Atscsia a Fi / Ataxla and me (CIO 1184030)
Annual Report 2022- 2023
A small charity based in West Wales, estsblished by a few patients. of thi5 rare disease, comin8 together and sharin&
the patients experience. of living with this"Lrfe limitirf health condition.
Focusing on Ataxia and associated rare dlseases and movement dlsorders. Allowing us to cater for a wlder patient
community, who might feel isolated, with a health corKlition that Is generally un-heard of.
Atsxla Is a Greek word meanln8 Ya¢k of Orde
We alm to brln8 some order, to the lack of tyder.
Agaln, thls year any physlcal actlvlty was very small. due to the IlegaLy of the Co¥ld19) pandemic. Many events have
been provided via on-llne platforms.
Although, as we are more of an onllne charity, we were able to utlllse, the advantage of a vlrtual presence, allowln8
us to keep interacting with the community.
Durlng thls year the theme for all events. was VIRTUAL {either via Zoom or Mlcrosoft teams).
Events lon-line} 144
Meetlngs ContrlbLrte to speakln8, at Ylrtual events 9
Radlo Intervlew I
Durlng thls year we took part In fllrnSn8 {wlth BBC Wales) for an article a1￿ut Ataxia and Health servlces, shown on
S4C Televislon, Wales
We hosted 2 volunteer5 during the year (adding to our social media presence)
This was very advantsgeous during the month of Febn￿ry (Rare disease Day 28 Februaryl
Indeed I was very keen and took part In many Wales Gene Part (Genomics) webinars
We took part in, the annual fundraising event summer called-at home Super Hero< where artMtie5 could be
done"At home".
We continue to use the sale of {Plalnl backpacks. for fundraising
Our trustee and his wife, continue to make amazing links With other patient advocates, and other organisations,
contributing to, and, conveying the patlents perspect5ve. includlng many creative writing and videos. poems,
podcast5 and speaking as patient advootes to many organi5ations.

Again we were invited to submit Text to Wales online for a media article Inewspaper and online.
We also had an article published in the Mediwales rwletter, for the Global Life Science Industry,
Public liability Insurance
Markel London
Bank
8arclays 20-25-19
Flnancials
Amount
In
FuT￿ra[SI
, Lool GNiivd p38e
Local Gi¥in8 we
Local Gi¥iTrd pa8e
Local paee
Local p38e
Local Givirry pa8e
Local Givlr4 page
l Local GIVI￿ page
Lfxal Gi¥iJw pa8e
Lrfal Glvrt pa8e
L(Kal Gi¥11￿ page
Loc31 Glvir*
Local Gmng page
local GIVI￿ MLG Grant
133.99
195.94
245.39
68.87
65
37￿ Get ￿(1*￿
96
149.5
i(M)
14 Webs#e (123)
L76
129.46
49.99
IIK>.8
36m
2L

., amazon '
5A
755
Total
>>>> MINL
1334.94
End
Atacsla a Fl l Ataxla and me ICIO 11840301
Annual Report 2021-2022
full name
Position
date
ALA NJ TH0&1145
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full name
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