moxtrust.org facebook.com/moxstrust twitter.com/moxstrust yi instagrom.com/maxstrust rj youtube.com linkedin.com/company/maxtrust in Annual Report st st 1 April 2022 to 31 March 2023 Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email.. hello@maxtrust.org Charity No.: 1184081
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Contents
| Objectives and Activities | 1 |
|---|---|
| Achievements and Performance | 3 |
| Financial Review | 4 |
| Structure, Governance and Management | 5 |
| Reference and Administrative Details | 6 |
| Appendices | 7 |
| Annual Accounts Summary Table | |
| Annual Accounts Summary Graph |
Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email: hello@maxtrust.org Charity No.: 1184081
maxtrust.org facebook.com/maxstrust twitter.com/maxstrust instagram.com/maxstrust youtube.com linkedin.com/company/maxtrust
Objectives and Activities
Objectives
As described in our constitution, the objectives of Max’s Trust are as follows:
The preservation and protection of good health and the relief of sickness of people born with Imperforate Anus (IA) / Anorectal Malformation (ARM) and their families in particular but not exclusively by:
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Raising awareness of the issues for babies born with Imperforate Anus (IA) / Anorectal Malformation (ARM) and the need for human support for each child.
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The production and distribution of care boxes for families of new-born babies with IA/ARM, providing information and products to help families learn about and cope with caring for their child.
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Providing access to comprehensive, approved resources, relevant to all people affected by IA/ARM including the production and distribution of information via digital channels and leaflets that are endorsed by medical professionals and bodies across the UK
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Access to a network of renowned surgical and clinical care providers, from family doctors (GP’s) through to highly trained specialists, with programs in place for the transition from paediatric to adult care.
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Providing mental health support for adults, children, parents, and families and the provision of well led peer support programs for members of the IA/ARM community.
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An annual educational conference, bringing together specialist medical professionals with families and adults affected by IA/ARM to provide information and support.
Page 1 Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email: hello@maxtrust.org Charity No.: 1184081
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Activities
Through social media and working with other charities, we have continued to raise awareness of anorectal malformations and associated conditions by sharing information and articles of interest and being involved in relevant projects and research opportunities. This included sharing relevant information, research and articles, as well as promoting important events and initiatives such as Rare Disease Day.
We were able to host our first face-to face since the Covid-19 pandemic, which was a huge success. Held over the weekend of the 17[th] and 18[th] September 2022, we had over 50 delegates who attended and took part in the conference. The feedback was inspiring, with people describing how life changing the event was and how much they are looking forward to attending future events.
Further to last year, we continued to be involved in a big piece of research, in conjunction with the Royal College of Paediatrics and Child Health (RCPCH), the Royal College of Midwives, Paediatric Colorectal Surgeons and Neonatal Consultants, with aim of creating a learning module for all doctors, midwives and other relevant professional groups to prevent missed or delayed diagnosis of ARMs. The learning tool, which was approved last year, is now live and in use. A poster detailing the outcomes of the research, was accepted and presented at the British Association of Paediatric Surgeons (BAPS) 68[th] International Congress in July 2022, which includes Max’s Trust as an author.
Our website has been updated throughout the year. There is still a lot of work to do, but we have a presence online and, in time, will have a website that will provide lots of support and information to those affected by ARM. It will be a continuous piece of work as information is updated regularly. We continue to network with and work alongside other charities and partners in the UK and Internationally who will all be signposted on our website and us on theirs. We are currently working alongside several other charities that support people born with different rare anomalies to improve the transition from paediatric services to adult services. Currently, despite there being NICE guidelines in place for transition, practice and success is not consistent across services and specialisms. We are also part of a large working group made up of service users and clinicians with the aim of creating a register of congenital abnormalities which we hope will begin work this year.
Throughout the year, the trustees of Max’s Trust have carried out all activities with regard to the Charity Commission’s guidance on public benefit.
Page 2 Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email: hello@maxtrust.org Charity No.: 1184081
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Achievements and Performance
Donations dropped off this year, and were driven more by merchandise sales. This could be due to the cost of living increases and rises in energy costs as well as Amazon Smile donations ceasing. Hopefully, we will see some more donations in the coming year, especially with planning of the next conference underway. The charity raised in excess of £3,050 (see Financial Review).
Our Annual Conference was a huge success, and the feedback was incredible. In fact, we began planning the next one by placing deposits with the same venue and childcare providers.
The research project around missed or delayed diagnosis developed well during the year. The charity developed a survey in the previous reporting period and gained the experiences of our followers about how a missed or delayed diagnosis of ARM affected them at the time of birth and through their lives, with the main aim of improving the diagnosis of ARM at an early stage through the development of a learning tool. The learning tool was deployed successfully by the RCPCH as hoped. Furthermore, a poster was accepted and presented at the BAPS Annual Congress, with Max’s Trust as co author. It is hoped that this will be published as part of wider research.
In terms of benefit to our followers, we have predominantly done this via support through our social media and closed support groups. We have also supported people over the phone and by email, mainly by facilitating referrals to medical professionals and to peer-to-peer support groups. This is a valuable service which we have worked hard to get in place and we have received great feedback. Our website continues to be gradually updated and work will continue in the next year to improve the content. Work continues on collating and preparing a central place for good quality, medically endorsed by the UK Paediatric Colorectal Group, supportive information about anorectal malformation which will continue into the next year.
Page 3 Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email: hello@maxtrust.org Charity No.: 1184081
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Financial Review
Introduction
This financial report has been compiled with reference to the Charity Commission’s FRS-102, a statement of recommended practice (SORP) for annual reporting.
Max’s Trust’s normal financial period is April to March.
Financial Review
Max’s Trust achieved an income of £3,059.94 during the reporting period. This comprised £100.00 from donations and fundraisers, £1,073.10 from conference ticket sales, £646.05 from merchandise sales, £915.70 from Facebook fundraisers, £101.09 from Amazon Smile contributions and £224.00 in Giving Lottery ticket sales. In line with Trust Law, all funds in the reporting period are classified as unrestricted funds.
The expenditure for the same period totaled £10,301.34 . This comprised £5,129.00 for venue costs for the 2022 conference, a deposit of £1,400.00 for the venue for the 2023 conference, £970.00 on hotel expenses for the 2022 conference, £860.75 for childcare at the 2022 conference, a deposit of £1,125.00 for childcare at the 2023 conference, £381.36 in website costs, £342.85 on merchandise, £46.80 on a card reader, £38.88 on printing for the 2022 conference, and £6.70 on mailing cards to followers.
At the end of the reporting period, Max’s Trust held a total of £13,270.33 in cash assets in its bank account.
Max’s Trust does not hold any property or other material assets.
A summary of the annual accounts can be found in both tabular and graphical format in the appendices.
Page 4 Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email: hello@maxtrust.org Charity No.: 1184081
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Structure, Governance and Management
Structure and Governance
The charity remains a Charitable Incorporated Organisation, bound by the terms of our constitution, which is approved by the Charity Commission.
Whilst policies are currently under construction and review, the trustees of the charity will work within the terms of these policies, confirming their agreement to abide by each as they are implemented. All relevant policies will be approved and in place during 2023/2024.
Management
There were no changes in the management of the charity.
Page 5 Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email: hello@maxtrust.org Charity No.: 1184081
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Reference and Administrative Details
As of the 31[st] March 2023, the following details are correct:
Charity Name: Max’s Trust Charity Number: 1184081 HMRC Tax Number: ZD06069 Registered Address: 18 Midwinter Avenue Milton Heights Abingdon Oxfordshire OX14 4XA Current Trustees Cassie Finnigan (Chairman) Jon Finnigan Hattie Crosthwaite-Eyre Helen Millard Andy Button Lauren Stahly
Page 6 Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email: hello@maxtrust.org Charity No.: 1184081
moxtrust.org facebook.com/moxstrust twitter.com/moxstrust yi instagrom.com/maxstrust rj youtube.com linkedin.com/company/maxtrust in Appendices Page 7 Registered Address: 18 Midwinter Avenue, Milton Heights, Abingdon, Oxfordshire, OX14 4XA Telephone: 07765 248799 Email.. hello@maxtrust.org Charity No.: 1184081
| Receipts & Payments Account for the Financial Year Ended 31-Mar-23 | Receipts & Payments Account for the Financial Year Ended 31-Mar-23 | Receipts & Payments Account for the Financial Year Ended 31-Mar-23 | Receipts & Payments Account for the Financial Year Ended 31-Mar-23 | Receipts & Payments Account for the Financial Year Ended 31-Mar-23 | Receipts & Payments Account for the Financial Year Ended 31-Mar-23 | |
|---|---|---|---|---|---|---|
| RECEIPTS | Cu | rrent Financial Y | ear, Apr'22-Mar | Total £ '23 |
Last Year | |
| Unrestricted Funds £ |
Designated Funds £ |
Restricted Funds £ |
Total £ |
|||
| Voluntary Income Income Generation Investment Income |
3,021 0 0 |
0 0 0 |
0 0 0 |
3,021 0 0 |
0 0 0 |
|
| Charitable Income | 0 | 0 | 0 | 0 | 0 | |
| Advance Receipts | 0 | 0 | 0 | 0 | 0 | |
| TOTAL RECEIPTS | 3,021 | 0 | 0 | 3,021 | 0 | |
| PAYMENTS Costs of Generating Funds |
£ | £ | £ | £ | £ | |
| Fundraising Charitable Trading Other |
0 0 0 |
0 0 0 |
0 0 0 |
0 0 0 |
0 0 0 |
|
| Sub-total Charitable Activities |
0 | 0 | 0 | 0 | 0 | |
| Specific Projects | 0 | 0 # |
0 | 0 | 0 | |
| General Activities | 0 | 0 | 0 | 0 | ||
| Sub-total Support Costs |
0 | 0 | 0 | 0 | 0 | |
| Governance Administration |
0 10,262 |
0 0 |
0 0 |
0 10,262 |
0 0 |
|
| Sub-total | 10,262 | 0 | 0 | 10,262 | 0 | |
| Advance Payments | 0 | 0 | 0 | 0 | 0 | |
| TOTAL PAYMENTS NET RECEIPTS-PAYMENTS |
10,262 -7,241 |
|||||
| 10,262 | 0 | 0 | 10,262 | |||
| -7,241 | 0 | 0 | -10,262 | |||
| Movements in Funds for the Financial Year To 31-Mar-23 | ||||||
| Cash Assets | Bt'Fwd at 01-Apr-22 |
Receipts in Period |
Payments in Period |
Transfers in Period |
Cd'Fwd at 31-Mar-23 |
|
| Cash at Bank & in Hand | ||||||
| Cash Bank, Current Account Sundry Debtors(Unreconciled Deposits) Sundry Creditors(Unreconciled Payments) |
0 20,512 |
0 3,060 |
0 -10,301 |
0 0 0 |
0 13,270 |
|
| 20,512 0 0 |
3,060 | -10,301 | 13,270 0 0 |
|||
| 0 | 0 | |||||
| Investment/Deposit Accounts | Bt'Fwd | Interest | Net Transfers | Cd'Fwd | ||
| Bank, Deposit Account Total Cash Assets |
0 | 0 | 0 | 0 | ||
| 20,512 | 13,270 | |||||
| Allocation of Funds for the Financial Year To 31-Mar-23 | ||||||
| Cash Assets Comprising: General (Unrestricted) Fund |
Bt'Fwd at 01-Apr-22 20,512 |
Receipts in Period 3,060 |
Payments in Period Transfers in Period -10,301 0 |
Cd'Fwd at 31-Mar-23 13,270 |
||
| Designated (Unrestricted) Funds | 0 | 0 | 0 | |||
| Restricted Funds R1-Rename or delete R2-Rename or delete R3-Rename or delete R4-Rename or delete R5-Rename or delete R6-Rename or delete R7-Rename or delete R8-Rename or delete R9-Rename or delete R10-Rename or delete Total Restricted Funds Total Funds |
0 0 0 0 0 0 0 0 0 0 |
0 0 0 0 0 0 0 0 0 0 |
0 0 0 0 0 0 0 0 0 0 0 |
0 0 0 0 0 0 0 0 0 0 |
||
| 0 | 0 | 0 | ||||
| 20,512 | 13,270 | |||||
| Movements in Funds for the Financial Year To | Movements in Funds for the Financial Year To | Movements in Funds for the Financial Year To | Movements in Funds for the Financial Year To | 31-Mar-23 | ||
|---|---|---|---|---|---|---|
| Cash Assets | Bt'Fwd at 01-Apr-22 |
Receipts in Period |
Payments in Period |
Transfers in Period |
Cd'Fwd at 31-Mar-23 |
|
| Cash at Bank & in Hand | ||||||
| Cash | 0 | 0 | 0 | 0 | 0 | |
| Bank, Current Account | 20,512 | 3,060 | -10,301 | 0 | 13,270 | |
| 20,512 | 3,060 | -10,301 | 0 | 13,270 | ||
| Sundry Debtors(Unreconciled Deposits) | 0 | 0 | ||||
| Sundry Creditors(Unreconciled Payments) | 0 | 0 | ||||
| 0 | 0 | |||||
| Investment/Deposit Accounts | Bt'Fwd | Interest | Net Transfers | Cd'Fwd | ||
| Bank, Deposit Account | 0 | 0 | 0 | 0 | ||
| Total Cash Assets | 20,512 | 13,270 | ||||
| Allocation of Funds for the Financial Year To 31-Mar-23 | ||||||
| Cash Assets | Bt'Fwd at 01-Apr-22 |
Receipts in Period |
Payments in Period |
Transfers in Period |
Cd'Fwd at 31-Mar-23 |
|
| Comprising: | ||||||
| General (Unrestricted) Fund | 20,512 | 3,060 | -10,301 | 0 | 13,270 | |
| Designated (Unrestricted) Funds | 0 | 0 | 0 | |||
| Restricted Funds | ||||||
| R1-Rename or delete | 0 | 0 | 0 | 0 | ||
| R2-Rename or delete | 0 | 0 | 0 | 0 | ||
| R3-Rename or delete | 0 | 0 | 0 | 0 | ||
| R4-Rename or delete | 0 | 0 | 0 | 0 | ||
| R5-Rename or delete | 0 | 0 | 0 | 0 | ||
| R6-Rename or delete | 0 | 0 | 0 | 0 | ||
| R7-Rename or delete | 0 | 0 | 0 | 0 | ||
| R8-Rename or delete | 0 | 0 | 0 | 0 | ||
| R9-Rename or delete | 0 | 0 | 0 | 0 | ||
| R10-Rename or delete | 0 | 0 | 0 | 0 | ||
| Total Restricted Funds | 0 | 0 | 0 | 0 | ||
| Total Funds | 20,512 | 13,270 | ||||
Statement of Assets & Liabilities as at 31-Mar-23 Unrestricted Designated Restricted Total at Funds Funds Funds 31-Mar-23 Cash Assets 13,270 - - 13,270 Cash, current & deposit bank accounts Other Monetary Assets 0 Money still to be claimed, eg: Gift Aid Investments Assets None Stocks, shares, bonds, etc. Assets Retained for Own Use 0 Physical assets - eg: computers, furniture Liabilities None Commitments not yet paid.
Note: Assets retained for own use are shown at purchase price. Current (residual) value is unknown.