REGISTERED CHARITY NUMBER: 1183570
Report of the Trustees and
Financial Statements for the Year Ended 31 May 2022
for
Stargardt'S Connected
Richard Smedley Limited Chartered Accountants & Registered Auditors Richmond House Lawnswood Business Park Redvers Close Leeds West Yorkshire LS16 6QY
Stargardt'S Connected
Contents of the Financial Statements for the Year Ended 31 May 2022
| Page | |||
|---|---|---|---|
| Report of the Trustees | 1 | to | 2 |
| Statement of Financial Activities | 3 | ||
| Balance Sheet | 4 | ||
| Notes to the Financial Statements | 5 | to | 8 |
| Detailed Statement of Financial Activities | 9 |
Stargardt'S Connected
Report of the Trustees for the Year Ended 31 May 2022
The trustees of the charity present their report with the financial statements of the charity for the year ended 31 May 2022. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
OBJECTIVES AND ACTIVITIES
Objectives and aims
Our mission statement is to raise awareness; provide support and seek a cure for Stargardt's disease.
Significant activities
During this year, we continued to raise awareness and provide support to our community through a number of interactive Zoom sessions. Along with general sessions open to everyone, including to those overseas, we hosted a number of specialist sessions for children, young adults and parents of affected children. Within many of our Zoom sessions, we invited expert speakers to give advice on medical, educational and financial topics.
As the pandemic receded, and the economy opened up, we were able to increase our range of activities and face to face meetings with our community. .
As part of Rare Disease Day in February 2022 we launched our fundraising bake sale toolkit on our website and organised a number of fundraising cake sales to raise money but also to raise awareness of the charity and condition. In March 2022 we organised a joint Family Day, in partnership with Victa, at Bletchley Park. All of these events were well attended.
More widely, in October 2021 on World Vision Day, we launched a Patient Register, which we have continued to build proactively. For example, we have contacted over 50 Retinal Specialists from around the world to raise awareness of the register. We have used social media and our newsletters to encourage people to sign up. In addition, our CEO has presented to a number of schools and charity audiences about our charity and Stargardt's disease. In January 2022 our CEO also became a member of the Eye2Gene advisory panel (patient advisory group) - a project which is using AI to diagnose Inherited Retinal Diseases with the aim to speed up the diagnosis pathway.
We have also continued to expand our team. For example we now have a Stargardt's Advocate who helps promote the Patient Register and analyses its data. Throughout the year we have also continued to promote our charity actively on social media, and have further expanded our website.
STRUCTURE, GOVERNANCE AND MANAGEMENT
Governing document
The charity was registered as a charitable incorporated organisation foundation on 24 May 2019.
REFERENCE AND ADMINISTRATIVE DETAILS
Registered Company number
CE017603 (England and Wales)
Registered Charity number
1183570
Registered office
54 Cuffley Hill Goff's Oak Waltham Cross EN7 5EU
Page 1
Stargardt'S Connected
Report of the Trustees
for the Year Ended 31 May 2022
Trustees
A Skilton Chair S Rajpopat Trustee R Mattocks Trustee T.H. Evans Trustee R McCann Trustee
Approved by order of the board of trustees on 16 March 2023 and signed on its behalf by:
T.H. Evans - Trustee
Page 2
Stargardt'S Connected
Statement of Financial Activities for the Year Ended 31 May 2022
| 31.5.22 | 31.5.21 | ||
|---|---|---|---|
| Unrestricted | Total | ||
| fund | funds | ||
| Notes | £ | £ | |
| INCOME AND ENDOWMENTS FROM | |||
| Donations and legacies | 18,142 | 5,236 | |
| EXPENDITURE ON | |||
| Raising funds | 2 | 6,019 | 1,240 |
| NET INCOME | 12,123 | 3,996 | |
| RECONCILIATION OF FUNDS | |||
| Total funds brought forward | 11,792 | 7,796 | |
| TOTAL FUNDS CARRIED FORWARD | 23,915 | 11,792 |
The notes form part of these financial statements
Page 3
Stargardt'S Connected
Balance Sheet
31 May 2022
| 31.5.22 | 31.5.21 | ||
|---|---|---|---|
| Unrestricted | Total | ||
| fund | funds | ||
| Notes | £ | £ | |
| CURRENT ASSETS | |||
| Debtors | 5 | 210 | 186 |
| Cash at bank | 23,705 | 11,606 | |
| 23,915 | 11,792 | ||
| NET CURRENT ASSETS | 23,915 | 11,792 | |
| TOTAL ASSETS LESS CURRENT | |||
| LIABILITIES | 23,915 | 11,792 | |
| NET ASSETS | 23,915 | 11,792 | |
| FUNDS | 6 | ||
| Unrestricted funds | 23,915 | 11,792 | |
| TOTAL FUNDS | 23,915 | 11,792 |
The charitable company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 31 May 2022.
The members have not required the company to obtain an audit of its financial statements for the year ended 31 May 2022 in accordance with Section 476 of the Companies Act 2006.
The trustees acknowledge their responsibilities for
(a) ensuring that the charitable company keeps accounting records that comply with Sections 386 and 387 of the Companies Act 2006 and
- (b) preparing financial statements which give a true and fair view of the state of affairs of the charitable company as at the end of each financial year and of its surplus or deficit for each financial year in accordance with the requirements of Sections 394 and 395 and which otherwise comply with the requirements of the Companies Act 2006 relating to financial statements, so far as applicable to the charitable company.
These financial statements have been prepared in accordance with the provisions applicable to charitable companies subject to the small companies regime.
The financial statements were approved by the Board of Trustees and authorised for issue on 16 March 2023 and were signed on its behalf by:
T.H. Evans - Trustee
The notes form part of these financial statements
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Stargardt'S Connected
Notes to the Financial Statements for the Year Ended 31 May 2022
1. ACCOUNTING POLICIES
Basis of preparing the financial statements
The financial statements of the charitable company, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention.
Income
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
Expenditure
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Taxation
The charity is exempt from corporation tax on its charitable activities.
Fund accounting
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
2. RAISING FUNDS
Raising donations and legacies
| Raising donations and legacies | ||
|---|---|---|
| 31.5.22 | 31.5.21 | |
| £ | £ | |
| Workshops | 521 | 141 |
| Support costs | 5,498 | 1,099 |
| 6,019 | 1,240 |
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Stargardt'S Connected
Notes to the Financial Statements - continued for the Year Ended 31 May 2022
3. TRUSTEES' REMUNERATION AND BENEFITS
There were no trustees' remuneration or other benefits for the year ended 31 May 2022 nor for the year ended 31 May 2021.
Trustees' expenses
There were no trustees' expenses paid for the year ended 31 May 2022 nor for the year ended 31 May 2021.
4. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
| Unrestricted | ||||
|---|---|---|---|---|
| fund | ||||
| £ | ||||
| INCOME AND ENDOWMENTS FROM | ||||
| Donations and legacies | 5,236 | |||
| EXPENDITURE ON | ||||
| Raising funds | 1,240 | |||
| NET INCOME | 3,996 | |||
| RECONCILIATION OF FUNDS | ||||
| Total funds brought forward | 7,796 | |||
| TOTAL FUNDS CARRIED FORWARD | 11,792 | |||
| 5. | DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR | |||
| 31.5.22 | 31.5.21 | |||
| £ | £ | |||
| Prepayments | 210 | 186 | ||
| 6. | MOVEMENT IN FUNDS | |||
| Net | ||||
| movement | At | |||
| At 1.6.21 | in funds | 31.5.22 | ||
| £ | £ | £ | ||
| Unrestricted funds | ||||
| General fund | 11,792 | 12,123 | 23,915 | |
| TOTAL FUNDS | 11,792 | 12,123 | 23,915 |
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Stargardt'S Connected
Notes to the Financial Statements - continued for the Year Ended 31 May 2022
6. MOVEMENT IN FUNDS - continued
Net movement in funds, included in the above are as follows:
| Incoming | Resources | Movement | |
|---|---|---|---|
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 18,142 | (6,019) | 12,123 |
| TOTAL FUNDS | 18,142 | (6,019) | 12,123 |
Comparatives for movement in funds
| Net | |||
|---|---|---|---|
| movement | At | ||
| At | 1.6.20 | in funds | 31.5.21 |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 7,796 | 3,996 | 11,792 |
| TOTAL FUNDS | 7,796 | 3,996 | 11,792 |
| Comparative net movement in funds, included in the above are as follows: | |||
| Incoming | Resources | Movement | |
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 5,236 | (1,240) | 3,996 |
| TOTAL FUNDS | 5,236 | (1,240) | 3,996 |
A current year 12 months and prior year 12 months combined position is as follows:
| Net | |||
|---|---|---|---|
| movement | At | ||
| At 1.6.20 | in funds | 31.5.22 | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 7,796 | 16,119 | 23,915 |
| TOTAL FUNDS | 7,796 | 16,119 | 23,915 |
continued...
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Stargardt'S Connected
Notes to the Financial Statements - continued for the Year Ended 31 May 2022
6. MOVEMENT IN FUNDS - continued
A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows:
| Incoming | Resources | Movement | |
|---|---|---|---|
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 23,378 | (7,259) | 16,119 |
| TOTAL FUNDS | 23,378 | (7,259) | 16,119 |
7. RELATED PARTY DISCLOSURES
There were no related party transactions for the year ended 31 May 2022.
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Stargardt'S Connected
| Detailed Statement of Financial Activities | ||
|---|---|---|
| for the Year Ended 31 May 2022 | ||
| 31.5.22 | 31.5.21 | |
| £ | £ | |
| INCOME AND ENDOWMENTS | ||
| Donations and legacies | ||
| Donations and fundraisers | 18,142 | 5,236 |
| Total incoming resources | 18,142 | 5,236 |
| EXPENDITURE | ||
| Raising donations and legacies | ||
| Workshops | 521 | 141 |
| Support costs | ||
| Management | ||
| Insurance | 272 | 259 |
| Computer expenses | 5,024 | 642 |
| Sundries | 107 | 167 |
| 5,403 | 1,068 | |
| Finance | ||
| Bank charges | 95 | 31 |
| Total resources expended | 6,019 | 1,240 |
| Net income | 12,123 | 3,996 |
This page does not form part of the statutory financial statements
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