**REGISTERED CHARITY NUMBER: 1183570**
## **Report of the Trustees and**
**Financial Statements for the Year Ended 31 May 2023**
**for**
**Stargardt'S Connected**
Richard Smedley Limited Chartered Accountants & Registered Auditors Richmond House Lawnswood Business Park Redvers Close Leeds West Yorkshire LS16 6QY
**Stargardt'S Connected**
## **Contents of the Financial Statements for the Year Ended 31 May 2023**
|||**Page**||
|---|---|---|---|
|**Report of the Trustees**|1|to|2|
|**Statement of Financial Activities**||3||
|**Balance Sheet**|4|to|5|
|**Notes to the Financial Statements**|6|to|10|
|**Detailed Statement of Financial Activities**||11||
**Stargardt'S Connected**
## **Report of the Trustees for the Year Ended 31 May 2023**
The Trustees who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 31 May 2023. The Trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
## **OBJECTIVES AND ACTIVITIES**
## **Objectives and aims**
Our mission statement is to raise awareness; provide support and seek a cure for Stargardt's disease.
## **Significant activities**
During this year, we increased the range of activities we undertook to raise awareness and provide support to our community.
We continued to hold regular interactive Zoom sessions. Along with general sessions open to everyone, we hosted a number of specialist sessions for children, young adults and parents of affected children. Within many of our Zoom sessions, we invited expert speakers to give advice on medical, accessibility and educational topics.
We also held a number of face to face meetings with our community throughout the year, including our annual Summer picnic and a Christmas meet up.
In March 2023 we held our first national interactive conference in London for our community, involving presentations from world-leading clinicians and other experts. Over 150 attended (online and face to face) and gave overwhelmingly positive feedback on the day.
In May 2023 one of our community members designed an award-winning Stargardt Garden at the RHS Chelsea Flower Show. This was part of raising awareness of the condition and fundraising for the charity.
And throughout the year we organised several fundraising events, including cake sales and walks to raise money but also to raise awareness of the charity and condition.
More widely, we have continued to build our Patient Register. We have used social media and our newsletters to encourage people to sign up. Throughout the year we have also continued to promote our charity actively on social media and have further expanded our website. We have also written and disseminated a regular Newsletter to our members.
Our CEO has presented and provided training to a number of professionals, schools, and other organisations about our charity and Stargardt's disease. She sits on many advisory boards to give a voice and advise and advocate on the needs of the community. She was awarded the Prime Minister's Points of Light Award on Rare Disease Day in February 2023 to commend her work with Stargardt's Connected. She has also made appearances in the press to explain our charity's role and promote its services.
## **STRUCTURE, GOVERNANCE AND MANAGEMENT**
## **Governing document**
The charity was registered as a charitable incorporated organisation foundation on 24 May 2019.
## **REFERENCE AND ADMINISTRATIVE DETAILS**
## **Registered Company number**
CE017603 (England and Wales)
## **Registered Charity number**
1183570
Page 1
**Stargardt'S Connected**
## **Report of the Trustees**
## **for the Year Ended 31 May 2023**
## **Registered office**
54 Cuffley Hill Goff's Oak Waltham Cross EN7 5EU
## **Trustees**
A Skilton Chair R Mattocks Trustee T.H. Evans Trustee R McCann Trustee M L Brandao Trustees (appointed 21.9.2022)
Approved by order of the board of trustees on 26 March 2024 and signed on its behalf by:
T.H. Evans - Trustee
Page 2
**Stargardt'S Connected**
## **Statement of Financial Activities for the Year Ended 31 May 2023**
|||**31.5.23**|31.5.22|
|---|---|---|---|
|||**Unrestricted**|Total|
|||**fund**|funds|
||Notes|**£**|£|
|**INCOME AND ENDOWMENTS FROM**||||
|Donations and legacies||**39,079**|18,142|
|**EXPENDITURE ON**||||
|Raising funds|2|**32,454**|6,019|
|**NET INCOME**||**6,625**|12,123|
|**RECONCILIATION OF FUNDS**||||
|Total funds brought forward||**23,915**|11,792|
|**TOTAL FUNDS CARRIED FORWARD**||**30,540**|23,915|
The notes form part of these financial statements
Page 3
**Stargardt'S Connected**
## **Balance Sheet**
## **31 May 2023**
|||**31.5.23**|31.5.22|
|---|---|---|---|
|||**Unrestricted**|Total|
|||**fund**|funds|
||Notes|**£**|£|
|**CURRENT ASSETS**||||
|Debtors|5|**257**|210|
|Cash at bank||**34,165**|23,705|
|||**34,422**|23,915|
|**CREDITORS**||||
|Amounts falling due within one year|6|**(3,882)**|-|
|**NET CURRENT ASSETS**||**30,540**|23,915|
|**TOTAL ASSETS LESS CURRENT**||||
|**LIABILITIES**||**30,540**|23,915|
|**NET ASSETS**||**30,540**|23,915|
|**FUNDS**|7|||
|Unrestricted funds||**30,540**|23,915|
|**TOTAL FUNDS**||**30,540**|23,915|
The charitable company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 31 May 2023.
The members have not required the company to obtain an audit of its financial statements for the year ended 31 May 2023 in accordance with Section 476 of the Companies Act 2006.
The trustees acknowledge their responsibilities for
- (a) ensuring that the charitable company keeps accounting records that comply with Sections 386 and 387 of the Companies Act 2006 and
(b) preparing financial statements which give a true and fair view of the state of affairs of the charitable company as at the end of each financial year and of its surplus or deficit for each financial year in accordance with the requirements of Sections 394 and 395 and which otherwise comply with the requirements of the Companies Act 2006 relating to financial statements, so far as applicable to the charitable company.
The notes form part of these financial statements
continued...
Page 4
**Stargardt'S Connected**
## **Balance Sheet - continued**
## **31 May 2023**
These financial statements have been prepared in accordance with the provisions applicable to charitable companies subject to the small companies regime.
The financial statements were approved by the Board of Trustees and authorised for issue on 26 March 2024 and were signed on its behalf by:
T.H. Evans - Trustee
The notes form part of these financial statements
Page 5
**Stargardt'S Connected**
**Notes to the Financial Statements for the Year Ended 31 May 2023**
## **1. ACCOUNTING POLICIES**
## **Basis of preparing the financial statements**
The financial statements of the charitable company, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention.
## **Income**
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
## **Expenditure**
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
## **Taxation**
The charity is exempt from corporation tax on its charitable activities.
## **Fund accounting**
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
## **Pension costs and other post-retirement benefits**
The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activities in the period to which they relate.
Page 6
continued...
**Stargardt'S Connected**
## **Notes to the Financial Statements - continued**
## **for the Year Ended 31 May 2023**
## **2. RAISING FUNDS**
## **Raising donations and legacies**
|**Raising donations and legacies**|||
|---|---|---|
||**31.5.23**|31.5.22|
||**£**|£|
|Workshops|**2,179**|521|
|Garden design costs|**5,500**|-|
|Travel and subsistence|**1,182**|-|
|Support costs|**6,131**|5,498|
||**14,992**|6,019|
## **3. TRUSTEES' REMUNERATION AND BENEFITS**
There were no trustees' remuneration or other benefits for the year ended 31 May 2023 nor for the year ended 31 May 2022.
## **Trustees' expenses**
There were no trustees' expenses paid for the year ended 31 May 2023 nor for the year ended 31 May 2022.
## **4. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES**
||Unrestricted|
|---|---|
||fund|
||£|
|**INCOME AND ENDOWMENTS FROM**||
|Donations and legacies|18,142|
|**EXPENDITURE ON**||
|Raising funds|6,019|
|**NET INCOME**|12,123|
|**RECONCILIATION OF FUNDS**||
|Total funds brought forward|11,792|
|**TOTAL FUNDS CARRIED FORWARD**|23,915|
continued...
Page 7
**Stargardt'S Connected**
|**Notes to the Financial Statements- continued**|**Notes to the Financial Statements- continued**||||
|---|---|---|---|---|
|**for the**|**Year Ended 31 May 2023**||||
|**5.**|**DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR**||||
||||**31.5.23**|31.5.22|
||||**£**|£|
||Prepayments||**257**|210|
|**6.**|**CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR**||||
||||**31.5.23**|31.5.22|
||||**£**|£|
||Social security and other taxes||**518**|-|
||Other creditors||**3,364**|-|
||||**3,882**|-|
|**7.**|**MOVEMENT IN FUNDS**||||
||||Net||
||||movement|At|
|||At 1.6.22|in funds|31.5.23|
|||£|£|£|
||**Unrestricted funds**||||
||General fund|**23,915**|**6,625**|**30,540**|
||**TOTAL FUNDS**|**23,915**|**6,625**|**30,540**|
||Net movement in funds, included in the above are as follows:||||
|||Incoming|Resources|Movement|
|||resources|expended|in funds|
|||£|£|£|
||**Unrestricted funds**||||
||General fund|**39,079**|**(32,454)**|**6,625**|
||**TOTAL FUNDS**|**39,079**|**(32,454)**|**6,625**|
||**Comparatives for movement in funds**||||
||||Net||
||||movement|At|
|||At 1.6.21|in funds|31.5.22|
|||£|£|£|
||**Unrestricted funds**||||
||General fund|11,792|12,123|23,915|
||**TOTAL FUNDS**|11,792|12,123|23,915|
continued...
Page 8
**Stargardt'S Connected**
## **Notes to the Financial Statements - continued for the Year Ended 31 May 2023**
## **7. MOVEMENT IN FUNDS - continued**
Comparative net movement in funds, included in the above are as follows:
|Incoming|Resources|Movement|
|---|---|---|
|resources|expended|in funds|
|£|£|£|
|**Unrestricted funds**|||
|General fund
18,142|(6,019)|12,123|
|**TOTAL FUNDS**
18,142|(6,019)|12,123|
|A current year 12 months and prior year 12 months combined position is as follows:|||
||Net||
||movement|At|
|At 1.6.21|in funds|31.5.23|
|£|£|£|
|**Unrestricted funds**|||
|General fund
11,792|18,748|30,540|
|**TOTAL FUNDS**
11,792|18,748|30,540|
A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows:
||Incoming|Resources|Movement|
|---|---|---|---|
||resources|expended|in funds|
||£|£|£|
|**Unrestricted funds**||||
|General fund|57,221|(38,473)|18,748|
|**TOTAL FUNDS**|57,221|(38,473)|18,748|
continued...
Page 9
**Stargardt'S Connected**
**Notes to the Financial Statements - continued for the Year Ended 31 May 2023**
## **8. RELATED PARTY DISCLOSURES**
There were no related party transactions for the year ended 31 May 2023.
Page 10
**Stargardt'S Connected**
|**Detailed Statement of Financial Activities**|||
|---|---|---|
|**for the Year Ended 31 May 2023**|||
||31.5.23|31.5.22|
||£|£|
|**INCOME AND ENDOWMENTS**|||
|**Donations and legacies**|||
|Donations and fundraisers|**29,079**|18,142|
|Grants|**10,000**|-|
||**39,079**|18,142|
|**Total incoming resources**|**39,079**|18,142|
|**EXPENDITURE**|||
|**Raising donations and legacies**|||
|Workshops|**2,179**|521|
|Garden design costs|**5,500**|-|
|Travel and subsistence|**1,182**|-|
||**8,861**|521|
|**Other trading activities**|||
|Wages|**17,333**|-|
|Pensions|**129**|-|
||**17,462**|-|
|**Support costs**|||
|**Management**|||
|Insurance|**316**|272|
|Computer expenses|**3,132**|5,024|
|Postage and stationery|**456**|-|
|Sundries|**97**|107|
|Room hire|**1,347**|-|
||**5,348**|5,403|
|**Finance**|||
|Bank charges|**303**|95|
|**Governance costs**|||
|Accountancy and legal fees|**480**|-|
|Total resources expended|**32,454**|6,019|
|**Net income**|**6,625**|12,123|
This page does not form part of the statutory financial statements
Page 11