Trustees’ Annual Report for the period
From Period start date 01/02/2021 To Period end date 31/01/2022
Charity name: Cavernoma Society
Charity registration number: 1184406
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | To provide information and support to those affected by cavernoma, and raise awareness of the condition. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
To raise awareness of cavernoma and support those affected through information and support groups and services. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | The trustees have run the charity as proposed in the governing document and have therefore met all of the key objectives set out by the charity. |
Additional information (optional) You may choose to include further statements where relevant about:
| SORP reference | ||
|---|---|---|
| Policy on grant making | Para 1.38 | N/A |
| Policy on social investment including program related investment |
Para 1.38 | N/A |
| Contribution made by volunteers |
Para 1.38 | We are grateful to all of our volunteers who have worked hard to help us to run the charity and continue supporting members through our vital services. As a small charity with no paid employees we rely on volunteers and our trustees to run our charity. In particular thank you to Emily Sudlow and Lisa Goldapple for their help and support. |
Other
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | In this financial year the Cavernoma Society supported both its adult and child members through various holistic services. We ran a 2 day family retreat to Legoland for more than 10 families thanks to the support of Merlin Magic Wand, who donated Legoland tickets. We also ran a 3-day Adult Retreat in Staffordshire for more than 35 people. In January we ran our January Wellness month, which included online yoga, meditation, and hypnotherapy. Throughout the year we also ran free online Reiki courses, as well as yoga and Pilates. Our specialist counselling service was once again extremely popular and our therapists conducted more than 1000 hours of therapy with our members across the year. We once again celebrated our annual awareness day – Raspberry Day in September and were supported by JC Decaux, who donated billboard marketing across the UK. As a result of COVID we ran an online curry making social in December to try and get our members chatting, having fun, and learning something new. We also created and delivered more than 30 COVID packs to members who were struggling financially. These included food, toiletries, and washing products. With thanks to a generous £5000 grant from the Foyle Foundation to run nutritional workshops and courses for our members, concentrating on gut health – providing them with nutritional guidance. We helped more than 30 members with their benefit applications, appeals, and |
tribunals, securing thousands in funding for them. We also wrote over 20 GP referral letters and helped members to get a second opinion, genetic testing, and neuro rehab services. We raised awareness with 5 of our members doing a skydive on Raspberry Day. This also helped to raise money for the charity.
Additional information (optional) You may choose to include further statements where relevant about:
| Achievements against objectives set |
Para 1.41 | We met our objectives, as we provided information, support, events, and raised awareness. |
|---|---|---|
| Performance of fundraising activities against objectives set |
Para 1.41 | We raised more than £18000, which was a slow year for us, but it was to be expected during the pandemic. |
| Investment performance against objectives |
Para 1.41 | N/A |
| Other | N/A |
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | The Charity is raising enough on a monthly basis to cover its ongoing costs. We are always looking at ways to save money, but currently, with no staff costs we are managing our other financial commitments adequately. |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | Because we are only a small charity, we try to only hold back £500 in reserves to cover our website costs and annual insurance. |
| Amount of reserves held | Para 1.22 | £500 |
| Reasons for holding zero reserves |
Para 1.22 | |
| Details of fund materially in deficit |
Para 1.24 | |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | We have no uncertainties about the charity continuing to operate as we are in a stable financial position. |
| Additional information (optional) You may choose to include further statements |
Additional information (optional) You may choose to include further statements |
where relevant about: |
|---|---|---|
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | At the moment, our principal source of funds is monies raised by our members. |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | N/A |
| A description of the principal risks facing the charity |
Para 1.46 | We need to continue to encourage our members to keep fundraising. |
| Other |
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | CIO |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Our Trustees are revied annually and we have to vote in a new trustee |
Additional information (optional) You may choose to include further statements where relevant about:
| Policies and procedures adopted for the induction and training of trustees |
Para 1.51 | Each trustee is sent the governing document and information from the Charity Commission. |
|---|---|---|
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | We are run by trustees and have no employees. |
| Relationship with any related parties |
Para 1.51 | N/A |
| Other |
Reference and Administrative details
| Charity name | Cavernoma Society |
|---|---|
| Other name the charity uses | |
| Registered charity number | 1184406 |
| Charity’s principal address | 4 Arlington Court, Arlington Road Twickenham TW1 2BX |
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee (if any) |
|---|---|---|---|---|
| Simona Stankovska |
||||
| Carolyn Nichols | ||||
| Sangie Cattanach | ||||
| Nick Page | ||||
| Caroline Leonard | ||||
– Corporate trustees names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
Trustee name Dates acted if not for whole year
Funds held as custodian trustees on behalf of others
Description of the assets held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
| Names and addresses of advisers (Optional information) | Names and addresses of advisers (Optional information) | Names and addresses of advisers (Optional information) |
|---|---|---|
| Type of adviser Name Address |
||
| Name of chief executive or names of senior staff members (Optional information) |
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Victoria Butler Full name(s) Simona Stankovska Position (eg Secretary, Secretary Trustee Chair, etc) Date 15/11/2024
Charity Name No (if any) Receipts and payments accounts
CC16a
For the period Period start date Period end date To from
Section A Receipts and payments
| A1 Receipts | Unrestricted funds to the nearest £ - 11,474 150 1,889 - - - - 13,513 - - - 13,513 1,812 8,120 965 6,279 - - - - 17,176 3,303 - 3,303 20,479 - 6,966 - - - 6,966 |
Restricted funds to the nearest £ 5,000 - - - - - - - 5,000 - - - 5,000 - - - 4,176 - - - - - 4,176 - - - 4,176 824 - - 824 |
Endowment funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - |
Total funds to the nearest £ 5,000 11,474 150 1,889 - - - - 18,513 - - - 18,513 1,812 8,120 965 4,176 6,279 - - - - 21,352 3,303 - 3,303 24,655 - 6,142 |
Total funds to the nearest £ 5,000 11,474 150 1,889 - - - - 18,513 - - - 18,513 1,812 8,120 965 4,176 6,279 - - - - 21,352 3,303 - 3,303 24,655 - 6,142 |
Last year to the nearest £ |
|---|---|---|---|---|---|---|
| Foyle Foundation Grant | - | - | ||||
| Member fundraising | 11,474 | - | ||||
| Donations | 150 | - | ||||
| Merchandise Sales | 1,889 | - | ||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| Sub total(Gross income for AR) |
13,513 | - | ||||
| A2 Asset and investment sales, (see table). |
||||||
| - | ||||||
| - | - | |||||
| Sub total | - | - | ||||
| Total receipts A3 Payments |
||||||
| - | ||||||
| Runningcosts | 1,812 | - | ||||
| Therapy | 8,120 | - | ||||
| Postage | 965 | - | ||||
| Services | - | |||||
| Retreats | 6,279 | - | ||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| **Sub total ** | 17,176 | - | ||||
| A4 Asset and investment purchases, (see table) |
||||||
| merchandise | 3,303 | |||||
| - | ||||||
| **Sub total ** | 3,303 | - | ||||
| Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end |
||||||
| - | ||||||
| - 6,966 | 824 | - | - 6,142 | - | ||
| - | - | - | - | - | ||
| - | - | - | - | - | ||
| - 6,966 | 824 | - | - 6,142 | - |
CCXX R1 accounts (SS)
1
Section B Statement of assets and liabilities at the end of the period
| Categories Signed by one or two trustees on behalf of all the trustees B5 Liabilities B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use B1 Cash funds |
Details Details Details Total cash funds (agree balances with receipts and payments account(s)) Details Details Signature |
Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - Agreement Error Agreement Error Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) - - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name MrsVictoria butler Miss Simona Stankovska |
Endowment funds to nearest £ |
|---|---|---|---|
| - | |||
| - | |||
| - | |||
| - | |||
| OK | |||
| Endowment funds to nearest £ |
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| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
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| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
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| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| When due (optional) |
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| Date of approval |
|||
| MrsVictoria butler | 11/15/2024 | ||
| Miss Simona Stankovska | 11/15/2024 |
CCXX R2 accounts (SS)
2