REGISTERED CHARITY NUMBER: 1183570
Report of the Trustees and
Financial Statements for the Year Ended 31 May 2024
for
Stargardt'S Connected
Richard Smedley Limited Chartered Accountants & Registered Auditors Richmond House Lawnswood Business Park Redvers Close Leeds West Yorkshire LS16 6QY
Stargardt'S Connected
Contents of the Financial Statements for the Year Ended 31 May 2024
| Page | |||
|---|---|---|---|
| Report of the Trustees | 1 | to | 2 |
| Statement of Financial Activities | 3 | ||
| Balance Sheet | 4 | to | 5 |
| Notes to the Financial Statements | 6 | to | 10 |
| Detailed Statement of Financial Activities | 11 | to | 12 |
Stargardt'S Connected
Report of the Trustees for the Year Ended 31 May 2024
The Trustees who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 31 May 2024. The Trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
OBJECTIVES AND ACTIVITIES Objectives and aims
Our mission statement is to raise awareness; provide support and seek a cure for Stargardt's disease.
Significant activities
Another Year of Collaboration and Progress
Our mission of supporting those affected by Stargardt's disease has been at the heart of our activities throughout the year. Collaboration has been a cornerstone of our efforts, and we have successfully partnered with esteemed charities such as Usher Kids UK, Fight for Sight, Retina UK, and Victa, amplifying our impact and reach.
Thanks to generous grant funding from Thomas Pocklington Trust, we developed a Stargardt's Specific Education Toolkit, now available on our website. This toolkit provides valuable strategies for education professionals, parents, and young people to support those with Stargardt's in educational settings. Bhavna, our CEO, presented this toolkit at the View conference in March 2024, attended by over 200 educational professionals, in collaboration with Usher Kids.
Community Engagement
Our community engagement remains strong with regular Zoom sessions for parents and young people, as well as face-to-face events like our annual picnic and joint family day with Victa.
We also collaborated with Fight for Sight to fund two small grant awards towards Stargardt's research, furthering our commitment to finding a cure. Additionally, we launched the Stargardt's Stars initiative on Rare Disease Day in February 2024, highlighting inspiring members of our community each month on social media.
Our patient register continues to grow, with two peer-led support groups in the UK organizing meet-ups starting January 2024 in London and Oxford.
Fundraising
Fundraising efforts have been robust, including the mayor's sunglasses walk in April 2024. We have seen an increase in funds, thanks to the generous contributions from our supporters. These funds are crucial in supporting our ongoing research and community initiatives.
Growing Recognition and Influence
Our CEO's invitation to attend the Buckingham Palace Garden Party in May 2024 was a testament to our growing recognition and influence. We are also building relationships with pharmaceutical companies exploring treatments for Stargardt's, ensuring we stay at the forefront of advancements in care and support.
Thanks to the continued support and dedication of so many people, we are making a difference in the lives of those affected by Stargardt's disease.
STRUCTURE, GOVERNANCE AND MANAGEMENT
Governing document
The charity was registered as a charitable incorporated organisation foundation on 24 May 2019.
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Stargardt'S Connected
Report of the Trustees
for the Year Ended 31 May 2024
REFERENCE AND ADMINISTRATIVE DETAILS Registered Company number
CE017603 (England and Wales)
Registered Charity number
1183570
Registered office
54 Cuffley Hill Goff's Oak Waltham Cross EN7 5EU
Trustees
A Skilton Chair R Mattocks Trustee T.H. Evans Trustee R McCann Trustee M L Brandao Trustee
Approved by order of the board of trustees on 28 March 2025 and signed on its behalf by:
Toby Evans Signed on 28/03/25 @ 12:51
T.H. Evans - Trustee
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Statement of Financial Activities for the Year Ended 31 May 2024
| 31.5.24 | 31.5.23 | ||
|---|---|---|---|
| Unrestricted | Total | ||
| fund | funds | ||
| Notes | £ | £ | |
| INCOME AND ENDOWMENTS FROM | |||
| Donations and legacies | 76,834 | 39,079 | |
| EXPENDITURE ON | |||
| Raising funds | 2 | 46,906 | 32,454 |
| Charitable activities | |||
| Donations to Other Charities | 15,814 | - | |
| Other | 1,668 | - | |
| Total | 64,388 | 32,454 | |
| NET INCOME | 12,446 | 6,625 | |
| RECONCILIATION OF FUNDS | |||
| Total funds brought forward | 30,540 | 23,915 | |
| TOTAL FUNDS CARRIED FORWARD | 42,986 | 30,540 |
The notes form part of these financial statements
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Balance Sheet
31 May 2024
| 31.5.24 | 31.5.23 | ||
|---|---|---|---|
| Unrestricted | Total | ||
| fund | funds | ||
| Notes | £ | £ | |
| CURRENT ASSETS | |||
| Debtors | 5 | 3,185 | 257 |
| Cash at bank | 40,967 | 34,165 | |
| 44,152 | 34,422 | ||
| CREDITORS | |||
| Amounts falling due within one year | 6 | (1,166) | (3,882) |
| NET CURRENT ASSETS | 42,986 | 30,540 | |
| TOTAL ASSETS LESS CURRENT | |||
| LIABILITIES | 42,986 | 30,540 | |
| NET ASSETS | 42,986 | 30,540 | |
| FUNDS | 7 | ||
| Unrestricted funds | 42,986 | 30,540 | |
| TOTAL FUNDS | 42,986 | 30,540 |
The charitable company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 31 May 2024.
The members have not required the company to obtain an audit of its financial statements for the year ended 31 May 2024 in accordance with Section 476 of the Companies Act 2006.
The trustees acknowledge their responsibilities for
-
(a) ensuring that the charitable company keeps accounting records that comply with Sections 386 and 387 of the Companies Act 2006 and
-
(b) preparing financial statements which give a true and fair view of the state of affairs of the charitable company as at the end of each financial year and of its surplus or deficit for each financial year in accordance with the requirements of Sections 394 and 395 and which otherwise comply with the requirements of the Companies Act 2006 relating to financial statements, so far as applicable to the charitable company.
The notes form part of these financial statements
continued...
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Balance Sheet - continued
31 May 2024
These financial statements have been prepared in accordance with the provisions applicable to charitable companies subject to the small companies regime.
The financial statements were approved by the Board of Trustees and authorised for issue on 28 March 2025 and were signed on its behalf by:
Toby Evans Signed on 28/03/25 @ 12:51
T.H. Evans - Trustee
The notes form part of these financial statements
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Notes to the Financial Statements for the Year Ended 31 May 2024
1. ACCOUNTING POLICIES
Basis of preparing the financial statements
The financial statements of the charitable company, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention.
Income
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
Expenditure
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Grants offered subject to conditions which have not been met at the year end date are noted as a commitment but not accrued as expenditure.
Taxation
The charity is exempt from corporation tax on its charitable activities.
Fund accounting
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
Pension costs and other post-retirement benefits
The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activities in the period to which they relate.
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Notes to the Financial Statements - continued
for the Year Ended 31 May 2024
2. RAISING FUNDS
Raising donations and legacies
| Raising donations and legacies | ||
|---|---|---|
| 31.5.24 | 31.5.23 | |
| £ | £ | |
| Workshops | 7,654 | 2,179 |
| Garden design costs | - | 5,500 |
| Travel and subsistence | 160 | 1,182 |
| Support costs | 3,518 | 6,131 |
| 11,332 | 14,992 |
3. TRUSTEES' REMUNERATION AND BENEFITS
There were no trustees' remuneration or other benefits for the year ended 31 May 2024 nor for the year ended 31 May 2023.
Trustees' expenses
There were no trustees' expenses paid for the year ended 31 May 2024 nor for the year ended 31 May 2023.
4. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
| Unrestricted | |
|---|---|
| fund | |
| £ | |
| INCOME AND ENDOWMENTS FROM | |
| Donations and legacies | 39,079 |
| EXPENDITURE ON | |
| Raising funds | 32,454 |
| NET INCOME | 6,625 |
| RECONCILIATION OF FUNDS | |
| Total funds brought forward | 23,915 |
| TOTAL FUNDS CARRIED FORWARD | 30,540 |
continued...
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| Notes to the Financial Statements- continued | Notes to the Financial Statements- continued | |||
|---|---|---|---|---|
| for the | Year Ended 31 May 2024 | |||
| 5. | DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR | |||
| 31.5.24 | 31.5.23 | |||
| £ | £ | |||
| Social security & other taxes | 2,913 | - | ||
| Prepayments | 272 | 257 | ||
| 3,185 | 257 | |||
| 6. | CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR | |||
| 31.5.24 | 31.5.23 | |||
| £ | £ | |||
| Trade creditors | - | 1 | ||
| Social security and other taxes | - | 518 | ||
| Other creditors | 1,166 | 3,363 | ||
| 1,166 | 3,882 | |||
| 7. | MOVEMENT IN FUNDS | |||
| Net | ||||
| movement | At | |||
| At 1.6.23 | in funds | 31.5.24 | ||
| £ | £ | £ | ||
| Unrestricted funds | ||||
| General fund | 30,540 | 12,446 | 42,986 | |
| TOTAL FUNDS | 30,540 | 12,446 | 42,986 | |
| Net movement in funds, included in the above are as follows: | ||||
| Incoming | Resources | Movement | ||
| resources | expended | in funds | ||
| £ | £ | £ | ||
| Unrestricted funds | ||||
| General fund | 76,834 | (64,388) | 12,446 | |
| TOTAL FUNDS | 76,834 | (64,388) | 12,446 |
continued...
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Notes to the Financial Statements - continued for the Year Ended 31 May 2024
7. MOVEMENT IN FUNDS - continued
Comparatives for movement in funds
| Net | |||
|---|---|---|---|
| movement | At | ||
| At 1.6.22 | in funds | 31.5.23 | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 23,915 | 6,625 | 30,540 |
| TOTAL FUNDS | 23,915 | 6,625 | 30,540 |
| Comparative net movement in funds, included in the above are as follows: | |||
| Incoming | Resources | Movement | |
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 39,079 | (32,454) | 6,625 |
| TOTAL FUNDS | 39,079 | (32,454) | 6,625 |
| A current year 12 months and prior year 12 months combined position is as follows: | |||
| Net | |||
| movement | At | ||
| At 1.6.22 | in funds | 31.5.24 | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 23,915 | 19,071 | 42,986 |
| TOTAL FUNDS | 23,915 | 19,071 | 42,986 |
A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows:
| Incoming | Resources | Movement | |
|---|---|---|---|
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 115,913 | (96,842) | 19,071 |
| TOTAL FUNDS | 115,913 | (96,842) | 19,071 |
continued...
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Notes to the Financial Statements - continued for the Year Ended 31 May 2024
8. RELATED PARTY DISCLOSURES
There were no related party transactions for the year ended 31 May 2024.
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| Detailed Statement of Financial Activities | ||
|---|---|---|
| for the Year Ended 31 May 2024 | ||
| 31.5.24 | 31.5.23 | |
| £ | £ | |
| INCOME AND ENDOWMENTS | ||
| Donations and legacies | ||
| Donations and fundraisers | 75,195 | 29,079 |
| Gift aid | 1,639 | - |
| Grants | - | 10,000 |
| 76,834 | 39,079 | |
| Total incoming resources | 76,834 | 39,079 |
| EXPENDITURE | ||
| Raising donations and legacies | ||
| Workshops | 7,654 | 2,179 |
| Garden design costs | - | 5,500 |
| Travel and subsistence | 160 | 1,182 |
| 7,814 | 8,861 | |
| Other trading activities | ||
| Wages | 34,347 | 17,333 |
| Pensions | 843 | 129 |
| 35,190 | 17,462 | |
| Charitable activities | ||
| Grants to institutions | 15,814 | - |
| Support costs | ||
| Management | ||
| Insurance | 369 | 316 |
| Computer expenses | 144 | 3,132 |
| Postage and stationery | 216 | 456 |
| Advertising | 3,518 | - |
| Sundries | 321 | 97 |
| Room hire | - | 1,347 |
| 4,568 | 5,348 | |
| Finance | ||
| Bank charges | 396 | 303 |
| Governance costs | ||
| Accountancy and legal fees | 606 | 480 |
This page does not form part of the statutory financial statements
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| Detailed Statement of Financial Activities | ||
|---|---|---|
| for the Year Ended 31 May 2024 | ||
| 31.5.24 | 31.5.23 | |
| £ | £ | |
| Total resources expended | 64,388 | 32,454 |
| Net income | 12,446 | 6,625 |
This page does not form part of the statutory financial statements
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