DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
Charity number: 1184024
BRITISH INHERITED METABOLIC DISEASES GROUP
UNAUDITED
TRUSTEES' REPORT AND FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2023
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
CONTENTS
| Page | |
|---|---|
| Reference and Administrative Details of the Charity, its Trustees and Advisers | 1 |
| Trustees' Report | 2 - 4 |
| Independent Examiner's Report | 5 |
| Statement of Financial Activities | 6 |
| Balance Sheet | 7 |
| Notes to the Financial Statements | 8 - 13 |
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
REFERENCE AND ADMINISTRATIVE DETAILS OF THE CHARITY, ITS TRUSTEES AND ADVISERS FOR THE YEAR ENDED 31 DECEMBER 2023
| Trustees | R Barski |
|---|---|
| Dr M Fullerton | |
| Dr R Vara | |
| Dr G Toulson (resigned 12 October 2023) | |
| Dr J Davison | |
| Dr J Raiman (resigned 6 June 2023) | |
| Dr L Aitkenhead (resigned 6 June 2023) | |
| Dr M Barr | |
| R Skeath | |
| B O'Reilly | |
| C Dawson | |
| F Adrees | |
| A Cozens | |
| Dr S Korenev | |
| T Hoi-Yee | |
| L Robertson (appointed 8 February 2023) | |
| M McSweeney | |
| Dr S Brothwell | |
| Dr N Guha | |
| J Freeston | |
| E Morris | |
| G Pierre (appointed 12 October 2023) | |
| B Schwann (appointed 12 October 2023) | |
| K Redwood (appointed 12 October 2023) | |
| E Caller (appointed 12 October 2023) | |
| N Cantley (appointed 14 March 2024) |
| Charity registered | |
|---|---|
| number | 1184024 |
| Principal office | Hewitsons |
| Shakespeare House | |
| Cambridge | |
| CB5 8EP | |
| Accountants | Peters Elworthy & Moore |
| Chartered Accountants | |
| Salisbury House | |
| Station Road | |
| Cambridge | |
| CB1 2LA |
Page 1
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
TRUSTEES' REPORT FOR THE YEAR ENDED 31 DECEMBER 2023
The Trustees present their annual report together with the financial statements of the Charity for the 1 January 2023 to 31 December 2023.
Objectives and activities
a. Policies and objectives
To relieve persons suffering from inherited metabolic disease by advancing the education of persons involved in the care and treatment of such persons and to promote research into the treatment and diagnosis of inherited metabolic disease.
The British Inherited Metabolic Disease Group (BIMDG) provides education through meetings and provision of relevant documentation such as meeting reports, care and investigative guidelines available on the website (www.bimdg.org.uk) and a twice yearly News Bulletin.
In setting objectives and planning for activities, the Trustees have given due consideration to general guidance published by the Charity Commission relating to public benefit, including the guidance 'Public benefit: running a charity (PB2)'.
b. Main activities undertaken to further the Charity's purposes for the public benefit
The main activities undertaken by the charity is to relieve persons suffering from inherited metabolic disease by advancing the education of persons involved in the care and treatment of such persons.
The charity has complied with their duty to have due regard to the commission's public benefit guidance when exercising any powers or duties to which the guidance is relevant.
Achievements and performance
a. Main achievements of the Charity
The 2023 AGM took place on the 7th June 2023 at the 2023 BIMDG annual symposium in London.
The website is continually being updated and improved including access to a specific learning module for LSD specialist nurses. The guidelines and protocols available on the website attract most hits on the website.
Education grants are available to help find any healthcare professional BIMDG member to attend relevant meetings or visiting a specialist centre to gain experience in their field.
BIMDG studentships are available to support students gain valuable experience in the area of inherited metabolic disease.
There plans in 2024 for an initial workshop centred on newborn screening and how BIMDG professional’s can support the expansion of newborn screening.
Page 2
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2023
Financial review
a. Going concern
After making appropriate enquiries, the Trustees have a reasonable expectation that the Charity has adequate resources to continue in operational existence for the foreseeable future. For this reason, they continue to adopt the going concern basis in preparing the financial statements. Further details regarding the adoption of the going concern basis can be found in the accounting policies.
b. Reserves policy
The policy of the charity is to ensure that positive reserves exist in an unrestricted fund to ensure that the objectives of the charity can be satisfied.
The amount held in reserves by the charity at the year end was £67,435 (2022: £63,925) which are unresricted funds.
Structure, governance and management
a. Constitution
British Inherited Metabolic Diseases Group is a registered charity, number 1184024, and is constituted under a Trust deed.
b. Methods of appointment or election of Trustees
The management of the Charity is the responsibility of the Trustees who are elected and co-opted under the terms of the Trust deed.
Page 3
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2023
STATEMENT OF TRUSTEES' RESPONSIBILITIES
The Trustees are responsible for preparing the Trustees' Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
The law applicable to charities in England & Wales requires the Trustees to prepare financial statements for each financial which give a true and fair view of the state of affairs of the Charity and of its incoming resources and application of resources, including its income and expenditure, for that period. In preparing these financial statements, the Trustees are required to:
-
select suitable accounting policies and then apply them consistently;
-
observe the methods and principles of the Charities SORP (FRS 102);
-
make judgments and accounting estimates that are reasonable and prudent;
-
state whether applicable UK Accounting Standards (FRS 102) have been followed, subject to any material departures disclosed and explained in the financial statements;
-
prepare the financial statements on the going concern basis unless it is inappropriate to presume that the Charity will continue in business.
The Trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the Charity's transactions and disclose with reasonable accuracy at any time the financial position of the Charity and enable them to ensure that the financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2008 and the provisions of the Trust deed. They are also responsible for safeguarding the assets of the Charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
Approved by order of the members of the board of Trustees and signed on their behalf by:
R Barski
(Trustee)
Date: 17 June 2024
Page 4
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 31 DECEMBER 2023
INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF BRITISH INHERITED METABOLIC DISEASES GROUP ('the Charity')
I report to the charity Trustees on my examination of the accounts of the Charity for the year ended 31 December 2023.
RESPONSIBILITIES AND BASIS OF REPORT
As the Trustees of the Charity you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the 2011 Act').
I report in respect of my examination of the Charity's accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
INDEPENDENT EXAMINER'S STATEMENT
Your attention is drawn to the fact that the Charity has prepared the accounts in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) in preference to the Accounting and Reporting by Charities: Statement of Recommended Practice issued on 1 April 2005 which is referred to in the extant regulations but has been withdrawn.
I understand that this has been done in order for the accounts to provide a true and fair view in accordance with the Generally Accepted Accounting Practice effective for reporting periods beginning on or after 1 January 2015.
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
-
accounting records were not kept in respect of the Charity as required by section 130 of the 2011 Act; or
-
the accounts do not accord with those records; or
-
the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a 'true and fair' view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
This report is made solely to the Charity's Trustees, as a body, in accordance with Part 4 of the Charities (Accounts and Reports) Regulations 2008. My work has been undertaken so that I might state to the Charity's Trustees those matters I am required to state to them in an Independent Examiner's Report and for no other purpose. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the Charity and the Charity's Trustees as a body, for my work or for this report.
Signed: Michael Hewlett Peters Elworthy & Moore Chartered Accountants Sailsbury House Station Road Cambridge CB1 2LA
Dated: 19 June 2024 FCA DChA
Page 5
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2023
| Note INCOME FROM: Charitable activities 3 Investments TOTAL INCOME EXPENDITURE ON: Charitable activities 4 TOTAL EXPENDITURE NET MOVEMENT IN FUNDS RECONCILIATION OF FUNDS: Total funds brought forward Net movement in funds TOTAL FUNDS CARRIED FORWARD |
Unrestricted funds 2023 £ 12,253 702 12,955 9,445 9,445 3,510 63,925 3,510 67,435 |
Total funds 2023 £ 12,253 702 12,955 9,445 9,445 3,510 63,925 3,510 67,435 |
Total funds 2022 £ 13,628 126 |
|---|---|---|---|
| 13,754 20,677 |
|||
| 20,677 (6,923) 70,848 (6,923) |
|||
| 63,925 |
The Statement of Financial Activities includes all gains and losses recognised in the year.
The notes on pages 8 to 13 form part of these financial statements.
Page 6
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
BALANCE SHEET AS AT 31 DECEMBER 2023
| Note CURRENT ASSETS Debtors 8 Cash at bank and in hand Creditors: amounts falling due within one year 9 NET CURRENT ASSETS TOTAL NET ASSETS CHARITY FUNDS Unrestricted funds 10 TOTAL FUNDS |
2023 £ 1,100 69,540 70,640 (3,205) |
2023 £ 67,435 67,435 67,435 67,435 |
2022 £ - 67,065 67,065 (3,140) |
2022 £ 63,925 |
|---|---|---|---|---|
| 63,925 | ||||
| 63,925 | ||||
| 63,925 |
The financial statements were approved and authorised for issue by the Trustees and signed on their behalf by:
R Barski
(Trustee)
Date: 17 June 2024
The notes on pages 8 to 13 form part of these financial statements.
Page 7
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023
1. GENERAL INFORMATION
British Inherited Metabolic Disease Group is a CIO registered in England and Wales.
2. ACCOUNTING POLICIES
2.1 BASIS OF PREPARATION OF FINANCIAL STATEMENTS
The financial statements have been prepared in accordance with the Charities SORP (FRS 102) - Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Charities Act 2011.
The financial statements have been prepared to give a 'true and fair' view and have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a 'true and fair' view. This departure has involved following the Charities SORP (FRS 102) published in October 2019 rather than the Accounting and Reporting by Charities: Statement of Recommended Practice effective from 1 April 2005 which has since been withdrawn.
British Inherited Metabolic Diseases Group meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy.
2.2 INCOME
All income is recognised once the Charity has entitlement to the income, it is probable that the income will be received and the amount of income receivable can be measured reliably.
Grants are included in the Statement of Financial Activities on a receivable basis. The balance of income received for specific purposes but not expended during the period is shown in the relevant funds on the Balance Sheet. Where income is received in advance of entitlement of receipt, its recognition is deferred and included in creditors as deferred income. Where entitlement occurs before income is received, the income is accrued.
2.3 EXPENDITURE
Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges allocated on the portion of the asset’s use.
Expenditure on charitable activities is incurred on directly undertaking the activities which further the Charity's objectives, as well as any associated support costs.
Page 8
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023
2. ACCOUNTING POLICIES (CONTINUED)
2.3 EXPENDITURE (CONTINUED)
Grants payable are charged in the year when the offer is made except in those cases where the offer is conditional, such grants being recognised as expenditure when the conditions attaching are fulfilled. Grants offered subject to conditions which have not been met at the year end are noted as a commitment, but not accrued as expenditure.
All expenditure is inclusive of irrecoverable VAT.
2.4 INTEREST RECEIVABLE
Interest on funds held on deposit is included when receivable and the amount can be measured reliably by the Charity; this is normally upon notification of the interest paid or payable by the institution with whom the funds are deposited.
2.5 DEBTORS
Trade and other debtors are recognised at the settlement amount after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.
2.6 CASH AT BANK AND IN HAND
Cash at bank and in hand includes cash and short-term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account.
2.7 LIABILITIES AND PROVISIONS
Liabilities are recognised when there is an obligation at the Balance Sheet date as a result of a past event, it is probable that a transfer of economic benefit will be required in settlement, and the amount of the settlement can be estimated reliably.
Liabilities are recognised at the amount that the Charity anticipates it will pay to settle the debt or the amount it has received as advanced payments for the goods or services it must provide.
2.8 FINANCIAL INSTRUMENTS
The Charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method.
2.9 FUND ACCOUNTING
General funds are unrestricted funds which are available for use at the discretion of the Trustees in furtherance of the general objectives of the Charity and which have not been designated for other purposes.
Page 9
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023
3. INCOME FROM CHARITABLE ACTIVITIES
| Unrestricted funds 2023 £ Membership subscriptions 10,453 Grants 1,800 12,253 |
Total funds 2023 £ 10,453 1,800 12,253 |
Total funds 2022 £ 9,778 3,850 |
|---|---|---|
| 13,628 |
. INVESTMENT INCOME
| Unrestricted | Total | Total | |
|---|---|---|---|
| funds | funds | funds | |
| 2023 | 2023 | 2022 | |
| £ | £ | £ | |
| Interest received | 702 | 702 | 126 |
4. ANALYSIS OF EXPENDITURE BY ACTIVITIES
| Medical education TOTAL 2022 |
Activities undertaken directly 2023 £ 2,614 - |
Grant funding of activities 2023 £ 1,600 15,585 |
Support costs 2023 £ 5,231 5,092 |
Total funds 2023 £ 9,445 20,677 |
Total funds 2022 £ 20,677 |
|---|---|---|---|---|---|
Page 10
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023
4. ANALYSIS OF EXPENDITURE BY ACTIVITIES (CONTINUED) ANALYSIS OF SUPPORT COSTS
| IT, Software and website cost Prizes Other Independent Examination and accountancy (Governance) Sundry |
Total funds 2023 £ 1,776 250 25 3,180 - 5,231 |
Total funds 2022 £ 1,578 200 - 3,270 44 |
|---|---|---|
| 5,092 |
5. ANALYSIS OF GRANTS
| Summer Studentships TOTAL 2022 GRANTS TO INSTITUTIONS North Bristol NHS Trust Erndim |
Grants to Institutions 2023 £ - 14,585 |
Grants to Individuals 2023 £ 1,600 1,000 |
Total funds 2023 £ 1,600 15,585 2023 £ - - - |
Total funds 2022 £ 15,585 |
|---|---|---|---|---|
| 2022 £ 12,985 1,600 |
||||
| 14,585 |
Page 11
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023
6. INDEPENDENT EXAMINER'S REMUNERATION
The independent examiner's remuneration amounts to an independent examiner fee of £3,180 (2022 - £3,300).
7. TRUSTEES' REMUNERATION AND EXPENSES
During the year, no Trustees received any remuneration or other benefits (2022 - £NIL).
During the year ended 31 December 2023, no Trustee expenses have been incurred (2022 - £NIL).
8. DEBTORS
| DUE WITHIN ONE YEAR Prepayments and accrued income |
2023 £ 1,100 1,100 |
2022 £ - |
|---|---|---|
| - |
9. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
| Accruals and deferred income DEFERRED INCOME Deferred income at 1 January 2023 Resources deferred during the year Amounts released from previous periods |
2023 £ 3,205 2023 £ 170 25 (170) 25 |
2022 £ 3,140 |
|---|---|---|
| 2022 £ - 170 - |
||
| 170 |
Page 12
DocuSign Envelope ID: 792C36CE-99A1-4E62-93FE-597CB6D7BC9C
BRITISH INHERITED METABOLIC DISEASES GROUP
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023
10. STATEMENT OF FUNDS
STATEMENT OF FUNDS - CURRENT YEAR
| UNRESTRICTED FUNDS General Funds STATEMENT OF FUNDS - PRIOR YEAR UNRESTRICTED FUNDS General Funds |
Balance at 1 January 2023 £ 63,925 Balance at 1 January 2022 £ 70,848 |
Income £ 12,955 Income £ 13,754 |
Expenditure £ (9,445) Expenditure £ (20,677) |
Balance at 31 December 2023 £ 67,435 |
|---|---|---|---|---|
| Balance at 31 December 2022 £ 63,925 |
11. RELATED PARTY TRANSACTIONS
The Charity has not entered into any related party transaction during the year, nor are there any outstanding balances owing between related parties and the Charity at 31 December 2023.
Page 13