# THE CAVERNOMA SOCIETY

## Details

- **Country:** England & Wales
- **Charity number:** 1184406
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** July 15, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1184406


## Contact

- **Address:** Flat 6, 5 Riverdale Gardens, TWICKENHAM
- **Postcode:** TW1 2BX
- **Phone:** 03301224470
- **Email:** hello@cavernomasociety.org.uk
- **Website:** www.cavernomasociety.org.uk



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE:-A) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF CAVERNOMA THROUGH THE PROVISION OF SUPPORT, EDUCATION, RESEARCH AND PRACTICAL ADVICE ANDB) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO CAVERNOMA.

**Activities:** 1. Providing support to those with cavernoma, their carers, and their family.2. Providing information to those with cavernoma, through literature,  meetings, events, and via video or telephone.3. Providing information to the general public about cavernoma and raising awareness.4. Providing information to health professionals and delivering training workshops.5. Doing research.




## Classification

- **How:** Provides Services
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Areas of operation

- Ireland
- Northern Ireland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Jan. 31, 2025 | £15197 | £15428 | — | — |
| Jan. 31, 2024 | £38912 | £42208 | — | — |
| Jan. 31, 2023 | £22627 | £20825 | — | — |
| Jan. 31, 2022 | £18513 | £24655 | — | — |
| Jan. 31, 2021 | £29158 | £10712 | — | — |



## Trustees

- Amy Taylor — appointed July 1, 2022
- Caroline Leonard — appointed Nov. 1, 2018
- David Weeks — appointed Sept. 29, 2023
- Dr Marie Robinson — appointed June 1, 2022
- Simona Stankovska — appointed Nov. 1, 2018
- Victoria Butler — appointed July 23, 2022