## **Trustees' Annual Report for the period**
||Period start date|Period start date|||Period end date||
|---|---|---|---|---|---|---|
|**From**|01|April|2024|**To**|31
March|2025|
## Section A Reference and administration details
**Charity name** Max’s Trust **Other names charity is known by Registered charity number (if any)** 1184081 **Charity's principal address** 98 Meadow Way, Theale Reading Berkshire **Postcode RG7 5DG**
## **Names of the charity trustees who manage the charity**
|1
2
3
4
5
6
7
8
9
10|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year **|**Name of person (or body) entitled**
**to appoint trustee (ifany)**|
|---|---|---|---|---|
||Lauren Stahly|Chair|||
||Deepti Grover|Treasurer|From 08/05/2024||
||Helen Millard|Secretary|||
||Andrew Button|Vice Chair|||
||Cassandra Finnigan||||
||Kate MacFarlane||From 08/05/2024||
||Kate Tyler||From 08/05/2024||
||Harriet Crosthwaite
Eyre||||
||||||
||||||
**Names of the trustees for the charity, if any, (for example, any custodian trustees)**
**Name Dates acted if not for whole year**
## **Names and addresses of advisers (Optional information)**
**Type of adviser Name Address**
**Name of chief executive or names of senior staff members (Optional information)**
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**Section B Structure, governance and management**
## **Description of the charity’s trusts**
Type of governing document
Constitution
- (eg. trust deed, constitution)
Charitable Incorporated Organisation How the charity is constituted
- (eg. trust, association, company)
Appointed by the charity (Max’s Trust) Trustee selection methods
- (eg. appointed by, elected by)
## **Additional governance issues (Optional information)**
You **may choose** to include additional information, where relevant, about:
- policies and procedures adopted for the induction and training of trustees;
- the charity’s organisational structure and any wider network with which the charity works;
- relationship with any related parties;
- trustees’ consideration of major risks and the system and procedures to manage them.
## **Section C Objectives and activities**
1. The preservation and protection of good health and the relief of sickness of people born with Imperforate Anus (IA) / Anorectal Malformation (ARM) and their families in particular but not exclusively by:
2. Raising awareness of the issues for babies born with Imperforate Anus (IA) / Anorectal Malformation (ARM) and the need for human support for each child.
**Summary of the objects of the charity set out in its governing document**
3. The production and distribution of care boxes for families of newborn babies with IA/ARM, providing information and products to help families learn about and cope with caring for their child.
4. Providing access to comprehensive, approved resources, relevant to all people affected by IA/ARM including the production and distribution of information via digital channels and leaflets that are endorsed by medical professionals and bodies across the UK
5. Access to a network of renowned surgical and clinical care providers, from family doctors (GP’s) through to highly trained specialists, with programs in place for the transition from paediatric to adult care.
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6. Providing mental health support for adults, children, parents, and families and the provision of well led peer support programs for members of the IA/ARM community.
7. An annual educational conference, bringing together specialist medical professionals with families and adults affected by IA/ARM to provide information and support.
**The trustees having had regard to the guidance issued by the Charity Commission on public benefit, the main activities undertaken were:**
**1.** On 14[th] & 15[th] September 2024 Max’s Trust held its Annual Conference at the Delta Hotel by Marriot, Warwick. The conference had a comprehensive programme providing formal and informal sessions, with the opportunity to ask questions to UK experts. The weekend provided a rare opportunity for parents and adults born with ARM to ask questions in the open forum, or if preferred, speak privately with the specialists. We had presentations from 5 paediatric surgeons. There was also the opportunity to talk to a Consultant Gynaecologist and
**Summary of the main** Reproductive Medicine Specialist as well as Children’s **activities undertaken for the** Specialist Nurses. Childcare was also provided during the **public benefit in relation to** conference. **these objects (include within this section the statutory 2.** Trustees of Max’s Trust have been involved in a subcommittee **declaration that trustees have** for Digital Healthcare Passports. We produced a report **had regard to the guidance** regarding Digital Healthcare Passports and have taken part in **issued by the Charity** numerous meetings with two medical professionals and **Commission on public** external individuals. This project has resulted in the creation of **benefit)** a web app that allows individuals to have an accessible record of their healthcare that can be easily updated. This project is nearing its final stages, and we will continue to be involved with this project so that it can be shared with individuals and families who are impacted by ARM.
**3.** We have produced a flyer which was reviewed by a paediatric surgeon who specialises in ARM. These flyers have been distributed at two events. The flyer goes together with our new website that is near completion. The website has information about ARM and Max’s Trust as well as links to other organisations. The information about ARM has been reviewed by paediatric surgeons and a specialist colorectal nurse.
## **Additional details of objectives and activities (Optional information)**
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## **Charitable Donations Policy**
You **may choose** to include further statements, where relevant, about:
- policy on grantmaking;
- policy programme related investment;
- contribution made by volunteers.
## Section D Achievements and performance
**Summary of the main achievements of the charity during the year**
The charity’s two main achievements were as follows:
1. Our annual conference held on the 14[th] and 15[th] September 2024 was one of our best attended conferences to date. 49 adults attended the conference and a further 29 children were in attendance. Attendees had access to presentations and support from 5 Paediatric Surgeons, three Children’s Specialist Nurses and one Consultant Gynaecologist and Reproductive Medicine Specialist. Representatives from other charities and organisations also attended the conference including A Bear Names Buttony, The Pyjama Fairies and Coloplast. Childcare was provided for the children and attendees were provided with snacks and a buffet lunch on both days of the conference.
2. Having appointed new trustees in 2024, Max’s Trust has been represented at 3 events (excluding our own conference). Representatives of Max’s Trust have attended: TOFS Seminar in Warrington on 16[th] November 2024; TOFS Seminar in Bristol on 1[st] March 2025; and Bladder and Bowel Symposium Bolton on 20[th] March 2025. At these events we spread awareness of ARM, promoted the charity and networked with other organisations.
## **Section E Financial review**
**Reserves policy Brief statement of the charity’s policy on reserves** 1. In development **Details of any funds materially** N/A **in deficit**
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## **Further financial review details (Optional information)**
You **may choose** to include additional information, where relevant about:
The main expenditure this year was on the Conference in September 2024, which worked towards objectives 5, 6 and 7.
- the charity’s principal sources of funds (including any fundraising);
- how expenditure has supported the key objectives of the charity;
- investment policy and objectives including any ethical investment policy adopted.
## **Section F Other optional information**
## **Section G Declaration**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s) Full name(s)** Lauren Stahly Andrew Button **Position (eg Secretary, Chair, etc)**[ Chair ] Vice Chair **Date** 8th October 2025
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Option to hide columns not used
## **Max's Trust**
## **Total Receipts & Payments Account for the year ended 1 April 2025**
|**Receipts**
Conference 2024
Donations
Fundraising|Unrestricted
2,011.31
89.05
387.00
**2,487.36**
9,057.80
77.08
381.36
**9,516.24**
**(7,028.88)**
-
12,536.75
**5,507.87**
5,507.87
0.01
-
-
-
5,507.88
-0.01|**-**
**-**
**-**
-
**-**
Previous
year|Budget|
|---|---|---|---|
|||||
|**Total receipts**
**Payments**
Conference 2024
Publicity materials
Website|||**-**|
|**Total payments**|||**-**|
|**Net receipts / (payments)**
Transfer
Balance brought forward|||**-**|
|**Balance carried forward**
Made up of:
Santander
Co-Operative
Account 3
Account 4
Account 5
Checks - this should equal zero|||**-**|
## **Approval of the accounts**
The financial statements were approved at a meeting of the management committee and signed on its behalf by: Signed: ……………………………………
Name ……………………………………… (Management Committee member) Date: ………………………………………
|Row Labels|Sum of Money In|Sum of Money Out|
|---|---|---|
|Balance brought forward|12,537||
|Conference 2024|2,011|9,058|
|Donations|89||
|Fundraising|387||
|Publicity materials||77|
|Website||381|
|(blank)|||
|Grand Total|15,024|9,516|
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