Atacsia a Fl l Ataxia arKI me (CK) 1184030) Ann1 RekN)rt 2024- 2025 A small charity based In West Wales, estsblished by a few patients, ofthts rdre disease. COMI together and sharin the patlents exFerieft, ol living wrth this"Life limitir< health condttion. Focusing on Ataxia arKI associated rnre diseases and mcvement di50rder& Alk)winE us to catsrfor a wider patlent communrty. who mtght feel isolated. wkh a health comlition that is gener41ty un-heard of. We alm to Ixiryson •xder. tothe lack oforder. Events lon-IlnÈl 72+ Meetings IF2n 4 (Wirtuafj 5 c0Frtribe to sak1Th atvirtual events 3 Indeed We had a good [eSenCe Jt augural Swansea Rare Diwse Study Day, speaking wfith Medical students Suppty text for media artiths three tlmes Display/5tand at 3 events Interview4 volunteers. leadingto hostFn8 2 volunteers during the year ladthng to our social medla presence). Invited to UK'S pmr G0M1t saen ert The Festival ofGenomics and BioDats. In London (Plus, being invited tjack in January the followir8 year, Our trustee and hi5 wiFe, continue to make amazirg links with other patient ad¥ocates. and other organisations, contributing to. and, corhveying the patTht5 per5Wive, inctuding many creatfve writing and videos, poems. tx)dcasts and speaktng as patientadvocates to many or8anisatw)n Indeed, Louise. is quite an Ambassador, having had a 0k published. from which she reads excepts, from, at many Spoken Wordl open mic l. linduding at a book festival),events. Indeed at one event Louise got chatting to "Rappe¢ who made up a few Ilnes to add to his perfomiarKe durirg the wodd renown AbeT8avenny Writing Festival I This cortin$ oUr"MissK. to raise awareness of Ataxia. NeurokY. and a w&tlve. patSent expertence, outlook. Public liability Ivrar Markel London Bank
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Atacsia a Fi l Atsxia and me {CIO 11840301 Annual Report 2024. 2025 Slgned ?. eLn full name Pogtion seK&TrtKy ortrR*J Signed full name date LrtK) CUIAIrfL