zoom and Teams, has meant that we can reach more families and our online offering has expanded to provide Early Development Groups for preschool early learning, POPS – PADS Online Physiotherapy Support and #Pants4Schools’ toileting boot camps in collaboration with June Rogers MBE, formerly of Bladder & Bowel UK.
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Down Syndrome UK Trustees’ Annual Report 2021-22
Nicola and Caroline became Founding
Members of the National Down Syndrome Policy Group that, during this year,
provided the secretariat to start an All-Party Parliamentary Group on Down Syndrome and were chosen by Dr Liam Fox MP to support his Private Member’s Bill; the Down Syndrome Bill, which in June 2022 became enacted into law in England.
DSUK is immensely proud of the range of resources and services that we provide. Whilst our primary focus has been ensuring expectant and new parents receive the information and support that they deserve, we have continued to evolve and expand, in response to demand.
In September we were delighted to host our first family get together – PADS Party in the Park. We met at Thomley Activity Centre in Buckinghamshire, where over 150 people travelled from the four corners of the UK. With so many lock down babies it was a
wonderful experience for families to meet in person and enjoy being members of such a proactive dynamic community.
Founder and CEO Nicola Enoch’s commitment to the Charity and wider community, was acknowledged when she was voted Star Mum at Hello magazine’s Inspiration Awards.
We were also delighted to be finalists at the Nursing Times Awards for our highly successful #Pants4School initiative, a tremendous achievement for such a small Charity.
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Down Syndrome UK Trustees’ Annual Report 2021-22
Throughout the year Training Manager Lucienne Cooper delivered training to medical professionals and students across the UK. We have developed a very powerful training module that includes data from our published research Sharing the News – the maternity experience of 1,410 women in the UK who have had a baby with Down syndrome, together with focusing around sharing best practice, considering language and attitudes, how to share the news baby has/may have Down syndrome and having a contemporary understanding of the condition. Lucienne and Nicola delivered training to more than 1,000 professionals including franchisees from Window to the Womb, and health visitors at the annual iHV conference.
Research continues to be an area we support and promote – with Nicola presenting the findings from our breastfeeding report at the Down Syndrome Research Forum, and the Nystagmus report in which we collaborated with Dr Maggie Woodhouse. We also launched our collaboration with University of Warwick repeating our maternity research. Articles written by DSUK personnel were published by the International Journal of Birth and Parent Education, Nursery World, and the British Journal of Midwifery.
Nystagmus in children with Down syndrome
The parental experience
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Breastfeeding a
baby with Down
syndrome
The maternity experience 2022
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Educating and empowering professionals who work with our children and young people is an area we are continuing to expand, and we extended our offer to deliver training to professionals working in early years. Extensive training opportunities were provided throughout the year to our families, including around will writing, guardianship, constipation, positive behaviour and early communication skills.
During the year we have expanded our work, reaching more maternity units across the UK. We have achieved this by the introduction of Regional Maternity Coordinators. We also developed a training offer to deliver training sessions online to maternity staff around the country.
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Down Syndrome UK Trustees’ Annual Report 2021-22
We continue to invest time, money and resources collaborating with maternity units across the UK to ensure expectant and new parents receive the care, information and support that they deserve. We now work with more than 70 maternity units via our team of Regional Maternity Coordinators, who each liaise with their local maternity units to act as a central point of contact, ensuring a supply of PADS resources are available to expectant and new parents.
We also invested in attending Midwifery festivals in London, Birmingham, Cardiff and Manchester where maternity professionals were delighted to learn about the services and resources PADS provides. Wanting to extend our reach beyond maternity professionals, we exhibited at the Primary Care Event at the NEC, where we engaged with GPs, health visitors, continence and school nurses.
Our very popular Early Development Groups – PEGS continue to attract families who are unable to access local specialist support, and we were delighted to introduce POPS – PADS online physiotherapy sessions. We encourage families to introduce gentle physiotherapy activities from birth and working with a highly experienced paediatric physiotherapist, families benefit from her extensive knowledge and practical advice.
At DSUK, we value and appreciate the amazing work local regional groups undertake across the country, and work
hard to dovetail and compliment their work. Aware that many groups do not have the capacity or resources to undertake the breadth of services our families benefit from, we identify where knowledge, support and information are lacking and develop resources and ongoing support accordingly.
Since 2015 Nicola has been organising and hosting an annual networking event to which the 100+ local groups are invited. In October 2021 the network conference was very well attended, with both external speakers and those from within the community speaking on a range of topics including Prof Simon Gaisford of UCL feeding back about a trial we have undertaken around constipation, and research with charity Parkinson’s Disease re a potential correlation between constipation and dementia. We also had excellent presentations from Dr Hana D’Souza of University of Cambridge, Dr Liz Corcoran of the DSRF, Emma Austin of Central England Law Centre, Laura Baxter of Special Olympics, and representatives from Downright Special, 21&Co, Down Syndrome Training and Support Services Ltd, Oxford DSSG, Cheshire DSSG and from the National Down Syndrome Policy Group.
We enjoyed another successful fundraising year, with amazing support from our community. The annual Big PADS Push was well attended in August, and an online draw for an iPad donated by a parent raised £1,047. The lead up to World Down Syndrome Day on 21st March generated over £60k which was an amazing effort by many families and individuals, and we are immensely grateful to all those who choose to support DSUK.
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Down Syndrome UK Trustees’ Annual Report 2021-22
In June we encouraged families to celebrate the Queen’s Jubilee by participating in PADS PositiviTea event, which raised wonderful awareness as well as funds.
The creation and sale of calendars enabled us to raise sufficient funds to provide calendars to every maternity unit in the UK, raising positive awareness and signposting to our services.
Volunteers continue to play a significant part in supporting our social media activities, as well as providing an amazing resource to our PADS Heart Buddies scheme. During the year we supported more than 60 families whose child underwent heart surgery and have more than 92 parent volunteers registered as PADS Heart Buddies.
We can see significant impact of our award nominated #Pants4School initiative. During the year we ran 5 bootcamps, working directly with more than 125 families. Our online support groups continue to flourish, with more than 3,144 parents and professionals in our under 5’s group and 1,163 accessing information and support for those over 5.
At DSUK we are committed to supporting our mothers who wish to breastfeed, by providing peer support, and in March we appointed Sarah Ojar as our Breastfeeding Supporter. Sarah has been working to develop a breastfeeding training module, expanding our resources and providing ongoing support to our families.
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Down Syndrome UK Trustees’ Annual Report 2021-22
DSUK has helped our family massively!! From potty training tips to speech and language sessions, their advice and knowledge covering all areas of raising a child with Down Syndrome is invaluable to us. We will forever support and be grateful for everything they do. Tracy, Mum to Izabella
Being immersed in the community and regularly seeking feedback and asking for views, we are able to identify and respond to need. Over the year we introduced online bootcamps to work with families to support and promote positive behaviour. We introduced more resources including information around infantile spasms, as well as ongoing support to the professionals who work with our children in preschool settings.
We take a very holistic approach providing support to the whole family and promoting mental wellbeing. Our weekly online yoga sessions continue to be well attended, as do our weekly Sunday morning TomFit sessions.
We are very proud to have provided independent professional counselling on both an individual and group basis since 2020 and we know many families highly value and appreciate this support. We endeavour to provide support to all families. We have a closed group for those parents who sadly are bereaved and have provided counselling and ongoing support to these families too.
As the Charity grows, Trustees identified the need to develop a database to ensure we deliver effective and impactful resources and communications with all those we engage with. Working with a consultancy, we have now implemented a bespoke Sales Force database which we
continue to extend and develop in line with our operations.
We were delighted to be selected by Help Films who developed a fabulous video for us to share with expectant and new parents. And our collaboration with LTS Global Solutions continued with further branding of more of their fleet, providing a unique opportunity to spread awareness across the highways of the UK!
Huge thanks to all those who continue to ensure DSUK is a thriving, proactive and effective Charity, ensuring that the future for people with Down syndrome looks bright.
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Down Syndrome UK Trustees’ Annual Report 2021-22
----- Start of picture text -----
Our year in numbers
133 250+ 903 248 1,147 1,101
Expectant women Babies welcomed New parents Breastfeeding Preschool Grandparents
being supported parents supported parents
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----- Start of picture text -----
3,144
Families and professionals
accessing Pants4School
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----- Start of picture text -----
The number of professional members
1,387 271
Medical Preschool
practitioners trained teachers
183
Primary teachers
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----- Start of picture text -----
The number of children supported by
1,467
support, training & resources Preschool
504 878 314
Primary schools Secondary schools 16+
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----- Start of picture text -----
108
Regional support
groups
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150 Volunteers
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Down Syndrome UK Trustees’ Annual Report 2021-22
Feedback from parents and professionals
PADS has been an absolute lifeline. Without it, I don’t know how we would have coped. From feeling so scared and alone, we can now see an exciting positive future for our son, and know that PADS is there to hold our hands all the way. Sarah, mum to Charlie.
Nobody gets it unless you’re actually in the same situation… so it’s been amazing to be able to meet and chat with other mums who have the same concerns and worries, and to be able to see and hear from those further down the line to see that everything’s going to be ok. Beth, mum to Emily.
I enjoyed the new perspective given on Down syndrome and how little changes like language can have a big significance on families and how they view and feel about their babies. I feel more equipped to signpost parents to get information and support as well as supporting breast feeding. Midwifery student at University of Leicester.
Massive thanks to Nicola and everyone at PADS - I honestly don’t know where I’d be without PEGS and POPS helping me to support Sam, this is a lovely safe place to ask all the questions (or search for them) and the endless support whenever required. The work you all do is amazing! Laura, mum to Sam.
This evening I opened a package from the amazing team at Positive about Down syndrome. It made me cry! This is exactly what parents need in the firs few hours after diagnosis, not ‘we are sorry’ and then nothing until you see your consultant. This information / eduction is so valuable. Sarah, mum to Ayda.
Huge thanks to PADS for your eye screening session. I went into our opthamology appointment ready and armed. The optometrist listened to my concerns and was very impressed with my knowledge. I feel so relived and grateful to this support group for all of the knowledge sharing . Laura, mum to Lucy.
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Down Syndrome UK Trustees’ Annual Report 2021-22
Funding
The main risk to Down Syndrome UK, apart from the pandemic and subsequent economic impact, would be a loss of funds due to our donors no longer being able to commit further funding.
Future Plans
DSUK is a dynamic and proactive Charity, led and managed by parents of children and young people with Down syndrome. Immersed in the community we identify and respond to issues and challenges that our families face, by providing information, resources, and support as necessary. We also look to influence and impact national policy and practice by collaborating with relevant policy makers and providers.
During 2022/2023 we will continue to work hard to improve the maternity experiences of our parents and to ensure every baby with Down syndrome is welcomed into the world with the care and support they deserve. We will increase our reach to universities and maternity units to deliver training to future and current practitioners in maternity care and are looking to extend this to other medical professionals.
We aim to provide more services and support to the education professionals who work with our children in pre and primary school settings.
DSUK will continue to listen to people with Down syndrome, their families and the professionals who work with them to work towards a more inclusive society.
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Down Syndrome UK Trustees’ Annual Report 2021-22
Financial review
The majority of our income is generated by the generosity of parents, friends and families undertaking a range of challenges and activities to support our work.
Our income for the year was £245,685 (2021 (restated): £231,080) and we spent £253,097 (2021: £93,079) as set out in these accounts. We ended the year with cash at bank of £151,678 (2021: £119,059).
Reserves Policy
Reserves are required to cover an unexpected loss of income and to allow ongoing commitments to be met in these circumstances. Since the majority of our income is by gift from private donors, a sudden loss of this income would likely
result in a need to close the Charity. To mitigate this risk, we aim to have at least 6 months’ trading reserve at any one time.
Investment Policy
As a young Charity, we have not yet built substantial investments and, in these early years, the aim is to protect our funds. We will consider a more formal policy as we grow.
Risk Management
The Trustees have conducted a review of the major risks to which the Charity is exposed. Where appropriate, systems or procedures have been established to mitigate the risks the Charity faces.
Structure, governance and management
Governing Document
Down Syndrome UK is registered with the Charity Commission of England and Wales, Registration Number 1184564. It is governed by a Trust Deed, dated 23 July 2019. The Charity was registered from 24 July 2019.
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Down Syndrome UK Trustees’ Annual Report 2021-22
Organisational structure
The Trustees appointed under the Trust Deed are entitled to hold office for a period of 2-4 years initially, with option to extend. Further Trustees may be appointed by invitation and resolution of the current Trustees.
The Trustees meet at least quarterly, to review existing projects and discuss new ones.
The Trustees provide corporate governance the Charity, and assist the CEO and management to both develop the strategy and deliver it. The Trustees have a legal obligation to supervise and shepherd the Charity and have ultimate responsibility for the Charity and its activities.
The Trustees aim to develop the Trustee board in order increase its impact and diversity while supporting staff and the community.
Key Management Personnel Remuneration
Reference and Administrative Information
Charity registration number: 1184564
Principal Office: 5 Hill Close Leamington Spa CV32 7RQ
Trustees
The Trustees during the year and up to the date of this report were:
S Costerton (resigned 12 January 2022) N Enoch (resigned April 2023) C S B Knight (appointed 12 January 2022) J F Simpson (appointed 12 January 2022) C L Warren R F Baker (appointed April 2023)
Independent Examiner
Khizer Kayani ACA, 2 Coldharbour Lane, Bushey, London, WD23 4NS
Bankers
The Trustees consider the Board of Trustees as comprising the key management personnel of the Charity in charge of directing and controlling the Charity and running and operating the Charity on a day to day basis.
Trustees are required to disclose all relevant interests to the board meetings and, in accordance with the Trust’s policy, withdraw from decisions where a conflict of interest arises.
CAF Bank Limited 25 Kings Hill Avenue West Malling Kent, ME19 4JQ
Approved by the Trustees on 28[th] June 2023
and signed on their behalf by:
Caroline Warren Chair
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Down Syndrome UK Trustees’ Annual Report 2021-22
Statement of Trustees’ responsibilities
The Trustees are responsible for preparing the Trustees’ Annual Report and the financial statements in accordance with applicable law and United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards).
The law applicable to charities in England and Wales requires the Trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the Charity and of the incoming resources and application of resources of the Charity for that period. In preparing these financial statements, the Trustees are required to:
The Trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the Charity’s transactions, disclose with reasonable accuracy at any time the financial position of the Charity and enable them to ensure that the financial statements comply with the Charities Act 2011, the Charities (Accounts and Reports) Regulations 2008 and the provisions of the Charity’s constitution. They are also responsible for safeguarding the assets of the Charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
-
select suitable accounting policies and then apply them consistently;
-
observe the methods and principles in the Charities SORP;
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make judgments and estimates that are reasonable and prudent;
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state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements;
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prepare the financial statements on the going concern basis unless it is inappropriate to presume that the Charity will continue in business.
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Down Syndrome UK Trustees’ Annual Report 2021-22
Statement of financial activities
For the year ended 31 August 2022
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2022 2021 (restated)
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| Note Income and endowments from: Donations Gift Aid Charitable Activities: Support Groups Total income Expediture on: Fundraising: Events Charitable activities 2 Total resources expended Net (Defcit)/Income and Movement in Funds Fund balances brought forward Fund balances carried forward |
£ £ £ £ 176,363 192,037 3,942 6,011 65,380 33,032 |
|---|---|
| 245,685 231,080 8,244 1,276 244,853 91,803 |
|
| 253,097 93,079 (7,412) 138,001 |
|
| 158,167 20,166 |
|
| 150,755 158,167 |
All funds were unrestricted in the current and preceding year. The notes on pages 20 to 23 form part of these accounts.
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Down Syndrome UK Trustees’ Annual Report 2021-22
Balance sheet as at 31 August 2022
----- Start of picture text -----
2022 2021 (restated)
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| 2022 2021 (restated) |
|
|---|---|
| Note Current assests: Debtors 3 Bank balances Liabilities: Creditors: Amounts falling due within one year Accruals NET current assets Total NET assets Total funds:Unrestricted funds |
£ £ £ 9,953 39,108 151,678 119,059 |
| 161,631 158,167 (10,876) - 150,755 158,167 150,755 158,167 |
|
| 150,755 158,167 |
Approved by the Trustees and signed on their behalf by:
Caroline Warren Trustee
Date: 28[th] June 2023
The notes on pages 20 to 23 form part of these accounts.
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Down Syndrome UK Trustees’ Annual Report 2021-22
Notes to the accounts for the year ended 31 August 2022
1. Accounting Policies
a) Basis of Accounts Preparation
The accounts have previously been prepared on a cash basis. Due to the Charity’s size, the accounts have now been prepared on an accruals basis. The impact of the transition is set out in note 6 to these accounts.
The accounts have been prepared in accordance with the Charities SORP (FRS102) applicable to charities preparing their accounts in accordance with the Financial Reporting Standards applicable in the UK and Republic of Ireland and the Charities Act 2011 and UK Generally. Accepted Practice as it applies from 1 January 2015.
Down Syndrome UK meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note.
In their assessment of going concern the trustees have considered the impact on the Charity of the COVID-19 virus and current economic conditions.
Having regard to the above, the Trustees believe it appropriate to adopt the going concern basis of accounting in preparing the financial statements.
b) Critical Accounting Judgements and Key Sources of Estimation Uncertainty.
The accounts have been prepared to give a ‘true and fair’ view and have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a ‘true and fair view’. This departure has involved following Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) issued 16 July 2014 rather than the Accounting and Reporting by Charities: Statement of Recommended Practice effective from 1 April 2005 which has since been withdrawn.
In the application of the Charity’s accounting policies, which are described in note 1, Trustees are required to make judgements, estimates and assumptions about the carrying value of assets and liabilities that are not readily apparent from other sources. The estimation and underlying assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.
The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting
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Down Syndrome UK Trustees’ Annual Report 2021-22
estimates are recognised in the period in which the estimate is revised if the revision affects only that period, or in the period of revision and future periods if the revision affects the current and future periods. In the view of the Trustees, no assumptions concerning the future or estimation uncertainty affecting the assets and liabilities at the balance sheet date are likely to result in a material adjustment to their carrying amounts in the next financial year.
c) Financial Instruments
The Charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value.
e) Expenditure
Expenditure is recognised on an accrual basis as each liability is incurred.
Costs of generating funds comprise the costs associated with fundraising activities.
Charitable expenditure comprises those costs incurred by the Charity in the delivery of its activities and services for its beneficiaries. It includes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them.
f) Grants and Donations Payable
Grants are recognised in the accounts when a commitment has been made and there are no conditions to be met relating to the grant which remain in the control of the Charity.
d) Income
All incoming resources are included in the statement of financial activities when the Charity is entitled to the income, the amount can be quantified with reasonable accuracy and receipt is probable.
The following specific policies are applied to particular categories of income:
• Voluntary income is received by way of grants, donations and gifts and is included in full in the Statement of Financial Activities when receivable. Grants, where entitlement is not conditional on the delivery of a specific performance by the Charity, are recognised when the Charity becomes unconditionally entitled to the grant.
g) Taxation
The Trust is exempt from income tax on its charitable activities.
h) Debtors
Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid after taking account of any trade discounts due.
- Investment income is included when receivable.
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Down Syndrome UK Trustees’ Annual Report 2021-22
i) Creditors and provisions
j) Cash
Creditors and provisions are recognised when the Charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.
Cash is represented by cash in hand and deposits with financial institutions repayable without penalty on notice of not more than 24 hours.
2. Charitable Activities
| 2022 2021 |
|
|---|---|
| Debtors Administration and support costs: Salary costs System development and implementation General operating costs Charitable activities: Provision of services and resources including support groups, counselling, information sharing sessions, early development groups and physiotherapy |
£ £ 95,324 14,001 28,313 - 41,862 28,129 79,354 49,673 |
| 244,853 91,803 |
|
| 2022 2021 |
|
| Amounts due from donation platforms Gift aid reclaim |
£ £ - 33,097 9,953 6,011 |
| 9,953 39,108 |
3. Debtors
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Down Syndrome UK Trustees’ Annual Report 2021-22
4. Trustee Expenses
One Trustee received remuneration during the year of £36,000 (2021: £6,000) for services as the Charity’s CEO. This Trustee resigned on 24 April 2023 and continues as CEO.
5. Related Party Transactions
A close family member of a Trustee was paid £2,242 (2021: £1,593) for their services during the year.
6. Change of Accounting Basis
The accounts have previously been prepared on a cash basis and this year they have been prepared on an accruals basis.
Two adjustments were required to the prior year ended 31 August 2021:
1. Accounting for a donation of £33,097 which was due in that year but received during the year ended 31 August 2022.
2. Accounting for gift aid of £6,011 to be reclaimed, which was not received in the year ended 31 August 2021.
Impact on reported result for year ended 31 August 2021: £98,893 as previously reported is now £138,001.
Impact on reported reserves as at 31 August 2021: £119,059 as previously reported is now £158,167.
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Down Syndrome UK Trustees’ Annual Report 2021-22
Independent examiner’s report to the Trustees of Down Syndrome UK
I report to the trustees on my examination of the accounts of Down Syndrome UK (the Trust) for the year ended 31 August 2022, which are set out on pages 18 to 23.
This report is made solely to the Charity’s trustees, as a body, in accordance with section 154 of the Charities Act 2011. My independent examiner’s work has been undertaken so that I might state to the Charity’s trustees those matters I am required to state to them in an independent examiner’s report and for no other purpose. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the Charity, the Charity’s members as a body and the Charity’s trustees as a body for my independent examiner’s work, for this report, or for the opinions I have formed.
Responsibilities and basis of report
As the Charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner’s statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
1. accounting records were not kept in respect of the Trust as required by section 130 of the Act; or
2. the accounts do not accord with those records; or
3. the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Khizer Kayani ACA
2 Coldharbour Lane, Bushey, London, WD23 4NS
Signed: Date: 28[th] June 2023