DocuSign Envelope ID: 00BB1EBB-1D0F-4D7B-B5D1-8A5D32833E15 ## ACRODYSOSTOSIS SUPPORT & RESEARCH ## Report of the Trustees For the year ending 31 December 2020 The Trustees have pleasure in presenting their report and the financial statements for the charity for the year ended 31 December 2020. The Trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS 102) (effective 1 January 2015). ## Structure, governance and management Acrodysostosis Support & Research was established as a Charitable Incorporated Organisation on 5[th] of April 2019 and is managed by the Board of Trustees. ## Objectives and charitable activities ## _Charitable objectives_ To relieve the needs of those affected by Acrodysostosis by promoting greater understanding of the causes, symptoms, and treatment of Acrodysostosis in all its forms including: - promoting research and sharing and disseminating of results of such research for the benefit of the general public; and - raising public awareness of the symptoms, needs and related medical conditions of those living with Acrodysostosis ## _Charitable activities_ The Trustees ensure that sufficient attention is paid to fundraising activities, monitoring grant funding opportunities and manage the charity's assets to ensure its sustainability and ability to carry out its charitable objectives. The charity relies heavily on its volunteers as it has no paid members of staff. In 2020 three Ambassadors from the Acrodysostosis community were added to our team to raise awareness of the condition. ## _Public benefit_ In exercising their duty, the Trustees confirm that they have considered the Charity Commission's guidance on public benefit, including the guidance 'public benefit: running a charity (PB2)'. Our objectives are to offer support and information to families affected by Acrodysostosis. Acrodysostosis Support & Research liaises closely with researchers at UCL Great Ormond St Hospital (UCL GOSH) with regards to the upcoming pioneering research into Acrodysostosis. It also works constructively and in partnership with other agencies and organisations to continually improve support for families affected by Acrodysostosis - to change lives and make a difference to those living 1 DocuSign Envelope ID: 00BB1EBB-1D0F-4D7B-B5D1-8A5D32833E15 with the condition. ## Summary of activities, achievement and performance Key activities and achievements throughout the year include: ## _Peer Support_ - One of the main aims of the charity is to bring together families and the Acrodysostosis community to share experiences and provide peer support through the Acrodysostosis network. We provide this support to our families via our ambassadors who are always available to listen and provide emotional and practical help to our Acrodysostosis Families. - Acrodysostosis have continued to provide a range of information offering guidance and support for Acrodysostosis families. ## _Covid-19_ Acrodysostosis families have found comfort from hearing and sharing experiences via the Acrodysostosis private Support Facebook group as well as various zoom meetings which any of the Acrodysostosis community could attend and get the opportunity to meet virtually. Acrodsysostosis Support & Research have continued to provide a range of information offering guidance and support for Acrodysostosis families including ## _Medical Advisory Board (MAB)_ The MAB was formed to guide the trustees in scientific matters, including research efforts and direction, and consists of renowned experts in the field. The MAB continues to meet regularly to facilitate the expanding body of knowledge around Acrodysostosis so families can be better supported - the trustees are very grateful to the MAB members for their dedication and commitment to helping Acrodysostosis families. The MAB along with Trustee and Ambassadors take the lead in identifying research opportunities. ## _Communications_ - Communications with those within the Acrodysostosis community and the general public through the Acrodysostosis website, and via social media. - On Facebook a public page for the general public is used as our primary form of outbound communication. We also have a closed support group for families affected by the condition. - Acrodysostosis also has active Twitter and Instagram pages. ## _Research_ - In 2020 Acrodysostosis Support & Research formally entered into a research partnership with Great Ormond Street Hospital Children’s Charity (GOSHCC) & Sparks for its national funding call 2020/21, which aims to tackle the understanding and treatment of rare diseases in children. The successful application was announced in the April 2021 and was awarded to Prof. Patrizia Ferretti at UCL the aim of which is to establish human models of acrodysostosis to select disease/patient-specific druggable targets aimed at normalizing development in 2 DocuSign Envelope ID: 00BB1EBB-1D0F-4D7B-B5D1-8A5D32833E15 affected children, hence improving their quality of life. As part of the partnership, - Acrodysostosis Support & Research will provide 25% (£62,500) of the project costs. - The diagnosis and management of pseudohypoparathyroidism and related disorders: first international Consensus Statement was published in Nature - https://www.nature.com/articles/s41574-018-0042-0 with assistance of parents from the Acrodysostosis community. - Acrodysostosis Support & Research continue to work with it’s MAB, Acrodysostosis Community and OpenApp to set up a global Acrodysostosis patient registry. ## ## - In November 2020 Olivia Colman academy award winning actress pledged her support to the Acrodysostosis community by recording a video for Acrodysostosis Support & Research. Which reached thousands of people. - In November Acrodysostosis Support & Research Ambassador Kimberley and her daughter Frankie were featured on the BBC’s 6 O’clock news raising awareness for our community and speaking about their own personal story an average of 4 million people watch it daily. - In November 2020 trustee Nina Knight did an article for the Nottingham post both online and in the paper to raise awareness of Acrodysostosis. The paper circulation is £15K and the online reach is 38.6million each month. ## _Fundraising_ - Much of our fundraising for 2020 was cancelled due to the COVID-19 pandemic. Instead Acrodysostosis Support & Research planned and completed a Crowdfunding Project. They enlisted the support of 70 families affected by acrodysostosis, who all fundraised in 32 countries, and they got 1500 supporters who donated. This was a huge success Acrodysostosis Support & Research raised £74K in 30 days and are grateful to everyone who took part. - The rest of the fundraising was done by individual supporters through ‘Just Giving’ who organised, knitting competitions, fun runs and one child even auctioned her sweets. ## _Financial review and reserves policy_ The charity Trustees continually monitor cash reserves to ensure its financial stability. Acrodysostosis Support & Research is committed to building a reserves policy to ensure there is enough funding to cover one year's operating costs, the expenses for one family meet up per year and to fund research opportunities. The charity has no outstanding financial obligations nor outstanding debts. The charity's principal source of funds comes from the general public, either through donations or at one-off fundraising events. Approved by the Board of Trustees and signed on its behalf by: ……………………………………………… Jan Sara Hine 29 October 2021 3 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 Charity number: 1182818 (England and Wales) ## ACRODYSOSTOSIS SUPPORT & RESEARCH Report of the Trustees and Unaudited Financial Statements For the year ended 31 December 2020 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ACRODYSOSTOSIS SUPPORT & RESEARCH Contents Page For the year ended 31 December 2020 |Report of the Trustees|1| |---|---| |Independent Examiner's Report to the Trustees|2| |Statement of Financial Activities|3| |Statement of Financial Position|4| |Notes to the Financial Statements|5 to 7| |Detailed Statement of Financial Activities|8| DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH ## Report of the Trustees For the year ended 31 December 2020 The Trustees, who are also directors for the purposes of company law, have pleasure in presenting their report and the financial statements for the charitable company for the year ended 31 December 2020. The Trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS 102) (effective 1 January 2015). ## **OBJECTIVES AND ACTIVITIES** ## **Objectives and aims** The trustees have considered the Charity Commision's guidance on public benefit, including the guidance 'public benefit: running a charity (PB2)'. ## **FINANCIAL REVIEW** ## **Going concern** The Trustees have assessed the charities finances and can confirm there is no reason why the chairty will not continue to operate for at least 12 months passed the date of approval of these accounts. ## **REFERENCE AND ADMINISTRATIVE INFORMATION** **Name of Charity** ACRODYSOSTOSIS SUPPORT & RESEARCH **Charity registration number** 1182818 **Principal address** Bath House, Cudworth Lane Newdigate Dorking Surrey SE15 5AF ## **Trustees** The trustees and officers serving during the year and since the year end were as follows: Jan Sara Hine Sarah Louise Denney **Independent examiners** Beach Accountants Limited Chartered Certified Accountants 10 Blue Sky Way Monkton Business Park South South Tyneside NE31 2EQ Approved by the Board of Trustees and signed on its behalf by ............................................................................. 29 October 2021 Jan Sara Hine 1 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH ## Independent Examiners Report to the Trustees For the year ended 31 December 2020 I report to the trustees on my examination of the accounts of the charitable company for the year ended 31 December 2020. ## **Responsibilities and basis of report** As the charity Trustees, who are also directors for the purposes of company law, are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 ('the 2006 Act'). Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity's accounts carried out under section 145 of the Charities Act 2011 ('the 2011 Act'). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act. ## **Independent examiners statement** I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect: 1. accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act; or 2. the accounts do not accord with those records; or 3. the accounts do not comply with the requirements of section 396 of the 2006 Act other than any requirement that the accounts give a 'true and fair view' which is not a matter considered as part of an independent examination; or 4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102). I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. Beach Accountants Limited Chartered Certified Accountants 10 Blue Sky Way Monkton Business Park South South Tyneside NE31 2EQ 29 October 2021 2 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH Statement of Financial Activities (including Income and Expenditure Account) For the year ended 31 December 2020 |**Notes**
**Income and endowments from:**
Donations and legacies
2
**Total**
**Expenditure on:**
Raising funds
3
Charitable activities
4/5
**Total**
**Net income/expenditure**
**Total funds carried forward**|**Unrestricted**
**funds**
**£**
89,873
**89,873**
(3,309)
(540)
**(3,849)**
**86,024**
**86,024**|**2019**
**£**
-| |---|---|---| |||**-**| |||-
-| |||**-**| |||**-**| |||**-**| 3 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH ## Statement of Financial Position As at 31 December 2020 |**Notes**
**Current assets**
Cash at bank and in hand
**Creditors: amounts falling due within one year**
10
**Net current assets**
**Total assets less current liabilities**
**Net assets**
**The funds of the charity**
Unrestricted income funds
11
**Total funds**|**£**
**2020**
86,564
**86,564**
(540)
**86,024**
**86,024**
**86,024**
86,024
**86,024**|**£**
**2019**
-| |---|---|---| |||**-**| |||-
**-**| |||**-**| |||| |||**-**| |||-| |||**-**| For the year ended 31 December 2020 the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies. - The members have not required the company to obtain an audit of its accounts for the year in question in accordance with section - 476, - The trustees acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records - and the preparation of accounts. These accounts have been prepared in accordance with the provisions applicable to companies subject to the small companies’ regime. The financial statements were approved and authorised for issue by the Board and signed on its behalf by: Jan Sara Hine Trustee 29 October 2021 4 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH Notes to the Financial Statements For the year ended 31 December 2020 ## **1. Accounting Policies** ## **Basis of accounting** The financial statements have been prepared under the historical cost convention, except for investments which are included at market value and the revaluation of certain fixed assets and in accordance with the Charities SORP (FRS 102) ‘Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015)’, Financial Reporting Standard 102 the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102), and the Companies Act 2006. ACRODYSOSTOSIS SUPPORT & RESEARCH meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note(s). ## **Going concern** The Trustees have assessed the charities finances and can confirm there is no reason why the chairty will not continue to operate for at least 12 months passed the date of approval of these accounts. ## **2. Income from donations and legacies** |**Unrestricted funds**
Donations received
**xpenditure on generating donations and legacies**
**Unrestricted funds**
Support costs
**osts of charitable activities by fund type**
**Unrestricted funds**
Support costs
**osts of charitable activities by activity type**
Donation collections|**2020**
**£**
89,873
**89,873**
**2020**
**£**
3,309
**3,309**
**2020**
**£**
540
**2020**
**£**
540|**2019**
**£**
-| |---|---|---| |||**-**| |||**2019**
**£**
-| |||**-**| |||**2019**
**£**
-
**2019**
**£**
-| ## **3. Expenditure on generating donations and legacies** ## **4. Costs of charitable activities by fund type** ## **5. Costs of charitable activities by activity type** 5 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH Notes to the Financial Statements Continued For the year ended 31 December 2020 ## **6. Analysis of support costs** |**Governance costs**
Accountancy fees
Collection fees
Partner fees
Exchange (Profit)/Loss
**7. Net income/(expenditure) for the year**
This is stated after charging/(crediting):
Accountancy fees
**8. Staff costs and emoluments**
General staff|**2020**
**£**
540
2,012
1,158
139
**3,849**
**2020**
**£**
540
**2020**
0
**0**|**2019**
**£**
-
-
-
-| |---|---|---| |||**-**
**2019**
**£**
-| |||**2019**
0| |||**0**| ## **9. Trustee remuneration and related party transactions** There we no transactions with trustees or other related parties that required disclosure in this current financial period. ## **10. Creditors: amounts falling due within one year** |Accruals and deferred income|**2020**
**£**
540
**540**|**2019**
**£**
-| |---|---|---| |||**-**| 6 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH ## Notes to the Financial Statements Continued For the year ended 31 December 2020 ## **11. Movement in funds** ## **Unrestricted Funds** |_General_
General
**Unrestricted Funds - Previous year**
_General_
**Purpose of unrestricted Funds**
General
To fulfil the principal objectives of the charity.|**Incoming**
**resources**
**£**
89,873
**89,873**
**Incoming**
**resources**
**£**
**-**|**Outgoing**
**resources**
**£**
(3,849)
**(3,849)**
**Outgoing**
**resources**
**£**
**-**|**Balance at**
**31/12/2020**
**£**
86,024| |---|---|---|---| ||||**86,024**| ||||**Balance at**
**31/12/2019**
**£**| ||||**-**| ||||| ## **12. Analysis of net assets between funds** |**Unrestricted funds**
_General_
General
**Previous year**
**Unrestricted funds**
_General_|**Net current**
**assets /**
**(liabilities)**
**Net Assets**
**£**
**£**
86,024
86,024| |---|---| ||**86,024**
**86,024**| ||**Net current**
**assets /**
**(liabilities)**
**Net Assets**
**£**
**£**| ||**-**
**-**| 7 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH Detailed Statement of Financial Activities For the year ended 31 December 2020 |**INCOME AND ENDOWMENT**
**Donations and legacies**
Donations
**Total incoming resources**
**SUPPORT COSTS**
**Governance costs**
Governance costs
Governance costs
**Total resources expended**
**Net Income**|**£**
**2020**
89,873
**89,873**
**89,873**
(3,309)
(540)
**(3,849)**
**(3,849)**
**86,024**|**£**
**2019**
-| |---|---|---| |||**-**| |||**-**
-
-| |||**-**| |||**-**| |||**-**| 8 of 8 This page does not form part of the statutory financial statements DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 Charity number: 1182818 (England and Wales) ## ACRODYSOSTOSIS SUPPORT & RESEARCH Report of the Trustees and Unaudited Financial Statements For the year ended 31 December 2020 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ACRODYSOSTOSIS SUPPORT & RESEARCH Contents Page For the year ended 31 December 2020 |Report of the Trustees|1| |---|---| |Independent Examiner's Report to the Trustees|2| |Statement of Financial Activities|3| |Statement of Financial Position|4| |Notes to the Financial Statements|5 to 7| |Detailed Statement of Financial Activities|8| DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH ## Report of the Trustees For the year ended 31 December 2020 The Trustees, who are also directors for the purposes of company law, have pleasure in presenting their report and the financial statements for the charitable company for the year ended 31 December 2020. The Trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS 102) (effective 1 January 2015). ## **OBJECTIVES AND ACTIVITIES** ## **Objectives and aims** The trustees have considered the Charity Commision's guidance on public benefit, including the guidance 'public benefit: running a charity (PB2)'. ## **FINANCIAL REVIEW** ## **Going concern** The Trustees have assessed the charities finances and can confirm there is no reason why the chairty will not continue to operate for at least 12 months passed the date of approval of these accounts. ## **REFERENCE AND ADMINISTRATIVE INFORMATION** **Name of Charity** ACRODYSOSTOSIS SUPPORT & RESEARCH **Charity registration number** 1182818 **Principal address** Bath House, Cudworth Lane Newdigate Dorking Surrey SE15 5AF ## **Trustees** The trustees and officers serving during the year and since the year end were as follows: Jan Sara Hine Sarah Louise Denney **Independent examiners** Beach Accountants Limited Chartered Certified Accountants 10 Blue Sky Way Monkton Business Park South South Tyneside NE31 2EQ Approved by the Board of Trustees and signed on its behalf by ............................................................................. 29 October 2021 Jan Sara Hine 1 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH ## Independent Examiners Report to the Trustees For the year ended 31 December 2020 I report to the trustees on my examination of the accounts of the charitable company for the year ended 31 December 2020. ## **Responsibilities and basis of report** As the charity Trustees, who are also directors for the purposes of company law, are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 ('the 2006 Act'). Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity's accounts carried out under section 145 of the Charities Act 2011 ('the 2011 Act'). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act. ## **Independent examiners statement** I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect: 1. accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act; or 2. the accounts do not accord with those records; or 3. the accounts do not comply with the requirements of section 396 of the 2006 Act other than any requirement that the accounts give a 'true and fair view' which is not a matter considered as part of an independent examination; or 4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102). I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. Beach Accountants Limited Chartered Certified Accountants 10 Blue Sky Way Monkton Business Park South South Tyneside NE31 2EQ 29 October 2021 2 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH Statement of Financial Activities (including Income and Expenditure Account) For the year ended 31 December 2020 |**Notes**
**Income and endowments from:**
Donations and legacies
2
**Total**
**Expenditure on:**
Raising funds
3
Charitable activities
4/5
**Total**
**Net income/expenditure**
**Total funds carried forward**|**Unrestricted**
**funds**
**£**
89,873
**89,873**
(3,309)
(540)
**(3,849)**
**86,024**
**86,024**|**2019**
**£**
-| |---|---|---| |||**-**| |||-
-| |||**-**| |||**-**| |||**-**| 3 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH ## Statement of Financial Position As at 31 December 2020 |**Notes**
**Current assets**
Cash at bank and in hand
**Creditors: amounts falling due within one year**
10
**Net current assets**
**Total assets less current liabilities**
**Net assets**
**The funds of the charity**
Unrestricted income funds
11
**Total funds**|**£**
**2020**
86,564
**86,564**
(540)
**86,024**
**86,024**
**86,024**
86,024
**86,024**|**£**
**2019**
-| |---|---|---| |||**-**| |||-
**-**| |||**-**| |||| |||**-**| |||-| |||**-**| For the year ended 31 December 2020 the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies. - The members have not required the company to obtain an audit of its accounts for the year in question in accordance with section - 476, - The trustees acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records - and the preparation of accounts. These accounts have been prepared in accordance with the provisions applicable to companies subject to the small companies’ regime. The financial statements were approved and authorised for issue by the Board and signed on its behalf by: Jan Sara Hine Trustee 29 October 2021 4 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH Notes to the Financial Statements For the year ended 31 December 2020 ## **1. Accounting Policies** ## **Basis of accounting** The financial statements have been prepared under the historical cost convention, except for investments which are included at market value and the revaluation of certain fixed assets and in accordance with the Charities SORP (FRS 102) ‘Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015)’, Financial Reporting Standard 102 the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102), and the Companies Act 2006. ACRODYSOSTOSIS SUPPORT & RESEARCH meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note(s). ## **Going concern** The Trustees have assessed the charities finances and can confirm there is no reason why the chairty will not continue to operate for at least 12 months passed the date of approval of these accounts. ## **2. Income from donations and legacies** |**Unrestricted funds**
Donations received
**xpenditure on generating donations and legacies**
**Unrestricted funds**
Support costs
**osts of charitable activities by fund type**
**Unrestricted funds**
Support costs
**osts of charitable activities by activity type**
Donation collections|**2020**
**£**
89,873
**89,873**
**2020**
**£**
3,309
**3,309**
**2020**
**£**
540
**2020**
**£**
540|**2019**
**£**
-| |---|---|---| |||**-**| |||**2019**
**£**
-| |||**-**| |||**2019**
**£**
-
**2019**
**£**
-| ## **3. Expenditure on generating donations and legacies** ## **4. Costs of charitable activities by fund type** ## **5. Costs of charitable activities by activity type** 5 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH Notes to the Financial Statements Continued For the year ended 31 December 2020 ## **6. Analysis of support costs** |**Governance costs**
Accountancy fees
Collection fees
Partner fees
Exchange (Profit)/Loss
**7. Net income/(expenditure) for the year**
This is stated after charging/(crediting):
Accountancy fees
**8. Staff costs and emoluments**
General staff|**2020**
**£**
540
2,012
1,158
139
**3,849**
**2020**
**£**
540
**2020**
0
**0**|**2019**
**£**
-
-
-
-| |---|---|---| |||**-**
**2019**
**£**
-| |||**2019**
0| |||**0**| ## **9. Trustee remuneration and related party transactions** There we no transactions with trustees or other related parties that required disclosure in this current financial period. ## **10. Creditors: amounts falling due within one year** |Accruals and deferred income|**2020**
**£**
540
**540**|**2019**
**£**
-| |---|---|---| |||**-**| 6 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH ## Notes to the Financial Statements Continued For the year ended 31 December 2020 ## **11. Movement in funds** ## **Unrestricted Funds** |_General_
General
**Unrestricted Funds - Previous year**
_General_
**Purpose of unrestricted Funds**
General
To fulfil the principal objectives of the charity.|**Incoming**
**resources**
**£**
89,873
**89,873**
**Incoming**
**resources**
**£**
**-**|**Outgoing**
**resources**
**£**
(3,849)
**(3,849)**
**Outgoing**
**resources**
**£**
**-**|**Balance at**
**31/12/2020**
**£**
86,024| |---|---|---|---| ||||**86,024**| ||||**Balance at**
**31/12/2019**
**£**| ||||**-**| ||||| ## **12. Analysis of net assets between funds** |**Unrestricted funds**
_General_
General
**Previous year**
**Unrestricted funds**
_General_|**Net current**
**assets /**
**(liabilities)**
**Net Assets**
**£**
**£**
86,024
86,024| |---|---| ||**86,024**
**86,024**| ||**Net current**
**assets /**
**(liabilities)**
**Net Assets**
**£**
**£**| ||**-**
**-**| 7 of 8 DocuSign Envelope ID: 47681F65-4FC3-41A2-9EB0-3A8C185BBEF5DocuSign Envelope ID: E23A759B-B365-4B7B-9820-EB1CC9FB55B2 ## ACRODYSOSTOSIS SUPPORT & RESEARCH Detailed Statement of Financial Activities For the year ended 31 December 2020 |**INCOME AND ENDOWMENT**
**Donations and legacies**
Donations
**Total incoming resources**
**SUPPORT COSTS**
**Governance costs**
Governance costs
Governance costs
**Total resources expended**
**Net Income**|**£**
**2020**
89,873
**89,873**
**89,873**
(3,309)
(540)
**(3,849)**
**(3,849)**
**86,024**|**£**
**2019**
-| |---|---|---| |||**-**| |||**-**
-
-| |||**-**| |||**-**| |||**-**| 8 of 8 This page does not form part of the statutory financial statements