# INTERNATIONAL CARDIOMYOPATHY NETWORK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1184472
- **Other names:** ICON
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** July 18, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1184472


## Contact

- **Address:** C/O Cardiomyopathy UK, 75a Woodside Road, Amersham, Buckinghamshire
- **Phone:** 01494791224
- **Email:** joel@cardiomyopathy-icon.org



## Activities

**Objects:** (1) TO ADVANCE THE EDUCATION OF HEALTHCARE PROFESSIONAL ON THE SUBJECT OF CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE THROUGH THE PROVISION OF EDUCATIONAL LEARNING OPPORTUNITIES AND OTHER METHODS THAT TRUSTEES SEE FIT SO AS TO IMPROVE THE DETECTION AND TREATMENT OF SUCH DISEASES FOR THE PUBLIC BENEFIT.(2) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE THROUGH THE PROMOTION AND FACILITATION OF RESEARCH FOR THE PUBLIC BENEFIT IN ALL ASPECTS OF CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE BY PROVIDING NETWORKING OPPORTUNITIES FOR RESEARCHERS, SUPPORT AND ADVICE TO RESEARCHERS AND OTHER MEANS TRUSTEES SEE FIT.(3) TO ADVANCE THE EDUCATION OF HEALTHCARE PROFESSIONALS WORLDWIDE THROUGH THE DISSEMINATION OF THE RESULTS OF RESEARCH INTO CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE.(4) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY AND DISEASES OF THE HEART MUSCLE WORLDWIDE THROUGH THE CREATION, MONITORING AND DEVELOPMENT OF RELEVANT GUIDANCE ON THE TREATMENT OF SUCH DISEASES.(5) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY WORLDWIDE THROUGH COLLABORATION WITH RELEVANT STAKEHOLDERS IN ADVOCATING FOR IMPROVE ACCESS TO TREATMENT FOR PEOPLE AFFECTED BY SUCH DISEASES.(6) TO INCREASE AWARENESS OF CARDIOMYOPATHY AND RELATED DISORDERS AMONG THE GENERAL PUBLIC AND THE SUPPORT AND INFORMATION AVAILABLE TO PEOPLE WITH CARDIOMYOPATHY AND RELATED CONDITIONS.

**Activities:** Education of healthcare professionals regarding cardiomyopathy and related conditionsPromotion of research into cardiomyopathy and related conditionsEstablishment of best practice in the treatment and management of cardiomyopathy and related conditions




## Classification

- **How:** Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** People With Disabilities



## Geography

- Belgium
- France
- Germany
- Greece
- Ireland
- Italy
- Netherlands
- Spain
- United States
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Prof. Perry Mark Elliott** | Chair | July 18, 2019 |
| Dr Aristides Anastasakis |  | July 18, 2019 |
| Dr Juan Pablo Kaski |  | July 18, 2019 |
| Dr Juan Ramon Gimeno Blanes |  | July 18, 2019 |
| Dr Lucie Carrier |  | July 18, 2019 |
| Prof. Ales Linhart |  | July 18, 2019 |
| Prof. Eloisa Arbustini |  | July 18, 2019 |
| Prof. Guiseppe Limongelli |  | Feb. 23, 2024 |
| Prof. Jolanda Van Der Velden |  | April 12, 2021 |
| Professor Iacopo Olivotto |  | July 18, 2019 |



