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2021-12-31-accounts

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

Charity number: 1184024

BRITISH INHERITED METABOLIC DISEASES GROUP

UNAUDITED

TRUSTEES' REPORT AND FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2021

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

CONTENTS

Page
Reference and Administrative Details of the Charity, its Trustees and Advisers 1
Trustees' Report 2 - 4
Independent Examiner's Report 5
Statement of Financial Activities 6
Balance Sheet 7
Notes to the Financial Statements 8 - 13

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

REFERENCE AND ADMINISTRATIVE DETAILS OF THE CHARITY, ITS TRUSTEES AND ADVISERS FOR THE YEAR ENDED 31 DECEMBER 2021

Trustees R Barski
Dr E Murphy
Dr M Fullerton
Dr R Vara
Dr G Toulson
Dr J Davison
Dr J Raiman
Dr L Aitkenhead
Dr M Barr
R Skeath
B O'Reilly
C Dawson
F Adrees
A Cozens
Dr S Korenev (appointed 24 June 2021)
T Hoi-Yee (appointed 14 October 2021)
A Bowron (resigned 30 June 2021)
B McDonald (resigned 31 March 2022)
R Gould (resigned 30 June 2022)
S Hulley (resigned 30 June 2022)
S Forshaw-Hulme (resigned 30 June 2022)
Charity registered
number
1184024
Principal office
Hewitsons
Shakespeare House
Cambridge
CB5 8EP
Accountants
Peters Elworthy & Moore
Chartered Accountants
Salisbury House
Station Road
Cambridge
CB1 2LA

Page 1

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

TRUSTEES' REPORT FOR THE YEAR ENDED 31 DECEMBER 2021

The Trustees present their annual report together with the financial statements of the Charity for the year 1 January 2021 to 31 December 2021.

Objectives and activities

a. Policies and objectives

To relieve persons suffering from inherited metabolic disease by advancing the education of persons involved in the care and treatment of such persons and to promote research into the treatment and diagnosis of inherited metabolic disease.

The British Inherited Metabolic Disease Group (BIMDG) provides education through meetings and provision of relevant documentation such as meeting reports, care and investigative guidelines available on the website (www.bimdg.org.uk) and a twice yearly News Bulletin.

In setting objectives and planning for activities, the Trustees have given due consideration to general guidance published by the Charity Commission relating to public benefit, including the guidance 'Public benefit: running a charity (PB2)'.

b. Main activities undertaken to further the Charity's purposes for the public benefit

The main activities undertaken by the charity is to relieve persons suffering from inherited metabolic disease by advancing the education of persons involved in the care and treatment of such persons.

The charity has complied with their duty to have due regard to the commission's public benefit guidance when exercising any powers or duties to which the guidance is relevant.

Achievements and performance

a. Main achievements of the Charity

Due to the COVID pandemic the 2021 AGM took place virtually on the 24th June 2021 after the 2021 BIMDG annual symposium (also held virtually).

The website is continually being updated and improved. The guidelines and protocols available on the website attract most hits on the website.

Education grants are available to help find any healthcare professional BIMDG member to attend relevant meetings or visiting a specialist centre to gain experience in their field.

BIMDG studentships are available to support students gain valuable experience in the area of inherited metabolic disease..

Page 2

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2021

Financial review

a. Going concern

After making appropriate enquiries, the Trustees have a reasonable expectation that the Charity has adequate resources to continue in operational existence for the foreseeable future. For this reason, they continue to adopt the going concern basis in preparing the financial statements. Further details regarding the adoption of the going concern basis can be found in the accounting policies.

b. Reserves policy

The policy of the charity is to ensure that positive reserves exist in an unrestricted fund to ensure that the objectives of the charity can be satisfied.

The amount held in reserves by the charity at the year end was £70,848 (2020: £64,501) which are unresricted funds.

Structure, governance and management

a. Constitution

British Inherited Metabolic Diseases Group is a registered charity, number 1184024, and is constituted under a Trust deed.

b. Methods of appointment or election of Trustees

The management of the Charity is the responsibility of the Trustees who are elected and co-opted under the terms of the Trust deed.

Page 3

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2021

Statement of Trustees' responsibilities

The Trustees are responsible for preparing the Trustees' Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

The law applicable to charities in England & Wales requires the Trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the Charity and of its incoming resources and application of resources, including its income and expenditure, for that period. In preparing these financial statements, the Trustees are required to:

The Trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the Charity's transactions and disclose with reasonable accuracy at any time the financial position of the Charity and enable them to ensure that the financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2008 and the provisions of the Trust deed. They are also responsible for safeguarding the assets of the Charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Approved by order of the members of the board of Trustees on

15 September 2022

_______ and signed on their behalf by:

R Barski (Trustee)

Dr J Davison (Trustee)

Page 4

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 31 DECEMBER 2021

Independent Examiner's Report to the Trustees of British Inherited Metabolic Diseases Group ('the Charity')

I report to the charity Trustees on my examination of the accounts of the Charity for the year ended 31 December 2021.

Responsibilities and Basis of Report

As the Trustees of the Charity you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the 2011 Act').

I report in respect of my examination of the Charity's accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.

Independent Examiner's Statement

Your attention is drawn to the fact that the Charity has prepared the accounts in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) in preference to the Accounting and Reporting by Charities: Statement of Recommended Practice issued on 1 April 2005 which is referred to in the extant regulations but has been withdrawn.

I understand that this has been done in order for the accounts to provide a true and fair view in accordance with the Generally Accepted Accounting Practice effective for reporting periods beginning on or after 1 January 2015.

I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

  1. accounting records were not kept in respect of the Charity as required by section 130 of the 2011 Act; or

  2. the accounts do not accord with those records; or

  3. the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a 'true and fair' view which is not a matter considered as part of an independent examination.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

This report is made solely to the Charity's Trustees, as a body, in accordance with Part 4 of the Charities (Accounts and Reports) Regulations 2008. My work has been undertaken so that I might state to the Charity's Trustees those matters I am required to state to them in an Independent Examiner's Report and for no other purpose. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the Charity and the Charity's Trustees as a body, for my work or for this report.

15 September 2022 Signed: Dated: Michael Hewlett ACA DChA

Peters Elworthy & Moore Chartered Accountants Sailsbury House Station Road Cambridge CB1 2LA

Page 5

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2021

Note
Income from:
Donations and legacies
3
Charitable activities
4
Investments
5
Total income
Expenditure on:
Charitable activities
6
Total expenditure
Net movement in funds
Reconciliation of funds:
Total funds brought forward
10
Net movement in funds
10
Total funds carried forward
Unrestricted
funds
2021
£
-
12,423
6
12,429
6,082
6,082
6,347
64,501
6,347
70,848
Total
funds
2021
£
-
12,423
6
12,429
6,082
6,082
6,347
64,501
6,347
70,848
Total
funds
2020
£
1,000
20,402
48
21,450
18,325
18,325
3,125
61,376
3,125
64,501

The Statement of Financial Activities includes all gains and losses recognised in the year.

The notes on pages 8 to 13 form part of these financial statements.

Page 6

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

BALANCE SHEET AS AT 31 DECEMBER 2021

Note
Current assets
Cash at bank and in hand
Creditors: amounts falling due within one
year
9
Net current assets
Total assets less current liabilities
Net assets excluding pension asset
Total net assets
Charity funds
Unrestricted funds
10
Total funds
2021
£
73,848
73,848
(3,000)
2021
£
70,848
70,848
70,848
70,848
70,848
70,848
2020
£
67,501
67,501
(3,000)
2020
£
64,501
64,501
64,501
64,501
64,501
64,501

The financial statements were approved and authorised for issue by the Trustees on _______ 15 September 2022 and signed on their behalf by:

R Barski (Trustee)

Dr J Davison (Trustee)

The notes on pages 8 to 13 form part of these financial statements.

Page 7

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2021

1. General information

British Inherited Metabolic Disease Group is a CIO registered in England and Wales.

2. Accounting policies

2.1 Basis of preparation of financial statements

The financial statements have been prepared in accordance with the Charities SORP (FRS 102) - Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Charities Act 2011.

The financial statements have been prepared to give a 'true and fair' view and have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a 'true and fair' view. This departure has involved following the Charities SORP (FRS 102) published in October 2019 rather than the Accounting and Reporting by Charities: Statement of Recommended Practice effective from 1 April 2005 which has since been withdrawn.

British Inherited Metabolic Diseases Group meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy.

2.2 Income

All income is recognised once the Charity has entitlement to the income, it is probable that the income will be received and the amount of income receivable can be measured reliably.

Grants are included in the Statement of Financial Activities on a receivable basis. The balance of income received for specific purposes but not expended during the period is shown in the relevant funds on the Balance Sheet. Where income is received in advance of entitlement of receipt, its recognition is deferred and included in creditors as deferred income. Where entitlement occurs before income is received, the income is accrued.

2.3 Expenditure

Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges allocated on the portion of the asset’s use.

Expenditure on charitable activities is incurred on directly undertaking the activities which further the Charity's objectives, as well as any associated support costs.

All expenditure is inclusive of irrecoverable VAT.

Page 8

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2021

2. Accounting policies (continued)

2.4 Interest receivable

Interest on funds held on deposit is included when receivable and the amount can be measured reliably by the Charity; this is normally upon notification of the interest paid or payable by the institution with whom the funds are deposited.

2.5 Cash at bank and in hand

Cash at bank and in hand includes cash and short-term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account.

2.6 Liabilities and provisions

Liabilities are recognised when there is an obligation at the Balance Sheet date as a result of a past event, it is probable that a transfer of economic benefit will be required in settlement, and the amount of the settlement can be estimated reliably.

Liabilities are recognised at the amount that the Charity anticipates it will pay to settle the debt or the amount it has received as advanced payments for the goods or services it must provide.

2.7 Financial instruments

The Charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method.

2.8 Fund accounting

General funds are unrestricted funds which are available for use at the discretion of the Trustees in furtherance of the general objectives of the Charity and which have not been designated for other purposes.

3. Income from donations and legacies

Donations
Total 2020
Unrestricted
funds
2021
£
-
1,000
Total
funds
2021
£
-
1,000
Total
funds
2020
£
1,000

Page 9

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2021

4. Income from charitable activities

Membership subscriptions
Grants
Workshops
Unrestricted
funds
2021
£
9,423
3,000
-
12,423
Total
funds
2021
£
9,423
3,000
-
12,423
Total
funds
2020
£
9,373
10,000
1,029
20,402

5. Investment income

Unrestricted
funds
2021
£
Investment income
6
Analysis of expenditure by activities
Activities
undertaken
directly
2021
Support
costs
2021
£
£
Medical education
1,600
4,482
Total
funds
2021
£
6
Total
funds
2021
£
6,082
Total
funds
2020
£
48
Total
funds
2020
£
18,325

6. Analysis of expenditure by activities

Analysis of direct costs

Page 10

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2021

6. Analysis of expenditure by activities (continued)

Analysis of direct costs (continued)

Annual Conference
Workshop costs
Total
funds
2021
£
1,600
-
1,600
Total
funds
2020
£
9,454
224
9,678

Analysis of support costs

Legal & Professional
IT, Software and website cost
Prizes
Travel costs
Other
Committee meeting and travel costs (Governance)
Independent Examination and accountancy (Governance)
Total
funds
2021
£
-
1,382
100
-
-
-
3,000
4,482
Total
funds
2020
£
1,731
1,812
-
257
408
156
4,283
8,647

7. Independent examiner's remuneration

The independent examiner's remuneration amounts to an independent examiner fee of £1,400 ( 2020 - £1,400 ) , and accountancy fees of of £1,600 (2020 - £1,600).

8. Trustees' remuneration and expenses

During the year, no Trustees received any remuneration or other benefits (2020 - £NIL).

During the year ended 31 December 2021, no Trustee expenses have been incurred (2020 - £NIL).

Page 11

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2021

9. Creditors: Amounts falling due within one year

Accruals and deferred income
10.
Statement of funds
Statement of funds - current year
2021
£
3,000
2020
£
3,000
Unrestricted funds
General Funds
Statement of funds - prior year
Unrestricted funds
General Funds
Balance at 1
January
2021
£
64,501
Balance at
1 January
2020
£
61,376
Income
£
12,429
Income
£
21,450
Expenditure
£
(6,082)
Expenditure
£
(18,325)
Balance at
31
December
2021
£
70,848
Balance at
31
December
2020
£
64,501

Page 12

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

BRITISH INHERITED METABOLIC DISEASES GROUP

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2021

11. Analysis of net assets between funds

Analysis of net assets between funds - current year

Unrestricted
funds
2021
£
Current assets
73,848
Creditors due within one year
(3,000)
Total
70,848
Total
funds
2021
£
73,848
(3,000)
70,848

Analysis of net assets between funds - prior year

Current assets
Creditors due within one year
Total
Unrestricted
funds
2020
£
67,501
(3,000)
64,501
Total
funds
2020
£
67,501
(3,000)
64,501

12. Related party transactions

The Charity has not entered into any related party transaction during the year, nor are there any outstanding balances owing between related parties and the Charity at 31 December 2021.

Page 13

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

British Inherited Metabolic Diseases Group c/o Hewitsons Shakespeare House 42 Newmarket Road Cambridge CB5 8EP

Peters Elworthy & Moore Salisbury House Station Road Cambridge CB1 2LA

Dear Sirs

British Inherited Metabolic Disease Group

The following representations are made on the basis of enquiries of management and staff with relevant knowledge and experience such as we consider necessary in connection with your independent examination of the charity’s financial statements for the year ended 31 December 2021. These enquiries have included inspection of supporting documentation where appropriate. All representations are made to the best of our knowledge and belief.

General

Assets and liabilities

Accounting estimates

DocuSign Envelope ID: 0341203A-4A43-4D0B-B804-3C410D334DF3

Loans and arrangements

Legal claims

Laws and regulations

Related parties

Subsequent events

Going concern

Grants and donations

Yours faithfully

..............................................................................................................................

Signed on behalf of the Trustees

Date: