moxtrust.org facebook.com/moxstrust twitter.com/moxstrust yi instagrom.com/maxstrust rj youtube.com linkedin.com/company/maxtrust in Annual Report st st 1 April 2023 to 31 March 2024 Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email.. hello@maxtrust.org Charity No.: 1184081 _maxtrust.org facebook.com/maxstrust twitter.com/maxstrust instagram.com/maxstrust youtube.com linkedin.com/company/maxtrust_ ## **Contents** |**Objectives and Activities**|**1**| |---|---| |**Achievements and Performance**|**3**| |**Financial Review**|**4**| |**Structure, Governance and Management**|**5**| |**Reference and Administrative Details**|**6**| |**Appendices**|**7**| |Annual Accounts Summary Table|| |Annual Accounts Summary Graph|| **Registered Address:** 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA **Telephone:** 07765 248799 **Email:** hello@maxtrust.org **Charity No.:** 1184081 _maxtrust.org facebook.com/maxstrust twitter.com/maxstrust instagram.com/maxstrust youtube.com linkedin.com/company/maxtrust_ ## **Objectives and Activities** ## **Objectives** As described in our constitution, the objectives of Max’s Trust are as follows: The preservation and protection of good health and the relief of sickness of people born with Imperforate Anus (IA) / Anorectal Malformation (ARM) and their families in particular but not exclusively by: - Raising awareness of the issues for babies born with Imperforate Anus (IA) / Anorectal Malformation (ARM) and the need for human support for each child. - The production and distribution of care boxes for families of new-born babies with IA/ARM, providing information and products to help families learn about and cope with caring for their child. - Providing access to comprehensive, approved resources, relevant to all people affected by IA/ARM including the production and distribution of information via digital channels and leaflets that are endorsed by medical professionals and bodies across the UK - Access to a network of renowned surgical and clinical care providers, from family doctors (GP’s) through to highly trained specialists, with programs in place for the transition from paediatric to adult care. - Providing mental health support for adults, children, parents, and families and the provision of well led peer support programs for members of the IA/ARM community. - An annual educational conference, bringing together specialist medical professionals with families and adults affected by IA/ARM to provide information and support. Page 1 **Registered Address:** 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA **Telephone:** 07765 248799 **Email:** hello@maxtrust.org **Charity No.:** 1184081 _maxtrust.org facebook.com/maxstrust twitter.com/maxstrust instagram.com/maxstrust youtube.com linkedin.com/company/maxtrust_ ## **Activities** Through social media and working with other charities, we have continued to raise awareness of anorectal malformations and associated conditions by sharing information and articles of interest and being involved in relevant projects and research opportunities. This included sharing relevant information, research and articles, as well as promoting important events and initiatives such as Rare Disease Day. We held our second face-to face conference since the Covid-19 pandemic, which was a huge success. Held over the weekend of the 16[th] and 17[th] September 2023, we had over 50 delegates who attended and took part in the conference. Similar to last year, the feedback was inspiring, with almost exclusively positive feedback. We supported a piece of research undertaken by a Clinical Psychologist through the University of Leeds supported by a Paediatric Surgeon that we work closely with exploring the impact of living with Cloaca on young adults and their families. We shared information about the research and recruited adults between the ages of 16 and 35 and their families to be interviewed by the researcher. We are awaiting the results later in the year. Our website has been updated throughout the year. There is still a lot of work to do, but we have a presence online and, in time, will have a website that will provide lots of support and information to those affected by ARM. It will be a continuous piece of work as information is updated regularly. We continue to network with and work alongside other charities and partners in the UK and Internationally who will all be signposted on our website and us on theirs. We are currently working alongside several other charities that support people born with different rare diseases and anomalies to improve the transition from paediatric services to adult services. Currently, despite there being NICE guidelines in place for transition, practice and success is not consistent across services and specialisms and there is a call to action so that adult services are more joined up. We are also working alongside TOFS with input from experts by experience and interested adult and paediatric clinicians to create a register of ARM specialists for adults so that they can access good quality support without having to manage the barriers they currently do. Throughout the year, the trustees of Max’s Trust have carried out all activities with regard to the Charity Commission’s guidance on public benefit. Page 2 **Registered Address:** 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA **Telephone:** 07765 248799 **Email:** hello@maxtrust.org **Charity No.:** 1184081 _maxtrust.org facebook.com/maxstrust twitter.com/maxstrust instagram.com/maxstrust youtube.com linkedin.com/company/maxtrust_ ## **Achievements and Performance** The charity raised nearly £8,000 (see Financial Review). This was more than twice the amount of money raised in the previous year. Our Annual Conference was a huge success, and the feedback was incredible. Much like the previous year, we began planning the next one by placing deposits with the same venue and childcare providers. The cloaca research that the charity assisted went well and provided another example of the important role that Max’s Trust has in the ARM community. In terms of benefit to our followers, we have predominantly done this via support through our social media and closed support groups. We have also supported people over the phone and by email, mainly by facilitating referrals to medical professionals and to peer-to-peer support groups. This is a valuable service which we have worked hard to get in place and we have received great feedback. Our website continues to be gradually updated and work will continue in the next year to improve the content. Work continues on collating and preparing a central place for good quality, medically endorsed by the UK Paediatric Colorectal Group, supportive information about anorectal malformation which will continue into the next year. Page 3 **Registered Address:** 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA **Telephone:** 07765 248799 **Email:** hello@maxtrust.org **Charity No.:** 1184081 _maxtrust.org facebook.com/maxstrust twitter.com/maxstrust instagram.com/maxstrust youtube.com linkedin.com/company/maxtrust_ ## **Financial Review** ## **Introduction** This financial report has been compiled with reference to the Charity Commission’s FRS-102, a statement of recommended practice (SORP) for annual reporting. Max’s Trust’s normal financial period is April to March. ## **Financial Review** Max’s Trust achieved an income of **£7,902.93** during the reporting period. This comprised £5,409.52 from donations and fundraisers, £1,790.12 from conference ticket sales, £226.10 from merchandise sales, £251.59 from Facebook fundraisers, and £225.60 in Giving Lottery ticket sales. In line with Trust Law, all funds in the reporting period are classified as unrestricted funds. The expenditure for the same period totaled **£8,636.51** . This comprised £5,580.00 for venue costs for the 2023 conference, £1,370.00 for childcare at the 2023 conference, a deposit of £1,357.75 for childcare at the 2024 conference, £276.92 in website costs, and £51.84 on printing for the 2023 conference. At the end of the reporting period, Max’s Trust held a total of **£12,536.75** in cash assets in its bank account. Max’s Trust does not hold any property or other material assets. A summary of the annual accounts can be found in both tabular and graphical format in the appendices. Page 4 **Registered Address:** 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA **Telephone:** 07765 248799 **Email:** hello@maxtrust.org **Charity No.:** 1184081 _maxtrust.org facebook.com/maxstrust twitter.com/maxstrust instagram.com/maxstrust youtube.com linkedin.com/company/maxtrust_ ## **Structure, Governance and Management** ## **Structure and Governance** The charity remains a Charitable Incorporated Organisation, bound by the terms of our constitution, which is approved by the Charity Commission. All relevant policies were reviewed, approved and in place during 2023/2024. The trustees abide by these policies whilst undertaking charity activities. ## **Management** There were no changes in the management of the charity. Page 5 **Registered Address:** 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA **Telephone:** 07765 248799 **Email:** hello@maxtrust.org **Charity No.:** 1184081 _maxtrust.org facebook.com/maxstrust twitter.com/maxstrust instagram.com/maxstrust youtube.com linkedin.com/company/maxtrust_ ## **Reference and Administrative Details** As of the 31[st] March 2023, the following details are correct: **Charity Name:** Max’s Trust **Charity Number:** 1184081 **HMRC Tax Number:** ZD06069 **Registered Address:** 18 Midwinter Avenue Milton Heights Abingdon Oxfordshire OX14 4XA **Current Trustees** Cassie Finnigan (Chairman) Jon Finnigan Hattie Crosthwaite-Eyre Helen Millard Andy Button Lauren Stahly Page 6 **Registered Address:** 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA **Telephone:** 07765 248799 **Email:** hello@maxtrust.org **Charity No.:** 1184081 moxtrust.org facebook.com/moxstrust twitter.com/moxstrust yi instagrom.com/maxstrust rj youtube.com linkedin.com/company/maxtrust in Appendices Page 7 Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email.. hello@maxtrust.org Charity No.: 1184081 **----- Start of picture text -----**
Receipts & Payments Account for the Financial Year Ended 31-Mar-24
Current Financial Year, Apr'23-Mar'24 Last Year
Unrestricted Designated Restricted Total Total
Funds Funds Funds
RECEIPTS £ £ £ £ £
Voluntary Income 7,903 0 0 7,903 0
Income Generation 0 0 0 0 0
Investment Income 0 0 0 0 0
Charitable Income 0 0 0 0 0
Advance Receipts 0 0 0 0 0
TOTAL RECEIPTS 7,903 0 0 7,903 0
PAYMENTS £ £ £ £ £
Costs of Generating Funds
Fundraising 0 0 0 0 0
Charitable Trading 0 0 0 0 0
Other 0 0 0 0 0
Sub-total 0 0 0 0 0
Charitable Activities
Specific Projects 0 0 # 0 0 0
General Activities 0 0 0 0
Sub-total 0 0 0 0 0
Support Costs
Governance 0 0 0 0 0
Administration 8,637 0 0 8,637 0
Sub-total 8,637 0 0 8,637 0
Advance Payments 0 0 0 0 0
TOTAL PAYMENTS 8,637 0 0 8,637 8,637
NET RECEIPTS-PAYMENTS -734 0 0 -734 -8,637
Movements in Funds for the Financial Year To 31-Mar-24
Cash Assets 01-Apr-23Bt'Fwd at in Period Receipts Paymentsin Period Transfersin Period Cd'Fwd at31-Mar-24
Cash at Bank & in Hand
Cash 0 0 0 0 0
Bank, Current Account 13,270 7,903 -8,637 0 12,537
13,270 7,903 -8,637 0 12,537
Sundry Debtors (Unreconciled Deposits) 0 0
Sundry Creditors (Unreconciled Payments) 0 0
0 0
Investment/Deposit Accounts Bt'Fwd Interest Net Transfers Cd'Fwd
Bank, Deposit Account 0 0 0 0
Total Cash Assets 13,270 12,537
**----- End of picture text -----**
|**Movements in Funds for the Financial Year To**|**Movements in Funds for the Financial Year To**|**Movements in Funds for the Financial Year To**|**Movements in Funds for the Financial Year To**|**31-Mar-24**|**Cd'Fwd at**
**31-Mar-24**
**0**
**12,537**
**12,537**
**0**
**0**
**0**
**Cd'Fwd**
**0**
**12,537**
**Cd'Fwd at**
**31-Mar-24**
**12,537**
**0**
**0**
**0**
**0**
**0**
**0**
**0**
**0**
**0**
**0**
**0**
**0**
**12,537**
_Cash, current & deposit bank accounts_
_Money still to be claimed, eg: Gift Aid_
_Stocks, shares, bonds, etc._
_Physical assets - eg: computers, furniture_
_Commitments not yet paid._| |---|---|---|---|---|---| |**Cash Assets**|**Bt'Fwd at**
**01-Apr-23**|**Receipts**
**in Period**|**Payments**
**in Period**|**Transfers**
**in Period**|| |**Cash at Bank & in Hand**|||||| |Cash
Bank, Current Account
**Sundry Debtors**_(Unreconciled Deposits)_
**Sundry Creditors**_(Unreconciled Payments)_|0
13,270
13,270
0
0
0|0
7,903
7,903|0
-8,637
-8,637|0
0
0|| |**Investment/Deposit Accounts**|**Bt'Fwd**|**Interest**||**Net Transfers**|| |Bank, Deposit Account
**Total Cash Assets**|0
**13,270**|0||0|| |**Allocation of Funds for the Financial Year To 31-Mar-24**|||||| |**Cash Assets**
**Comprising:**
**General (Unrestricted) Fund**|**Bt'Fwd at**
**01-Apr-23**
13,270|**Receipts**
**in Period**
7,903|**Payments**
**in Period**
**Transfers**
**in Period**
-8,637
0||| |**Designated (Unrestricted) Funds**|0||0||| |**Restricted Funds**
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**Total Restricted Funds**
**Total Funds**
**Cash Assets**
**Other Monetary Assets**
**Investments Assets**
**Assets Retained for Own Use**
**Liabilities**
**Statement of Ass**|0
0
0
0
0
0
0
0
0
0
**0**
**13,270**
**Unrestricted**
**Funds**
12,537
**ets & Liabilit**|0
0
0
0
0
0
0
0
0
0
**0**
**Designated**
**Funds**
-
**ies as at 31-**|0
0
0
0
0
0
0
0
0
0
**0**
**Restricted**
**Funds**
**Total at**
**31-Mar-24**
-
**12,537**
**0**
**None**
**0**
**None**
**Mar-24**||| **Note: Assets retained for own use are shown at purchase price. Current (residual) value is unknown.**