{"country": "England & Wales", "charity_number": "1182873", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1182873", "name": "INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION", "known_as": null, "other_names": [{"name": "IPWSO", "name_type": "Working name"}], "status": "Registered", "date_registered": "2019-04-09", "date_removed": null, "legal_form": "CIO", "company_number": null, "company_number_url": null, "parent": null, "subsidiaries": [], "area_of_benefit": null, "address": "IPWSO, Salisbury House, 2-3 Salisbury Villas, CAMBRIDGE", "postcode": "CB1 2LA", "phone": "07511585700", "email": "office@ipwso.org", "website": "https://www.ipwso.org/", "lat": 52.195119, "lng": 0.133672, "activities": "IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.", "purposes": null, "what_charity_does": null, "how_charity_works": null, "who_charity_helps": null, "beneficiaries": null, "objectives": null, "charitable_objects": "THE OBJECTS OF THE CIO ARE, FOR THE PUBLIC BENEFIT:1) TO PROMOTE THE RELIEF AND TREATMENT OF PEOPLE WITH PRADER-WILLI SYNDROME, AND TO PROVIDE SUPPORT AND ADVICE FOR SUCH PERSONS, THEIR FAMILIES AND CARERS;2) THE ADVANCEMENT OF HEALTH BY PROMOTING, SUPPORTING AND CARRYING OUT CHARITABLE RESEARCH, AND TO DISSEMINATE THE RESULTS OF SUCH RESEARCH, FOR THE PUBLIC BENEFIT INTO THE CAUSE AND TREATMENT OF PRADER-WILLI SYNDROME; AND3) TO RAISE AWARENESS ABOUT THE NEEDS OF PEOPLE WITH PRADER-WILLI SYNDROME THROUGH THE PROVISION OF INFORMATION.", "classifications": [{"type": "How", "code": 301, "description": "Makes Grants To Individuals"}, {"type": "How", "code": 302, "description": "Makes Grants To Organisations"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "How", "code": 309, "description": "Acts As An Umbrella Or Resource Body"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 206, "description": "Other Defined Groups"}], "main_operating_location": null, "geographical_spread": null, "areas_of_operation": [{"area_type": "Country", "area_description": "Argentina"}, {"area_type": "Country", "area_description": "Australia"}, {"area_type": "Country", "area_description": "Austria"}, {"area_type": "Country", "area_description": "Belgium"}, {"area_type": "Country", "area_description": "Brazil"}, {"area_type": "Country", "area_description": "Bulgaria"}, {"area_type": "Country", "area_description": "Canada"}, {"area_type": "Country", "area_description": "Chile"}, {"area_type": "Country", "area_description": "Colombia"}, {"area_type": "Country", "area_description": "Cuba"}, {"area_type": "Country", "area_description": "Czech Republic"}, {"area_type": "Country", "area_description": "Denmark"}, {"area_type": "Country", "area_description": "El Salvador"}, {"area_type": "Country", "area_description": "Estonia"}, {"area_type": "Country", "area_description": "Finland"}, {"area_type": "Country", "area_description": "Georgia"}, {"area_type": "Country", "area_description": "Germany"}, {"area_type": "Country", "area_description": "Greece"}, {"area_type": "Country", "area_description": "Hungary"}, {"area_type": "Country", "area_description": "India"}, {"area_type": "Country", "area_description": "Ireland"}, {"area_type": "Country", "area_description": "Israel"}, {"area_type": "Country", "area_description": "Italy"}, {"area_type": "Country", "area_description": "Japan"}, {"area_type": "Country", "area_description": "Mexico"}, {"area_type": "Country", "area_description": "Netherlands"}, {"area_type": "Country", "area_description": "New Zealand"}, {"area_type": "Country", "area_description": "Norway"}, {"area_type": "Country", "area_description": "Peru"}, {"area_type": "Country", "area_description": "Poland"}, {"area_type": "Country", "area_description": "Romania"}, {"area_type": "Country", "area_description": "Slovakia"}, {"area_type": "Country", "area_description": "South Africa"}, {"area_type": "Country", "area_description": "South Korea"}, {"area_type": "Country", "area_description": "Spain"}, {"area_type": "Country", "area_description": "Sweden"}, {"area_type": "Country", "area_description": "Switzerland"}, {"area_type": "Country", "area_description": "Taiwan"}, {"area_type": "Country", "area_description": "United States"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 245224, "latest_expenditure": 217254, "fin_period_start": "2024-01-01", "fin_period_end": "2024-12-31", "financial_years": [{"start": "2024-01-01", "end": "2024-12-31", "income": 245224, "expenditure": 217254, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2023-01-01", "end": "2023-12-31", "income": 163599, "expenditure": 159431, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2022-01-01", "end": "2022-12-31", "income": 330670, "expenditure": 268340, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2021-01-01", "end": "2021-12-31", "income": 246585, "expenditure": 161915, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2020-01-01", "end": "2020-12-31", "income": 106098, "expenditure": 69832, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}], "documents": [], "trustees": [{"name": "Brett Peter Thompson", "chair": false, "appointment": "2025-06-28"}, {"name": "Dagmar Kiderlen", "chair": false, "appointment": "2025-06-28"}, {"name": "Dr Nathalie Kayadjanian", "chair": false, "appointment": "2022-07-10"}, {"name": "Jackie Lodge", "chair": false, "appointment": "2025-06-28"}, {"name": "Johana Quinn", "chair": false, "appointment": "2025-06-28"}, {"name": "Karin Clarke", "chair": false, "appointment": "2022-07-10"}, {"name": "Lantz Yap Chee Seng", "chair": false, "appointment": "2022-07-10"}, {"name": "Liane Oliveira Mufarrej Motta", "chair": false, "appointment": "2025-06-28"}, {"name": "Patrice Carroll", "chair": false, "appointment": "2025-06-28"}, {"name": "Professor Nicholas Finer", "chair": false, "appointment": "2025-06-28"}, {"name": "Scott Arant", "chair": false, "appointment": "2022-07-10"}, {"name": "Tunde Baloghne Liplin", "chair": false, "appointment": "2022-07-10"}]}