# Ataxia aware

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1184030
- **Other names:** ATACSIA A FI / ATAXIA AND ME
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** June 21, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1184030


## Contact

- **Address:** Tybach, Cefnbrafle, Llanboidy
- **Postcode:** SA34 0SA
- **Phone:** 01994 448397
- **Email:** info@ataxiaandme.org
- **Website:** www.ataxia-and-me.org



## Activities

**Objects:** TO RELIEVE THE NEEDS OF SUFFERERS OF ATAXIA OR OTHER NEUROLOGICAL DISORDERS, THEIR FAMILIES AND CARERS FOR THE PUBLIC BENEFIT BY PROVIDING PATIENT LED SUPPORT AND BY RAISING AWARENESS OF SUCH CONDITIONS.

**Activities:** A patients focused charityRaising Awareness of Ataxia.Sharing Ataxia, associated rare disease, movement and health information to Empower the patient, family member, carer of this Life limiting rare disease.Collaborating within these communities to advance and amplify the Patients voice within the health arena.Participating in fundraising events to allow this task




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, Disability
- **Who:** People With Disabilities, The General Public/mankind



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Alan John Thomas** | Chair | June 15, 2019 |
| Dawn Morgan |  | June 15, 2019 |
| Stephen Karl Treharne |  | June 15, 2019 |




