## **Trustees’ Annual Report for the period** ## **From 1[st] January 2023 To 31[st] December 2023** ## **Charity name: Salivary Gland Cancer UK** ## **Charity registration number: 1182762** ## **Objectives and Activities** ||SORP reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|Help those affected by rare salivary gland
cancers.
Advocate for these patients and carers by
providing peer support and information about
their disease, care and treatment.
Promote and assist research into all aspects
of salivary gland cancers, including causes,
diagnosis, treatments and cures.
To educate the public and healthcare
communities in all things related to salivary
gland cancers, including raising awareness
of symptoms.| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or services
identified in the accounts.|Para 1.17 and
1.19|•
Supporting the community via in person
and virtual meetings for patients, carers
and clinicians.
•
Providing information and increasing
awareness via leaflets, meetings, the
website, social media and fundraising
events.
•
Raising awareness of these cancers and
their
unmet
need
via
speaking,
submitting
materials
and
attending
meetings and conferences.
•
Expansion of the network to support all
salivary gland cancer types.
•
Expansion of the charity’s outputs to
provide more research and disease
specific information.| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|The trustees have kept in mind the charity
Constitution and the guidance from the
Charities Commission in all of its’ activities.
The governance documents of the Charity
are regularly reviewed at Trustee meetings.
The
charity’s
“8
aims”
are
regularly
published via our social media outlets and
are the foundation for all activities and| decisions within the charity. The trustees ensure the prioritisation of activities is aligned with these aims. ## **Additional information (optional)** You may choose to include further statements where relevant about: ||SORP reference|| |---|---|---| |Policy on grant making|Para 1.38|In line with our grants policy, we issued our
first call for grant applications in August
2023. After carefully reviewing all
applications, we awarded £36,600 to two
initiatives. Both projects will commence in
April 2024 and will report progress regularly
to the Board.| |Policy on social investment
including program related
investment|Para 1.38|| |Contribution made by
volunteers|Para 1.38|Once again we are hugely grateful for the
support and contribution we received from
our volunteers assisting us in specific
projects and outputs, sharing their stories
and social media channels, and ‘on the day’
physical support at our events.| |Other||| ## **Achievements and Performance** ||SORP reference|| |---|---|---| |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|•
**_Bringing together those living with_**
**_salivary gland cancers_**
We continued to host bi-annual hybrid (in
person/virtual)
meetings
during
2023,
supporting attendees with travel bursaries
for patients and their carers where needed.
The hybrid structure of our events has
facilitated
strong
attendance
from
our
community
across
the
country
and
internationally.
We provided regular communication and
newsletters to the network. We continued to
produce
our
video
series,
releasing
recordings of the presentations at our hybrid
meetings to ensure we reach as many
people as possible. We also continued to
add patient stories on social media and on
our website.
Our February 2023 meeting was hosted in
Manchester
and
the
agenda
included
discussions with the research team from the| Christie Hospital. We were also joined by Professor Carla van Herpen who presented on the process and publication of the ESMO Guidelines on salivary gland cancers. She also gave an update on a trial targeting PSMA in ACC and salivary duct carcinoma. In October 2023 we gathered in London. We discussed living with the late effects of radiotherapy; the clinical and molecular significance of a specific gene in ACC; and had an update from the chair of the ACCRF, (based in the US), giving highlights from their research conference. More generally, at both events, we networked, shared and supported one another. We look forward to an exciting events calendar in 2024 when we celebrate our 5 year anniversary since founding the charity in 2019. • _**Raising awareness amongst the general public and the clinical community**_ In April we presented and joined a panel discussion at the GP Pulse webinar. This event brings the General Practice community together to listen to the latest clinical and policy updates. This was a valuable opportunity for us to talk about salivary gland cancers and the challenges with diagnosis at the primary care stage. In September, over 130 of our supporters donned a Salivary Gland Cancer UK running vest and pounded the streets of Sheffield to complete a 10k run. This was a hugely impactful awareness and fundraising event. In November we attended and presented at the Swallows International Head and Neck Cancer Conference. Here we also had a stand and were able to engage in lots of great conversations with patients and health professionals. • _**Bringing together the patient, clinical and research communities to help drive forward research and improvements in treatments**_ Following the winding down of the National Cancer Research Institute (NCRI), SGC UK is taking forwards the NCRI’s activities in relation to identifying the gaps in salivary gland cancer research and developing strategic priorities in this area. An advert for membership of the SGC Working Group will go out in early 2024 together with the scheduling of the strategy meetings to be held throughout 2024. SGC UK also added to its network by becoming a member of the Northern Head and Neck Alliance. Furthermore, SGC UK put out a call for it’s first grant during the year and have awarded a total of £36,600 to two initiatives. One of these projects is supporting the roll out of a UK wide salivary gland cancer surgical registry. This will allow for the collation of data and patient reported outcomes. The registry will be vital in understanding the natural history of salivary gland tumours, generating future research hypotheses, assessing and informing clinicians and patients about the clinical outcomes with current treatments, providing faster diagnosis and designing care pathways. In September the Research Team at The Christie Hospital presented their research at the European Society for Medical Oncology Annual Meeting in Madrid. To support the development of new immunotherapy treatments, the study ‘ _Multi-parameter flow cytometry analysis of circulating monocyte and NK T cell populations in recurrent/metastatic adenoid cystic carcinoma’_ described a detailed new understanding of the different immune cell populations in ACC compared with other cancer types or people without cancer. ## • _**Optimising the pathways to diagnosis**_ A consistent challenge raised by our patient community is that the pathway to diagnosis from the point of first engaging with any health care professional is difficult. Salivary gland cancers can present in many different ways and therefore the diagnosis can be slow and often the symptoms may be misdiagnosed. The second of the two grants SGC UK have awarded this year is £24,600 to Dr Rack at The Christie Hospital in Manchester. The grant has been provided to enable the mapping out of the pathways to diagnosis and to develop a guidance document for front-line medical services to support the diagnosis of salivary gland cancers in GP to submit to the NHS/NICE. This initiative will commence in April 2024. ## **Additional information (optional)** You may choose to include further statements where relevant about: Achievements against Para 1.41 objectives set Performance of fundraising Para 1.41 activities against objectives set Investment performance Para 1.41 against objectives Other ## **Financial Review** |Review of the charity’s
financial position at the end
of the period|Para 1.21|As at 31stDecember 2023 the charity held a
cash balance of £104,832, (prior year
£48,096) the result of £56,736 in net receipts
for the year (prior year £8,174).
The charity received income of £90,250
(prior year £23,025) from donations raised
through fund raising initiatives and personal
legacies. The charity’s accounts for the year
have been independently reviewed with no
issues raised.
The charity’s financial position, and the
material increase in donations received in
2023 will allow sufficient funding to support
the initiatives planned for 2024, including the
issuance of two grants.|| |---|---|---|---| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|The cash balance is held in order to support
the overall objectives of the charity. Cash is
used to cover operating expenses, develop
the charity’s presence through marketing
and fund specific patient/clinician events.
Cash held is also the source funds for the
grants we have issued and for any other
grant making opportunities that may arise.|| |Amount of reserves held|Para 1.22|£104,831.86 in cash.|| |Reasons for holding zero
reserves|Para 1.22|Not applicable|| |Details of fund materially in
deficit|Para 1.24|Not applicable|| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|There are no uncertainties around the
charity’s ability to continue as a going
concern. The Board carefully considered the
on-going running costs of the charity when
assessing the funds available for the grants
we have awarded in 2024.|| |**Additional information (optional)**
You may choose to include further statements|**Additional information (optional)**
You may choose to include further statements|where relevant about:| |---|---|---| |The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|| |A description of the principal
risks facing the charity|Para 1.46|The Board maintains a Risk Register for the
charity. This document highlights
governance, operational, financial,
compliance and external risks and the| mitigants in place. The Board reviews the Risk Register periodically. Other ## **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document
(trust deed,royal charter)|Para 1.25|The charity is governed by its Constitution.| |How is the charity
constituted?
(e.g unincorporated
association,CIO)|Para 1.25|The charity is a Charitable Incorporated
Organisation.| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Trustees must be appointed for a term of
three years by a resolution passed at a
properly convened meeting of the charity
trustees.
When selecting trustees, the charity trustees
have regard to the skills, knowledge and
experience
needed
for
the
effective
administration of the CIO. The Board have
recently completed a detailed skills matrix to
identify any gaps. This is a document that
will be reviewed and updated periodically.| ## **Additional information (optional)** You may choose to include further statements where relevant about: Policies and procedures Para 1.51 adopted for the induction and training of trustees The charity’s organisational Para 1.51 structure and any wider network with which the charity works Relationship with any related Para 1.51 parties Other ## **Reference and Administrative details** |Charityname|SalivaryGland Cancer UK| |---|---| |Other name the charityuses|| |Registered charitynumber|1182762| |Charity’s principal address|International House
36-38 Cornhill
City of London
London
EC3V 3NG| ||| **Names of the charity trustees who manage the charity** |1
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20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year **|**Name of person (or body) entitled**
**to appoint trustee (ifany)**| |---|---|---|---|---| ||Emma Jane
Kinloch|Trustee and Chair||The Board| ||Dr Robert Metcalf|Trustee||The Board| ||Olorunkemi Fausat
Akanke Olaiya|Trustee and
Treasurer|Resigned 26 October
2023. Continues as
Treasurer as a non-
Board role.|The Board| ||Shane Lisa Draper|Trustee and Chief
Financial Officer||The Board| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| – Corporate trustees names of the directors at the date the report was approved **Director name** Name of trustees holding title to property belonging to the charity **Trustee name Dates acted if not for whole year** ## **Funds held as custodian trustees on behalf of others** Description of the assets Not applicable held in this capacity Name and objects of the Not applicable charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for Not applicable safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** **Type of Name Address adviser Name of chief executive or names of senior staff members (Optional information)** ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details ## **Other optional information** Declarations Tho trustees declare that th•y hav• approv•d th• trustees. report above. Signed on behalf of the charity's trustees Signatur•(s) Full nam•{s) Posltion (eg Secretary. Chalr. etc) Emma Jane Kinloch Shane Lisa Draper Chair Chi6f Financial OffTrcer Dat• ILk A. .(t 202* CMARIIY COMMIS510N FOP ENGLAND IND WAkf5 ReceiFts and payments accounts CC16a T• T&lJ Section A Recei ts and a ments Resirtci¢d LI￿ Js ll.02 r.r• 17¥ A4 A•Mt Inv•btsn 514 Al C4¥h to•. Seciioi) B Siateirieiit ol assets aiid Iiabililies at Ilie eiid ol the period Wun 81 furKIs 1•4J32 Bj CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner s Report R•port to tho trust•MI m•fflb•Ys of Salivary Gland Cw¢er UK On account8 for th• year •nd•d 31° December 2023 Charfty no (If any) 1182762 Set out on pages See form CC16a for the year ended 31" Docember 2023 I report to the trustees on my examination of the accounts of the abov• charity (Ihe Trusf) for Ih8 year ended 31° Decwnber 2023. R08ponslbllltles and As tho charity trustee8 of the Trnst. you aro responsible for the preparation ba815 of r•port ol the accounts in accordance with th• requirements of thè Charities Act 2011 nh• Act.). I rnP￿ in resped of my examNi8tion of th• Trust's acC￿nIs CWTied out under s•ciw)n 145 of the 2011 A(A and in carrying out my •xamw)ation, I have followed the applicable Dir8Ction$ given by tha Charity Commission under section 145(5)(b) of the Act. I have Complètéd my exarnination. I confim thal no material mattern have com• to my attèntion (othw than thal disdosed bolow") in connedion with tho examination ¥thith gi￿$ rno cw8e to boliove thal in. any material rnspoct: acC￿nting roc(Yds were not kept in accordance with section 130 of the Act or th• accounts do not a¢x¢xd wilh the accounlng rncord8 Independent examinerfs Statement I have no concerns and have come across no other matters in connèction with the examination lo ￿1¢h attention $houhJ be drawn in ordor to enable propor understanding of the accounls to bg reached. ' Please delele the words in the brackets rf they do not aQ￿y. Slgn•d: Dat•: 4 August 2024 Nam•: Mrs Karnn ￿Ck3 R•l•vant prol•ssional quallficatlon(s) or body (If any): Addrnss: IER October 2018 Section 8 Disclosure Onty complete l th• examI￿r r*ads to hwJhlight mattérs of concam (see CC32, Indepondwrt examnalKJn of thwity accounts: directions and guidance for examiners). Glv• here brief details of any It•m8 that tho examln•r wlshos to disclos•. None. IER October 2018 CMARIIY COMMIS510N FOP ENGLAND IND WAkf5 ReceiFts and payments accounts CC16a T• T&lJ Section A Recei ts and a ments Resirtci¢d LI￿ Js ll.02 r.r• 17¥ A4 A•Mt Inv•btsn 514 Al C4¥h to•. Seciioi) B Siateirieiit ol assets aiid Iiabililies at Ilie eiid ol the period Wun 81 furKIs 1•4J32 Bj CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner s Report R•port to tho trust•MI m•fflb•Ys of Salivary Gland Cw¢er UK On account8 for th• year •nd•d 31° December 2023 Charfty no (If any) 1182762 Set out on pages See form CC16a for the year ended 31" Docember 2023 I report to the trustees on my examination of the accounts of the abov• charity (Ihe Trusf) for Ih8 year ended 31° Decwnber 2023. R08ponslbllltles and As tho charity trustee8 of the Trnst. you aro responsible for the preparation ba815 of r•port ol the accounts in accordance with th• requirements of thè Charities Act 2011 nh• Act.). I rnP￿ in resped of my examNi8tion of th• Trust's acC￿nIs CWTied out under s•ciw)n 145 of the 2011 A(A and in carrying out my •xamw)ation, I have followed the applicable Dir8Ction$ given by tha Charity Commission under section 145(5)(b) of the Act. I have Complètéd my exarnination. I confim thal no material mattern have com• to my attèntion (othw than thal disdosed bolow") in connedion with tho examination ¥thith gi￿$ rno cw8e to boliove thal in. any material rnspoct: acC￿nting roc(Yds were not kept in accordance with section 130 of the Act or th• accounts do not a¢x¢xd wilh the accounlng rncord8 Independent examinerfs Statement I have no concerns and have come across no other matters in connèction with the examination lo ￿1¢h attention $houhJ be drawn in ordor to enable propor understanding of the accounls to bg reached. ' Please delele the words in the brackets rf they do not aQ￿y. Slgn•d: Dat•: 4 August 2024 Nam•: Mrs Karnn ￿Ck3 R•l•vant prol•ssional quallficatlon(s) or body (If any): Addrnss: IER October 2018 Section 8 Disclosure Onty complete l th• examI￿r r*ads to hwJhlight mattérs of concam (see CC32, Indepondwrt examnalKJn of thwity accounts: directions and guidance for examiners). Glv• here brief details of any It•m8 that tho examln•r wlshos to disclos•. None. IER October 2018