CHARITY COMMISSION FOR ENGLAND AND WALES Tru8toes' Annual Report for the period From 1° January 2021 To 31 December 2021 Charity name: Salivary Gland Cancer UK Charity registration number: 1182762 Objectives and Activities Surnmary of th8 purposes of the tharity as set out in ts governing dooJm8nt P¥• 1.17 Help those affected by rare salr¥ary gland cancers. AdvoGgte for thes8 patients and carers by providing pe9r Support and infomation about their disease, care and treatment. Promote arKI assist r886ar¢h into all 88peci8 of 8alivary 918nd cancern, including caus08, diagn18, tr8atmonl and cJJrn. To educate the public in all thing8 related to •alNary gland cancern, including raising awarenoss of symptoms. Summary of the main activÉlie$ in relation to those purposes for th8 public benefit, in particular. the activitios. projects or serrf13 identrfied in the accwnts. Pwa1.17•¥J Supports'ng the communty via n person and virtual meatings for patients, carers and clinicians. Providing infomiation via leaflets, meetings. the website and social media. Raising awareness of these cancers and their unmet need via speaking and attending meetings and conference8. Expanslon of the nfrtwo to support more salivary gland cancer type8. Expansion of the chariVs outputs to provide m(xe researGh and disease speofic Yrformation. Statemant confimiing elher the trustees have had regard to the guldance i33uad by the Charity Commission on public b8n8frt P1.18 The trustees have kopt in mnd tha charrty Constrtution and Ihe guidance from the Charities Commission in all of its, a¢tivrtie$. The g0veMc documents of tho Charrty are rggularly rovièwad at Trust00 mgeting$.
Additional Inlorniation (Optional) You ma choose to indude further statements where relevant atjout: P•• 1.38 Policy on grant making Pwa 1.JJ Policy on social inv8Stm8nl including program related inv8Stm8nt Pwn128 Contribution made by volunteorn (Xher Achievements and Perforniance SUppOn9 Ihe community in person and virtU81 me8ling$ forpatients, carerts 8nd clini¢i8ns. Summwy ofthe main achiev•ments of the charity, identrfying the diff¢r•n¢• th• charty's work has made to the circumstances of rts beneficiaries and any wider benefits to soa6ty as a bthole. 120 For our hybrid (in por8Mlvtiual> mootings tarlier in the year we were able to support bursaries for pats'ents and their carers to support thr in person 8tt•ndanc6 when needed. Havng confidontly adapted to a vlrtual environment during tho pandemic, w8 have been able to continue to us8 Zoom to accompany our in person meeting8. This h88 facilitated strong attendance from our communty a(xoss thè country and Internatnally. continued to provide regular communicalion and nowsletters to the n8tsvork. Our July 2021 meeting was focu$s•d on 'The challenges of diagnosis, and what this means for treatments.. In Octobef 2021 our hybrid gathering was trtled 'Understanding Adenoid Cystic Carcinoma.. the rol8 of MYB.. Provitng infom78tion vi8 18allets, meeb'n s, the website and So81 media.
In January 2021 we launched on Instagram. During the year we continued to develop the online presence of the charity by providing regular updato$ on our social media platforms and the website to highlight news, reports and key devebpments. Raising awareness of these cancers and their unmet need via speaking and attendlng meetings and confernnces. Dr Metcalf attended and spok8 at the Amèrun Society of Clinical Oncology ('ASCO') 2021 Conference. He presented a UK research study analysing the 'biobanked' salNary gland cancer tumour DNA samples from 120 patients was set up with the support and input of Ihe SGC UK patient nefvrk. (Clinical disease course and survr¥al (xrtcom88 following disease recurrence in adenoid cystic carcinoma {ACC) with NOTCH 8ignalling pathway adNation. See reference in Journal of Clinicol Oncology 202139.15 suppl, 6072- 6072). Expansion of the nehvorf( to support more salfvary gland cancer typ8S. patients and clinicians. Working at 8 European level with EURACAN we havo been developing the ESMO Guidelines for rare Salivary Gland Cancers, and the STARTER registy. Both projects h8va provided an opportunty for Europ8an- WKle collaboratn and net4vork building across 811 cancar types. Exp•nsion of th charity'8 outyuts to prowde morn research and dis88SO swfic infom181ion. Retuming to work after troatment for SGCS can be dfficutt. The long-temi physic81 effects of treatments can make slmple tasks at work. very challenging. We partnered wrth Bristol Myers Squibb and the Head and Neck ¢ommunrty to develop a Back-tovwork Guide,. a ¢0•eated resource designed to help people living with HNC get back to As the ntterest in genomics gathers momentum. have started work on educational material. n collaboration with Roch•. lo hhlIght tho bon•frts of tumour profiling to develop new, better and more ta eted treatments. The materials will
inform patiersts and also assist them in how to donate tumours to the national salivary gland cancer research pn)gramme at The Christs'e cancer centre. Materials are duo to be published li the first half of 2022. W8 continued to woduce our VKleo $8riès, releaSg recordings of the presentations at our hybnd meetings to ensure we reach as many people as possible. Additlonal Infornjation (optlonal) You ma choose to include lurther statements where relevant about: Achievements againsl objecllve8 80t Perfornianca of fundraising activities against obiedives Inve8tment perforniance against objectives 1.41 Other
Financial Review Review of th8 charit$ financial position 8t the end of the period Pm121 As at 31 Decembw 2021 the charity held cash balance of £39,922, the result of £13.314 in net receipts for the year. The tharlty received income of £27.832. the majonty being from donats'ons through varnus sources induding donation pl8ffom)s and personal 18gaciès, togeth8r with other income received from cnllaborations with other organi$8tion$. The thariws financial position will allow sufficient funding to 8upwI the initiatiV88 planned for 2022, &Trdude•J the charity's first research grant Statement explaining th8 policy for holding re8erve8 stating why they are hèld p 122 The cash balance is held in order to support the overall objectives of the charity. Cash is used to COV8r operating 8xpenses, dev8Sop the charity's pr•s•nco through mart•ting and fund 8pocrf•c patiorrtlclinician event8. Amount of reserves held Reason8 for hoksing zwo res•rv•s Details of fund materialty i) dar11 Explanation of any uncertainties about tho charrty continuing as a going Concern Par8 122 Pw•122 £39,922 in cash. Not applKablo P•v• 124 Not applicablg Pw*123 There arn no uncarta•)tio8 around the charitys abilty lo (xxrtinue as a going Additional infomiatlon {optlonal} You ma choose to indude further statsments where r818vant about.. Th8 ch8rW8 principal sourc8s of funds (includina any fundraising) Pln 1.47 Investment policy and obJeGtives including any social investment policy adopted IA6 A de8¢ription of the principal risks facing the tharty P# 1.46 Oth8r
Structure. Governance and Management Desuiptlon of charrtys trusts.. Type of goveming documont P¥a125 The chaiity 1$ gov8med by its Consttlution. How is the d)arity constituted? ' J unti10[Pora1~ Pwa 125 The charity is a CIO. ..rinL.aF7nn r. i Trust88 S818Ction melhods Including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trust88S Pva 125 Truste8s must be appThnted for a tenn of three years by o resolution passed at a properly convened m8eting of the charty trustees. en selecti)g trustees. the tharity tnjstees hav8 regard to the skills, knovAedge and oxperTence needed for thè •ffo¢tiv8 administration ofthe CIO. Addltlonal Infomiatlon {optl¢>nal) You ma choose to include further statemwts whor• rolovant about: Policie8 and procedures adopted for the induction and training oftrustèès p1.51 The charty's oryanisalional structure and any Wer network with which thè charity work6 Relationship with 8ny related P8rt183 Other Reference and Administrative details name Other name the cha uses Re istered cha number S81iva Gland C8nc8r UK 1182762
Charity's principal address Intemational House. 24 Holborn Vbaduc*. London, EC1A 2BN
Names of the charfty trustso8 who manage th• charity Dates •ct•d If not forwho ar TnMt¢e Mm• oiric• (tl any) Nam? of perdon lor body) entitted oint tru8tè• Iran The Board Emma Jane Kinloch Chair Dr Robert Metcaff Olorunkemi Fausat Akanke 018iya Shane Lisa Draper Trust88 Treasurer The Board The Board Chief Financial Officer The Board 10 12 13 14 15 16 17 18 19 orate trustees- nam08 of the direckns ai the date the re Dlrgctor namo wasa roved Name of trustees hoklirvJ trtle to property belong¥ig to the charity Trn%teg nam• Daw ad•tt If not for T*hol•
Funds held as custodian trustees on behalf of others Description of the assèts Not applicable hekl in this PaCty Name and obieds of the ch8rity on whose behalf the assets are held and hiyw this falls within the custodian charitws objects Not applubl8 Details of arrangements for safe custody and segregation of such assets from the charity's own assets Not appl&ibla Additlonal inforniatlon lopffjonal) Name8 and addro8898 of advl8ern (Optional Inforniatlon) Typ• of Nam• Address advl8er Nam• of chl•f gx•cutlv• or nam08 of 8enlor •taff membern lQptlonal Inforniatlon) Exemptions from disclosure Reason for non41i8cktsure of ke nnol delails Other o tional infonnation
Declarations The tru$tee8 declare that thgy have approved the trustees. report •bov•. Slgned on b•half of tho charlty's tru•te•s Slgnature(s) Full nam•(s) Position (•g Secrotary, Chalr. •te) Emma Jane Kinloch Shan8 Lisa Draper Chair Chief Financial Officer Dats
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