# Amyloidosis UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1183624
- **Other names:** UK ATTR AMYLOIDOSIS PATIENTS&#x27; ASSOCIATION (UKATPA)
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** May 29, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1183624


## Contact

- **Address:** Office 7, First Floor, No 11, Riverside Industrial Park, Farnham
- **Postcode:** GU9 7UG
- **Phone:** 07881 914013
- **Email:** info@amyloidosisuk.org
- **Website:** www.amyloidosisuk.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE IN THE UNITED KINGDOM LIVING WITH THE MEDICAL CONDITION ATTR AMYLOIDOSIS (KNOWN AS THE ‘CONDITION’) IN PARTICULAR BUT NOT EXCLUSIVELY BY:A) PROVIDING INFORMATION, SUPPORT AND ADVICE TO PEOPLE LIVING WITH THE CONDITION, THEIR FAMILIES AND CARERS;B) ADVOCATING TO ENSURE THAT EVERY PERSON HAS TIMELY AND EFFECTIVE DIAGNOSIS, TREATMENT AND CARE OF THE CONDITION;C) WORKING CLOSELY WITH ALL STAKEHOLDERS TO FACILITATE THE AVAILABILITY OF EFFECTIVE TREATMENTS FOR THE CONDITION.D) FUNDING AND SUPPORTING RESEARCH TO ADVANCE SCIENTIFIC UNDERSTANDING OF THE CONDITION AND ITS EFFECTIVE TREATMENT AND TO PUBLISH THE USEFUL RESULTS THEREOF FOR THE PUBLIC BENEFIT.

**Activities:** a) providing information, support and advice to people living with the Condition, their families and carers; b) advocating to ensure that every person has timely and effective diagnosis, treatment and care of the Condition;c)  working closely with all stakeholders to facilitate the availability of effective treatments for the Condition. d)  funding and supporting research to advance scientif




## Classification

- **How:** Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives



## Geography

- Ireland
- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| CARLOS HERAS-PALOU |  | Dec. 1, 2018 |
| David Gregory |  | Sept. 27, 2019 |
| Julian Robert Macleod |  | Feb. 20, 2025 |
| Paul Pozzo |  | Oct. 19, 2020 |
| Ruth Eleanor Bramwell |  | Dec. 1, 2018 |
| Vincent Graham Nesan Nicholas |  | Dec. 1, 2018 |




