CHARITY Trustees. Annual Report for the period Period start date 01 2024 To Section A Reference and administration details Charlty nam• Hereditary FclO Intoleranc• (HFI) UK Oth•r nam•s charlty i• known by Reglstered charfty number (H any) 1184203 Charlty8 Prlnclpal address 87 Churchill Way ST17 9PB Nam•8 of th• ¢h•rlty trust••• who m•nag0 tho charlty Oln¢• Ol•ryl N•m• ol p•rnon lor body) •ntNl•d nt tn*t•• If•n Imlliam Armstrong Carolyn iVe8twood Gerard We8tr4vood Chair 10 11 12 13 14 15 17 18 Names of tho trustees for th• charfty, If any, (for example, any custodlan trustees) Nam• It•s acted rf not for whole
Namos and addresses of advlsern (Optlonal InfornMtlon) of advl•er Nam• Addr•ss Name of chlef oxecutlve or n*ne8 of senlor staff members (Optional infomialion) Section B Structure, governance and management Dascriplion of tho charfty'• trusts Constitutbon Type of governlng dOrnent How the charity18 constituted Charitable Inccryirated Organisats'on Trustee selectlon meth¢xl8 Appointed by existing Truste88 Addltlonal gov•rnanc• I••U (Opllonal Inforniallon) You may choo80 to include additional inforniatlon, where relevant, about: pollcie3 and procedures adopted for the induction and training of trustae8', the charity'8 organisational 8tructure and any wider network wth vthich the d)arty work8; • relationship with any related trustees, conslderation of major risks and the system and procedure8 to manage thern. Section C Ob'ectives and activities For the public benefft arKI the advancement of the heath of those who suffer from Hereditary Fwctose Intoleran (also knovm as Fructosemia) and their familles through the provision of advi, support and guidance about the cdion and to manage the symptorns of rt. Summary of tho objects of t charfty set out In It• govarnlng drxumont
The Charty has Continued its work offering support to adutts and teenagers, and the carer5 of children and babies with HFI. All with due regard to the public benefft guKlan. Summary of th• main activitios undortakan for the publlc bangfit in relatlon to these objects (Ineludo thin th18 sactlon th• statutory declaratlon that tru3teO8 have had regard to the guldanca l•sued by the Charity Comml•slon on publlc boneflt) Addftlonal d•tall• of objoclfvu and aclfvftlo• (Oplonal Infornmllon) The Tru8t888 have Fvided 8UPPOrt to HFI sufferer8 during thi8 year. The support ranges from direct telephone 8UPPOrt to publishing artides on social media, offering advilx and guidance that ha8 not been readlly available elsewhere. You may choose to includa further statements. where relevant, about: policy on grantsnaklng; policy programme related investment; contribjtion made by voluntsers.
Section D Achievements and performance As in previous years, no formal fundrnising ac*ivty has taken place which has diredy impathd our training for Trust88s and Volunteers, therefore no fomial training has taken place this year. The Trustees continu8 their research into the condition and the management of its symptoms. Summary of the maln achlevements of the charlty during the year Demand for help and supp)rt conttnues to increase vdWId8, particularly newly diagnosed chiklren and babies.
Section E Financial review Brlef statement of Ihe charlty's pollcy on rnsorves No fundraising has taken place this year, thereftxe no reserves have LEen buiR up. On¢e fUndrsIng acbvty commencxs, a compliant policy 11 be fully developed. Detalls of any funds m•terlalty in deficit The Charity doe8 fKrt have any defiots. Furth•r financlal d•tail• (Optional InformOn) You may choo•e to Indude additional infomiation, there r8levant aboul: the charity's prinapal sources of funds (induding any fundraising): how expendlture ha8 supported the kay obJective8 of the tharity,. Investment policy and objectives Including any ethical investment policy adopted. This year the CharTty has been 8ell-fvnding its 0rationS through the personal income of the TN8tees. Section F Other optional information Section G Declaration Tbe trustees deGlare that they havo approvad the truste•s' r•port •bov Slgned on b•h•lf of tho charlty'• tru•toos Slgnaturel8) Full namels) Carolyn WeslwD Posftlon (ag Secretary. Chalr, Ttee 30A)4r2025
CHARITY COMMISSION FOR ENGiAND AND WALE5 1184023 Recei tsand ments accounts CC16a Forth• poriod OIKJ7ra023 To Section A Receipts and payments Unr••trlctsd nd• fun fun Totsl lund• A1 Rttol AR) A3Pa TrAvel ACUntcY 14 14 Sub to A4 ¥l•••t and lft¥•Alm•rrt Sub to AO Tr•n•f•rn belwe•n fundl Al Ca•h lund8 last >r and C•sh funds th1$ •nd
Section B Statement of assets and liabilities at the end of the period Catsgorl•• Endowrn•nt fvnd• to n••r•st£ nd• tr• M•r••t£ B1 Ca•h fvnd• fund• lund¥ D•tsl ¢o#lbo ¢un•nt ¢0•¢ lop¥o 84 A•Mts r•tsln•d for th• charfty'• own u•• FundloThkh D•l•i B6 Ll•bllltl• s•1 tyone or tru•e• on behf of 411 th9 In4tO0S Oate ol rov81 S*na 30104r2026
CHARITY COMMISSION FOR ENGLAND AND WALES Independent examinerfs report on the accounts Section A Independent Examinefs Report Report to Iho trustaesl members ol H•r•ditary FructO80 Intoleranco (HFI) UK On accounts for the year ondod 301(W2024 Charlty no (If any) 1184023 S•t out on pag 1and2 I report to the tru8tee8 on my examination of the account8 of the above chanty (Ihe Trusf) for the year ended 3010612024. R••ponslbllltl•s and AS the charity tru8tee8 of the Trust, you ar8 rèsponsibb for the preparatlon basi• of rnpwt of the a(xourrt8 in accordanra with the requirements of the Charities Act 2011 fthe W). I report in re8Wrt of my examination of the Tru8Vs accounts caffied Xrt under 8econ 145 of the 2011 Act arKI in carrying out my examination, I have follo*rd th8 applicable Dlrectlon8 aNen by the Charty Commlssion under section 145{5){b) of the Ad. Indep•ndont I have comtyeled my examination. I confimi that no material mattor8 have •xamlnerf8 8tstom•nt come to my att8ntionthllw in connection wilh the examination whith give8 me c8u8e to believe that in. any material re8P8¢t.' accounting record8 re not kept in accordance IMth 80cti 130 of theAdor the accounts do not accord the a01untIng records I have no concems and have corn8 across no other matter8 in connection blith the examination to blfiich attention shoukl b8 drawn in oriler to enable Fxoper underntanding of the accounts to be reached. ethe in the brackets rfthey do not apy. Slqn•d.' 30104r2025 Paul Rowlands, Principal, Miner¥a Accounting Solutions Ltd Rolovant profes8lon•l qu•lificatlon($) or body lif any): Addrns•: 20 Hac(x)mbe Path Newton Abbot Dev TQ12 4JB IER October 2018
Section B Disclosure Only complete rf the examiner needs to highlight matters of con¢em (see CC32, Independent examination of charity accounts: directions and guidance for examiners). Glve here brlel datalls of any items that the examiner wlshes to dlsclose. IER October 2018